Monash Cystic Fibrosis Foundation | Non-profit organisation

Monash Cystic Fibrosis Foundation

Phone: +61 414 660 941

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25.01.2022 Coronavirus Update from Dr David Armstrong and Dr Chris Daley on behalf of the Monash CF Service at Monash Health and Monash Childrens Hospital.

22.01.2022 Does the sibling of a child with CF need to focus on their own wellbeing? Grants of up to $400 are available for siblings under 18 years old to try something ne...w that builds their social connections and wellbeing. Pony riding lessons and leadership camps have been successful applications so far. Call Janet on (03) 9686 1811 to discuss ideas for your child. See more

21.01.2022 Came across this...

21.01.2022 This week is DonateLife week, an excellent opportunity to discuss organ donation with your family and friends. Due to the impacts of COVID-19, organ donation an...d transplantation has slowed down significantly this year, and if youve considered organ donation in the past but havent registered as a donor, its more important than ever to do so. In 2019, 1,444 Australians received a lifesaving transplant due to the generosity of 548 deceased organ donors and their families. But not everybody who registers to be an organ donor can give the gift of life to others when they die. Only around 1,300 Australians about 2% of those who die in hospital each year can be considered for organ donation. By registering to be an organ donor, you have the chance to save lives. It only takes a minute and all you need is your Medicare card. To learn more about organ donation: https://donatelife.gov.au/

21.01.2022 While we hope we dont need it, Monash Health is preparing for an increase in patients needing treatment for COVID-19. Work is well underway installing six lar...ge fully-equipped resuscitation bays where patients can be ventilated, and if needed, prepared for transfer to the Intensive Care Unit. The additional expansion to Monash Medical Centres Emergency Department is part of the Victorian Governments COVID-19 emergency response strategy. Monash Health is grateful for a generous support of SPACECUBE the builders of the demountable units who have donated additional units for employee amenities we know our team will appreciate the additional space!

21.01.2022 Wanting a tax-deductible donation option for the fast approaching EOFY? Please dont forget to support the Monash CF Foundation. Donations can be made via https://shoutforgood.com/charities/MCFF .

19.01.2022 Read our latest Friends of Monash CF News...

19.01.2022 This weekend we celebrated our THIRD birthday! Patients made cards, drew wonderful pictures and our team got creative with cupcakes, party hats, decorations and... gifts. Check out the fun in the 9 News Melbourne report below. Thank you to all of our employees, patients and families for helping make it a special celebration during these difficult times.

19.01.2022 Cystic Fibrosis Community Care is working to keep everyone in our community safe during the COVID-19 (coronavirus) pandemic. We have compiled a list of up-to-da...te information and resources on our website for you to check out at https://cfcc.org.au/covid-19-coronavirus-resources/, depending on what questions you might have. This provides links to general information only. Keep an eye on this page as we will be continually updating it with more links as new information arises. For specific information about your personal health concerns, CF and COVID-19, please contact your CF clinic team. See more

17.01.2022 Medicines Australia is seeking Australias support and calls for calm by advising that there are no anticipated shortages of medicines as a result of COVID-19 a...nd no need to stock up with more than their usual supply of medicines. They welcomed todays announcement by the Government to ensure continued access to medicines by reinforcing limits on dispensing certain prescription medicines and other pharmaceutical products such as Ventolin and childrens Panadol to address unnecessary panic purchasing at community pharmacies. Under the new restrictions, pharmacists will be required to: limit dispensing of certain prescription products to one months supply at the prescribed dose, and some over-the-counter medicines (i.e. Ventolin) to a maximum of one unit per purchase. be strongly encouraged to limit dispensing of all other medicines to one months supply or one unit. place some over-the-counter medicines i.e. childrens paracetamol formulations behind the counter to assist in allocating supply equitably. They added that COVID-19 is an emerging situation and one we may be dealing with for some time. Prudent management of our medicines supply now will assist in the long-term maintenance of our supply chain. If you experience any issues please contact your CF Centre or CF organisation. We are happy to help to get things sorted.

16.01.2022 UPDATE 5PM 6 MARCH Please visit the Monash Health website for the latest testing criteria: https://monashhealth.org/coronavirus/ -... Not sure whether you need to be tested for COVID-19? Take a look at the Victorian Department of Health & Human Servicess helpful self-assessment guide.

16.01.2022 The COVID-19 outbreak is causing anxiety for many around the world, including children. As a parent it is important to reassure your child, dispel any myths and... help them feel informed about coronavirus, allowing them to focus more on positive messages. This report by SchoolTV is a helpful resource for parents navigating discussions.

13.01.2022 The coronavirus outbreak and being self-isolation can feel overwhelming. Staying physically well is essential, but it is just as important to take care of your ...mental wellbeing. If you are feeling stressed, anxious or low, there are resources available to help you. The Australian Department of Healths website Head to Health can help you find digital mental health services and supports from some of Australias most trusted mental health organisations. https://headtohealth.gov.au/covid-19-support/covid-19 A list of other services to help you and your loved ones during this time is available here: https://monashhealth.org/coronavirus/

13.01.2022 Not many sponsorship positions remain for this event. Please contact us now if you are interested in participating. General team ticketing sales will be open soon.

12.01.2022 Are you the parent or carer of a child who has CF returning to school post COVID-19 closure? If so, let your school and teachers know about this great online in...formation session being held for teachers. The Royal Childrens Hospital, Monash Childrens Hospital and CFCC have teamed up to talk to teachers about the medical and psychosocial implications of COVID-19 on students living with CF. There will also be opportunity for questions. Pass on the flyer at https://bit.ly/mchrchflyer and the link to register at https://bit.ly/rchmchcfcc to your teachers, so they can register and get all the facts! See more

10.01.2022 Were asking a lot of Victorians right now and I want to thank you all for your patience and willingness to get on board with these changes. I know people hav...e a lot of questions about what is and isnt allowed. Ill do my best to answer them. But the main point I want to make is this: The aim of Stage 3 restrictions is to limit the physical contact we have with each other. To slow the spread of coronavirus and to save lives. And it requires all of us to listen to the advice, follow the rules and use a bit of common sense. What we dont need is people looking for loopholes so they can keep doing whatever they want and carrying on as normal. If you dont absolutely have to go somewhere or see someone or buy something dont. Stay at home. Treat it as a matter of life or death. Because it is.

09.01.2022 Following the latest COVID-19 advice, we have made some restrictions to patient visitation at Monash Childrens Hospital. If you are unwell or showing symptoms... of COVID-19, please do not attend Monash Childrens Hospital. Protecting our patients and residents who can be vulnerable to infections is paramount. Thank you for your help in protecting our community.

08.01.2022 BOOK NOW for the annual MCFF Charity Golf Day... Due to COVID, the planned 2020 Monash CF Foundation Annual Charity Golf Day generously hosted by the Cheltenham Golf Club was postponed. Pleasingly it’s now back on the calendar and we hope you might consider supporting the Monash CF community by coming along for a fun and friendly charitable round of golf. Join our generous sponsors on Friday 19 March 2021 at 12 noon for lunch provided by the Cheltenham Golf Club Bistro. Then... at 1pm, with a shot gun start, your team competes in the 18 Hole Ambrose Competition. Only a few team places remain available so please be quick to avoid disappointment. For bookings or further details please email Felicity via [email protected]. Bookings close on 8 March. This event will be run in accordance with COVID safe protocols. Thank you for your continued support. See more

08.01.2022 Consumer Connect session next Wednesday 1/4/20 at 6pm. Staying physically and mentally healthy in a COVID Lockdowm. Not to be missed. Go to CFAs website to register.

08.01.2022 It is more important than ever to get a flu jab, particularly for vulnerable Australians. Please call ahead to make a time with your health professional. To check if you qualify for a free vaccination see: https://bit.ly/2wJJ6jL

07.01.2022 Helpful Q&A on staying at home... Keep Safe!!

05.01.2022 AN EVENING WITH EXPERTS Tonight, Tuesday 24 March at 6 pm, Professors Peter Wark, Adam Jaffe and Peter Middleton will lead a Consumer Connect Session about the ...coronavirus and cystic fibrosis. You can get your questions answered by three of the best clinicians in the country. Also, you will be able to hear from the CF Community first hand and join in the live discussion. Simply go to the CFA website at http://cysticfibrosis.org.au, click on the Consumer Connect box, and enter your email and password if you have signed up before. If not, sign up here. Click on the box with the COVID-19 session. Importantly, you will need to sign up for the session and submit any initial questions you may have at least one hour before at https://cfa.padlokt.com/consumer-connect, to ensure you get a spot.

05.01.2022 The Australian Government has released an official app with the information you need to know about #Coronavirus #COVID19. Search Coronavirus Australia in the Apple App Store and on Google Play or visit www.australia.gov.au

04.01.2022 Preparing for a different start to Term 2? If you have school-aged children, you are probably beginning to think about what Term 2 may bring. Learning remotely ...and school from home may be something you are preparing for. Our CFCC Scholarship Grants could assist in setting up your child to learn to the best of their potential, even when at home! Scholarship grants of up to $500 could be used for: Setting up learning spaces at home Buying new technology to assist with this transition (such as laptops, Chromebooks, iPads, headphones, cameras) Used towards paying for an online tutor to maintain engagement and motivation See terms and conditions and APPLY NOW: http://bit.ly/CFtutor If you would like to chat about what Term 2 might look like for you, or if you need any education support, contact our Education Support Coordinator by email at [email protected]

01.01.2022 If youre self-isolating, its important to take care of your mental health. Check out these 10 steps to help you during this time: headtohealth.gov.au/covid-19-support

01.01.2022 We spoke with some of our dedicated healthcare workers who are on the front line of the COVID-19 pandemic about how theyre feeling and what the community can d...o to help them during this challenging time. Brendan, Intensive Care Unit Nurse, Monash Medical Centre. Its worrying to see other countries as medically advanced as Australia really struggle with the virus. It will be a very challenging time especially at the growing rate for Australia. Its always a thought when caring for COVID-19 positive patients that you might risk of becoming one yourself. We have to treat this virus with extreme caution because we dont know exactly how much of an impact it can have on life as we know it. We arent asking for a lot, just stay home, stay safe and look after each other. Read more from our inspiring employees here: https://bit.ly/3dN9CJt