PSC Support Australia | Community organisation

PSC Support Australia

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25.01.2022 Are you or a loved one taking prescription medications? Having an up to date medication list is important each time you visit a doctor. NPS MedicineWise have a great app to keep all your health information handy, which is vital in the event of an emergency. All your medications can be entered by scanning the barcodes so youll have it up an running in no time. ... You can find out more and download the app here; https://www.nps.org.au/consumers/medicinewise-app/

25.01.2022 Day 2 of the PSC Walk - Mornington Peninsula has begun. Good luck to all the walkers today, we will see you at the end for a thank you BBQ at Safety Beach.

25.01.2022 PSC Support Australia AGM (via Skype) Monday 15th July - 7:30 pm AEST If you are interested in attending the AGM or joining the committee please complete the below online form. ... Alternatively, if you do not wish to attend the AGM but would like to ensure you are kept up to date with current information from PSC Support Australia you can also complete the online form to join our mailing list. https://docs.google.com//1FAIpQLSdu3u3lJkPUZCkN9B/viewform

24.01.2022 Want to win this super cute prize pack?! All you have to do is click the link below, and join our mailing list! Its never been easier to get a brand new liver! Plus youll stay up to date on everything PSC Support Australia. Competition closes midnight 14/09/2020 and winner will be contacted via email. Winner must live in Australia.... https://pscsupport.org.au/contact/ *This competition is not affiliated with Facebook*

23.01.2022 Thanks Bek for representing young Australians with PSC at the recent PSC Partners Seeking a Cure PFDD forum. Who is looking forward to an Australian forum one day?? When Covid allows that's what we're planning - so if you're missing live shows, want to have a fun night with friends (according to your local covid safe rules of course) and would like to raise some funds to help make a national conference a reality, then be sure to hop on and buy tickets to our upcoming comedy night here: https://www.trybooking.com/events/landing?eid=671820&

22.01.2022 Thanks to all those who signed up for our newsletter - wed still love to hear from more of you so we can keep you informed on all the latest things happening. Congratulations to Gaby who won the prize pack - well be in touch via email to get your postal address. Hope you enjoy your I heart guts pack when it arrives.

21.01.2022 Good luck to our PSC Walkers today who have started their walk from Rosebud to Portsea. Thank you to all who have donated and helped spread awareness of PSC. Our tally is now over $1700 and with those great T-shirt we hope that more people hear and learn about PSC in the coming days.

21.01.2022 Don’t forget to get your tickets. If you can’t make it on Saturday 28th November 7pm AEDST you can purchase an on demand ticket to watch at a time that suits.

21.01.2022 So exciting to be featured! http://www.mpnews.com.au//16/walkers-out-to-ease-suffering/

19.01.2022 Mothers Day is this Sunday! Give Mum the VIP treatment with Entertainment! Packed with thousands of valuable offers across dining, retail, attractions and travel, an Entertainment Membership is the gift she can enjoy all year round. Plus, purchase this week and enjoy free shipping plus special bonus offers! We think Mum will love it even more for supporting PSC Support Australia and knowing it helps a great cause. ... Join the savvy shoppers who have already secured their 2019/20 digital or paper copies here https://www.entertainmentbook.com.au/orderbooks/9r57647

19.01.2022 Covid-19 and PSC, what do you need to know? Check out our new blog post to read all about it! https://pscsupport.org.au/2020/09/covid-19-and-psc/

19.01.2022 Want to win this fun plush liver, liver pin and happy colon sticker(photo in comments)? Its easy! Head to our website and subscribe to our quarterly newsletter to go into the draw and recieve regular newsletters with additional occasional emails on relevant topics - eg. new clinical trials recruiting etc. Competition closes midnight 14th Sept. Postage to Australian address only.... Newsletter subscription open to anyone with no closing date. https://pscsupport.org.au/contact/

18.01.2022 6 more sleeps!!! Dont forget to register your attendance. Not to be missed!!

18.01.2022 Dont forget to enter the mailing list to be up to date on what is happening in the PSC world.

18.01.2022 And our walkers have finished!!! Well done and thank you to all involved. Over $2,000 raised so far with more to come and more people who have now heard of PSC.

16.01.2022 Coming up this weekend!

14.01.2022 Last night to enter! Wed love to connect with you via our newsletter.

14.01.2022 Our website is live!!! Head on over to https://pscsupport.org.au. Current and relevant info about PSC for Australians

13.01.2022 Hi everyone! PSC is having its very first walk to raise awareness. Please donate if you can! gf.me/u/xjhrz9

13.01.2022 HI everyone - would love your input. Im currently working the blog element of our website and would like to know ... Do you have burning questions youd like addressed? What format works best for you - written or video (truth is were hoping well do a bit of both, but could focus one way or the other if theres an overwhelming request for a particular style.) Blogs will be delivered by health professionals, people with PSC, carers of people with PSC.........and who knows, anyone really who can input constructively into our lives!

12.01.2022 Today is Rare Disease Day!!! Please share to show those who suffer from a rare disease (including PSC) are not alone in their fight.

12.01.2022 For those who missed seeing the Dying to Live documentary on SBS in January there will be another showing tomorrow (Sunday) afternoon at 5:20pm on SBS Viceland. This is to help kick off Donate Life Week which runs from Sunday 28th July to Sunday 4th August. Watch it with your family and friends, I promise you wont be disappointed.... Please Note: Good idea to have some tissues handy and remember to have the conversation about your donation wishes with your family who make the final decision.

12.01.2022 Just a reminder that the first Australian Forum will take place in just 2 and a half weeks! Like our page to keep up to date with the exciting new developments happening here at PSC Support Australia!

12.01.2022 Jason received the gift of a donor liver and now he is encouraging others to register their wishes at https://donatelife.gov.au/ Read his story here; https://thewest.com.au//liver-donor-saves-a-life-ng-b88126

10.01.2022 Have you got your tickets to our online comedy night tonight? Bookings close at 5pm tonight. Links to the event will be emailed out shortly to those who have already purchased tickets. $10 for a single ticket, $20 for a household. ... All money will go towards funding our national conference (hopefully in 2022) to ensure affordability for attendees. Look forward to seeing you all there.

10.01.2022 D O N A T E L I F E W E E K At this time, there are over 1400 Australians waiting for the life saving gift of an Organ, many of whom are affected by Primary Sclerosing Cholangitis (PSC). If every registered donor found one person who wasnt registered and encouraged them to join, we would double the amount of potential organ donors. ... We encourage Australians to use Donate Life week to start a conversation about Organ Donation, to make their wishes known and to know the wishes of their loved ones. Please remember to register your decision https://donatelife.gov.au/register-donor-today It will only take you about a minute to potentially save up to 10 lives and all you need is your Medicare card handy #whoisyourplusone #DonateLife #DonateLifeWeek #DonateLifeWeek2019

09.01.2022 Avoid FOMO (Fear of Missing Offers) and purchase your 19/20 Entertainment Membership today!! Some of our supporters have reported saving up to $40 on date night for 2 . Please support us and SAVE!... Grab your book and see what bargains you can grab when dining, shopping, travelling and much more. https://www.entertainmentbook.com.au/orderbooks/9r57647

09.01.2022 Only one day left to enter! Get in quick to be a winner! All you have to do is click the link below, and join our mailing list! Its never been easier to get a brand new liver! Plus youll stay up to date on everything PSC Support Australia. ... Competition closes midnight 14/09/2020 and winner will be contacted via email. Winner must live in Australia. https://pscsupport.org.au/contact/ *This competition is not affiliated with Facebook*

08.01.2022 Eda endured a long 14 month wait for a life saving Liver. Shes now enjoying life as a Mum and cannot thank her donor and their family enough. Read about her transplant story here; https://donatelife.gov.au//Eda%27s%20Story_Final_English%2... You can register your decision o because an organ and tissue donor here; https://donatelife.gov.au/

07.01.2022 Weve got lots of exciting projects planned to help our PSC community. Many will be made possible with your generous support of our fundraising programs. We are delighted so many of you have taken advantage of our Entertainment Book program, which provides discounted dinners, adventures, shopping and much more to your Australian City. Entertainment are generously offering an extra special deal. If you purchase a book between 25 July and 1 August, 2019 youll go in the draw ...to win a hamper filled with gift vouchers from some of Melbournes best restaurants, cafes and activity providers, and is valued at over $2,500.00! Grab your copy of the 19/20 Entertainment Book today and good luck in the draw! https://www.entertainmentbook.com.au/orderbooks/9r57647

07.01.2022 L E S T W E F O R G E T

06.01.2022 WORLD LIVER DAY Your liver is important. You cant live without it! It has many important roles you may not know about. Its a storage system vitamins and minerals, it removes toxins from your body and helps regulate your metabolism. It also filters medications and processes carbohydrates into glucose for an instant hit of energy, just to name a few. We can all work at loving our Livers by taking small steps each day;... Following a balanced diet Exercising regularly Maintaining a healthy weight Consulting your doctor before taking any over the counter medications If you are concerned about your Liver, ask your Doctor for a simple blood test to check how its doing. What will you do today that will feel like a warm hug to your Liver? #worldliverday

06.01.2022 Thank you so much to all those who have donated to the PSC Walk - Mornington Peninsula (VIC). We are now over $1000 which is amazing. The walk begins this Saturday morning with a walk from Rosebud to Portsea. Much to all from all PSC patients and carers.

06.01.2022 Grab your friends and enjoy some comedy together this Saturday night! Limited tickets selling fast! Buy yours now.

06.01.2022 Missed out on winning our competition? Its not too late to grab your digital or hard copy of Entertainments 19/20 edition. Packed with loads of discounted offers to enjoy not only throughout Easter and School Holidays, but for over 12 months! Keep the kids and your family entertained and grab your copy for your city today!... https://www.entbook.com.au/9r57647

05.01.2022 Thank you to everyone who signed up to our mailing list! The winner has been contacted and their prize will be sent out soon! If you havent yet, head to our website, and on the Contact Us page youll find a form to fill in. Its a great way to stay up to date, especially if youre not in social media much!

04.01.2022 Buy a new Entertainment Membership and get a BONUS $10 Priceline eGift Card! Right now until Midnight June 1st, when you buy an Entertainment Membership you will also receive a bonus $10 Priceline eGift Card! There are only five days until the expiry of the 2018 | 2019 Memberships, purchase your new 2019 | 2020 Membership TODAY, and support PSC Support Australia!... Grab your copy here; https://www.entertainmentbook.com.au/orderbooks/9r57647

04.01.2022 Its Tuesday in the Sandbox - our blog page! Which means theres a new post - were aiming to get one out to you every 2nd Tuesday. This fortnights on PSC and Covid. Next fortnight were looking forward to an article on rural health. https://pscsupport.org.au/2020/09/covid-19-and-psc/

04.01.2022 We are very pleased to announce that we will be holding our first ever PSC patient forum in Melbourne, Australia on Sunday 22nd September. Please see the attached flyer for information about the forum and presentations.

03.01.2022 Very proud moment.. and I might be a little biased but this man (and the rest of the PSC committee) are making waves! Today he represented YOU, the PSC patient or family member. He told the doctors, scientists and drug company YOUR story. He is fighting for a cure Thanks to Kerrie for being the PSC advocate and to the rest of the committee for all their continued support.

01.01.2022 Wishing all our supporters good health for 2020. Live your best life!

01.01.2022 We invite everyone touched by PSC to play their part in supporting DonateLife Week in July. Find out how you can help here https://www.facebook.com/140120747955/posts/10156582262052956?s=1006442750&sfns=mo