Palliative Care Australia in Canberra, Australian Capital Territory | Community group

Palliative Care Australia

Locality: Canberra, Australian Capital Territory

Phone: +61 2 6232 0700

Address: 113 Canberra Avenue 2603 Canberra, ACT, Australia

Website: http://www.palliativecare.org.au

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25.01.2022 Good luck with your training, Ryan. We can't wait to see what you will accomplish this year with Rio's Legacy. Thank you for raising awareness on paediatric palliative care and for helping to build a fourth children's hospice in Australia.

24.01.2022 "The death of a child is thankfully rare, but it still affects more families than you might think. Approximately 6,000 people under the age of 24 die in the UK every year, leaving up to 50,000 newly bereaved parents, siblings and grandparents. One in every 200 babies is stillborn. And while we’re getting better at talking about death generally, the death of a child is still the last taboo.

22.01.2022 Thank you Palliative Care Queensland Inc. for organising this summit and inviting PCA to participate. Collaboration makes us all stronger!

22.01.2022 You might think, ‘Mum’s been in bed for two days. She might have a bad day every now and again, but two days is a bit strange, and she didn’t eat her dinner last night and she didn’t want her breakfast.’ These sorts of changes can be really telling that something is going on. PCA's National Clinical Advisor and Palliative Care Nurse Practitioner Kate Reed describes the signs we need to look for to know if someone's condition is deteriorating.

21.01.2022 Therapy dogs can provide comfort to people living with life-limiting illnesses. Could your dog become a therapy dog?

21.01.2022 Do you want to help us improve the delivery of quality palliative care for those who need it, when and where they need it? We have an exciting opportunity for a Quality Improvement Clinical Project Officer to join our organisation! Reporting to the National Policy Manager, the Quality Improvement Clinical Project Officer is responsible for providing quality improvement advice across the policy and program areas of PCA with particular focus on the Palliative Care Self-Assessme...nt (PaCSA) in relation to the National Palliative Care Standards (5th Ed.). The Quality Improvement Clinical Project Officer will work closely with the National Clinical Advisor and the Digital Communications Manager to support palliative care services across Australia to identify their continuous improvement needs and implement their activities. Apply today, or share with someone you know who would do a wonderful job :)

21.01.2022 Sometimes we just need someone to be there for us. Image credit Nathan W. Pyle

19.01.2022 Do you know an individual or team who provide exceptional support and care for people receiving palliative care? Here is your opportunity to give them the recognition they deserve by nominating them for the National Palliative Care Awards. PCA’s National Palliative Care Awards seek to recognise innovation, teamwork, and emerging talent in the palliative care sector.... Submit your nomination today: http://ow.ly/Mgio50F2FdB

18.01.2022 Early bird registration for the 2021 Oceanic Palliative Care Conference is closing soon - Wednesday, 9 June. Don't miss your opportunity for early bird rates to attend the pre-eminent event for all those passionate about palliative care and end-of-life care. Register today: http://ow.ly/J6Pv50F2Ir6

18.01.2022 "Studies have found that chronically ill patients often feel they can't talk about their worries, desires and perhaps unfinished business. They become the disease and stop being the person they were before they became unwell. There’s a group of amazing volunteers in the Perth community talking to people in this situation and capturing their stories, which are presented to family and friends as a lasting memento."... Palliative Care WA

17.01.2022 "What do you think of when you hear ‘palliative care’? Being in hospital, pain management and the final days of life? Palliative care is often misinterpreted to be just end-of-life care, but it’s perhaps better described as quality of life care, or supportive care. The multi-disciplinary approach of palliative care is designed to enable you to live your life to the best of your ability by identifying and supporting your physical, emotional and social needs and wishes." Thanks to Lung Foundation Australia for this insightful article.

15.01.2022 Palliative Care Australia would like to thank our Joint Patrons, Their Excellencies General the Honourable David Hurley AC DSC (Retd), Governor-General of the Commonwealth of Australia, and Mrs Linda Hurley for their generosity and support throughout National Palliative Care Week. We also thank everyone who supported #NPCW2021 and helped spread the word of our national education campaign, Palliative Care It’s more than you think. - created to engage the community in a convers...ation about the benefits of palliative care. Building awareness of the benefits of palliative care, advocating for quality palliative care for all who need it, and answering that important question what is palliative care?, has long been central to Palliative Care Australia's mission for thirty years. #palliativecare #morethanyouthink https://morethanyouthink.org.au/

15.01.2022 Today, I will just feel the way I feel... Image credit: Lunarbaboon

14.01.2022 For people living in rural locations, accessing and receiving palliative care at home can mean the world to them. In this story, a nurse from South West Queensland shares her experience about caring for a home-based patient using the caring@home package for carers. The son of the palliative care patient also shares his journey about being empowered by Caring@Home staff to care for his father at home in his last weeks of life, saying: The caring@home education we received f...rom [the nurse], enabled us to give medicines to dad, when he needed them, and gave us the feeling of being able to help him when he needed it the most. https://palliativecare.org.au//palliative-care-at-home-in-

12.01.2022 A retired orchestra teacher battling Covid-19 in a Utah hospital turned to his true passion -- music -- to help spread some joy in the ICU.

12.01.2022 You wouldn't think a career as a paediatric palliative care nurse would be a first choice for most people, but for Rebekah Orford, the seeds were sewn while she was just a child helping to care for her grandfather who had suffered a stroke and today she considers her job a calling.

11.01.2022 I think a lot of what we see about death is what we see in movies and TV, but it’s actually much more special than that as unique as each person who flies away. We have a lot to learn about life from those who are leaving us Each year, Palliative Care Australia opens the doors to its digital gallery, welcoming artists from across the country to participate in the annual art competition. This year’s theme Palliative Care It’s more than you think! aimed to challenge common misconceptions about palliative care. Artists were encouraged to think beyond the care provided at the very end of life. They were instead asked to focus on how palliative care can improve quality of life, helping people participate in activities that are important to them, and creating opportunities for love, laughter, creativity, and fulfilment.

09.01.2022 Some bucket lists are a bit more intense than others! "Living a life of adventure, a world record setting Masterton pilot is not going to let a little thing like terminal cancer slow him down. Doug Yarrell, 88, recently got to fulfil a dream he’s had for half a century, flying a de Havilland Vampire jet across the big blue yonder."

08.01.2022 "Every Sunday, Mohammad used to take us to the beach. Our last Sunday at the beach was one of the most joyous days of my life. But it was different. I could sense that it would be our last Sunday at the beach as a family, and I knew that he knew, because he was acting like it. Things went downhill fast afterwards." A beautiful story on how hospice care supported the family of a man nearing end-of-life in Lebanon.

08.01.2022 "Is a child’s grief really an issue that warrants awareness? Aren’t children resilient, and won’t they simply bounce back after a family member’s death? Isn’t it best to focus a child’s attention away from these sad realities? Shouldn’t we let children enjoy their childhood free from the burden of death and grief?" An insightful exploration of how children grieve.

06.01.2022 Karen Fraser-Knight, 55, who lost her twin sister to COVID in April, described her situation as living in this perpetual state of COVID trauma. I have flashbacks to what my twin must of gone through, she said. Because I wasn’t allowed to be with her, say goodbye to her, arrange her funeral as she wanted.

06.01.2022 What are the common questions that people ask about palliative care? CHS Palliative Care Director, Dr Michael Chapman, and CEO, Palliative Care ACT, Tracy Gillard, take a deep dive into what palliative care is and the systems that are in place to support someone in palliative care.

06.01.2022 During those precious final days of someone's life many people say they want to do fewer chores and more hand-holding, but often they don’t know how. Violet.org.au shares some ways you and your loved can be present and in the moment together when it counts most.

05.01.2022 People might think palliative care is slowly watching your loved one die, but it is so much more. In this Palliative Matters story, Penne, the daughter of 91-year-old palliative care patient Allan Patterson shares her father’s palliative care journey. Making the family comfortable, and helping them understand that they would ensure he had a ‘good death’, was a huge part of Allan’s palliation, explained registered nurse Jemma Graffin. I had conversations with the family ab...out letting us take care of the clinical aspect so they could focus on celebrating Allan’s life. I wanted them to know it was okay to laugh and to smile. You could see their relief, knowing that their last moments were just going to be spent with their father. As we near the end of National Palliative Care Week, we hope that you will continue conversations about how palliative care is more than just care provided at the end of life. It gives people the chance to live as well as possible, for as long as possible. #NPCW2021 https://palliativecare.org.au/pall/a-good-death-a-good-life

05.01.2022 "We undertook some research a couple of years ago to understand why people weren't achieving to die at home and the two things that came through that research were carer fatigue and carer isolation," Palliative Care ACT President Louise Mayo said. "So, The Hub is about trying to address both those issues." Well done, Palliative Care ACT