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Reach out for Ryan

Phone: +61 401 373 121

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25.01.2022 Cooking set - congratulations Leigh Stevens

24.01.2022 We are launching our gofundme campaign to help raise money for a much needed disability vehicle for Ryan.. Please share far and wide. https://gf.me/u/y5uikr

22.01.2022 Reach out for Ryan Incorporated ANNUAL GENERAL MEETING WILL BE HELD ON Thursday 12th March 2020 at 7:00pm in the Diamond Room National Hotel 182-186 Hight St Bendigo followed by a... ROFR general meeting All executive and sub-committee positions will be declared vacant. The Reach out for Ryan committee members raise awareness and funds for Ryans ongoing financial and physical needs, due to his condition, Duchenne Muscular Dystrophy. If you would like to nominate yourself or someone else for an executive position or as a general member of Reach out for Ryan, please request a form and email the details to [email protected] give it to one of the current committee members by Thursday 7th March 2020 or bring it along to the meeting.

22.01.2022 Hi Reach out for Ryan supporters, We have been asked frequently in the last few weeks when in September is our annual dinner fundraiser at the Bendigo Stadium? To answer the question, we will be holding it in February next year as we have some other exciting fundraising ideas this year! Firstly, thank you to all who came along to the movie night to see the Lion King! It was a great success with over 120 people in attendance. We raised over $1300!... This coming Friday night, 30 August, our beautiful friend Val Barker, will be hosting a Senegence fundraiser party online on Facebook and 25% profits will be donated to Reach out for Ryan! How amazing is that! The party will not stop there though, as Val has extended the fundraiser for the whole of September! So if you cant make it, or you are not on facebook, you can still be a part of it! The link to the group is https://www.facebook.com/groups/1144360442618516/ or the event is https://www.facebook.com/events/751574781964466/ If you would prefer a printed copy of the catalogue we have them available and can get them to you if you reply to this post We are also holding a Star Cinema movie fundraiser on November 7. Please pencil in your diaries. If you would like to help out with collecting raffle prizes or to help out in another way, we are very keen to have more helpers so please be in touch! Thank you for your ongoing support to Ryan and in helping him reach his full potential. The Reach out for Ryan team

21.01.2022 Lipsense starter kit - congratulations Gayle Mitchell

19.01.2022 Thank you Eaglehawk Garden Sculptures!

18.01.2022 Its less than two weeks until World Duchenne Awareness Day, but do you know why its held on 7th September? It's on 7/9 in recognition of the 79 exons on the Dystrophin gene. A small genetic fault in just one of these exons is all it takes to cause Duchenne Muscular Dystrophy. Duchenne is the largest genetic killer of children, yet remains largely unheard of. It occurs in 1 in 3,600 male births, with just 1 in 50 million females being affected to the same severity. You can ...show your support by changing your Social Media profile picture to the Duchenne Awareness Day balloon. By 7th September we hope to see Social Media flooded with red balloons to raise awareness of all those affected by Duchenne Muscular Dystrophy. #strength #courage #hope #education #awareness

18.01.2022 One of our fundraisers for the year is on tonight! Please support Reach out for Ryan and have fun at the same time! You can do it from the comfort of your own home also. If you cant be involved tonight you can still be a part of the fundraiser up until the end of September.

18.01.2022 Today is World Duchenne Awareness Day!

17.01.2022 Thank you to all my friends who changed their profile pics to red balloons for our Ryan! To help spread awareness of Duchenne Muscular Dystrophy, this insidious disease. I really appreciate it :) Charlotte

17.01.2022 Chinese art scroll and pen set - congratulations Julie Fletcher

16.01.2022 Only 8 days to go until our movie fundraising night! We have some yummy food lined up to have at 6.00pm before the movie at 7.00pm. Book your tickets by calling the Star Cinema on 5446 2025 All enquiries: Lisa Walklate 0419 311 869.

16.01.2022 On September 7, all over the world, World Duchenne Awareness Day (WDAD) will be celebrated. On this day we raise awareness for Duchenne and Becker Muscular Dyst...rophy, two progressive muscle disorders that also affect the brain. TOGETHER WE ARE STRONGER is the video of this 2020 edition with realistic moments lived by Duchenne families showing that together we can make a difference. Initiative created and coordinated by the World Duchenne Organization www.worldduchenneday.org

15.01.2022 Today Monday 7th September is the 7th World Duchenne Awareness Day. The day that we unite as one voice to raise awareness for all those across the globe living... with Duchenne or Becker muscular dystrophy. One in 5000 newborn boys in the world are affected by a rare disease called Duchenne muscular dystrophy. That means more than 250,000 boys / men and rare females are living with this insidious disease that currently has no cure. Today we raise our voices to ensure every single person with Duchenne or Becker have access to care, support, equipment, clinical trials and emerging therapies while we all fight for a cure @wdad2020 @worldduchenne @duchenneaustralia @rarevoicesaustralia @parent_project_dmd @duchenneukraine @duchenneuk @duchenneboys @duchenne_nl @parentprojectmd @parentproject @parent_project_aps @dppspain @menacetoduchenne @mdawarnambool @agru.duchennecl @actionduchenne @dmd_aileleri @duchenneregistry @together_fighting_duchenne @australianduchenneregistry @harrys.heroes @duchenne_warriors @duchenneukraine @duchenneresfund @duchennemosaic @duchennexchange @duchenneheroes @saveoursons @socialduchenne @duchenneheroes @duchenne_kids @harrison_and_duchenne @coalitionduchenne @cureduchenne @duchennebolivia @duchenneguatemala @destroyduchenne @distrofia @harrys.heroes @duchennetijuana @agruduchennecl @beatduchenne @distrofia_muscular_duchenne @dmdturkiye @dmd_aileleri @dmd_indonesia @dmdannesi @parent_project_dmd @dmdpathfinders @dmdadvocate @laforcedmd @fckdmd @duchennebolivia @thedmdimpact_ @littleoagainstdmd @dmdgonulluleri @finnsfriendsdmd @zilkayutuk @musculardystrophynsw @musculardystrophyqld @musculardystrophywa @musculardystrophyaustralia @mdaorg @musculardystrophynz @md_canada @musculardystrophyireland #duchenneaustralia #wdad2020 #worldduchenneawarenessday #research #duchenne #becker #advocacy #awareness #support #awarenessiskey

14.01.2022 Its less than a week until Duchenne Awareness Day, but do you know why its held on 7th September? It's on 7/9 in recognition of the 79 exons on the Dystrophin gene. A small genetic fault in just one of these exons is all it takes to cause Duchenne Muscular Dystrophy. Duchenne is the largest genetic killer of children, yet remains largely unheard of. It occurs in 1 in 3,600 male births, with just 1 in 50 million females being affected to the same severity. You can show your support by changing your profile picture to the Duchenne Awareness Day balloon. Feel free to save and use the one in the comments. By 7th September we hope to see Facebook flooded with red balloons to raise awareness of all those affected by Duchenne Muscular Dystrophy.

14.01.2022 Unfortunately due to the current COVID-19 situation, we decided to cancel our annual fundraiser dinner for March 26th . We will make it a bigger and better near the end of the year! Stay safe and look out for each other.

13.01.2022 Is the brain a muscle? Parents of children with Duchenne and Becker often ask Is the brain a muscle? The answer is no the brain is actually an organ, and a ...very unusual and complex one at that. It plays a vital role in every single one of our functions, controlling our organs, our thoughts, memory, speech, and movements. So although your brain anatomically isnt a muscle, it does contain a bit of muscle. Brains are made of soft tissue which is grey and white matter containing the nerve cells, non-neuronal cells (which help to maintain neurons and brain health), and small blood vessels. They have a high water content as well as a large amount (nearly 60 percent) of fat. So If the brain is not a muscle why is dystrophin in the brain? Dystrophin which is the protein affected in someone diagnosed with Duchenne or Becker muscular dystrophy IS also expressed in brain neurons. Although we do not fully understand the role of dystrophin in the brain experts have found more that 45 % of those with Duchenne or Becker have some degree of learning difficulties or psycho-social issues, such as attention deficit disorder (ADD), hyperactivity disorders (ADHD) and autism spectrum disorders and obsessive-compulsive disorders. So to highlight this often overlooked area of dystrophin and the brain and the effects on those living with or Duchenne or Becker muscular dystrophy the World Duchenne Organization are spreading global awareness to improve understanding and increase research to improve the quality of life of our Duchenne community around the world #wdad2020 #duchenne #awareness #advocacy #togetherwearestronger #research

13.01.2022 And the winners of the Reach Out For Ryan fundraiser raffle draw are:And the winners of the Reach Out For Ryan fundraiser raffle draw are:

12.01.2022 Monopoly Fortnite - congratulations Julie Fletcher

12.01.2022 6 bottles bubbles and set 6 crystal glasses - congratulations Lisa Walklates

08.01.2022 Tomorrow, 7 September, marks the annual day in which the Duchenne community come together, united as one, to raise as much awareness as possible for every single person that this condition affects, by the worldwide symbol of a red balloon. Please use the red balloon as your profile picture - if just one person asks you what Duchenne is, you will have helped us in our mission to educate more people! Why 7th September? Because the date 7/9 represents the 79 exons of the Dystro...phin gene - one small genetic error in just one of these exons will cause Becker or Duchenne Muscular Dystrophy. This happens to 1 in every 3,600 male births and 1 in every 50 million female births to the same severity - it can happen to any race, any religion, any family. Thank you for reading!

08.01.2022 Dont forget our raffle will be drawn tomorrow at 6pm! Head on over to the event page to view the amazing prizes which have been donated! Contact us to purchase tickets.

08.01.2022 Less than a week till the raffle draw! Get in quick for your tickets. Pics are coming of the amazing prizes!

07.01.2022 Lisa Walklates handmade Quilt - congratulations Laura Hassel

07.01.2022 We have some amazing prizes for our raffle to be drawn on Monday 4 May! If you would like to purchase, leave a comment. We will be posting pics of the prizes in coming days :) Thank you.

07.01.2022 The brain is affected quite a bit with Ryan and it is because of DMD, it is very evident with our Ryan. He has quite a few acronyms after his name and its been at times, more difficult that the physical condition itself. Im grateful for the emphasis on the brain and DMD this year with Duchenne Awareness Day.

05.01.2022 We need to more seats booked if we are to hold the event. So if you are planning on coming please comment on this post and I can add you to my booking. Charlotte

02.01.2022 Doona Cover Set - congratulations Anne-Maree Beaver

02.01.2022 The Salvatore ladies watch - congratulations Carmel Woodford

02.01.2022 Two days to go. Book your tickets now!

02.01.2022 Reach out for Ryan are holding the annual dinner fundraiser on Thursday 29 March 2020. It is a Fundraising Effort raise money to help Ryan reach his full potential. Join us for an evening meal, silent auction and fun!... 30% of the main meal purchased, is donated to Reach out for Ryan. For bookings or donations, contact Drew Reid on [email protected] or 0447 775 508

02.01.2022 If you would like to go on our mailing list, private message me and I can add you!If you would like to go on our mailing list, private message me and I can add you!

01.01.2022 Olly's Oils gift basket - congratulations Carmel Woodford