Muscular Dystrophy WA in Nedlands, Western Australia | Non-profit organisation

Muscular Dystrophy WA

Locality: Nedlands, Western Australia

Phone: +61 8 9380 3400

Address: Suite B The Niche 11 Aberdare Road 6009 Nedlands, WA, Australia

Website: http://www.mdwa.org.au

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25.01.2022 Pics from our recent Community Day are now on our website! Have a browse here http://ow.ly/xF0V50CGp4k & see if you can spot yourself

25.01.2022 International Dog Day calls for a shout out to all dog owners & their best friends. There's nothing quite like the unconditional love we get from these guys

25.01.2022 COMMUNITY: If you missed out on our last self-management education session, we're hosting a 2nd one on October 14. Email Sarah if you'd like to come along & learn how to self-manage your NDIS funding

24.01.2022 We hope everyone has a happy & fun festive season with loved ones

24.01.2022 If you're stuck on where to look for financial aid, our Support Hub website has a list of options which may cater to your needs And if you know of one that isn’t on there, let us know so we can add it Head to our Support Hub here http://ow.ly/FJ0150BANwt

24.01.2022 These awesome fundraisers are Defeating Dwelly for us today. They've continuously supported us over the years & we'll be at the sidelines supporting them today

23.01.2022 Feels good to be a back on the course at Dunsborough Lakes Golf Club thanks to Busselton Toyota. Ready for another stellar day of golf, raising funds & having a good ol' time

22.01.2022 It’s been a hot minute since we’ve done a blog for our website so we decided to get back on the bandwagon & wrote about all things Assistive Technology Check it out here http://ow.ly/TseZ50Bef6n

22.01.2022 Our MDWA reference group was a part of the clinical trial setup that identified that home sleep studies were the next step forward, so it's great to see the outcome making a difference! "Last night Joshua had an in home sleep study as part of research for the Telethon Kids Institute. This is to see if it is a success to have the study done at home instead of having to go to hospital. It was a huge success with Joshua and great for us too as we didn’t have to sleep on an uncomfortable chair at the hospital" - Michelle Jones, Joshua's mum

22.01.2022 As far as vollies go, we have best, so International Volunteer Day is the perfect time to say THANK YOU SO MUCH to all of the lovely humans who volunteer their time to help out in the office, at events, in our programs or on our board It's a well-known fact that the most successful charities are those who are lucky enough to have volunteers Word.

22.01.2022 Having a disability is no reason to be treated unfairly, harassed or excluded & there are laws in place that protect your rights. The Disability Discrimination Act 1992 protects you in different areas of life & is worth looking into if you've experienced, or are experiencing, discrimination. Head to The Loop website here http://ow.ly/Pj0C50Cw5AI to get more info on where you can find support.

21.01.2022 COMMUNITY: Our last Coffee Morning catchup for this year is on December 1 & we'd love to see you there! Come along to enjoy a cuppa or two RSVP to Sarah

21.01.2022 A huge supporter of us (& one of our fave restaurants) MUST Winebar, is sadly closing its doors after 19 years of serving up some of the best food & wine in town Russell Blaikie was not only the inaugural ambassador of our Truffles for Muscles auction event, generously providing signature truffle dishes that took event catering to the next level, he also donated the ultimate private dining experience in his Must Champagne Lounge for guests to bid on, which raised funds for our community over many years To Russell & the Must team: we cannot thank you enough for your kindness, support & generosity over the years it has been an absolute pleasure Be sure to book a meal you’ll never forget before they serve their last dish on December 19.

21.01.2022 Big thanks to Jem Wedding Planners for sending proceeds our way from their Wedding Dress Ball Perth event on October 31. Head to http://ow.ly/3Hr750BANre to grab a ticket

20.01.2022 Shoutout to the Western Australian Powerchair Football Association - WAPFA who were on 9 News Perth on Sunday night as the winners of Bankwest's Best in the West grant. Its an awesome sport to get involved in so reach out to these guys if youre keen to give it a go

20.01.2022 COMMUNITY: YASG it’s time to hit Fringe World Festival again & this time for the super sexy cabaret show, ‘Briefs: The Bite’ Pencil Thursday Feb 11 into your diaries because you don't wanna miss THIS Invites will be sent out soon (or you can email Sarah to RSVP right now )

20.01.2022 A massive shout out to Kailis Bros Leederville for hosting our annual Kailis Club event last Friday. We were joined by some of our amazing supporters to enjoy delicious food & wine, to raise much needed funds. It was incredible to be back doing what we love for the people we love

20.01.2022 Looking to self-manage your NDIS funds? Check out some online courses available thru WAIS to help you start. Self managing gives you choice & control over the services you buy, who helps you & where your allocated funding goes If you need more help, shoot Sarah an email! Otherwise you can find the course link here http://ow.ly/MQXw50Cw52p

19.01.2022 COMMUNITY: Attention Male Carers! Get your throwing arm ready for our next event on October 16. You'll be throwing axes at Lumber Punks before heading to Bright Tank Brewing Co Don't miss out & RSVP to Sarah by October 7!

19.01.2022 In July, state MD organisations conducted a survey to identify the impact of COVID-19 on people with NMCs, their families & carers. You can read the responses & outcomes in a report on The Loop website here http://ow.ly/hyDI50CFmXq

19.01.2022 BRB - today we're having our annual team building day at Myattsfield Vineyards We'll be learning how to disgorge sparkling (cos we already know how to drink it ) Thanks to the ever-awesome Josh & Rach for hosting us today - what an absolute treat

19.01.2022 Its been a hot minute since weve done a blog for our website so we decided to get back on the bandwagon & wrote about all things Assistive Technology Check it out here http://ow.ly/TseZ50Bef6n

19.01.2022 Looking to get your own place or to modify your current home? The Loop website has a whole section on housing which includes a guide on home mods, NDIS support & Commonwealth Rent Assistance It's full of helpful tidbits & stories on living independently shared by others with an NMC Check it out here http://ow.ly/Ny9I50C5IMk

19.01.2022 COMMUNITY: Do you have a Companion Card? If not, you need to know that it's a card for those who need a carer with them when they attend events & activities Present it when buying a ticket from participating businesses or venues & you get your carer's ticket for free! Perfect for Fringe Fest Find out if you're eligible here http://ow.ly/4jG350DlrsK

18.01.2022 It's Limb Girdle Muscular Dystrophy Awareness Day. It can begin at any stage of life & there are at least 15 different forms of it, meaning it's not always diagnosed quickly. That's one of the reasons we need to raise more awareness of this & other NMCs - that way everyone can get the advice & care they need as soon as possible

18.01.2022 Google Maps recently updated their app so we can now find places that are accessible - all you have to do is turn on the "Accessible Places" feature in settings! Pretty great huh? Check it out if you haven't already & high five for Google

18.01.2022 Giving ourselves a pat on the back today as its the UN International Day of Charity. Today recognizes the work of charitable organisations around the globe who contribute to more inclusive & resilient societies

18.01.2022 Congratulations Di Pinal (raffle ticket #53) on winning a GRAND IN YOUR HAND Thank you SO MUCH for supporting us & to everyone who bought a ticket for making our first raffle a success

18.01.2022 The Australian Clinical Trials Alliance (ACTA) selected the NMD project at Perth Children's Hospital as an example of great community involvement & created this video featuring Zy Phillips chatting about the importance of consumer involvement. This vid will now be part of all Community Involvement Training Watch it here http://ow.ly/Lptf50AOLWD

17.01.2022 It was great to get our Male Carers group back together last Friday at Lumber Punks. Safe to say it was an axe-cellent night Check out more pics from the event here http://ow.ly/lnnw50BZiC

17.01.2022 Were SO close to hitting our target for our Dwellingup 100 fundraising campaign & would love to get to the $20k, so if youre in a position to donate to one of our team members, please do http://ow.ly/TAsI50BAL8Q

17.01.2022 Thinking of buying a house? Summer Foundation & Summer Housing are running an online info session on Monday August 17 for NDIS participants to gain access to Specialist Disability Accommodation (SDA) funding Youll learn a heap of stuff on what SDA is, funding eligibility & access and current trends in the market Find out more info & register via this link http://ow.ly/N3Pc50AYc35

17.01.2022 Go Bailey What a legend - and thanks to Collector Zone Comics & Collectables too. $1,135.70 is a huge effort & what a fun way to raise some funds

17.01.2022 This week we were FINALLY able to host our Toyota Golf Classic (thanks COVID)! Fast forward 6 months & we're so thankful to everyone who played & supported us on Tuesday. Extra big thanks to Toyota WA for generously supporting this event year after year

17.01.2022 Great little video of the Telethon Kids Institute 30th Anniversary Exhibition featuring our very own Ari & Ashton https://youtu.be/TnUYv_Y6Quo

16.01.2022 COMMUNITY: Hey YASG crew it's time to get together & head to The Camfield on December 8 for some dinner & banter! RSVP to Sarah by December 1 to come along

16.01.2022 A massive congrats to Murdoch University Research Officer Kristin Ham for being joint winner of the City of Perth Aspire Award. The award is given to an individual representing an NFP in several areas & can be used to assist their personal & professional development. Kristins research focusses on rare diseases such as MD & her dedication to helping our community also goes as far as regularly fundraising for us through events such as Dwellingup 100. She is brains, beauty & heart

16.01.2022 UNSUNG HERO: Mann, she's legendary! Let's hear it for Jodi Mann, everybody With more than 25 years at PMH/Perth Children’s Hospital under her belt in various roles, Jodi is the real deal. You may know her from her life-changing work as a Neuromuscular Clinical Nurse. Jodi provides direct clinical care to all patients who attend the clinic; coordinating all clinic bookings; & works closely with many other outpatient clinicians & specialists to ensure our community has the coordinated & holistic medical care they deserve. Jodi exemplifies dedication & outstanding patient care. Jodi, you're a star, & we're so grateful for you

15.01.2022 And we're out It's been a helluva year & we hope 2021 runs a lot smoother than this one. We're back in the office on Jan 5 so until then, take care & we can't wait to see your faces in the new year

15.01.2022 PSA: The Loop has officially launched their mobile app Just search 'The Loop Community' in the app store & hit download. Now you can access all that awesome info on the move

15.01.2022 Today is the start of NAIDOC week & we encourage everyone to participate in an activity to support local indigenous communities. Stuck for ideas on how to get involved? Check out the deets here http://ow.ly/4oy450C5IxX

15.01.2022 Our thoughts are with those who sacrificed their lives so we could be here today. There aren't enough words to express how thankful we are

14.01.2022 COMMUNITY: Only one week left to apply for our Empower Fund! Don't leave it to the last minute Apply here http://ow.ly/OL3W50AOKfd

14.01.2022 After 5 months of catching up via WebEx, the Hale Mates crew are getting back together today! AND new kid on the block, Jack, will be attending his first session Let's hope he can keep up with the boys

14.01.2022 Stuck on what to do with the kids these school holidays Grab yourself an Entertainment Book & get discounted tickets for a heap of fun activities. And the bonus? Part proceeds of your book purchase go to us Grab a copy through here http://ow.ly/asGc50BpB43

14.01.2022 This is Matt, our go-to photograper. You will have seen him hiding behind the camera at our events We love how he captures the beautiful moments & how he always makes time for us. Make sure you say hey to this legend next time you see him at one of our events (& hit him up if you need a good photographer)!

13.01.2022 Looking for friends with benefits this Valentines Day? Well, join our Friends With Benefits committed giving program for just $10 a week & aside from providing ongoing support to our community, you’ll also get a bottle of MyattsField wine, some pretty awesome discount vouchers for restaurants & a gift hamper along the way. What benefits could be better than that? Join now http://ow.ly/lL3h50DxnzF

13.01.2022 We'd like to say a big thank you to Jem Wedding Planners for choosing us as the charity for this year's Wedding Dress Ball Perth. They raised over $3,000 for us & we're so grateful for the effort they put into hosting such a great event

13.01.2022 COMMUNITY: Keen on swimming? Friendly Water is an aquatic exercise program developed for people with MD. It helps improve muscle strength, balance & cardio endurance. Best part of all: it's free for our community Find out more info here http://ow.ly/i8aP50BANsU

13.01.2022 SPONSOR SHOUT OUT: Taking a moment to recognise SALT Property Group who donated 2 flights to us for our Kailis Club auction. These guys are incredibly generous & add so much value to the night, helping to make the event a complete success. Where would we be without you

13.01.2022 Please vote for Bec - she's a total superstar & deserves this

13.01.2022 UNSUNG HERO: Let's give it up for Louise Storey! She's technically an admin volunteer but in reality, she's WAY more than that. She's always ready to help, with the biggest smile on her face And she gives up her spare time for all sorts, not just coming into the office once a week. There's nothing she can't do & we thank you Lou, from the hearts of our bottoms

13.01.2022 SPONSOR SHOUT OUT: Just In Time Gourmet never fail to provide us with a hamper (or three) & goodie bags filled with delicious treats for a lot of our fundraising events. We appreciate their generosity SO much (even if our waistlines don't ). Here's a thought - pay back the love by making one of their hampers a gift this Chrissy. You can see all the goods on their website - http://ow.ly/EyjF50Cw6yJ

12.01.2022 Did you know? We support around 800 families in WA. One thing we help with is counselling helping individuals & their families through all stages of diagnosis & beyond.Thanks to all of our supporters for helping us make this happen

12.01.2022 It is with much disappointment that we announce the annual Carols at Scarborough planned for Sunday December 13 has been cancelled due to stricter requirements because of COVID. As some of you may know, we’ve been the event charity partner since 2017 & it breaks our hearts knowing that it can’t go ahead. We can assure you that it will be back better than ever next year We’re currently working with Scarborough Beach Association to find a suitable event for us to ring in the festive season so WATCH THIS SPACE

12.01.2022 COMMUNITY: All NDIS participants & carers aged 16 years & above are now eligible to receive the COVID-19 vaccine as of today! Find out more here https://bit.ly/2S9b6YP

12.01.2022 We're so excited to be the chosen charity for this year's Wedding Dress Ball Perth If you're looking for a reason to wear your wedding dress or suit again, this is it. Grab your tix from http://ow.ly/lPgl50B9f2K

12.01.2022 COMMUNITY: We're heading south to Bunbury on October 27 for a casual lunch with our south-west NMC community. If this is your hood, shoot Sarah an email before October 20 so you can come join in

12.01.2022 It is with great love & gratitude that we present Rick & Ruth Steven with Honorary Life Membership They have tirelessly supported MDWA’s efforts over the last 14 years by raising awareness of SMA, as well as more than $500,000. Their association began with us in 2007 after their son Spencer was sadly taken from them due to SMA1 & they started Team Spencer in his honour. The money they have raised has gone towards critical items including the purchase of cough assist machi...nes & sending community members to an interstate SMA conference. In April 2012 the first TEAM Spencer Scholarship for SMA Research was granted, which funded 3 PhD student scholarships. It has also funded the NMC nurse at PCH to allow Spinraza to be administered to at least 12 young patients at a time when this would otherwise not have been possible & has literally saved lives. Rick & Ruth are such humble & giving people & we are so lucky to have an ongoing association with them & officially welcome them to our MDWA Honorary Life Member family

11.01.2022 COMMUNITY: Some beautiful flowers are being generously donated to us by a newly married couple & they'll be available for collection from our office after 12pm this Monday (26th) There's only 10 bunches up for grabs so first in best dressed! Shoot Mel an email if you'd like to get your hands on one

11.01.2022 You would’ve heard of Containers for Change by now but you probs didn’t know that we’re one of the charities you can donate to! All you have to do is: Gather all eligible containers you collect over Chrissy & New Years (& afterwards) Take them to your local depot Choose us as your charity of choice to donate to by using our Scheme ID: C10359862 There are heaps of depots located around Perth - find out where they are here: http://ow.ly/9pcO50CLxSU

11.01.2022 It's a sad day for us as we say bye for now to our Vice President of the Board, Brendan Murphy He’s made some remarkable contributions since he started in 2014 (we’d love to list them all but we'd be here all day ) His connection to us is super tight too as his brother Conor had MD and was one of our most well-known community members. Brendan has been one of our biggest champions & always has our backs He’s off to Utah for work but we are sure he’ll be back in the fold one day & we wish him & his family all the best for this big adventure

11.01.2022 This incredible artwork by the talented (& kind) Rory Charles was auctioned off for $11,000 at our recent Kailis Club event In Rorys words It depicts our creation of spirit, the Wandjina. The first Wandjina called Idjair lived in the Milky Way & his eldest son Wallungunder created the Earth & all life upon it. He then created the first human beings called the Gyorn Gyorn people. Other Wandjinas came & gave the Gyorn Gyorn people their culture, their language & laws to live by. Today if people listen & do what they are told then the Wandjina are happy & they will make sure the cyclone rains come each summer to renew the landscape so life upon it is abundant. Today three tribes of people are responsible for carrying on the Wandjina rock art traditions; they are the Worrorra, Ngarinyin & the Wunambul people of the Kimberley.

11.01.2022 NEW BOARD MEMBER #3: Abby Macnish Niven After finding out about MDWA through Em being a regular at her cafe, Abby brings with her a wealth of knowledge on all things finance. She & husband Chris own Engine Room Espresso and Standby & they have held a number of fundraisers for us. Abby decided to become even more involved after meeting some of our community & saw the positive impact we have. Were excited for the great things we can achieve with her on our team.

11.01.2022 If you're having a lazy Sunday like us, check out Different Lens on ABC iView. It's a 12-part short doco series by Carers WA & ScreenWest, focusing on what life is like for 13 West Aussies living with a disability & their contribution in various areas of the community. It's a WAYYY better watch than binging on Netflix

10.01.2022 Yes, yes, we know we're a bit late to the party... BUT if you love a good podcast, check out Listenable by Dylan Alcott & Angus O'Loughlin. Each episode intros a new person & all the awesome things they do despite the obstacles they face from having a disability. Find it on Podcast One

10.01.2022 Today is International Youth Day & this year focuses on Youth Engagement for Global Action. Shout out to the youth of our community & beyond who actively try to make the world a better place for everyone

10.01.2022 Today is the start of Becker Muscular Dystrophy Awareness week. It’s one of the more common forms & is often diagnosed during a person’s teenage years. There are over 30 types of MD & building awareness helps us get the support we need to provide important services to our community

10.01.2022 NEW BOARD MEMBER #2: Cara Philpott Cara joins our Board with a tonne of experience working in HR & Organisational Development. Her passion for inclusion, advocacy & the fact that her son Lucas has DMD are reasons why she was keen to join our Board. Caras family have been part of our community for several years & shes excited to be able to extend that support to others

10.01.2022 Have something you want to share with others living with an NMC? Head to The Loop & sign up to join in on some good chats, advice & stories from peeps from all over Oz Head to this link http://ow.ly/QrWN50BefMx

10.01.2022 With Chrissie around the corner, give the gift of discounted entertainment & food by grabbing someone an Entertainment Book It's valid for a whole year PLUS part proceeds of the book go to us Grab a copy here http://ow.ly/SY8450C5IY6

10.01.2022 It's your last chance to get tickets for our WIN A GRAND IN THE HAND raffle! Ticket sales closes 3pm tomorrow & you dont wanna miss out Get your tix now http://ow.ly/wLqn50AELMZ

10.01.2022 Sometimes it's hard to find the right words to express the loss of someone, so we're sharing the beautiful ones written by our CEO, Hayley. It's in honour of John Hollingshead, who played such an important part in MDWA's history and present. "Tonight a candle burns in memory of a beautiful gentleman who touched my heart and will forever inspire me to be a better person. Many may not know I belong to a Rotary Club. And after 5 years at my club, they are like family to me! We g...ather together weekly to give our time and efforts for others. And today we lost one of our greats, one of the worlds best. At 92 he passed gently into the world beyond, his beautiful wife by his side, and his family and friends forever heartbroken. Ive cried many tears today, and I too remain heartbroken! I never ever thought at 43 that Id meet an 87 year old, who would creep into my heart and inspire and guide me in so many ways! I have so much to say about this beautiful man and I honestly feel like Ive lost a grandparent! Someone who inspired me to always show up, to know my privilege and to ALWAYS do more for others less fortunate! I just loved catching up with him at breakfasts and so often Id visit him and Helen for cup of tea at their home. And Id spend hours sitting listening and absorbing his wonderful stories, and his strict instruction of how things should be! In 1971 he became the first employee of Muscular Dystrophy WA and in 1972 he became a Rotarian... yes the year I was born!!! He gave so much of himself to others. Im sharing this with you all because beautiful people should be celebrated and honored. John challenged me to do lots. He taught me that no one is ever too old to do new things, that I should be brave and push the limits. And I know this world is a better place because of him. John Hollingshead, I celebrate your life. You will live on in my heart forever - Hayley " See more

10.01.2022 Happy Father's Day to all the dad's in our community & beyond. It's only fitting we tell you a dad joke Why don't eggs tell jokes? They'd crack each other up You're welcome

10.01.2022 Head down to Craigie Leisure Centre this Sunday (Feb 21) from 9.30am to see Bailey Atkinson sell comics & collectables with all funds raised being donated to us Yet again, what an absolute legend!

10.01.2022 COMMUNITY: We loooooove coffee & chats (especially with you) so our next Coffee Morning is on Tuesday March 2 Email Sarah to RSVP

10.01.2022 If there's one thing you do today make sure it's to ask someone: R U Okay? Lending an ear & being there for someone can have a bigger impact than you might ever realise

09.01.2022 Giving ourselves a pat on the back today as it’s the UN International Day of Charity. Today recognizes the work of charitable organisations around the globe who contribute to more inclusive & resilient societies

09.01.2022 COMMUNITY: Ladies, it's time for some R&R. Female Carers please join us at the Relax, Recharge & Breathe Retreat at The Niche on September 5 RSVP to Sarah by August 24 to join in

09.01.2022 SUPPORTERS: Chrissy is only a few days away... how about a different way to show the love this year? If you choose to donate to our Christmas Appeal in lieu of buying a present it’ll be the gift that keeps on giving by not only giving you & your loved one that feel good feeling, but also putting a massive smile on the faces of people living with NMCs in WA BIG THANKS to everyone who has donated so far - we really appreciate you Donate today via this link - http://ow.ly/ht3050CNOZG

08.01.2022 The Scarboro Surf Life Saving Club & Starfish Nippers are back in Jan with their one-on-one program for children with special needs to participate in Surf Life Saving. Contact [email protected] for more info

08.01.2022 It's International Day of Friendship - which is what we are all about! We've seen so many blossom over the years & we really appreciate all of you & the good times we've had

07.01.2022 COMMUNITY: School camp is back on Sept 30 - Oct 2 & boy do we have some cool things planned! Register by August 21 so we can take the kids off your hands

07.01.2022 Remember that awesome Friends with Benefits program we launched in Feb? Here's some of those goodies youll get from our friends For just $10 a week youll get a bottle of wine & some pretty generous vouchers including food, movies & a trip to Rotto Join now via this link http://ow.ly/JQuZ50AOLoI

07.01.2022 COMMUNITY: We're mixing it up & hosting a FUN DAY for our school aged kids on January 20 Just like our school holiday program, the day will be filled with plenty of activities & loads of fun with friends! RSVP to Sarah by December 9

06.01.2022 We would've been at Carols today but dang COVID restrictions got in our way HOWEVER, you will find us shakin' our donation tins down at Scarborough Beach Sunset Markets from 5pm this Thursday (17th) so chuck it in the diary & come down to say hey - we'd love to see some familiar faces

06.01.2022 COMMUNITY: We're excited to announce our Empower Fund is now open for applications until August 31. This round is funded by the Conor Murphy Memorial Fund Scholarship which continues Conors legacy of achievement, independence & hard work. In his words: Happiness is all about goal setting; its about striving to achieve things which will give your life meaning & fulfillment & which will contribute to society. Apply here http://ow.ly/iBmy50AOKzq

06.01.2022 Meow! It's International Cat Day & we have a some proud cat parents amongst us! We just adore our fluffy & furry friends Home is not the same without you

06.01.2022 How incredible is this artwork painted by our kids at this year's camp?! The monsters are a representation of their own personal strength, superpower & personality. A huge thanks to PlayWorks for always inspiring our kids & setting up such fun activities - we love seeing them get creative Browse through our pics from camp here http://ow.ly/JpWn50C5I2B

06.01.2022 SPONSOR SHOUTOUT: Each year we're able to get our hands on some of the best truffles in town thanks to Al & his team at Manjimup Truffles. Their generous donation each year helps boost our fundraising & is one of the hot ticket items at our auction. We're so lucky to get good food from good friends

06.01.2022 Toot toot, chugga chugga... There’s nothing we love more than having fun unless it's seeing you guys have it Thanks to Toyota WA for yet again donating their suite at RAC Arena & to Purpose Ventures for buying it at auction & re-gifting it for our community to use! Click here to see more pictures of our community wiggling https://bit.ly/3co0VpS

05.01.2022 Wow - day 1 of camp was a total whirlwind! Today our campers are in for a day of painting, Nerf Gun battles & storytelling by the campfire There's big smiles all around

05.01.2022 Good luck to our fundraisers who are taking on the Ironman 70.3 in Busselton today! Cheering you on for your TRIumph over MD

04.01.2022 COMMUNITY: Finally! In the upcoming State general election, there’ll be 2 forms of Technology Assisted Voting available for casting your vote. Throughout pre-polling & on election day the 2 options are Vote Assist & Telephone Assisted Voting & they commence on Wednesday Feb 24. For more info, visit the WAEC Assisted Voting Guide - http://ow.ly/ncLb50DlrQA

04.01.2022 Heard of the Donation Dollar? It's a specially made $1 coin to encourage Aussies to give back to those who need it by donating to a registered charity or simply handing the coin to a person in need. If you come across one of these, remember to use it for its true purpose & pay it forward

04.01.2022 Go on... have a go

03.01.2022 COMMUNITY: 19 days to go until our annual Community Day & boy are we keen as mustard! You should've received your invite from Piper by now so please RSVP as we'd love to see you all there

03.01.2022 COMMUNITY: Although the festive season is a happy & joyous time to connect with family & friends for many people, often financial issues, family conflict & loneliness make it stressful & isolating for others. If this is how it feels for you, reach out to us for a chat or some counselling. We're here for you

02.01.2022 Shout out to Rebecca Evans for being appointed the new Exec Chair for Youth Disability Advocacy Network - YDAN the other week. She's a total go-getter & we couldn't think of a better person to take on this role

02.01.2022 We can't even begin to thank our community, sponsors, supporters, volunteers, board members AND team for banding together & making the most of this year! Happy New Year everyone

02.01.2022 SUPPORTERS: It’s Giving Tuesday so we can't think of a better reason to make a donation to our Christmas Appeal & show your support for someone living with an NMC You can donate today via this link - http://ow.ly/SxDn50Cw6f7

02.01.2022 We’re thrilled to see the work of Professors Sue Fletcher & Steve Wilton alongside Emeritus Prof. Byron Kakulas AO, founder of MDWA, showcased in the new WA Museum Boola Bardip. Prof. Fletcher & Wilton worked together in developing exon therapies for Duchenne MD (DMD) & pioneered antisense oligomer induced exon skipping to overcome the dystrophin gene mutation. Prof. Kakulas offered our first hope for a cure when he realised complete & total regeneration of skeletal muscle throughout the body was possible - a discovery he made in quokkas suffering full body paralysis. This was of huge significance to human muscle disease research, such as neuromuscular conditions. Their work has been life-changing for many & we hope having it displayed in a public forum will help to raise awareness of MD in the wider community

02.01.2022 Today's date references the 79 exons of the dystrophin gene - which is why it's World Duchenne Awareness Day. It's one of the most common forms of childhood MD & affects 1 in 3,500 live male births. Let's bring some more awareness around this condition by sharing

02.01.2022 There are a lot of special "Days" this week but this one is super important! International Day of People with Disability is the day to be reminded of the need to raise awareness, understanding & acceptance of people living with a disability. What better way to do this than by sharing Rebecca Evans’s story that is part of a series put together by Disability WA that’s running all week

02.01.2022 You won't find any of the MDWA team in the office today as we are celebrating at our end of year lunch! We promise not to Dilly Dally too much & will be back on our emails tomorrow

01.01.2022 Today marks the start of Carers Week. We'd be lost without all of the mums, dads, partners, siblings & strangers-turned-family who are by our community's side. Life wouldn't be the same without you, so THANK YOU

01.01.2022 Did you know? Around 15% of the global population live with some form of disability. Access to education & work opportunities can be an issue, which is why we strive to advocate for our community, supporting you in developing confidence & providing feedback to government bodies to help shape future services you might need.

01.01.2022 We’re baccckkkkkk! Well two of us are Give us a call or pop in to say hey if you’d like to chat!

01.01.2022 We’re SO close to hitting our target for our Dwellingup 100 fundraising campaign & would love to get to the $20k, so if you’re in a position to donate to one of our team members, please do http://ow.ly/TAsI50BAL8Q