Purple Day in the Park in Karratha, Western Australia | Community organisation

Purple Day in the Park

Locality: Karratha, Western Australia

Phone: +61 428 915 587

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25.01.2022 Today is #SUDEPActionDay, a time to shine a light on Sudden Unexpected Death In Epilepsy. Its so difficult to talk about, but the conversation is important so that we can work towards prevention.

25.01.2022 MY EPILEPSY STORY A Southern River roof plumber has overcome major challenges with epilepsy to help others with the common neurological cond...ition. 34 year-old Warrick had apparently been experiencing focal seizures with impaired awareness since the age of 18 but was only diagnosed with Temporal Lobe epilepsy last year. Warrick, who recently became a father, has overcome discrimination and loss of his roof plumbing business and clients since his epilepsy diagnosis to start a new FIFO job in the Pilbara. Over many difficult years Warricks family spent money and time trying to seek medical help for Warrick who would wake up and find himself in places without being able to explain how he got there. Since he suffered a focal seizure with impaired awareness in a hardware store Warrick also now wears a MedicAlert bracelet and carries medical information cards in his wallet for explanation. Despite his difficulties, Warrick recently accomplished his lifelong dream of trekking the Inca Trail. He wants to encourage people living with epilepsy to never give up on their dreams. He believes that with the right support network, being upfront and honest about your condition, there is absolutely nothing that people living with epilepsy cant accomplish, it makes life more challenging but all the more sweeter once youre there. Dont let Epilepsy stop you from chasing your dreams he says. He says the direct support and information he has received from Epilepsy WA has been critical to his wellbeing. Warrick regularly uses the online support provided by Epilepsy WA via its Facebook community page to reduce his feelings of isolation and to be able to engage with others living with epilepsy who understand & experience similar issues. Warricks family and friends will fundraise to help Epilepsy WA support services via their Team Purple Rain for the annual Purple Walk 4 Epilepsy WA. #GoPurpleForEpilepsy #PurpleMonth2020 #MyEpilepsyStory

24.01.2022 Our annual report is hot off the press. How much do you know about your local epilepsy charity, Epilepsy WA, our numerous activities, the struggles we face and ...the triumphs of the last year that we hold dear? Why not give it a read? If you are not a member and want to be part of an organisation that has been supporting the WA community since 1963, you can join online here: www.epilepsywa.asn.au/membership See more

24.01.2022 http://www.epilepsyaustralia.net/epilepsy-and-risk/ Let's face it, life is always a bit risky. However, for those who live with seizures, we know that the idea of risk quickly gets notched up a peg or two. This is partly because seizures are unpredictable and can make people very risk adverse, cautious or timid. The risk of accidents and other unwanted outcomes from seizures such as having a seizure in front of work colleagues, having a seizure on public transport or at a special event, can be a source of fear for many people. With this in mind, being aware of the risks and taking reasonable steps to manage them, people with epilepsy need not cut themselves off from the kinds of fulfilling lives they should be living. Many people with epilepsy lead full and active lives.

24.01.2022 IT'S COMPETITION TIME Go Purple for Epilepsy in March and you could win a ' # !... HERE'S HOW TO ENTER: : Just take a snap of your Purple Moment (your picture must include something purple and you must own the photo) : Post your picture on Facebook or Instagram : Use the hashtag #GoPurpleForEpilepsy ! Entries close midnight (AEDT) 27th March and the winning photo will be chosen by our panel of judges. The winner will be announced at 10am (AEDT) 30th March on Facebook and Instagram. For full terms and conditions click here: bit.ly/WINPurpleiPhone11 Go on, get creative! Think clothes, hair, nails, lights, glasses, decorations! See some examples below! This promotion is in no way sponsored, endorsed or administered by, or associated with, Facebook or Instagram. #GoPurpleForEpilepsy #PurpleMonth2020

24.01.2022 After the very sad death of Disney Star, Cameron Boyce, his mother Libby is determined to raise much needed epilepsy awareness I intend to use my voice on beh...alf of these moms to bring a face to this tragic issue and to bring attention to epilepsy; the most common disease that we know the least about, you can read more in this UK newspaper article by visiting the below link. If you are in need of support or information regarding your epilepsy or that of a loved one Epilepsy WA can be contacted on 1300 852 853 https://www.dailymail.co.uk//Cameron-Boyces-mother-Libby-r See more

23.01.2022 4 more days until world Purple Day. With Tahni’s Purple Day in the Park, our Pilbara purple throw being cancelled and social distancing rules in place, we can’t wait to see your purple isolation photos posted here! Xx4 more days until world Purple Day. With Tahni’s Purple Day in the Park, our Pilbara purple throw being cancelled and social distancing rules in place, we can’t wait to see your purple isolation photos posted here! Xx

23.01.2022 It's (finally!) starting to warm up, so here are some ways to help handle your epilepsy as summer hits.

23.01.2022 Morgan's story When Morgan Smith, 20, was about to get into their family pool for a swim she had a seizure. Luckily for Smith, her 7-year-old brother, Aiden M...cCullough, was nearby. McCullough quickly sprung into action, and he said that his instincts kicked in as he grabbed Smith by her hair and held her above the water while he screamed until help came. This is a timely reminder about water safety for people living with epilepsy and the importance of seizure first aid. For more information visit: http://bit.ly/EQWaterSafety or watch the story of this little superhero .

23.01.2022 Have you seen the new sleep pods at Perth Airport? Getting adequate sleep is particularly important for those living with epilepsy, as lack of sleep can be a se...izure trigger for many. Epilepsy WA has created a free webinar all about epilepsy and sleep. Visit https://youtu.be/VFqNWvIzIOA to view. See more

22.01.2022 Do you know if any of your epilepsy medication has any side effects? Epilepsy Action Australia has a number of readily available online tools and resources that... can help you feel more confident and allow you to better control your medication, symptoms and overall well-being. Our resources have been refined and updated over many years to ensure they are useful in helping you self-manage aspects of your condition. Click on this link to get access to them: https://buff.ly/2GZ4Evj See more

22.01.2022 Join us for a live Q&A session this Purple Day, Thursday 26 March, on our Facebook page. Our Epilepsy Nurses will be live for a Q&A session between 12 -2pm EST.... There will be an opportunity to follow streams of questions on either Adults living with Epilepsy or Children living with epilepsy, who will answer any questions you might have. Please note for this particular live Q&A the Epilepsy nurses will not be answering questions on COVID-19. Dont forget to put it into your calendars now. Get those questions ready!

22.01.2022 If you are worried about how you as a person living with a diagnosis of epilepsy might be affected by the current pandemic, the following page on our website m...ay assist. It contains links to information that could be relevant to you. We urge all our community to practice social distancing measures and to adopt other recommended practices at this time, such as frequent hand washing. www.epilepsywa.asn.au/corona See more

22.01.2022 When dealing with a medical condition that is unpredictable and chronic in nature - just like epilepsy, sometimes the best you can do is to just take one day at... a time. Please don’t forget that there are many services available to help support you on this journey and we at Epilepsy WA are just one of them (call 1300 852 853). If you aren’t tracking so well and need help right now here is a link you can turn to https://about.healthdirect.gov.au/need-help-now. If you are looking for further information about Epilepsy this brochure may help http://www.epilepsyaustralia.net//Diagnosing_epilepsy_answ See more

21.01.2022 Our live musical entertainment program for our Virtual Purple Walk 4 Epilepsy WA tomorrow will commence with a powerful rendition of the song Fight Song from ...Ezereve at 11am. Then at noon there will be a live performance of some wonderful heart warming and toe-tapping tunes from talented WA band - The ShortStrings Aside from being a talented musician, ShortStrings band member, Associate Professor Julian Heng, is actually a passionate genetic epilepsy researcher! To like the bands Facebook page visit https://m.facebook.com/theshortstrings/ And dont miss the rousing final song by Ezereve at 2pm. #purplewalk4epilepsywa

21.01.2022 Summer is finally here! If you're living with epilepsy then it's always good to be a bit more cautious, but there's no reason why you can't enjoy the warm weather! Dive right in to our tips for swimming with epilepsy Be sure to tag somebody if it could help them!

21.01.2022 This Sudep Action Day, brave Bunbury mum, Debbie, is sharing her story around the loss of her beloved daughter, Chelsea, in the hope that by doing so, she may r...aise awareness and help others to reduce risk. Please click on the below web link if you wish to read the newspaper article which has appeared in todays paper. We send our deepest condolences to all those who knew and loved Chelsea. https://tinyurl.com/yxusj3hk #SudepActionDay2019 See more

20.01.2022 Thanks to 23 year old Emily from Beeliar for sharing her epilepsy story this purple month, in a bid to help raise awareness and to shine a light on this common condition that 1 in 25 of us will experience in our lives.

20.01.2022 The Lovely Rahni has supported Purple Day in the Park for the past few years. What a fantastic little artist. Thank you Rahni xxx

20.01.2022 Last week we asked you to finish the sentence "Epilepsy is not just seizures, its also ..." We received an outpouring of responses- the fact that epilepsy come...s with unseen challenges beyond the actual seizures themselves is obviously deeply felt in our community. We thank you for being brave and sharing your responses to shine a light on the lived experience of epilepsy. Weve compiled some of your answers in this short video . Please share to help us raise awareness. . . . N.B. We understand that not everybody reads at the same speed- if you need to, you can pause the video at any time to read and reflect on the comments. Some of the responses have been shortened to fit the allowable parameters of the video creation platform used here.

18.01.2022 Thank you to everyone who helped us raise epilepsy awareness and supported Purple Day 2021 - we raised $1800 for Epilepsy WA. xx

17.01.2022 How has living with epilepsy helped you to realised your strengths?

17.01.2022 Did you know there is a range of cartoons available online to help teach children and their friends about epilepsy and seizures? Campi is a little seahorse and ...he is living with epilepsy. If you have a young child then these videos may be of interest to you. Campi even has a dedicated You Tube channel. Visit https://bit.ly/2SkjSyF. The Epilepsy Smart Schools program also has a range of free curriculum resources, parent, teacher and school help-sheets. www.epilepsysmartschools.org.au See more

17.01.2022 EPILEPSY TIPS AND TRICKS FOR HALLOWEEN, from Epilepsy WA and Epilepsy Foundation. Make sure your child doesnt forget medications that evening. Watch out for strobe lights if thats a trigger for your child. Make sure your child either has a teenage buddy with them or you go with them if a child has a seizure around other children trick-or-treating, they might be ignored with all the chaos and noise of the evening.... Dont stay out significantly later than your childs bedtime. Make sure your teenager has a cell phone with them and someone is home to pick them up if they are trick-or-treating a distance that would be prohibitive to walk back. If your child is on the ketogenic or Atkins diet, its ok to get candy and dress up, but NOT to eat the candy without explicit permission. Make sure your child or teen wears their medical alert bracelet while trick-or-treating if they have one. Make sure your child is accompanied by someone who knows about your childs seizures and what to do in case of a seizure emergency. See more

16.01.2022 It has been one year since Cameron Boyce passed away - a kind-hearted and talented actor who lost his life to SUDEP. We are thinking of his friends, family and ...fans today Our SUDEP & Safety Checklist helps to identify and minimise risks when it comes to SUDEP - learn more here: https://www.epilepsy.org.au/sudep-checklist/

16.01.2022 Struggles with memory can be a challenge that many of those living with epilepsy face. Epilepsy WA has created a free webinar on the topic. Visit https://bit.ly/2MaGaA4 to view.

16.01.2022 Summer is finally here! If youre living with epilepsy then its always good to be a bit more cautious, but theres no reason why you cant enjoy the warm weather! Dive right in to our tips for swimming with epilepsy Be sure to tag somebody if it could help them!

15.01.2022 #SUDEPActionDay is a time to remember those lost to Sudden Unexpected Death In Epilepsy, but also to acknowledge just how far we've come! It can feel strange to... celebrate on #SUDEPActionDay but the progress made in this area is too incredible to ignore! We have partnered with SUDEP Action for latest initiative, the SUDEP & Seizure Safety Checklist equips those living with epilepsy and medical practitioners with ways to decrease their risk of SUDEP, and manage seizures safely. Learn more here https://www.epilepsy.org.au/sudep-checklist See more

15.01.2022 Electric Images Australia - you've done it again, capturing our "Purple Day on the Flats" making march purple and spreading epilepsy awareness #MakeMarchPurple #bepilbarapurple #purpledayinthepark We cannot thank you enough - do yourselves a favour people and subscribe to Gav's You Tube channel and Facebook Page - we think he's a pretty cool guy ! https://www.youtube.com/watch

14.01.2022 ITS COMPETITION TIME Go Purple for Epilepsy in March and you could win a Purple iPhone11 : Just take a snap of your Purple Moment (your picture mu...st include something purple and you must own the photo) : Post your picture on Facebook or Instagram : Use the hashtag #GoPurpleForEpilepsy ! Entries close midnight (AEDT) 27th March and the winning photo will be chosen by our panel of judges. The winner will be announced at 10am (AEDT) 30th March on Facebook and Instagram. For full terms and conditions click here: http://bit.ly/WINPurpleiPhone11 Go on, get creative! Think clothes, hair, nails, lights, glasses, decorations! This promotion is in no way sponsored, endorsed or administered by, or associated with, Facebook or Instagram. #GoPurpleForEpilepsy #Competition #Win

14.01.2022 Two days to go until Purple Day. Many WA landmarks will still be lighting purple for Epilepsy WA, helping us to raise awareness. We encourage our WA community t...o maintain their social distance and avoid any landmarks where there may be groups congregating. During this challenging and uncertain time, we are proud and thankful to see WA shine a light on epilepsy on March 26. #epilepsywa #purpleday #purplelightsforepilepsywa #epilepsy #epilepsyawareness https://animoto.com/play/2hkdRFnZkYynuK3gzwbVKQ?autostart=1

14.01.2022 MY EPILEPSY STORY ' A Southern River roof plumber has overcome major challenges with epilepsy to help others with the common neurological cond...ition. 34 year-old Warrick had apparently been experiencing focal seizures with impaired awareness since the age of 18 but was only diagnosed with Temporal Lobe epilepsy last year. Warrick, who recently became a father, has overcome discrimination and loss of his roof plumbing business and clients since his epilepsy diagnosis to start a new FIFO job in the Pilbara. Over many difficult years Warrick’s family spent money and time trying to seek medical help for Warrick who would ‘wake up’ and find himself in places without being able to explain how he got there. Since he suffered a focal seizure with impaired awareness in a hardware store Warrick also now wears a MedicAlert bracelet and carries medical information cards in his wallet for explanation. Despite his difficulties, Warrick recently accomplished his lifelong dream of trekking the Inca Trail. He wants to encourage people living with epilepsy to never give up on their dreams. He believes that with the right support network, being upfront and honest about your condition, there is absolutely nothing that people living with epilepsy can't accomplish, ‘it makes life more challenging but all the more sweeter once you're there. Don't let Epilepsy stop you from chasing your dreams’ he says. He says the direct support and information he has received from Epilepsy WA has been critical to his wellbeing. Warrick regularly uses the online support provided by Epilepsy WA via its Facebook community page to reduce his feelings of isolation and to be able to engage with others living with epilepsy who understand & experience similar issues. Warrick’s family and friends will fundraise to help Epilepsy WA support services via their Team Purple Rain for the annual Purple Walk 4 Epilepsy WA. #GoPurpleForEpilepsy #PurpleMonth2020 #MyEpilepsyStory

13.01.2022 We are aware that a diagnosis of epilepsy, or any other chronic condition can profoundly affect an entire family. Due to the kindness of local businesses and in...dividuals, The Rotary Club of West Perth are offering free tickets to the 2019 annual World Festival of Magic - a fantastic, family-orientated event featuring local and international acts. These tickets are being offered to local families and individuals whose lives are impacted by a diagnosis of epilepsy or other chronic conditions. The show will be held on Monday 2nd December at the Perth Convention & Exhibition Centre. The shows will be held at 10:30am, 12:30pm & 6:00pm. ** Please note, there will be an AUSLAN interpreter at the 10:30am & 6pm shows** Please email [email protected] or message below to receive your order form. Orders must be submitted by Friday 4th October 2019. http://www.worldfestivalofmagic.com.au/

13.01.2022 Karrathas Red Earth Arts Precinct will be lighting up purple this weekend to support epilepsy awareness.

13.01.2022 Have you got a Seizure Management Plan organised for your child? You need to ensure that your child’s school is seizure safe that the teachers have all the re...sources and education needed to make this year their best year at school. Please also make sure that your child’s seizure management plan and emergency medication plan is up to date - keep in mind that our nurses can help if you need assistance with this. If you need support when it comes to organizing a Seizure Management Plan for your child, we are here to help. Feel free to contact us on 1300 37 45 37 so we can assist you. See more

12.01.2022 Spring has sprung (although the weather over the past few days had us thinking otherwise!) September also marks the beginning of our new membership year. As a c...harity that receives no government funding, and generates limited fundraising income, the modest income we receive from our members through their membership fees, helps our organisation to continue to provide an array of services to help support those whose lives are touched by a diagnosis of epilepsy. Some of the benefits of becoming a member include; participation in one of our support groups, discounted rates to our Annual Purple Walk 4 Epilepsy WA and access to our Free Seizure Alert Bed Mat Loan Service. Furthermore, the combined voice of our community of members, helps to give the organisation the strength of voice to lobby for positive change. For anybody thinking of becoming a member of Epilepsy WA, you can do so via this link https://www.epilepsywa.asn.au/membership/ We wish to thank all current members and we hope you will renew your membership with us. Renewal letters will be sent out to all current members over the next few days. There are many exciting things happening here at Epilepsy WA - we hope that you will join us as members for the 2020/2021 year and beyond! See more

12.01.2022 Do the people close to you know what to do if you start having a seizure? #1 Tip: Don't try to restrain! There are a lot of first-aid sites that cover this, bu...t here are more general points to share. Find out some of the things we wish everyone knew about epilepsy by clicking this link: https://buff.ly/2HJbjbH See more

12.01.2022 Would you like to speak to someone at Epilepsy WA with a lived experience of Epilepsy to help you better understand the condition and the support services that ...are available to help you? Every Friday is your chance to do so. Our Compassionate Ear Support Service is available tomorrow from 9.30am-1.30pm, and it is provided by a suitably trained and qualified volunteer with a lived experience of epilepsy who can provide information about the services we offer, epilepsy fact sheets and pathways to other support services. Please call 1300 852 853. See more

12.01.2022 Our Purple Walk 4 Epilepsy WA will now be virtual, we are urging people to still dress in purple on March 29, take a photo and share it on Facebook tagging @epi...lepsywa #purplewalk4epilepsywa. Thanks to community newspapers across Perth for publishing this article which is certainly worth a read! Featured in it is a beautiful year 7 student, Alex, who is a brave Epilepsy Warrior, today is her birthday, Happy Birthday Alex See more

12.01.2022 The sudden death of Disney actor Cameron Boyce has caused sadness globally. Whilst we do not yet have a full and complete understanding of the circumstances sur...rounding Cameron’s death, this news article about Sudep, in light of recent events, helps to raise awareness of this rare condition and the things that people can do to help reduce their Sudep risk. https://www.forbes.com//cameron-boyce-tragically-died-as-/ See more

11.01.2022 It’s super hot in most parts of WA today. Heat is a common seizure trigger for many living with epilepsy and dehydration can be a culprit too. We spotted this s...ign and free water station at Woolworths in Perth’s Northern suburb of Beldon. We think this is a pretty great gesture! Well done Woolworths See more

11.01.2022 Love to all families who are feeling the effects of SUDEP xxx

11.01.2022 Each year in March Karratha turns purple for epilepsy awareness in honor of a local epilepsy warrior, Tahni. We are thinking of our friends in The Pilbara today with the current cyclone warning.

11.01.2022 Thank you Karratha Community for supporting Epilepsy Awareness xx

11.01.2022 ! Join us at our Purple Walk 4 Epilepsy and family fun day event with l...ive music, face painting, food stalls, a cuddly animal farm and so much more! Sunday, 29th March 10am - 2pm Edinburgh Oval south, Curtin University Check out our Facebook event for more information and to register: www.facebook.com/events/724902501369325/ ! #GoPurpleForEpilepsy #PurpleMonth2020

09.01.2022 Did you know there are over 40 different seizure types? Whilst convulsive seizures are the ones people most commonly think of, some common seizures can appear l...ike a daydream. Others can even be mistaken for intoxication. Less common seizure types can involve uncontrolled laughing or crying. It helps to raise awareness and dispel myths around epilepsy. How does your epilepsy impact you? See more

09.01.2022 Someone took a picture from a plane after our Purple Day and asked if this was us....yes, in this big wide world that is Purple Day in the Park making our small contribution to raise epilepsy awareness :)

09.01.2022 What do you wish people knew or understood about epilepsy? Here, community member, Colleen Patino has shared some very personal insights into her experience of ...living with the neurological condition. We acknowledge that many challenges that accompany epilepsy and seizures are unseen and not well understood. Epilepsy Queensland is committed to highlighting the realities and lived experiences of epilepsy, in an effort to foster greater understanding in the community. What do you think? Can you relate to any of these?

08.01.2022 Yesterday evening various landmarks across WA were illuminated purple to mark Purple Day for Epilepsy. Epilepsy WA is a charitable organisation raising awarene...ss and providing support for those affected by Epilepsy and, being wholly funded by donations, is one of the multitude of organisations struggling in these challenging times with all its events cancelled. Perth looked stunning in the purple glow, and with very few people around to see this we are bringing it to you Stay strong everyone... #gopurpleforepilepsy #purpleday Optus Stadium Matagarup Bridge The Bell Tower Times The Bell Tower Home of the Swan Bells Perth Destination Perth See more

07.01.2022 POSTPONED .....PURPLE DAY IN THE PARK Due to the expected crowd number and uncertainty of Coronavirus we are unable to host Purple Day in the Park this month. We will be monitoring carefully the health advices issued and set a new date when permittable. ... We will still be raising Epilepsy Awareness and going Purple on March 26th for Purple Day and would love to see your Purple Pics posted to this page. #GoPurpleForEpilepsy #PurpleDayinthePark #BePilbaraPurple If you have any concerns about Epilepsy and Covid-19 please refer to your Neurologist or the wonderful support groups at Epilepsy WA or an Epilepsy Support Nurse at Epilepsy Action Australia. Mel and NIc "Be Pilbara Purple"

07.01.2022 PURPLE DAY TOMORROW - dont forget to post your photos ...... !!!

06.01.2022 Coronavirus and epilepsy The coronavirus (COVID-19) is impacting on many countries including Australia and is occupying a lot of time in the news. On 11 Marc...h, the World Health Organisation declared the outbreak to be a pandemic. Youre not alone if youre feeling worried about it and what it means for you and your family. We are receiving calls from people who are understandably worried that epilepsy may place them at higher risk of developing coronavirus. Read our update

06.01.2022 Perth Wildcats Bryce Cotton’s epilepsy story Diagnosed with a rare form of epilepsy, doctors told his mum Yvonne that he wouldn’t live to see his 11th birthda...y. Yet somehow medicine prevailed, Cotton survived and developed into a basketball superstar. The thing that was difficult for me was for a couple of hours before the seizures would happen, I would start to feel off. I would know ahead of time that something was going to happen. For the first year after I started getting epilepsy, they didn’t know what it was. But by the time I hit seventh grade, they found medication and I took it for a year. Then they weaned me off it and everything has been good since. Being blessed to overcome something like that keeps me motivated, because I am so happy to be alive and doing what I love to do. Now 28 Cotton has played in the NBA, won three NBL championships and been named the leagues’s MVP twice. Thank you to Bryce for sharing your epilepsy story with The West Australian and helping to raise awareness of epilepsy. You can leave a message of support for Bryce Extracted from the story Cheating Death, Craig O Donoghue. The West Australian

05.01.2022 Do you know what an absence seizure looks like? An absence seizure involves brief episodes of staring, usually for a few seconds only, which may go unnoticed ...unless seizures occur frequently. Absence seizures begin and end abruptly. The person may stare vacantly or the eyes may drift upwards and flicker. It may be mistaken for daydreaming or zoning out and the person will not be responsive to touch or voice. Afterward the person may have no memory of what happened during the seizure. To assist someone having this type of seizure: Recognise that a seizure has occurred Reassure the person Repeat any information that may have been missed during the seizure. For more information you can visit: http://bit.ly/EQabsence Please share this information for #SeizureSafetySeptember and remember: not all seizures are the same!

04.01.2022 Mandurah Bridge #purple #epilepsy

04.01.2022 Go purple for Epilepsy Day Purple Day My neice is a Warrior #purpleday

03.01.2022 ITS COMPETITION TIME Go Purple for Epilepsy in March and you could win a # !... HERES HOW TO ENTER: : Just take a snap of your Purple Moment (your picture must include something purple and you must own the photo) : Post your picture on Facebook or Instagram : Use the hashtag #GoPurpleForEpilepsy ! Entries close midnight (AEDT) 27th March and the winning photo will be chosen by our panel of judges. The winner will be announced at 10am (AEDT) 30th March on Facebook and Instagram. For full terms and conditions click here: bit.ly/WINPurpleiPhone11 Go on, get creative! Think clothes, hair, nails, lights, glasses, decorations! See some examples below! This promotion is in no way sponsored, endorsed or administered by, or associated with, Facebook or Instagram. #GoPurpleForEpilepsy #PurpleMonth2020

03.01.2022 4 more days until world Purple Day. With Tahnis Purple Day in the Park, our Pilbara purple throw being cancelled and social distancing rules in place, we cant wait to see your purple isolation photos posted here! Xx4 more days until world Purple Day. With Tahnis Purple Day in the Park, our Pilbara purple throw being cancelled and social distancing rules in place, we cant wait to see your purple isolation photos posted here! Xx

02.01.2022 Its super hot in most parts of WA today. Heat is a common seizure trigger for many living with epilepsy and dehydration can be a culprit too. We spotted this s...ign and free water station at Woolworths in Perths Northern suburb of Beldon. We think this is a pretty great gesture! Well done Woolworths See more

02.01.2022 Epilepsy effects more people in Australia than Cerebral Palsy, Multiple Sclerosis, Parkinson’s Disease, Muscular Dystrophy and Blindness COMBINED. Let’s talk about epilepsy Western Australia! Share this and raise awareness, of a condition that is all too often left in the shadows.Epilepsy effects more people in Australia than Cerebral Palsy, Multiple Sclerosis, Parkinson’s Disease, Muscular Dystrophy and Blindness COMBINED. Let’s talk about epilepsy Western Australia! Share this and raise awareness, of a condition that is all too often left in the shadows.

02.01.2022 Last week we asked you to finish the sentence "Epilepsy is not just seizures, it's also ..." We received an outpouring of responses- the fact that epilepsy come...s with unseen challenges beyond the actual seizures themselves is obviously deeply felt in our community. We thank you for being brave and sharing your responses to shine a light on the lived experience of epilepsy. We've compiled some of your answers in this short video . Please share to help us raise awareness. . . . N.B. We understand that not everybody reads at the same speed- if you need to, you can pause the video at any time to read and reflect on the comments. Some of the responses have been shortened to fit the allowable parameters of the video creation platform used here.

02.01.2022 IT'S COMPETITION TIME Go Purple for Epilepsy in March and you could win a Purple iPhone11 : Just take a snap of your Purple Moment (your picture mu...st include something purple and you must own the photo) : Post your picture on Facebook or Instagram : Use the hashtag #GoPurpleForEpilepsy ! Entries close midnight (AEDT) 27th March and the winning photo will be chosen by our panel of judges. The winner will be announced at 10am (AEDT) 30th March on Facebook and Instagram. For full terms and conditions click here: http://bit.ly/WINPurpleiPhone11 Go on, get creative! Think clothes, hair, nails, lights, glasses, decorations! This promotion is in no way sponsored, endorsed or administered by, or associated with, Facebook or Instagram. #GoPurpleForEpilepsy #Competition #Win

01.01.2022 Karratha’s Red Earth Arts Precinct will be lighting up purple this weekend to support epilepsy awareness.

01.01.2022 PURPLE DAY TOMORROW - don't forget to post your photos ...... !!!

01.01.2022 We applaud Perth Wildcats star, Bryce Cotton, for sharing his epilepsy journey with The West Australian. 1 in 25 of us will be diagnosed with epilepsy and epile...psy is a condition that remains very much in the shadows and unspoken about. The World Health Organization has said epilepsy is arguably the world’s most stigmatized, misunderstood and under-resourced of all health conditions. This can and MUST change. Please stand with us. If you need support or want to find out more about epilepsy or Epilepsy WA’s services visit www.epilepsywa.asn.au See more

01.01.2022 Today is #SUDEPActionDay, a time to shine a light on Sudden Unexpected Death In Epilepsy. It's so difficult to talk about, but the conversation is important so that we can work towards prevention.

01.01.2022 UPDATE - AEDs MEDICINES SUPPLY We would like to reassure our community that may have concerns about the supply of Anti-Epileptic Drugs (AEDs) being interrupt...ed as people prepare for the impact of coronavirus or COVID-19. The Government has announced that it now requires community pharmacists to enforce new limits on dispensing and sales of prescription and over-the-counter medicines. The Pharmacy Guild of Australia and the Pharmaceutical Society, in conjunction with the Department of Health, have now issued new advice to pharmacies. This is also supported by the National Pharmaceutical Services Association, which represents pharmaceutical wholesalers. The Pharmacy Guild of Australia has directed pharmacists to limit the dispensing of prescriptions to one months supply, which should also assist in alleviating stock issues and ensure fairness for patients https://www.guild.org.au//dispensing-limits-will-ensure-fa These sensible and timely limits announced by the Government will apply to particular classes of medicines which must remain available for patients in need. It is regrettable that such measures are needed, but these are unprecedented and drastic times. We ask all patients to understand the need for these restrictions and to be respectful towards pharmacy staff, said National President, George Tambassis. A statement from Epilepsy Australia announced Medicines Australia and the Therapeutic Goods Administration have both confirmed there is CURRENTLY NO ISSUE with the supply of AEDs in Australia. Pharmaceutical companies, including UCB, who manufacture and distribute AEDs, have also advised they do not see COVID-19 impacting on the supply of their products to customers. See here for UCBs statement: https://www.ucb.com/stories-media/ In the case of isolated shortages, Epilepsy Australia suggest you speak to your pharmacist about having stock shipped directly to your pharmacy from manufacturers. If you have any concerns please send us a message or contact us on 1300 852 853.