Rare Find Foundation | Charitable organisation

Rare Find Foundation

Phone: +61 8 7123 4044

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23.01.2022 Our December Newsletter is out! Find out what we’ve been up to over the past month by clicking here: http://bit.ly/RFFDecemberNewsletter You can stay up to date with Foundation news and events by following the subscribe prompts.... #RareFindFoundation #Australia #TaySachs #Sandhoff #rarefind #rarediseases #awareness #support #charity #news #curetaysachs #curesandhoff #TaySachsAwareness #sandhoffawareness #December #dogood #nonprofit #subscribe

20.01.2022 charity collaboration appreciation A huge thank you and shout out to Treasure Boxes team who support families in South Australia and today we were able to deliver a comprehensive care package to one of our amazing mums and her three darling children #charity #treasureboxes #raredisease #rarefindfoundation #childhooddementia #thankyou

20.01.2022 We are so proud of our Founder and Chair, Anna Pak Poy, who last night won an InDaily 40 Under 40 Award! Congratulations to Anna for all her hard work helping create awareness of Tay-Sachs and Sandhoff disease through Rare Find Foundation, as well as leading Careerlink People Solutions. Thank you to Citymag InDaily and Solstice Media for providing a platform for us to continue spreading awareness about our important cause.... #RareFindFoundation #InDaily #40Under40 #40Under40AwardsSA

19.01.2022 Help us raise vital funds! There are many ways you can fundraise for Rare Find Foundation depending on your time availability. Quick & Easy... Create a Facebook Birthday Fundraiser or initiate a gold coin donation casual day at work or school. High Energy Start your own fitness challenge and ask for pledges. Hands On Host your own fundraising event - whether it's a quiz night, high tea, movie night, sausage sizzle, or something completely different! Whatever it may be, we are here to support you and help make it a success. Download our Fundraising Guide at the link below and get in touch with your ideas! http://bit.ly/RFF-FundraisingGuide #RareFindFoundation #Australia #charity #causes #fundraise #support #community #getinvolved

18.01.2022 Raising money for Rare Find Foundation? We've got you covered! When you register your fundraiser with us, you'll receive a Fundraiser Pack which includes: Branded merchandise including cap, tote, and singlet/polo shirt Social media assets to help you promote the event... Further information and guidance to help make the event a success Contact [email protected] to get started!

13.01.2022 A big thank you to our volunteers Megan and Miriam for donating their time and sewing skills These colourful, custom-made bibs will be sent to our families across Australia, as bibs for older children are not easily accessible. We are so grateful for your support! To volunteer or find out how you can help the Foundation, contact us here: https://www.rarefindfoundation.org/contact-us/

11.01.2022 Join us in supporting Nathan as he raises funds in memory of his beautiful niece, Tijana. Nathan’s Story: This cause hits close to home for my family. My niece, Tijana, passed away from Sandhoff disease in April 2013 just shy of 2 years old. Through my fundraising, I hope to give support to families suffering from these horrible diseases, as well as research to find better treatment and hopefully a cure. Importantly, I want to raise awareness so people can undergo carrier sc...reening, so no one else has to go through what my family has. Help Nathan reach his fundraising goal by donating here: https://www.gofundme.com/f/nathan-goes-bareforrare #BareForRare #RareFindFoundation

08.01.2022 We are thinking of our families over the Christmas and holiday period. For some whose children are not in our arms, it’s a day for holding close and sharing beautiful memories. For those whose children have a life limiting condition, we hope you can spend it by making memories you will forever cherish #RareFindFoundation #rarefind #rarediseases #Australia #TaySachs #Sandhoff ... #charity #support #donate #awareness #curetaysachs #curesandhoff #dogood #volunteer #nonprofit #causes #change #Christmas #holidays #memories #family See more

05.01.2022 This week is Men’s Health Week. Men’s Health Week provides an important platform to heighten awareness of preventable health problems and encourage early detection and treatment. It’s important to prioritise your physical, emotional, and social health by staying connected and seeking support early.... Find out more here: https://www.menshealthweek.org.au/ #RareFindFoundation #MensHealthWeek #Australia

05.01.2022 To the special dads and father figures we celebrate you today. We also honour the brave fathers who carry their children in their hearts, rather than their arms. We are thinking of you

02.01.2022 Thank you to the Women's and Children's Health Network for their continued support in helping us raise awareness and to all of the hospital team who cared for Sebby over our time. Forever grateful.

02.01.2022 Rare Find Foundation Founder, Anna, spoke about her Tay-Sachs journey, alongside the Childhood Dementia Initiative CEO, Megan. Thank you to Heidi and Essential Baby for sharing our story and helping raise awareness of these rare diseases and put a much needed spotlight on childhood dementia . Read the full article below http://www.essentialbaby.com.au//i-watched-my-child-die-in... Childhood Dementia Initiative #RareFindFoundation #rarefind #taysachs #sandhoff #rarediseases #Australia #curetaysachs #curesandhoff #childhooddementia #awareness #support #charity #notforprofit #donate #essentialbaby #news