MPN Alliance Australia | Cause
MPN Alliance Australia
Reviews
to load big map
25.01.2022 We are excited to announce this inspiring live event for MPN patients! Participation is free of charge. Use this link for further details - https://www.leukaemia.org.au/eve/mpn-awareness-day-webinar/ Registration will be available soon.
25.01.2022 Read an article by Dr Megan Bywater and Dr Steven Lane discussing some very encouraging research about the prospect of a novel combination therapy for MPNs. https://rupress.org//A-knockout-combination-for-MPN-stem-c
24.01.2022 A large Danish study (2014) showed MPN pts have a higher risk of osteoporosis compared with matched controls. Something to be aware of and screen for. https://onlinelibrary.wiley.com/doi/full/10.1111/bjh.12581
24.01.2022 Dr Richard Silver explains how early interferon treatment in MF can slow progression.
22.01.2022 MPN AA supports the Australian Bone Marrow Donor Registry which is urging Australians to consider becoming a bone marrow donor. It’s a very simple process through its ‘Strength to Give’ campaign, and you may save a life! Please ask your family and friends to consider doing this. https://www.mpnallianceaustralia.org.au/swab-a-cheek-and-s/
22.01.2022 Interesting presentations
22.01.2022 Read about how to prepare for your haematology appointment. https://www.mpnallianceaustralia.org.au//prepare-for-your/
22.01.2022 Order a free MPN AA Wallet card to record your MPN information and keep it handy for taking to doctors' visits or emergencies. https://www.mpnallianceaustralia.org.au/resou/wallet-cards/
21.01.2022 Read some fascinating new research from Cambridge UK which shows that some JAK2+ MPN patients have a long latency period before very early genetic changes become clinical MPN disease. https://www.biorxiv.org/content/10.1101/2020.11.09.374710v1
20.01.2022 Read about a recent study into integrative medicine and MPNs. https://mpn-hub.com//use-of-integrative-medicine-may-corre
20.01.2022 To watch this event register using the link below (however it’s scheduled for 930am USA ET which is 1130pm 11/8/20 Australian Eastern time so a bit late for most people in Australia.)
17.01.2022 Research suggests that many persons acquire a JAK2 V617F mutation and live with this mutation for decades, and perhaps in many cases, lifelong, without ever developing disease. So why do certain individuals develop MPN when a JAK2 V617F mutation is acquired by a hematopoietic stem cell, while others do not? Read about this intriguing question. https://ashpublications.org//Clonal-Selection-of-Mutant-HS
16.01.2022 Depressive symptoms and MPN: understanding the confounding factor in a complex condition. Sept 2020 https://onlinelibrary.wiley.com/doi/10.1002/cam4.3380
15.01.2022 Research presented at ASH 2020 shows that MPN driver mutations can be acquired very early in life. https://mpn-hub.com//whole-genome-sequencing-shows-driver-
14.01.2022 If you were not able to join us yesterday for the inspiring and informative Australian MPN Awareness Day webinar, you can watch it here. We are so grateful to the Leukaemia Foundation for making this event possible. It was wonderful to work with their team to bring this event to patients and their families. https://www.mpnallianceaustralia.org.au/mpn-awareness-day-/
14.01.2022 Read the latest advice from ASH on managing COVID 19 risk and treatment for MPN patients. COVID-19 and Myeloproliferative Neoplasms: Frequently Asked Questions - https://www.hematology.org//covid-19-and-myeloproliferativ
14.01.2022 Register now for this inspiring Australian MPN Awareness Day webinar. The event is free of charge. Use this link to register - https://www.leukaemia.org.au/eve/mpn-awareness-day-webinar/
14.01.2022 Exciting new research to further explore the cellular origins and development of mutations giving rise to JAK2+ MPN, providing further evidence that mutations can develop decades prior to clinical presentation of MPN, and can arise from a single hematopoietic stem cell. https://www.biorxiv.org/content/10.1101/2020.08.24.265058v1
13.01.2022 Read some great tips on Managing Your Overall Health with MPN - presented by Nathalie Cook, Accredited Practicing Dietitian https://www.mpnallianceaustralia.org.au/liv/healthy-eating/
12.01.2022 Best wishes to all MPN patients and their families, and to all our colleagues and professionals working towards making life better for MPN patients.
09.01.2022 The timing isn’t great for those of us in Australia and NZ, but for anyone who is able to attend this free virtual 2 day MPN event, the program looks wonderful! You will need to hurry and register by 21 August. https://mayscc.eventsair.com/texasmpn/
09.01.2022 Dr Ruben Mesa, Executive Director, Mays Cancer Center, UT Health San Antonio, discusses how Ropeginterferon and Pegasys are slightly different molecules but are basically similar in effectiveness in treating MPN. https://www.youtube.com/watch?v=l2zm8ijFGoA&t=5635s
07.01.2022 Thanks to Ann Brazeau from MPN Advocacy and Education International in the US for making these great videos from the 6th Annual Women & MPN Webinar available to MPN patients and their families. https://mpnadvocacy.com/2020//6th-annual-women-mpn-webinar/
07.01.2022 https://www.leukaemia.org.au//online-blood-cancer-support/
