Muscular Dystrophy Australia in North Melbourne, Victoria | Disability service

Muscular Dystrophy Australia

Locality: North Melbourne, Victoria

Phone: +61 3 9320 9555

Address: 111 Boundary Rd 3051 North Melbourne, VIC, Australia

Website: http://www.mda.org.au

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• Non-profit organisation
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25.01.2022 Team TLS Orana Mall are excited to support National Superheros for another year and show our support in such a fun way https://www.mycause.com.au/events/superheroweek2020 #superheroweek #SHW2020 #Telstra Telstra

25.01.2022 Finally, some beautiful and happy news to share. There's nothing like a good love story Congratulations Brenton & Chrissie https://www.dailymail.co.uk//Brenton-Smith-Campbelltown-di #news #love #wedding

24.01.2022 A simpler, quicker and fairer disability parking permit process:

24.01.2022 Beautiful story that highlights the power of community and the good we can all bring around us https://www.examiner.com.au//how-meerkats-and-a-giraffe-h/

23.01.2022 Find out if you are eligible for free masks in Victoria: https://www.dhhs.vic.gov.au/information-people-disability-c #Coronavirus #COVID19 #freemasks

23.01.2022 R U OK Day is a great reminder to check in with the people you care about and show your support. Make it part of your everyday routine. Ask and listen #RUOK visit www.ruok.org.au

23.01.2022 These are not just any Christmas ornaments, Little Miracles are decorations with a difference. Every Little Miracle purchased helps fund a real miracle finding a cure for Muscular Dystrophy. From a hand-made toy to a keepsake with purpose, many hands and hearts go into bringing Little Miracles to life. Every Little Miracle has been inspired by a hand-crafted ornament, created by a child living with Muscular Dystrophy.... Engineers and students at Monash University have donated their time and turned Woodside Innovation Centre into Santa’s workshop. Using computer-aided design, the hand-made creations are turned into digital blueprints. The digital blueprints are turned into 3D-printed copies of each Little Miracle, ready to be packed and sent to homes all over Australia. https://www.mda.org.au/product/little-miracles/ #littlemiracles #christmas

22.01.2022 NDIS Plan Review is a 90 minute online workshop for parents and carers of children with disability. Wednesday 25 November. https://www.eventbrite.com.au/e/ndis-plan-review-online-wed

22.01.2022 Benjamin Duchenne, artist living with rare disease, releases debut track ‘I Don’t Mind’ https://weraveyou.com//benjamin-duchenne-artist-living-wi/

21.01.2022 The dates for National Superhero Week have just been announced, and look! Superheroes are already appearing everywhere! We are so looking forward to celebrating National Superhero Week with everyone. Registrations will open soon... #nationalsuperheroweek #superheroweek #SWH2020

21.01.2022 FREE upgrade from Single to Multi City has been extended until Wednesday, June 30th 11.59pm AEST! Entertainment book is also giving away a QLD holiday for two. Anyone who purchases a Single City Membership during this period automatically goes into the draw to WIN! With school holidays just around the corner, it’s the perfect time for families to enjoy the benefits of a Multi City Membership for the price of a Single City, wherever they go accessing benefits across 20 cities in Australia and New Zealand. Buy a book today and you will be into the draw to win as well as support MDA! https://au.entdigital.net/orderbooks/184y138

20.01.2022 Support William and others this October by dressing up as your favourite superhero to raise awareness and funds for Muscular Dystrophy Australia. Sign up here: https://www.mycause.com.au/events/superheroweek2020 https://www.mda.org.au//muscular-dystrophy-wont-stop-will/ #superheroweek #fundraising #musculardystrophy

20.01.2022 CYDA has an exciting PAID opportunity for young people with disability to join CYDA’s Youth Executive! What is the opportunity? Share your knowledge and lived experience! Get paid for your time ($35 an hour) Upskill in governance, co-design, media engagement and much more!... Contribute to and make CYDA's projects more accessible What are the commitments? Completely online role for 1 year Minimum of 5 hours per month, with some additional hours when required Who should apply? All young people with disability, including those with psychosocial disability and neurodiverse experiences We encourage expressions of interest from people of diverse backgrounds, including LGBTQIA+, First Nations, and CALD backgrounds, as well as people living in remote, rural, or regional areas. https://www.surveymonkey.com/r/YouthExecutive Applicants do not need formal experience in advocacy to apply! https://www.youtube.com/watch?v=oJP9FvOUqy0 See more

20.01.2022 Thank you for sharing

20.01.2022 Will you help us make the call that could change someone's life? https://mda-connecting-care-appeal.raisely.com/ #tax #taxappeal

19.01.2022 Some timely advice as we move into the summer heat. Emergency First Aid Heat Stroke Health Alert https://www.mda.org.au//emergency-first-aid-heat-stroke-h/

19.01.2022 Don't miss out on this fantastic offer for Mother's Day! Give mum the VIP treatment with Entertainment. Packed with thousands of valuable offers across dining, retail, attractions and travel, an Entertainment Membership is the gift she can enjoy all year round. Purchase by May 10th and Mum will also receive a $20 eGift Card Bonus and three months to activate her 12 month membership. https://au.entdigital.net/orderbooks/184y138

19.01.2022 Perth medical researchers Sue Fletcher and Steve Wilton have dedicated much of their working lives to creating a pioneering world-first treatment for a fatal childhood muscle-wasting disease. https://www.broomead.com.au//wa-researchers-sue-fletcher-a

18.01.2022 Due to changing government restrictions, Education MD21 has been postponed to a later date yet to be confirmed. We apologise for any inconvenience, and sincerely hope you will be able to join us on our rescheduled date. We would like to take this opportunity to let you know that our Client Services Team is available to visit schools on a one-on-one basis. Please contact us on 9320 9555 or email [email protected]

18.01.2022 Im turning 30 on the 12th September. September is a big month for me, not only do I celebrate my birthday but it is also World Duchenne Awareness Day (WDAD). Thanks for reading my story: https://www.mda.org.au//world-duchenne-awareness-day-2020/ #WDAD2020 #Duchenne

18.01.2022 Looking after yourself benefits the whole family. If you start to feel overwhelmed, talking about it early can help. Support is available over the phone and online: LifeLine 13 11 14... Beyond Blue 1300 22 4636 1800Respect 1800 737 732 Parentline 13 22 89 If you are concerned about what will happen if you get sick, or if your child needs to go to hospital, an Emergency care plan can help you put together all the information that others may need to know. https://www.carergateway.gov.au///emergency-care-plan.pdf

17.01.2022 YAY! National Superhero Hero Week 2020 is ready to enlist your help! Sign up today at: https://www.mycause.com.au/events/superheroweek2020 #nationalsuperheroweek #superheroweek #SHW2020

17.01.2022 Thank you to our wonderful volunteers who once again have knitted some beautiful warm blankets for our clients. Our Volunteer knitters make these rugs with love and attention to detail. Just what you need on a cold wintry day.

16.01.2022 We’re proud and delighted to welcome Thysol as our new sponsor! Thysol is match giving your donations for our Christmas Appeal https://www.thysol.com.au/ #sponsorship #ChristmasAppeal

16.01.2022 Registrations are now open for the inaugural National Youth Disability Summit. The summit is an opportunity for young people with a disability to come together to discuss their experiences and ask questions about what is important to them. The summit will take place online making it accessible to all youth no matter where they are. Over 5 days, the youth-led national summit will discuss key themes, including: education, employment, mental health, the NDIS and housing and incl...usion. https://www.cydayouth.events/register #CYDA See more

16.01.2022 Alex is now 17 years old and made his decoration when he was 11 in his grade five art classes at school. Alex lives with Spinal Muscular Atrophy Type II and was diagnosed when he was 16 months old. Alex loves playing with drones and watching aeroplanes land at Melbourne airport. He loves fishing calamari with his dad. Alex’s favourite band is 21 Pilots and he loves watching anything to do with planes on YouTube. What Alex loves most about Christmas is finding the presents under the tree early on Christmas morning. You can purchase Alex’s Super Dooper Santa here: https://www.mda.org.au/product/little-miracles/ #littlemiracles

15.01.2022 Saying Goodbye to Eye Strain, Thanks to Blue-light Glasses, by Leah Leilani. "My daytime hours are spent staring at screens as I chip away at work duties and scroll through various apps. By nightfall, my eyes are usually fatigued beyond relief from the blue light of the screens." https://musculardystrophynews.com//blue-light-glasses-eye/

15.01.2022 Why Its Important to Be Still Amid the Worlds Chaos, by Hawken Miller. https://musculardystrophynews.com/20//24/being-still-rest/

15.01.2022 A wonderful documentary, which uses the experience of Delilah, a Wright of Passage youth participant, to encourage other young people with a disability or life challenge to believe in their abilities and take a leap of courage towards living the life they want. Please vote for it, using the VOTE NOW button. People's Choice voting is open until Monday, 21 September 2020 https://www.focusonability.com.au/FOA/films/2163.html

14.01.2022 National Superhero Week 2020 proudly supported by PJ Masks. Sign up now! https://www.mycause.com.au/events/superheroweek2020 #PJMasks #superheroweek

14.01.2022 When will I see you again? Join us for another fun online Trivia Night on Friday 11 September. After the success of our last online trivia night, we wanted to offer another night to our fantastic community across Australia, because it has been an unprecedented year for everyone. Lets play online trivia together by staying apart! All funds raised will go towards the services MDA provide for families living with muscular dystrophy. With the help of platforms like Zoom, Skype a...nd Google Hangouts, you can connect with friends and family to compete with other individuals or teams. Fancy dress is optional! Ticket sales close Thursday 10th September at 3pm **Instructions on how to register your team, or join the Singles Night team, and log in on the evening will be sent from Tuesday 8th September, once you have purchased tickets. Sign up here: https://www.mda.org.au//when-will-i-see-you-again-online-/ #trivia #isofun #fundraising #musculardystrophy

13.01.2022 From 12-18 October, workplaces, schools and community groups will be donning capes, masks and boots as they hold fundraising events to support the important work of Muscular Dystrophy Australia. From hosting a superhero themed morning tea, virtual events, turning casual Friday into Superhero Day or sponsoring your boss to wear a superhero costume for the day, National Superhero Week aims to support those living with Muscular Dystrophy and their families and show them they are not alone. Sign up and start fundraising today! https://www.mycause.com.au/events/superheroweek2020 #superheroweek #nationalsuperheroweek #mdasuperhero

13.01.2022 Our precious Little Miracles are back! Check out our new online shop. A selection of custom designed Christmas Cards is also available. 2020 Christmas Card Pack of 10 with envelopes. 5 festive designs per pack. Customised MDA message inside card Proceeds from the sale of this card assist Muscular Dystrophy Inside Message May you have a wonderful Christmas and a Happy New Year *Designs may vary #christmas2020 #christmas #christmasgifts #littlemiracles https://www.mda.org.au/product/little-miracles/

12.01.2022 I am George Heard, 22 years old. I was diagnosed with Duchenne muscular dystrophy when I was 3 years old. I have four older sisters, two nephews and two nieces. Thanks for reading my story: https://www.mda.org.au//world-duchenne-awareness-day-2020/ #WDAD2020 #Duchennne

10.01.2022 FREE Webinar for residents from the municipalities of Buloke, Gannawarra, Loddon, Campaspe, Central Goldfields, Mount Alexander, Macedon Ranges and the City of Greater Bendigo. Exploring Community Opportunities. Webinar for North Central Victorian Residents Only. Monday, 30 November 2020 at 10.30 am to 12.30 pm (AEST) https://www.eventbrite.com.au/e/exploring-community-opportu

09.01.2022 Congratulations to The Children's Preschool who were the winners of the PJ Masks Meet and Greet. The Children's Preschool held a read-a-thon for SHW 'because all superheroes can read" and raised a staggering $2284 far surpassing their original target of $1000 We are ever so grateful for the generous sponsor of Entertainment One and PJ Masks this year. #PJMasks #superheroweek #itsmycause

09.01.2022 This is wonderful news The late Savant Thakur, a PhD candidate in the Department of Physiologys Centre for Muscle Research, has had some of this thesis research published in The Company of Biologists Ltds Biology Open. https://biomedicalsciences.unimelb.edu.au//uk-journal-publ

09.01.2022 We are delighted to have been awarded $10,000 by the Commbank Staff Foundation earlier this month. This grant will allow us to trial our Connecting Care program, establishing video support groups, information sessions and updates to meet up with our community across Australia. Read full article: https://www.mda.org.au//grant-to-mda-from-commbank-staff-/ Photo: Chris Fezzdogg Fairall 1990 2018 Commonwealth Bank #CharityDay

08.01.2022 Yale researchers identify possible treatment for Duchenne muscular dystrophy https://www.news-medical.net//Yale-researchers-identify-po #DMDresearch #research #DMD

08.01.2022 There were no definite signs that something was amiss. Myotonic Dystrophy can appear at any age and what makes so difficult to diagnose is that every person will show different symptoms and will consequently have a different journey. This is Neridas journey: https://www.mda.org.au//08/25/living-with-myotonic-dystro/ #Myotonic #Musculardystrophy Thank You Nerida for sharing your experience with us

08.01.2022 Great news! Two of our MD friends have now fully recovered from COVID19 and are now back at their Aged Care Facility. Special thank you also to the amazing medical teams that nursed and helped our friends back to good health. Also a big virtual hug to their caring families who were not able to be by their loved ones side, we fully understand the anxiousness that you and your family would have experienced.

08.01.2022 When will I see you again? Join us for another fun online Trivia Night on Friday 11 September. Ticket sales close Thursday 10th September at 3pm Don't miss you! Buy your tickets today at: https://www.mda.org.au//when-will-i-see-you-again-online-/ #trivia #isofun #fundraising #musculardystrophy

08.01.2022 "Always Was, Always Will Be

07.01.2022 A research team at Scope, Victoria, is testing a survey that explores the impact that services or supports have on children/young people (aged 0-14 years) with disability. The survey is designed to be completed by the carer of the child or young person. Scope is inviting carers of children/ young people (0-14 years of age) with disability across Australia to help them test the survey. Taking part involves the carer completing the survey online, which takes about 10 to 15 minutes. Participation is voluntary and anonymous. For more information and to take part in the research, carers can click on this link: https://www.surveymonkey.com/r/scopechildoutcomes

07.01.2022 Can you believe Muscular Dystrophy Australia’s raffle draw #69 to win a 2020 Harley-Davidson Fat Bob ends in 3 weeks? Tickets are only $10 each, and on sale until December 15th, unless sold out, the prize will be drawn Thursday December 17th. https://www.mda.org.au/product/harley-davidson-raffle/ #raffle #harleydavidson

07.01.2022 Word Duchenne Awareness Day - Monday 7th September. Join us. https://www.youtube.com/watch #WDAD2020

06.01.2022 Muscular Dystrophy is proud to join World Duchenne Awareness Day - 7 September 2020. Together we are stronger. Share your stories #WDAD2020

06.01.2022 'If 2020 hasn’t been a challenging year for you, that’s great news. But for me, like many others, this year has been a lesson in overcoming adversity, whether it’s due to sheltering in place from COVID-19, losing a job, or facing a mental health crisis. It feels like the weight of the world finally caught up with me and put me in a funk, sapping my motivation and making me apathetic to my future,' by Hawken Miller https://musculardystrophynews.com//11/09/ending-my-2020-f/

05.01.2022 Will your school help us raise awareness for Muscular Dystrophy this year? Join us at: https://www.mycause.com.au/ev/nationalsuperheroweek-schools https://www.themorningbulletin.com.au//students-/4096644/|31cd5a57527d6c66baa7dca6a2a3b5f7 #superheroweek

05.01.2022 The link to Ryan Adam Struk's service: http://tobin.5stream.com/webcast/60398

05.01.2022 Don't forget to RSVP by Monday 20th June to attend our Myotonic Social Luncheon on 22 June!

05.01.2022 Children and Young People with Disability Australia (CYDA) is a national organisation to advance the aspirations, rights, issues for children and young people with disability in Australia. Have your say in CYDAs new Strategic Plan https://www.mda.org.au//have-your-say-in-cydas-new-strate/

04.01.2022 What about winning a Harley? Tickets are only $10 and you’ll be supporting a great cause. https://www.mda.org.au/product/harley-davidson-raffle/ #harleydavidson #raffle

04.01.2022 National Superhero Week is on 12-19 October. This year we have enlisted some very special superheroes. Registrations will open soon. Watch this space! #superheroweek #SHW2020 #nationalsuperheroweek

04.01.2022 Will you make a donation this Christmas and offer the gift of hope? Your gift will mean hope for a cure, hope for better, and more effective treatments and hope for future generations. https://www.mda.org.au//will-you-give-the-gift-of-hope-th/ #christmas2020 #ChristmasAppeal

04.01.2022 A special message to kids. We want to hear from you! Do you have questions about COVID-19? We invite you and your friends to a Kids COVID-19 Q&A on Thursday 17 September at 3.30 4.15pm AEST.... Award-winning childrens author Kim Kane will host a Q&A with MCRIs world-leading researchers, who will answer your questions, ranging from, Whats more important a vaccine or a cure? to Coronavirus makes me feel anxious what can I do about that? Send in your questions when registering or email questions to [email protected]. You can also ask questions on the day. Ask your mum, dad or carer to click on this link to register: https://mcri.zoom.us/we/register/WN_EtLEpNHIQhKnPI9jJgYwwA #MCRI #COVID19

04.01.2022 Thank you to the wonderful folk at THYSOL Australia who are matching your donations for our Christmas Appeal made via their website https://www.thysol.com.au/ THYSOL Australia is a leading supplier, wholesaler and educational leader of kinesiology tape and fascia release products. With an ecological footprint in mind during its production process, THYSOL provides the Australian community with easy access to methods and products which promote optimal health and increase mobility. We’re proud and delighted to welcome Thysol as our partner for this campaign. Thysol is match giving your donations for our Christmas Appeal https://www.thysol.com.au/ #sponsorship #ChristmasAppeal #thysol #taping #kinesiology #kinesiologytape #kinesiologytaping #medicaltaping #physiotherapy

04.01.2022 Thank you to everyone at Camberwell High School, who have been raising money for National Superhero Week every year, since 2015! You too can support National superhero week by signing up at: https://www.mycause.com.au/events/superheroweek2020 Check out Camberwell High's amazing achievement: https://give.everydayhero.com//camberwell-high-school-foot

04.01.2022 Happy Father's Day

03.01.2022 Losing My Ability to Walk Wont Stop Me by Hawken Miller. https://musculardystrophynews.com//losing-ability-walk-wo/

03.01.2022 While we hope none of our community in Victoria are having symptoms of Coronavirus, we are grateful the government has established this in-home testing opportunity for vulnerable Victorians in metropolitan Melbourne to help slow the spread of coronavirus (COVID-19). https://www.dhhs.vic.gov.au/call-to-test-covid-19 #Coronavirus

03.01.2022 The Disability Sport and Recreation Hub in partnership with 6 other sporting organisations offers you the Free Disability Sport at Home series. The sessions will be offered via Zoom. Find out more: https://www.mda.org.au//online-disability-sport-and-recre/ #DisabilitySport #VicHealth

03.01.2022 Jessica is now 16 years old and made her decoration when she was eight, during her school art class. Jessica is living with a rare form of Muscular Dystrophy called alpha-dystroglycanopathyalled, which she was diagnosed with when she was just two years old. Jessica’s favourite food is still spaghetti. Her favourite song in Justin Timberlake’s ‘sunshine in my pocket’ and she still loves The Wiggles too. Jessica is a very happy girl who is always smiling, loves meeting new peop...le and is happiest when she is dancing. Jessica’s favourite thing about Christmas is all the parties she attends, as it is where she gets to see everyone. When she was nine years old, on Christmas Eve, Jessica walked on her own for the first time and her family remembers this as the best Christmas gift of all. Purchase Jessica's Window Wonder Tree here: https://www.mda.org.au/product/little-miracles/ #littlemiracles #Christmas See more

03.01.2022 What an amazing fundraising effort! Our heartfelt thanks to everyone who participated

01.01.2022 The current suite of Exemptions to the Disability Standards for Accessible Public Transport (DSAPT) that were granted to the Australasian Railway Association (ARA) by the Australian Human Rights Commission (AHRC) will expire soon. The ARA have lodged a new application for Exemptions check the following link: https://humanrights.gov.au//exemption-application-australi The application is 91 pages, but the Executive Summary (about 1 page) and the Background (also about 1 pag...e) at the beginning will give you a good idea of what its all about. The AHRC are seeking comments, please give it some thought. Special thanks to the new National Inclusive Transport Advocacy Network (NITAN) for staying on top of these things. Check the NITAN website at https://www.afdo.org.au/nitan/ or look them up on Facebook and Twitter. #NITAN #disability #inclusivity

01.01.2022 Happy Mother's Day to all mothers everywhere, for everything you do!

01.01.2022 You can still enter the raffle for a chance to win a Harley-Davidson 114 Fat Bob until 15 December, 2020 (unless sold out) don’t delay! Visit https://www.mda.org.au/product/harley-davidson-raffle/ #harleydavidson #raffle