Sanfilippo Children's Foundation | Non-profit organisation

Sanfilippo Children's Foundation

Phone: +61 1800 664 878

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25.01.2022 HE DID IT... Yesterday our Foundation's business development manager, Brad Phillips, shaved his head live on Facebook and hit his target of $10,000 for the Sanfilippo Children's Foundation Have you been following Brad? He should have been running the New York Marathon this November but this was derailed by Covid-19 so he decided to create his own campaign which he coined 'Remember November' and includes: -20,000 steps a day ... - Growing a mo - Giving up coffee - Giving up beer - Going vegetarian - Hosting a big morning tea - Hosting a big Aussie BBQ - Begin saying Ciao! - Not taking up smoking - Doing the Bloody Long Walk - Doing the 40 Hour Famine And... Shaving my head ....if the tally hits $10,000 by 530pm Friday 27 November!! BIG THANKS BRAD! Amazing effort #stepsforsanfilippo #childhoooddementia

22.01.2022 We had a special visitor today! James Griffin MP, Member for Manly (our local State MP) popped in to meet our new CEO Victoria Bowring (pictured), learn about the challenges of the childhood dementia, Sanfilippo Syndrome, and to acknowledge Charities Open Day, as part of GivingTuesday Australia. Giving Tuesday is about celebrating and encouraging generosity in the community. Thanks James for taking time out to hear all about Sanfilippo. Our purpose is driving research for a... world without Sanfilippo Syndrome. #givingtuesday2020 #charitiesopenday #sanfilipposyndrome #childhooddementia See more

21.01.2022 This Christmas, we hope you have the chance to spend time with the people you love. Surely this is a year we'll never forget. The reality for children with Sanfilippo Syndrome is they may not remember this Christmas. Sanfilippo is not only taking away their memories, but also their ability to walk, talk, laugh and tear open their presents.... Imagine if we could cure this condition. Your donations this Christmas will fund research seeking exactly that to give children like Oliver the hope of a future full of Christmases. Go to: www.sanfilippo.org.au/cure

17.01.2022 OUR VILLAGE STEPS UP: Steps for Sanfilippo is done and was so much fun! An amazing 89 steppers registered, 100s and 1000s of steps taken & $46,000 research dollars raised ... (so far!) A HUGE CONGRATS to everyone who participated including five families with children battling Sanfilippo. Participant fundraising pages remain open for donations...so if you made any deals with friends or family to sponsor you upon completion, now's the time to collect!... We're so thrilled with everyone's commitment to raising funds for research for Sanfilippo Syndrome and we look forward to seeing everyone stepping again next November!

12.01.2022 TODAY is the International Day of Persons with Disabilities (December 3) , an international observance promoted by the United Nations since 1992. The day aims to promote an understanding of disability issues and mobilise support for the dignity, rights and well-being of persons with disabilities. In Australia, the day is designed to acknowledge the lives, achievements and the contributions of people living with a disability. Check out @idpwd At Sanfilippo Children's Founda...tion we acknowledge this important day and renew our call for further research into this catastrophic condition that currently has no treatment and no cure. #IDPWD #sanfilipposyndrome #childhooddementia

10.01.2022 FRIDAY FACTS... How much do you know about the childhood dementia, Sanfilippo Syndrome? Know the facts about this catastrophic condition and learn how organisations like ours are driving research for a world without Sanfilippo Syndrome. MAKE A DIFFERENCE at www.sanfilippo.org.au/donate #fridayfacts #childhooddementia #sanfilipposyndrome

10.01.2022 Calling all DECEMBER babies... Have a birthday this month? Thought about doing a Facebook fundraiser in celebration of your birthday? It's super easy to start your own fundraiser on Facey and nominate your favourite charity. = GO TO : https://d29z5evoj27as.cloudfront.net/9379cb0661de615a7154f9 ... Here you’ll find out more and download our FB BIRTHDAY FUNDRAISING how-to PDF guide.

08.01.2022 AUSTRALIAN OUTBACK MARATHON. . . Run on the red earth in the heart of Australia on 31st July 2021. (These spots are strictly limited but open to our Sanfilippo supporters who like to run.) Set against the backdrop of Australia’s iconic landscape, the Australian Outback Marathon with Sanfilippo Children’s Foundation is a chance to challenge yourself as you pound the red earth around Uluru and Kata Tjuta National Park. Click here for more info: https://www.sanfilippo.org.au//2021-australian-outback-mar

07.01.2022 KIRKMAN KIDS DO KMs... This awesome little foursome are clocking up kilometres, all in the name of Sanfilippo. The Kirkman kids are no strangers to events at the Sanfilipppo Children's Foundation. They're mum, Emma Kirkman, is our awesome Fundraising Campaign Manager. When Emma broke her ankle in the weeks prior to our Steps for Sanfilippo launch, her kids decided to join together as a family and step up to the challenge. ... Collectively, they aim to reach 1.5 million steps this November. READ Q&A interview: https://www.sanfilippo.org.au//kirkman-kids-do-kms-for-san SPONSOR Kirkman kids: https://www.sanfilippo.org.au//KIRKMA/steps-for-sanfilippo

07.01.2022 Welcome to new CEO, Victoria Bowring Today Victoria joins our Foundation as CEO, taking the reins from Megan Donnell after 7 years at the helm. Commenting on Victoria's appointment, Megan said: "We're delighted to have Vic join the Foundation. She brings exceptional leadership experience with over 25 years in commercial businesses and for-purpose organisations and I'm excited to see where Vic takes the Foundation next." ... Victoria stood out during a competitive selection process, among a very talented field of candidates. Reflecting on her appointment Victoria said: "I’m in awe of the impact the Foundation has had in a relatively short time. I'm thrilled to be joining this team of genuinely caring people who want nothing more than to ensure that parents in the future do not have to experience the heartache of Sanfilippo." Megan will remain on the Foundation's Board.

06.01.2022 Meg and team were at NSW’s Parliament House this morning hosting a breakfast launch event and calling for urgent action to end childhood dementia. CDI released its alarming findings on the impacts and costs of childhood dementia in Australia and outlined strategies to address this devastating disease. It's time to end childhood dementia!... #childhooddementia #childhooddementiainitiative #sanfilipposyndrome #raredisese See more

04.01.2022 FINAL COUNTDOWN... Our Steps for Sanfilippo fundraisers are pushing themselves to hit their targets tomorrow. SHOUT OUT to the amazing families (pictured) with children battling Sanfilippo who have got onboard this November. Please show them a little love and make their steps count! Special mention also to those Sydney-siders who have walked this weekend in sweltering heatwave conditions ... SUPPORT: www.sanfilippo.org.au/steps #stepsforsanfilippo #childhooddementia #childrenscharity #research

03.01.2022 MEET THE MOONEYS... Last week we launched a family campaign for Thomas Mooney called TEAM THOMAS. Thomas has Sanfilippo Syndrome (Type B). This insidious disease has already stolen so much from Thomas but this young man is defying the odds. In honour of Thomas, you can help by contributing to our campaign to raise funds for research into this heartbreaking childhood dementia. According to his parents Rose & Brett: "Thomas was born in the year 2000, so our family joke is that ...he was the only one who caught the Y2K bug! "Thomas loves to keep busy and spends a lot of time going for drives or walking on the beach. The rest of the time he loves to sleep in and hang out with his family and watch movies. "We're a close-knit family a true team, or as we like to say: 'Team Thomas'." READ FAMILY STORY: www.sanfilippo.org.au/thomasfamilystory OR DONATE: www.sanfilippo.org.au/teamthomas

02.01.2022 SUPER SIBLING Sienna Morrice is stepping up this November in honour of her little brother Alec who is slowly losing his ability to walk. "He is still able to walk for very short distances with the help of another person, however he needs his wheelchair for any walking which is longer than a few minutes. "[Sanfilippo] has made me appreciate life more and want to make the most out of it. It has also made me realise that family is more important than anything."... Sienna knows more than most the importance of our Steps for Sanfilippo campaign. Alec is her reason why. Q&A Interview: https://www.sanfilippo.org.au//super-siblings-sienna-morri SPONSOR Sienna: https://www.sanfilippo.org.au//sienna/steps-for-sanfilippo