Pelvic Pain Foundation of Australia in Adelaide, South Australia | Non-profit organisation

Pelvic Pain Foundation of Australia

Locality: Adelaide, South Australia

Address: 5 Hauteville Terrace, Eastwood 5063 Adelaide, SA, Australia

Website: http://www.pelvicpain.org.au

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24.01.2022 MAY is Pelvic Pain awareness month. #pelvicpainawarenessmonth https://www.instagram.com/p/COT6jMoB9NS/?igshid=fypuz3akrjc5

24.01.2022 Could you be the WA voice of PPEP Talk? Make a real difference to the lives of girls with pain and work with a passionate team at a not-for-profit foundation. Click through if you or someone you know might be great for this role.

23.01.2022 Hi, Kirsty here from PPFA, I am reaching out as I really need your help. Here at PPFA, we are working hard to get our PPEP Talk Schools Program up and running throughout Australia, after a successful first year in SA and a great start in WA. Our biggest challenge is funding (of course). This wonderful program, aimed at bringing the latest in modern knowledge and the new neuroscience of pain to Australian teens, is part supported by our shop profits & donations, in addition t...o the funding received through Federal and State Government grants. Now, obtaining Government grants is a whole different story for another day, but I do want to talk to you about our shop & donations as that’s where you can help us. We are keen to understand what you care about when it comes to purchasing from our shop and donating to our organisation, and for that reason, we have put together a survey that we would like to ask you to complete. We will use the information that you give us to make informed decisions on how we can improve your experience with us that hopefully will result in more donations and shop purchases! We would be so grateful for your help, the survey is anonymous and takes approximately 5 minutes to complete. Should you be OK to leave your name and contact details, we can add you to the draw to win $100 to spend in the PPFA shop as a thank you for participating! We will, of course, be sure to keep you in the loop on the progress we are making, not only with upgrading your experience with us but also with the school program. A big thank you in advance from us here at PPFA, but also from all teens who will greatly benefit from the PPEP Talk Schools Program. All survey data will be destroyed once the analysis is completed. If you have any questions on the survey, please contact Faye on (08) 8291 7923 The draw will take place on January 18th, 2021 We wish you all a much improved 2021. From Kirsty and the PPFA team of Educators

22.01.2022 Women mount a stronger immune response to viral and bacterial infections than men. This provides a survival advantage during a pandemic, so they are less likely to die of infection. However, women pay a high price: a higher lifetime risk of immune conditions such as chronic pain, chronic fatigue and autoimmune diseases. These conditions are associated with excessive activation of immune cells within the central nervous system. Those women with pre-existing conditions, includi...ng chronic gynaecological pain, fatigue, poor sleep or mood disorder have an altered, but not weakened immune system. They are anticipated to risk Covid-induced aggravation of their pre-existing symptoms, or an increased risk of Long Covid Syndrome if they become infected with Covid-19. In addition, the risk of thromboembolic disease associated with Covid-19 infection may prevent them using their normal hormonal medications. Women make up 67% of the global healthcare workforce in their roles as doctors, nurses, teachers, child-care workers, aged-care workers, and cleaners, and our community relies on their wellbeing. The vaccine is relatively new, and we don’t know everything about it yet. That’s true. However, the potential for Covid infection to worsen pre-existing symptoms in women with endo and pain, even if the actual infection was mild, is real. A clinic in Paris reported that their patients with prolonged fatigue, muscle pains and anxiety symptoms after Covid-19 infection had an average age of 40 years, and that 4 women were affected for every 1 man. I strongly recommend that women with endo and pain have the vaccine to protect them from Covid-19 infection, and the risk of Long Covid Syndrome. Dr Susan Evans, Pelvic Pain Foundation of Australia, www.pelvicpain.org.au

21.01.2022 Endometriosis is the most common benign gynaecological condition worldwide, which is frequently mis-diagnosed, dismissed and under-recognised. This course will prepare and empower students with the knowledge and essential attributes to be an advocate for all woman experiencing chronic pelvic pain and endometriosis. The Australian College of Nursing has launched a single unit Endometriosis and Pelvic Pain study; the first of its kind in Australia. The purpose of this unit of s...tudy is to provide the student with the necessary theoretical knowledge to improve how they assess and manage endometriosis and pelvic pain in the clinical setting. This is achieved by exploring endometriosis pathophysiology, pain physiology, and contemporary, evidence-based treatment and management within various clinical settings. A holistic, individual, person centred approach is core to this subject. If you are interested in this study, please visit the Australian College of Nursing website for more course and enrolment details. https://www.acn.edu.au//single-/endometriosis-pelvic-pain

20.01.2022 ICYMI Let's go Tasmanian friends!

20.01.2022 A collection of @intimaterose dilators are available for purchase on our website now! 3 sizes of Dilators, a Dilator Handle and Vibrating Pelvic Wand, all made with BPA Free, Medical Grade Silicone. Head to our website for more information and to shop the Intimate Rose range.

20.01.2022 PPEP Talk for Families is taking place next Wednesday the 28th of October! If you have attended a PPEP Talk at your school and identified that your pain isn’t normal and would like some more support, join Gynaecologist Dr Susan Evans on Zoom for further information to help you manage your pelvic pain. This is an incredible opportunity to have access to a leading gynaecologist for free! Use this link to secure your FREE spot in the session now: https://www.trybooking.com/BLDRE... We look forward to seeing you there! #PPEPTalk #endometriosis #pelvicpain #pelvicpainawareness

20.01.2022 Why does it take so long to diagnose endometriosis? We hope that our PPEP Talk Schools Program goes some way towards shortening time to diagnosis and empowering our young people to live their best lives.

20.01.2022 Looking for people with pelvic pain! Researchers at Curtin University are testing a new questionnaire for people experiencing ongoing pelvic pain. Do you have pelvic pain, are you over 18 and do you have 25 minutes to complete an online survey? By completing the survey, you will be helping health care professionals understand how you feel when you are in pain. There is also a chance to win an Amazon voucher by participating in the survey. The survey is available online at: cu...rtin.au1.qualtrics.com/jfe/form/SV_788V14s5pZ1mysl This study has been approved by the Curtin University Human Research Ethics (HREC) (approval number: HRE2020-0302). See more

16.01.2022 We are pleased to be recipients of funding following today’s announcement from Minister Greg Hunt of a $354 million spend to support the health and wellbeing of Australia’s women. For women with Pelvic Pain and Endometriosis, this is a great day. 1 in 5 girls miss school due to period pain. 1 in 9 women will develop endometriosis, and, 1 in 30 teens have pelvic pain every day... Australian women with endometriosis identified school’s education as a top 3 priority when the bipartisan National Action Plan for Endometriosis was developed - and the Pelvic Pain Foundation of Australia is delivering on that priority. This grant allows the Pelvic Pain Foundation of Australia to deliver PPEP Talk to any Australian state that chooses to match funding and take up this opportunity for their young people. Thank you to Minister Hunt, the Honourable Nicolle Flint MP , the Honourable Lisa Chesters MP, Members of the Parliamentary Friends of Endometriosis Group, the State Governments of SA and WA, and the countless women who have made PPEP-Talk for Australian students a reality. See more

16.01.2022 The Pelvic Pain Foundation of Australia would like to extend our sincere gratitude to Dewings Accounting & Consulting, and Piper Alderman for their ongoing sponsorship. In many ways, this support has brought a huge amount of help to our cause and we are here to send our obligation to you, thank you.

16.01.2022 Meet: Tiffany Brooks. A registered psychologist undertaking her PHD at the University of South Australia. If you are over 18 and have had pelvic pain for over three months, Tiffany requires your help with a current study, and if chosen will provide you with over $1500 worth of psychological services for no cost at all! Tiffany is looking for 40 women to help test whether hypnosis might help with chronic pelvic pain. Numbers are limited to the first 40 women who voluntee...r. We are looking for 20 women to volunteer to test our online hypnosis therapy and 20 controls that will get access to all the materials after 8 weeks. The study will go for 8 weeks and involve filling in progress measures and listening to a hypnosis recording each week. The materials are all provided online and participation is voluntary. If you are interested, please contact the following email address for more information: [email protected] This study is part of a PhD project at the University of South Australia. This project has been approved by the University of South Australia Human Research Ethics Committee (Application ID 202935)

16.01.2022 With so much interest around our Covid-19 post, we thought some of you might enjoy reading some of the background to our post. We’ve drawn together a range of references that look at the differences in the immune system between men and women, what’s known about the basis for chronic fatigue, experience from previous coronavirus epidemics, the role of glial cells in immune-related pain, and the role of Toll-Like Receptors. If you have access to an online library, and you hav...e a science bent, they all make great reading. Davido B et al. PostCOVID-19 chronic symptoms: a postinfectious entity? Clin Microbiol Infect. 2020 Jul 23 Evans J, Salamonsen LA. Inflammation, leukocytes and menstruation. Rev Endocr Metab Disord. 2012 Dec;13(4):27788 Evans SF, Kwok YH, Solterbeck A, Liu J, Hutchinson MR, Ml H, et al. Toll-Like Receptor responsiveness of peripheral blood mononuclear cells in young women with dysmenorrhea. J Pain Res [Internet]. 2020;13:503516. Fiebich BL et al. The two-hit hypothesis for neuroinflammation: role of exogenous ATP in modulating inflammation in the brain. Frontiers in Cellular Neuroscience. 2014;8. Nakatomi Y et al. Neuroinflammation in Patients with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis: An 11C-(R)-PK11195 PET Study. J Nucl Med. 2014 Jun;55(6):94550. Women who survived coronavirus angry after persistent symptoms dismissed as anxiety by doctors [Internet]. The Independent. 2020 [cited 2020 Sep 17]. Boneva RS et al. Early menopause and other gynecologic risk indicators for chronic fatigue syndrome in women. Menopause. 2015 Aug;22(8):82634. Spratt DI, Buchsbaum RJ. COVID-19 and Hypercoagulability: Potential Impact on Management with Oral Contraceptives, Estrogen Therapy and Pregnancy. Endocrinology. 2020 Jul 29; Shiers S. et al. ACE2 and SCARF expression in human DRG nociceptors: implications for SARSCoV-2 virus neurological effects. Pain. 2020 Aug 18 Klein SL, Flanagan KL. Sex differences in immune responses. Nat Rev Immunol [Internet]. 2016 Oct [cited 2019 Dec 27];16(10):62638 Klein SL et al. The Xs and Y of immune responses to viral vaccines. The Lancet infectious diseases. 2010;10(5):338349 Onofrio L et al. Toll-like receptors and COVID-19: a two-faced story with an exciting ending. Future Sci OA Li Y, Lavi E. The Role of Astrocytes, Microglia, and Endothelial Cells in Coronavirus-Induced Demyelination. In: Experimental Models of Multiple Sclerosis [Internet]. Boston, MA: Springer US Steeg LG vom, Klein SL. SeXX Matters in Infectious Disease Pathogenesis. PLOS Pathogens. 2016 Feb 18;12(2):e1005374.

15.01.2022 24 Strands of Living Well with Pain. It may be overwhelming to look at all these factors and consider how to implement them into your life. Take a deep breath, and take it slow. You can start by aiming to tick one off per week, and gradually work towards carrying out all 24. Each management approach might only improve pain by 10%.. But if you do several of them, it will all add up to a worthwhile progress. ... Save this post and share it with your friends. Where are you starting? https://www.instagram.com/p/COetbUyDYdV/

15.01.2022 We are pleased to be recipients of funding following yesterday’s announcement from @greghuntmp of a $354 million spend to support the health and wellbeing of Australia’s women. For women with pelvic pain and endometriosis, this is a great day. 1 in 5 girls miss school due to period pain.... 1 in 9 women will develop endometriosis, and, 1 in 30 teens have pelvic pain every day. Australian women with endometriosis identified school’s education as a top 3 priority when the bipartisan National Action Plan for Endometriosis was developed - and @pelvicpainfoundationaus is delivering on that priority. This grant allows our program @ppeptalk to be delivered in any Australian state that chooses to match funding and take up this opportunity for their young people. Thank you to @greghuntmp, the Honourable Nicolle Flint MP, the Honourable Lisa Chesters MP, Members of the Parliamentary Friends of Endometriosis Group, the State Governments of SA and WA, and the countless women who have made @ppeptalk for Australian students a reality. Watch this space for more news to come! #PelvicPainFoundationAustralia #PPEPTalk https://www.instagram.com/p/COuBspdjNPk/?igshid=w1guq16jm15h

14.01.2022 A laparoscopy is an operation where a gynaecologist puts a telescope through the umbilicus to look at the organs inside. For many girls and women, a laparoscopy is ONE part of their pain management plan... but rather than being the FIRST part of your plan, it is often best to sort out as many non-surgical pains first. Preparing well for a laparoscopy means a quicker recovery, less pain, less time in hospital, and a better health outcome. By taking 2-3 months to prepare yours...elf and your body, you set yourself up best for a more comfortable hospital experience and a better laparoscopy outcome. The advice on our website is of a general nature and may not suit every person. Your gynaecologist knows your individual situation best, so please choose their advice if their plans for you are different from ours. Click the link attached to read our article on how to to prepare and recover well from a laparoscopy. https://www.pelvicpain.org.au/tips-and-tricks-to-recoveri/

14.01.2022 Do you know a child with Pelvic Pain? Book now for our PPEP Talk for families July session with Dr Susan Evans.

12.01.2022 Exciting new product in store now!

11.01.2022 This Christmas, give the gift that keeps on giving... Shop the collection of pain relieving items on our online store, and give the gift of a pain-free Christmas to a loved one suffering from pelvic pain. Make sure to get your orders in before Christmas Eve; our store will shut at mid-day on the 24th, and reopen again on on the 4th of January.

10.01.2022 What a fantastic portrayal of what it means to have a uterus. Warning: Contains representation of miscarriage and medical procedures.

08.01.2022 The Hon Nicolle Flint MP is one of the more than 10% of women in Australia who experience pelvic pain from endometriosis. Ms Flint and recently retired MP, Ms Gail Brodtmann established the bipartisan Parliamentary Friends of Endometriosis Group. They have been a strong voice advocating for Australian girls and women who live with pain every day. We sincerely wish Ms Flint well for her upcoming surgery and thank her for her commitment to women with pain.

07.01.2022 Need a one-pot wonder that is easy to prepare and cooks itself while you have a bubble bath or self-care your way? Would it be a bonus if it was anti-inflammatory to help your pelvic pain? Download the recipe card at https://www.pelvicpain.org.au/one-pan-lemon-rosemary-chicke

06.01.2022 It still gives us joy to see endometriosis talked about in mainstream media. We’ve come a long way!

05.01.2022 PPEP-Talk ready for a school near you! Great news on the weekend. The Pelvic Pain Foundation of Australia received a Federal government grant to extend PPEP beyond the current SA and WA! We know teens all over Australia have problems with pain. 1 in 5 miss school with period pain. 1 in 10 will develop endometriosis amd 1 in 30 of teens already have pain almost every day. If your school wants PPEP to support your girls contact us at PPFA. [email protected]

02.01.2022 Do women experience persistent pain differently to men?

01.01.2022 We are very thankful for the support from the Federal Government, the SA Government and WA Government. At every single session that we run, without exception, there are students with pelvic pain impacting their potential desperate for more information. We are so pleased to be able to offer these young people the medical information they need.