MS Get Involved in Blackburn, Victoria, Australia | Community organisation

MS Get Involved

Locality: Blackburn, Victoria, Australia

Phone: +61 1800 042 138

Address: 54 Railway Road 3130 Blackburn, VIC, Australia

Website: http://www.ms.org.au

Likes: 23580

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• Non-profit organisation
• Community organisation

25.01.2022 We have free and accessible webinars, on a range of different topics, so you can hear directly from the experts on ways to live well with MS. This week you can hear from an MS Nurse Advisor, MS Employment Support Consultants and Dr Phu Hoang on topics including symptom management and working with MS. Find out more and register below ... An Overview of MS symptoms and management strategies https://attendee.gotowebinar.com/regis/4725694788147261453 Working with MS https://attendee.gotowebinar.com/regis/5493631092516545040 Managing Spasticity in MS https://attendee.gotowebinar.com/regist/296594770276469005

23.01.2022 Luise, one of our MS Peer Support volunteers, describes in this video a practical way to look after your emotional and mental health - by talking to others. It is incredibly important at this time to continue our social connections, even in an online setting, so we know we are not alone and that there are others who are going through the same things. Peer Support doesn't have to be in a group setting either. We connect many people with similar interest of life experiences for 1:1 sessions over the phone so you can feel safe to talk in a confidential way. If this is something you would like to try contact us to find out more.

22.01.2022 Save the date! This time next week join us for a Facebook Live 'Talking to your employer about MS' with Liz Stenhouse, from our MS Employment Support Service and MS Ambassador Tim Ryan. Tim will share his personal experiences about disclosing his MS to his employers and what practical things have helped him along the way. If you are living with MS and working, or looking to find a job - you don't want to miss this. See our events page or find out more here ----> https://fb.me/e/1mKKaI1h9

21.01.2022 Nichole was just 19 when she was diagnosed with MS. When she reached her early 30s and the disease stole her blossoming career, our MS Peer Support service helped give her the strength to go on. MS Peer Support brings people who are living with MS together, to comfort, support and care for one another. It is the only service of its kind in Australia, and right now more and more people are turning to it. That’s why we are working hard to train 20 new Peer Support peers in the... weeks ahead, and why we need donations to help fight the epidemic of loneliness sweeping through the community. No one should be left alone to cope with multiple sclerosis during this difficult time. By donating, you are helping to provide this valuable support: https://bit.ly/2Gk1qEu

21.01.2022 Matt, one of our MS Peer Support Volunteers, gives us a tip on how to foster resilience and connection through COVID-19. If you want to meet and have a chat with others affected by MS - contact us on 1800 042 138 or [email protected]

20.01.2022 One of our ambassadors, Dr Lydia Osmers shared her story of what it has been like living in a nursing home during COVID-19 to SBS. "As a former doctor, I have found this pandemic to be fascinating and frustrating. And tragic, obviously. Super interesting medically. I wish that I was working and helping the community at this time. All I can do is watch this pandemic be managed by other people on TV. I feel frustrated that I can’t help in this battle. I loved being a doctor. I love helping people." Read the full article below

18.01.2022 To disclose or not to disclose. That is the question. Shift.ms have an eye opening short film framed in the light-hearted and the sometimes awkward setting of a 'team bonding' weekend away. Watch it below. If you have any questions about disclosure of your MS or would like some advice and support - you can contact us Monday - Friday, 8am - 6pm for a confidential discussion on 1800 042 138.

17.01.2022 Share your creativity and inspire others! Under the theme Celebrating resilience through art we are inviting the MS community, including carers and families of people living with MS to join us for a celebration of art and creativity the 2020 MS Virtual Art Show. People with other neurological conditions are also invited to participate. The MS Virtual Art Show will accept original art pieces in different formats paintings, illustrations, photography and cr...aft that somehow represent what resilience means to the artist. If you are keen to participate in the 2020 MS Virtual Art Show, you can register and enter your artwork any time from now until 6 October. Each artist can submit up to three pieces of artwork. Click here to register for our virtual art show. https://www.tfaforms.com/4850716

17.01.2022 The MS Virtual Art Show allows you to express your creativity, digitally to the world. Submissions are now open! If you are living with MS or another progressive neurological condition - we would love to see how you celebrate resilience through art. This may be through painting, sculpture, photography, illustration or crafts. This celebration of art is also open to family members and cares of people living with MS. Find out more or submit your art here www.ms.org.au/ms-art-show Submissions close October 6.

15.01.2022 Our organisation wishes to extend its condolences to the family and friends of cricket great Dean Jones, who passed away on Thursday, 24 September. Dean’s contribution to the MS community is much appreciated and will be always remembered. His energy and commitment to creating awareness about MS and to fundraise was infectious - he lead from the front with fundraisers like the 2013 Ashes Trek for which he was the official MS Ambassador. Dean will be missed, our thoughts are w...ith his family. Read our tribute here https://www.ms.org.au//news/6-october-2020-vale-dean-jones

14.01.2022 Here at MS Limited, there’s something we need to get off our chests. We need to tell each and every one of you who recently donated to our appeal for help people living with multiple sclerosis dealing with loneliness and isolation that we think YOU ARE INCREDIBLE. Because of you, we have now managed to raise $97,681 to help expand our MS Peer Support services and other life-enhancing programs. So we’ll now be able to offer comfort and companionship to more men, women and t...eenagers than ever before. Thank you, thank you and thank you againwe are truly grateful.

14.01.2022 Thank you Tim Ferguson for relieving the COVID-19 for a little while with your humour

12.01.2022 Ever wondered what MS looks like across the world? www.atlasofms.org is a worldwide study of the epidemiology of MS and the global availability of resources for people with MS. You can meet some of the global MS community in the video below. https://www.facebook.com/watch/?v=1432621603592706

11.01.2022 Please help us spread the word about this awesome adventure that helps to raise vital funds for those affected by MS. It is a once-in-a-lifetime opportunity to trek in one of Australia’s most breathtaking destinations, Tasmania’s Cradle Mountain National Park, from 26 October 2021. This stunning wilderness region features a huge diversity of flora and fauna; visit glacially carved lakes, ancient rainforests, fragrant eucalypt forests, golden buttongrass moorlands and beaut...iful alpine meadows over four days of trekking in the Tasmania Wilderness World Heritage Area. Share this to anyone you know who is up for an adventure and wants to help make a difference in the lives of people living with MS. All the info can be found here https://soulfulconcepts.com//trips/ms-cradle-mountain-trek/

08.01.2022 Here's a huge THANK YOU from Mark and Meg to everyone who has donated to help keep services like the MS Peer Support program available to those living with MS. Mark & Meg have both found support, friendship and the knowledge that they are not alone in living with MS from this service. Thank you. You can find out all the ways your donations help by reading the latest 'Impact Report' on our website here https://www.ms.org.au/get-inv/donate-make-a-difference.aspx... If you are living with MS and need someone to talk to or would like to know more about MS Peer Support please contact MS Connect on 1800 042 138 or email [email protected]

08.01.2022 Our virtual art show is now live! Members of the MS community have produced some amazing art pieces for our 2020 MS Virtual Art Show. Under the theme 'Celebrating Resilience through Art', the art show features illustration, painting, photography, sculptural and craftwork from 72 artists. Our virtual gallery closes on Sunday 18 Oct so check it out today. https://www.ms.org.au/2020-virtual-art-show.aspx

04.01.2022 Do you sometimes wish there was a way for your friends, family or colleagues to understand what it may be like to live with MS? Or maybe you want to empower yourself and find out more about multiple sclerosis from trusted sources. Well the University of Tasmania’s Menzies Institute for Medical Research have created a free six week online course that is making an impact all over the world. https://ms.mooc.utas.edu.au/ 'Understanding Multiple Sclerosis (MS)' has been ranked ...the best course in 2019 (out of 2,400 online courses) and is designed for people living with MS, their carers, support networks and healthcare providers, as well as anyone with an interest in learning about the disease. It provides information on the biology of MS and MS symptoms, risk factors, disease management, and lived experience through videos presented by academics, nurses and allied health professionals, and others living with MS. Enrollments into the course close in the next week or so - so register today if you want to be involved. https://ms.mooc.utas.edu.au/

04.01.2022 Embrace the end of the year with some positive activities to help lighten up your day Our upcoming wellbeing activities have been developed specifically for people living with MS and include a Healthy Cooking Class with @joeyvargetto, a Laughter Workshop that will put a smile on your face, and a Facebook Live Exercise class designed for all levels of mobility. We'd love you to take part and enjoy these sessions - you can register via the links below Healthy Cooking Cl...ass https://attendee.gotowebinar.com/regis/6057226460721220107 Laughter Workshop https://attendee.gotowebinar.com/regis/7280980703571110670 Facebook Live Exercise See our FB event link here https://fb.me/e/cKJKjbDPi or ...just head over to our page on December 18 at 12pm and we will see you there!

04.01.2022 Matthew is one of 25 MS Go for Gold Scholarship recipients this year and his dream is to not only expand his woodworking business but to utilise his woodworking craft to bond with his children. Woodworking fills a huge hole in my life. I can't kick a football in the park with my kids, however we can bond together through fun creative experiences in our workshop. Matthew experiences fatigue and spasticity in his hands, which can make the process of woodworking frustrating ...and exhausting. The MS Go for Gold Scholarship will help Matthew to purchase new tools to help make woodworking a more accessible process. I would love to gain a sense of pride of building projects such as a coffee table, chopping boards, drink coasters etc that I could not only display in my own home but also gift to friends and family and those who have made such a positive impact upon my life since my MS diagnosis. My woodwork allows me to feel like I am still able to contribute something. It also allows me to let my children see that just because my MS is trying to win the battle, I won’t give up and will continue to try to enjoy what I love. Congratulations Matthew and to all of this years' MS Go for Gold Scholarship recipients. You can read all the recipient stories on our website - see Linktree in our bio

04.01.2022 Four year old Daisy Duffy was one of 483 children across the ACT who participated in this year's readathon, raising a record-breaking total of $85,807 to support the families of more than 25,600 Aussies living with MS. Read about Daisy's amazing effort here! https://www.canberratimes.com.au//four-year-old-daisy-top/

03.01.2022 Everyone needs a break - and this year, even more so. Our MS Respite service offers people living with MS, and their carers, a break from the normal routine. We have a COVID safe plan in place and all our team are experienced, friendly and can help you with all aspects of your daily care. Ken who has experienced the MS Respite service in Watsonia, Victoria shares I’m pleasantly surprised about what’s been offered at the Respite. The way we have our rooms set up, the way ...that the carers cook the meals for us in the kitchenIt’s just very relaxed. You feel quite comfortable. If you need a break, contact us to find out more about booking in some short term accommodation over Summer. Call 1800 042 138 (Monday - Friday, 8am - 6pm) or email [email protected]

03.01.2022 Join us for our webinar series across October & November! Gain new knowledge, hear great tips and advice from health professionals and our MS team experts, and learn new strategies to live well with MS. Please see our webinar registration links below - see you there! Learn about Multiple Sclerosis - for Newly Diagnosed Webinar... https://attendee.gotowebinar.com/regis/2977584550411258381 Speech and Swallowing in Multiple Sclerosis Webinar https://attendee.gotowebinar.com/regis/1901084599529219599 Preventing Falls Webinar https://attendee.gotowebinar.com/regis/3903751573152533004 Sleep Well with Multiple Sclerosis https://attendee.gotowebinar.com/regis/8274709415979134731

01.01.2022 Jodi Haartsen and Natalie Francis have both recently joined MSL as executive managers, bringing a wealth of knowledge from extensive careers in the health sector. We asked Natalie and Jodi about their experiences with resilience and their views on how resilience relates to people living with MS. To read the full article click on the link below https://www.ms.org.au//5-august-2020-spotlight-on-msl-team

01.01.2022 Recently we spoke to Dr Amy-Lee Sesel, Psychologist and PhD graduate from the University of Sydney on pain management and resilience. Dr Sesel answered some important questions including: - What is pain management and what does it involve? - How does pharmacological pain management interfere with resilience? - What are some of the holistic things people can do in order to help build their own resilience whilst experiencing pain?... Read the full article below https://www.ms.org.au//5-august-2020-pain-management-and-r

01.01.2022 Meet Luke, who is a previous contributor and prize winner in the MS Art Show Luke describes his art experience by saying I find that the more you get into it the more you want to do it. Artwork explains, describes so much how you feel. You can express yourself in different ways and artwork allows you to do that. The first year that I participated in an exhibition here, I won first prize. And I didn’t expect to win. I mean I didn’t enter it to win, but it’s good to get that ...recognition from your peers and that kept me going." The MS Virtual Art Show is now open for submissions and closes October 6. This years theme is Celebrating resilience through art and there are prizes available. To find out more head to www.ms.org.au/ms-art-show