Pallister-Hall Syndrome /PHS/ Support Hub in Toowoomba, Queensland | Community organisation

Pallister-Hall Syndrome /PHS/ Support Hub

Locality: Toowoomba, Queensland

Address: Post Office Box 88 4350 Toowoomba, QLD, Australia

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• Medical and health
• Community organisation
• Medical service

24.01.2022 SOME NEWS! As most of the Members of this Hub are based in the United States of America I thought you might be interested to know that a few months ago I was Commissioned a Kentucky Colonel by The Honourable Andy Beshear, Governor of the Commonwealth of Kentucky: United States of America (15 April 2020). Thank you all for your support and assistance you give to each other!... You can read more here: https://georgehelon.com/honours-awards/

24.01.2022 PARENTS AND CARERS! What is like living and growing-up with Pallister-Hall Syndrome (PHS) and Gelastic Seizures? Read my story 'Living with Pallister-Hall Syndrome (PHS) and Gelastic (or laughing) seizures; I'll be brutally honest - a bloody nightmare!'... Just published today (8 August 2018) by the Genetic Support Network of Victoria - GSNV (Murdoch Childrens Research Institute, Royal Children's Hospital); Parkville; Winter 2018; pp.18-19. Complete edition of the Winter 2018 GSNV newsletter available here - https://drive.google.com//1OmvV07NoZo-oygxIjqMwncKfc6/view

24.01.2022 How is everybody going? Have any questions? Got some answers? Something to share?How is everybody going? Have any questions? Got some answers? Something to share?

23.01.2022 Taking the message to heavenly heights. Pallister-Hall Syndrome (PHS) got a mention in In-Flight magazine; Together We Fly: Airnorth: Australia. See page 14. https://bit.ly/2MuEWPo

23.01.2022 As part of the Genetic Support Network of Victoria's (GSNV) Lived Experience Interview Podcast Series, patient, mentor, counsellor and advocate George Helon of Toowoomba (QLD) talks about Pallister-Hall Syndrome (PHS) and Gelastic Seizures. The purpose of the series is to explore the impact of genetic conditions across a range of life stages from the patient’s perspective so that people might better understand the concerns, and appreciate the realities of a patient’s deve...lopment and experiences as they get older. https://www.youtube.com/watch?v=AZGwNBguEl0&t=51s Full transcript available for download here: https://www.georgehelon.com//George_Helon_Pallister-Hall_P

22.01.2022 I once thought of myself as an ‘oddity’, but I am really a ‘rarity’ - and proud of it! George W. Helon: Australia; August 2018. Pallister-Hall Syndrome (PHS), Gelastic Seizures, etc.

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19.01.2022 "If we have helped you or your family in some way, please consider posting a Review.""If we have helped you or your family in some way, please consider posting a Review."

15.01.2022 I (George Helon) am now a member of the Genetic Support Network of Victoria's (GSNV) Speakers Bureau and am available for public speaking engagements. You can read more about my experience in the genetics community and the topics l can present on here: https://www.gsnv.org.au/community-professi/speakers-bureau/

13.01.2022 First version of MedicReady's commercial video intro.

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09.01.2022 PLEASE NOTE! The article 'The Anatomy of a Gelastic (or Laughing) Seizure' - previously a Note - has moved permanently to my website at this URL: https://www.georgehelon.com//George_Helon_Gelastic_Seizure... Latest PDF version (12 January 2021) of my research article for those with, looking after, supporting, or treating those with Gelastic (or Laughing) Seizures. Please check back regularly for updates. #Helon #GelasticSeizures #HypothalamicHamartoma #MedicReady #PallisterHallSyndrome

08.01.2022 Please visit my Podcast (Living with Pallister-Hall Syndrome (PHS) and Gelastic Seizures) at YouTube and show your support for the marvellous efforts of the Genetic Support Network of Victoria (GSNV) by Liking the Podcast and Subscribing to their Channel: https://www.youtube.com/watch?v=AZGwNBguEl0

07.01.2022 We are now a registered Support Group with the NSW Government Health Centre for Genetics Education. http://www.genetics.edu.au/individu/genetic-support-groups

05.01.2022 Truly an honour to be a recipient in the 2019 Queensland Community Achievement Awards. Receiving Certificate of Achievement from the Queensland State Minister for Communities and Minister for Disability Services and Seniors, the Hon. Coralee O'Rourke MP: Brisbane; Friday 29 November 2019. Image Copyright (C) George W. Helon: Australia; 2019.... #Helon