Neuroblastoma Australia in Crows Nest, New South Wales, Australia | Non-profit organisation

Neuroblastoma Australia

Locality: Crows Nest, New South Wales, Australia

Address: Level 1, 441 Pacific Highway NSW 2065 Crows Nest, NSW, Australia

Website: http://www.neuroblastoma.org.au

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25.01.2022 We have a wonderful range of gifts ready to delight your loved ones this Christmas. Take a look through our online shop today: http://bit.ly/NBAOnlineShop

24.01.2022 LAST DAY OF OUR BASHFUL BUNNY SALE! Support September's Childhood Cancer Awareness Month by adopting one of our Jellycat plain bashful bunnies (medium size) for just $32 instead of RRP of $39.95. We have a range of colours available through our online charity shop AND 100% of the profits will go to Neuroblastoma Australia to help fund leading research projects to develop new, effective and kinder treatments for children with neuroblastoma. ... Check out our shop today: https://bit.ly/2S53wLa #Neuroblastoma #ChildhoodCancerAwarenessMonth #NeuroblastomaAustralia #2Little

24.01.2022 Thanks to everyone who completed our quick poll regarding the format of Run2Cure Neuroblastoma. We are delighted that our poll showed overwhelming support for us to run both our live event and virtual event Run2Cure Domain 2021 will be on 30th May in the Domain, Sydney and we will be running the virtual element Run2Cure Local that month too details to be confirmed Once again, thank you again for your incredible support in 2020.... Highlights from this year can be found here: https://bit.ly/Run2CureLocal2020 #Run2Cure #NeuroblastomaAustralia #Neuroblastoma #2Little

24.01.2022 Interesting to see the work St Jude is undertaking in the area of genomic analysis - the more information gained about this disease the more chance we have of getting better treatments https://www.stjude.org//researchers-mine-data-and-connect-

23.01.2022 We'd like to give a huge thank you to our friend Michael at Pure Running for his ongoing support. He kindly donated a prize pack for our July running challenge and he's been very busy selling these amazing charity caps - he's already donated $350 from the sales! Thanks so much Michael for your support!... Dusty Trails and Pure Running Charity Hats can be purchased here for $34.95: https://bit.ly/30VjRqt #Neuroblastoma #NeuroblastomaAustralia

23.01.2022 One of our 2021 fundraising goals is to raise $100k to fund a research project which was highly recommended by our Scientific Advisory Board. The research project looks at the role of mutations on chromosome 17 as 80% of neuroblastoma patients have this mutation. Research shows that these mutations may be linked to the increase of the MYNC gene which often makes neuroblastoma particularly hard to treat. Read more here about Dr Zsuzsanna Nagi and her work here: http://ow.ly/N...ikS50EItfn We are thrilled to say thanks to Golf2Cure, the members of Trek2Cure, our kind donators and Facebook fundraisers we have already reached $50k. If you would like to help us reach our goal of $100k, there are many ways you help and be involved: Run for us! Join our Run2Cure event this September Shop from our charity shop. 100% of each sale goes straight back to our charity. Adventure with us! Join our Trek2Cure in Tasmania this October Donate your birthday by setting up a Facebook Fundraiser Make a donation, or set up a regular monthly donation Help us create awareness. Like, Share, Comment, Engage. For all details, please visit 'Get Involved' on our website or comment on this post for further information. https://www.neuroblastoma.org.au/ Thank you for joining us on our journey to get a cure for neuroblastoma.

23.01.2022 If you are a parent of a child with Neuroblastoma and are interested in finding out about the latest research and getting some great insights into a number of other related areas, it’s definitely worth checking out the Neuroblastoma Parent conference being organised via Solving Kids Cancer (in Uk and US )and CNCF Hope (US) See link below to register.

23.01.2022 Support Lexy this November as she takes on a solo 100km run around Sydney's Centennial Parklands to raise awareness of and research funds for neuroblastoma childhood cancer. On Sunday 29 November Lexy will push herself to the limit as she takes on her personal ultramarathon of 100km. Take a moment to contribute to a world where ALL children diagnosed with this disease get the chance to grow up, free from the side effects of their treatment : https://www.neuroblastoma.org.a...u/Appeal/lexys-lockdown-loops THANK YOU! #Neuroblastoma #GoGold #septemberchildhoodcancerawarenessmonth #NeuroblastomaAustralia #Run2Cure

23.01.2022 Looking for a new adventure in 2021 ? Join us for our second Trek2Cure on a once-in-a-life expedition to Tasmania. Over 5 days, you will explore a variety of trails in the Cradle Mountain-Lake St Clair National Park and discover the beauty of the Tasmanian wilderness first-hand. You will be surrounded by stretches of temperate rainforest and open moorlands, witness jaw-dropping views and have the chance to encounter native wildlife. Not only will you have the opportunity to ...explore this spectacular landscape but you will be raising funds to support crucial research into a cure for the aggressive children’s cancer, neuroblastoma. Go solo or get some friends or work colleagues together and join us on Trek2Cure. Take advantage of the current special opening offer and save $100 - register here for more details... http://ow.ly/dBE350EKwuR

21.01.2022 Take a look at our online charity shop today! I00% of profits go to the charity Neuroblastoma Australia to help fund vital research. Use the discount code FREESHIP20 and you'll receive FREE standard shipping on your order of $100+... https://bit.ly/2TsOfEz

21.01.2022 We are delighted to let you know that Neuroblastoma Australia has been awarded a $150,000 grant (to be paid over three years) for research into childhood cancer by the Coopers Brewery Foundation’s Sustainable Giving Program. Survival rates for aggressive neuroblastoma are around 50% and more research is desperately needed to find better and safer treatments for the young children it affects. Clinical trials have demonstrated that current treatments can be made more effective ...using new combinations of drugs, but these combinations require further scientific evidence to be implemented. This grant means we will be able to fund promising pre-clinical research into more effective treatment options for this aggressive childhood cancer. Thank you to the Coopers Brewery Foundation for supporting our search for a cure. For more information regarding our research projects please visit us: https://bit.ly/2SNYSRV #Neuroblastoma #NeuroblastomaAustralia #2Little #ChildhoodCancerAwareness #coopersbrewery

20.01.2022 September is #childhoodcancerawarenessmonth and we invite all our supporters to #GoGold in support of the many families impacted by childhood cancer's such as neuroblastoma every year. Whether it's tying a gold ribbon to your bag, wearing a gold pin or updating your profile on Facebook for September with an awareness frame - please take time to stand up for children facing cancer this month. Thank you for your support.... For more ideas of how you can contribute to a world where all children who are diagnosed with cancer get the chance to grow up, free from the side effects of their treatment visit our September Childhood Cancer Awareness page: https://www.neuroblastoma.org.au//september-childhood-canc #2Little #GoGold #NeuroblastomaAustralia #Neuroblastoma #childhoodcancer #childhoodcancerawareness

20.01.2022 It's the last day of September's Childhood Cancer Awareness month and we would like to say a big thank you to everyone who has participated. Thank you to our runners, walkers, sponsors, families, friends and businesses from all over the world who took part in Run2Cure Local and helped raise an outstanding $161,473 in donations. Thank you to everyone who updated their profiles, wore a gold pin or donated in support of #GoGold for Childhood Cancer Awareness Month.... Thank you to Natalie, Tracey, the amazing families of the #44kmfor44kids who shared their stories and the supporters who raised an incredible $11,357 in support of our search for a cure for neuroblastoma. THANK YOU for standing up for children facing neuroblastoma childhood cancer and their families. http://bit.ly/Run2CureLocal2020 http://bit.ly/44kmfor44kids http://bit.ly/NBAGoGold2020 #ChildhoodCancerAwareness #ChildhoodCancerAwarenessMonth #2Little #GoGold #Run2Cure #NeuroblastomaAustralia #Neuroblastoma

19.01.2022 Help Lexy raise $1000! Lexy is running an incredible 100km through the night from 6 pm till the next morning for Neuroblastoma Australia! 'It’s a parent’s worst nightmare. Funding to support these families and research is desperately needed.' Lexy Wilson... Will you sponsor a kilometre by donating $10 to show your support for Lexy and the cause - getting better treatments to help children diagnosed with neuroblastoma? Donate today: https://bit.ly/2Ip2HLH #Neuroblastoma #NeuroblastomaAustralia #2Little

19.01.2022 If you're dining out in Sydney during October - look out for the 'Our Local Matters' jars at Grill'd Crows Nest. This month Neuroblastoma Australia is one of three local charities that will be supported. With every burger ordered, a Local Matters token is handed over for guests to drop into the jar of their choice.... At the end of the month $500 is split between the groups ($300 for 1st, $100 for 2nd and 3rd). 2020 has been a tough year for many community groups and this is a great initiative to lend some support. If you dine, please vote for us! #Neuroblastoma #NeuroblastomaAustralia

19.01.2022 Jellycat Peanut Penguin is new to our soft toy range and a big hit entering into the holiday season. Plus, 100% of the profits go to Neuroblastoma Australia, helping fund leading research projects into neuroblastoma childhood cancer. We have expanded our range of baby and toddler toys for Christmas so do visit our on-line store https://shop.neuroblastoma.org.au

19.01.2022 This Christmas, consider giving a gift to a child battling cancer. Thanks to our generous supporters we have been making deliveries to our neuroblastoma families and two Sydney Hospitals. We are delighted to report that our activity packs have been very well received by the children and their families who are undergoing cancer treatment at Sydney's Children Hospital Randwick and Westmead. ... 'Recently it has been very fast paced and child life therapy and resources are in high demand - by having the NB bags available has really helped!!' You can make a difference from as little as $59 for a pack for a child today: https://bit.ly/2U7ZAKy #Neuroblastoma #NeuroblastomaAustralia #2little

18.01.2022 It’s disheartening to read that the Women’s and Children’s Hospital in Adelaide is struggling to provide enough dedicated beds and specialist nurses for families affected by childhood cancer. We hope the group letter signed by 33 SA families will highlight the urgent need to the Government to invest more funds into providing the necessary support for families. Thank you for sharing Chantelle and Monique . https://indaily.com.au//lack-of-wch-oncology-services-now/

17.01.2022 We are incredibly proud of being able to provide $125,000 in funding for this promising research project under the leadership of Dr Jamie Fletcher of the Children's Cancer Institute. Thank you to our generous supporters and the Coopers Foundation for making this possible. #Neuroblastoma #2Little #NeuroblastomaAustralia

16.01.2022 Many people around the world are choosing to celebrate their special occasion by supporting social good rather than receiving gifts. With this in mind we have updated our website with helpful tools, fundraising ideas and even a page where you can set up your very own fundraising page whether it’s for a fun run, hair cut or just because. http://bit.ly/SetUpAFundraisingPage... http://bit.ly/HowYouCanHelpNBA Facebook also has a great fundraising option - simply click the + sign to the right of your profile picture or find Fundraisers on the left side of your page below your profile picture. Simply choose Neuroblastoma Australia Inc as your charity. We are seeing more and more people use this for special occasions such as birthdays. If you are considering making a difference this year by supporting our small children's cancer charity we would love to help, so please contact us at [email protected] Thank you for your support! #Neuroblastoma #2Little #NeuroblastomaAustralia

15.01.2022 I was excited to be part of the press conference about this new paediatric clinical trial which will open this year ! The first trial will test CBL0137 and then hopefully a combination trial with pabinostat will take place . The great news is that CBL0137 has shown promising results, has low toxicity and also triggers an immune response. We are hoping by combining it with pabinostat that it will become even more effective. Neuroblastoma Australia has been supporting the pre-clinical work behind this clinical trial since 2014, providing over $500k thanks to our supporters. It’s great to see it now move into phase 1 trial and shows how important it is to support the best pre-clinical research. Lucy

15.01.2022 Isabel's best friend Violet has neuroblastoma childhood cancer. At only 11, Violet has already bravely battled this disease for 5 years. Isabel has watched Violet’s journey close up and wants to help other kids with neuroblastoma, so they don’t have to go through the harsh treatments that Violet has. Isabel is cutting off her lovely long hair to raise funds for research into a cure. ... Please take a moment to support Isabel today: https://bit.ly/2HxunOc #Neuroblastoma #NeuroblastomaAustralia #2Little

14.01.2022 Thinking about shopping? If you shop through Shopnate (via your mobile or computer) you can access bargains AND support Neuroblastoma Australia with each purchase! How it works: Follow the link below, register with Shopnate, choose Neuroblastoma Australia as the charity, then browse the online retailers (such as eBay, Menulog, ASOS, Bonds, Petbarn, Catch, Kogan, Ticketmaster, Hello Fresh or Catch). ... If you make a purchase a small percentage (usually around 1 to 2.5% ) of your order gets donated to the charity you support. It all adds up and every bit counts. Join in today and help our charity whilst you shop: https://bit.ly/3kQFbVqhttps #Neuroblastoma #NeuroblastomaAustralia

14.01.2022 Run2Cure Domain will be starting at Fleet Steps this year in the Domain on Saturday 4th September - there are no better views in Sydney! This is the view this morning from the venue . If you want to come and run and help us find a cure for neuroblastoma childhood cancer , remember to sign up today to get 33% off. 1k, 3k, 5k, 10k or our new 21.1k!! www.run2cure.org.au

13.01.2022 Time is running out! Our Run2Cure 33% off Opening Offer finishes tomorrow, Friday! Sign up today and join us for our iconic fun run at the Domain, Sydney on September 4th to help raise vital funds for neuroblastoma childhood cancer research. Distances include 3k, 5k, 10k, our new half marathon distance plus our Little Heroes 1k family walk. Go the distance for the kids and help us raise vital funds for research into neuroblastoma . ... Run2Cure has raised over $1 million to date for research thanks to all the supporters in the community ! Thank you for joining us on our journey to a cure. Sign up here: http://ow.ly/PWr050EKw4i

12.01.2022 Remember to register for the International Neuroblastoma Symposium if you are a parent or carer and want to find out the latest on research taking place in the world https://www.nbparentsymposium.com/ There are some specific Australian sessions taking place on Friday from 5 pm - see below and don't forget the Q and A session (Sunday 06.45 am AEST) where you can post questions via zoom.

12.01.2022 Our incredible Run2Cure Neuroblastoma Super Supporters have continued to go from strength to strength throughout September's Childhood Cancer Awareness Month. Run2Cure WA (Team Max!) are within sight of their goal of $30,000 at $29,215 and Emma Van Meurs of Roy's Runners has accrued an amazing $7,220. All our Run2Cure GoFundraise pages will close next week. If you can support these incredible teams and individuals please do.... Visit our leader board to make a donation and help bring us closer to better treatments for kids battling neuroblastoma childhood cancer. Leader board: http://bit.ly/R2C_Leaders Run2Cure WA (Team Max!) : https://bit.ly/3cp6ALk Emma:https://bit.ly/2RSE4bz #Run2Cure #GoGold #NeuroblastomaAustralia #Neuroblastoma #childhoodcancerawarenessmonth #childhoodcancerawareness

12.01.2022 Noah's mum Jamie recounts having to return to Orange to deliver little Harry and having to leave Noah and his dad Phil in lockdown at Ronald McDonald House at The Children’s Hospital at Westmead as he battled neuroblastoma . It's interesting to note that in addition to chemotherapy, two stem cells transplants, surgery, radiation and Noah is also part of a pilot study to see if immunotherapy given at the beginning of treatment with chemotherapy, rather than at the end, is more helpful. http://bit.ly/NoahNewsStory

12.01.2022 I am very excited to announce that thanks to so many of you voting, I am a Westfield Local Hero and the charity will receive $10,000 to assist with our work to get better safer treatments for our children. Thank you very much for your support and helping us with our mission. Thanks also to Westfield Chatswood for supporting the community and deserving causes.

11.01.2022 What an incredible moment - here is Violet taking the scissor's to best friend Isobel's hair at school this week. 'From all of your friends at Bald Hills State School. We are proud of you both! Go Izzy and Violet ' The school community raised an incredible $1,296.90 on the day, bringing Isobel's fundraiser to $5,141! ... Thank you Isobel, Violet and your wonderful community for supporting the search for a cure to the children's cancer neuroblastoma. View the wonderful comments and add your support to Izzy's page here: https://bit.ly/3l8ggMP #Neuroblastoma #NeuroblastomaAustralia #2Little

10.01.2022 The Australian Government's Cancer Australia has released a new childhood cancer website containing a wide range of information and resources for families and health professionals. Here is the link: New Cancer Australia Children's Cancer site: https://bit.ly/3mOtLDy This article announcing the launch also includes a wonderful animation called Cancer Sucks which is from the perspective of a young boy facing a cancer diagnosis:... 9 news article: https://bit.ly/306M5hq #CancerAwareness #CancerAwarenessMonth #GoGold #Neuroblastoma #NeuroblastomaAustralia https://childrenscancer.canceraustralia.gov.au/

09.01.2022 A heartfelt letter which surely explains why more needs to be done to support childhood cancer families.

08.01.2022 There’s still time to support our 12 days of Christmas mini on line auction. Brand new Vuly trampoline still at a bargain price and includes delivery anywhere in Australia! All items are brand new. Auction finishes tonight at 11.45 pm Thanks for supporting! https://www.neuroblastoma.org.au//charity-12-days-of-chris

07.01.2022 Join us for Golf2Cure Neuroblastoma 2021 ! Early bird pricing will be available until 31 December $450 for two players including delicious egg and bacon rolls and coffee on arrival, round of golf (18 holes), lunch and a golf cart. $2,500 for a group of 12 including delicious egg and bacon rolls and coffee on arrival, round of golf (18 holes), lunch and golf carts. ... This year we will be playing at St Michael's Golf Club Jennifer Street, along the shores of Little Bay, about 13 km south of Sydney. The course is a testing par 72, which over the past 20 years has hosted the Australian P.G.A. and the N.S.W. Open. We will be organising raffles, silent and live auctions during the day to help raise funds for research into better, kinder treatments for the children's cancer neuroblastoma. Register today: http://bit.ly/Golf2Cure2021 #Neuroblastoma #NeuroblasomaAustralia #Golf2Cure

07.01.2022 If you are looking for a fun but meaningful day out next year for friends or work colleagues, join us at our second Golf2Cure event. It's taking place at the stunning St. Michael's course at Little Bay, Sydney on Friday 12th February. Buy now and save $100 off a team of four. Visit https://www.neuroblastoma.org.au/Event/golf2cure-2021 for more info or to buy your tickets.

07.01.2022 Massive thanks to Naomi and Hannes Holly and their supporters for taking part in Bulldust N Back to raise awareness and funds for Neuroblastoma Australia! Naomi also organised a host of other fundraising initiatives. Thanks so much for all your work ! If anyone watched the Telethon last week you might have spotted Hannes and Naomi’s daughter Nora who was one of the main stars of the night ! Thanks again.

06.01.2022 We'd like to say a big thank you to Warringah Golf Club management and patrons for generously donating $1650.00 to Neuroblastoma Australia. This is a wonderful show of support during September's Childhood Cancer Awareness Month. Once again, thank you for contributing to our mission to raise awareness of neuroblastoma, support families battling this disease and raise funding for research into better treatments for this childhood cancer. ... To find out more visit: http://bit.ly/our_impact #childhoodcancerawarenessmonth #childhoodcancerawareness #2Little #Neuroblastoma #NeuroblastoaAustrali

05.01.2022 The team at Neuroblastoma Australia is sad to say goodbye to Lyn this week- Lyn has been working with the charity for nearly 3 years and has managed all our communications and so much more ! Thank you Lyn for helping the charity so much and we will miss you !

05.01.2022 Join us for a fantastic day out for a great cause! Golf2Cure Neuroblastoma 2021 will be taking place on Friday 12th February 2021 at St. Michael's Golf Club, Little Bay. Early bird tickets are $450 for two players or $2,500 for 12 including delicious egg and bacon rolls and coffee on arrival, round of golf (18 holes), lunch and a golf cart. ... Reserve your place today: https://bit.ly/3lx2tAe #Neuroblastoma #NeuroblastomaAustralia #2Little #Golf2Cure

04.01.2022 Excellent news. The Medical Services Advisory Committee have agreed to joint funding by the Commonwealth and State territories of the Neuroblastoma anti-body treatment, Dinutuximab Beta (Qarziba) for high risk Neuroblastoma patients. This should lead to fairer and better access to this important treatment for children diagnosed with high risk Neuroblastoma. Our thanks to Dr Toby Trahair (SCH) for driving this forward and working with EUSA Pharma to get it to this stage. For full details visit : http://www.msac.gov.au//msac/publishin/Content/1625-public

04.01.2022 Tickets are selling fast for Golf2Cure on Friday 12th Feb 2021 at St Michael’s Golf Club, Little Bay. Catch our early bird pricing: $450 for two players including delicious egg and bacon rolls and coffee on arrival, round of golf (18 holes), lunch and a golf cart. Save $50!... $2,500 for a group of 12 including delicious egg and bacon rolls and coffee on arrival, round of golf (18 holes), lunch and golf carts. Save $250! Thank you for supporting our mission of funding research into a cure for the children's cancer neuroblastoma. Register today: https://bit.ly/3kzzhIR #Neuroblastoma #NeuroblastomaAustralia #2Little #Golf2Cure

03.01.2022 Our super soft Jellycat toys are ready to find their forever homes! Benji Koala and Bashful Cockatoo make fantastic presents for the special little ones in your life who love our native animals. Our range of Jellycat toys competitively priced AND 100% of profits will go to support Neuroblastoma Australia's mission of finding better, kinder and more effective treatments for the children's cancer neuroblastoma. ... Take a look through our online shop today: https://bit.ly/2FrZSIv #Jellycat #Neuroblastoma #NeuroblastomaAustralia

02.01.2022 Congratulations and thanks to the amazing Natalie and her super supportive son Jake for completing the Great Ocean Road Marathon today - Natalie had hoped to do the event last year and called it 44km for 44 kids to raise awareness of Neuroblastoma by highlighting the stories of 44 children affected by this disease. Undeterred by COVID19, she still did the distance last year but got the opportunity to do the actual course this year with Jake - rainbows appearing along her ...route. Natalie and Jake have now also raised an amazing $13000 for Neuroblastoma Australia. Natalie has increased her target to $14444 so if you would like to support her, please find the link below: https://www.neuroblastoma.org.au/appeal/natalieandjake To read about the 44 children Natalie ran for, please visit: https://www.neuroblastoma.org.au/List/Category/44kfor44kids Thank you again Natalie for being such an exceptional advocate of families affected by neuroblastoma See more

02.01.2022 Did you know we have partnered with Opinionate? Now, you can raise funds by simply answering commercial online surveys. You can take part when it suits you and we receive fundraising revenue for each survey you complete. Your opinions and identity remain anonymous throughout. Register to support us as an Opinion Donor here:... http://bit.ly/NBAOpinionate Thanks for your support ! #Neuroblastoma #NeurblastomaAustralia #DonateOpinions