Super humans of Sydney | Community organisation

Super humans of Sydney

Phone: +61 433 806 830

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25.01.2022 Each year, #GivingTuesday is held on the Tuesday after Thanksgivingthis year it’s on December 1. Falling so close to Black Friday and Cyber Monday, it’s a great time to kick off holiday giving and to get in the spirit of helping others. Learn more about how you can help at https://buff.ly/36xOQe1 TOGETHER WE WILL FIND CURE.

24.01.2022 It's on next Saturday only 4 more sleeps to go for the bounciest Xmas part in the Southern Hemisphere get your children's socks ready. https://www.facebook.com/events/221656098264071??ti=ia

24.01.2022 Creating a ride for ALL riders to arrive at Bunnings Seven Hills Between 11AM to 2 PM, The FoxG1 Hayabusa will be there for photos with the kids. This Fathers day weekend, there is heaps of activities at Bunnings for Dads and kids. Cage drivers welcome as well. These were photos from the last FoxG1 BBQ at Bunnings Seven Hills : https://www.facebook.com/media/set/ and ... https://www.facebook.com/media/set/ TOGETHER WE WILL FIND A CURE

22.01.2022 It's on today The bounciest Christmas party in and the Southern Hemisphere get your childrens socks ready. Be there to win a ride on the special edition Harley, be there at 6:30, RSVP here https://www.facebook.com/events/221656098264071??ti=ia or simply walk in. Thank you everyone for your support the whole year.... TOGETHER WE WILL CURE FOXG1 See more

22.01.2022 Thank you 600 superhuman Santas for raising funds for a great cause TOGETHER WE WILL FIND A CURE

21.01.2022 You can be the one reason why Foxg1 kids can smile and be the reason to feel what HAPPINESS really means. Learn more about how you can help at https://buff.ly/36xOQe1 TOGETHER WE WILL FIND CURE.

21.01.2022 Hi all, can we get this message from Kush be seen by a million people. Please like share and leave your comments and wishes for Kush and all FoxG1 children here. Please share on your timelines as that has an exponential spread. On the way back home on the bus or train, watch the video and share on your timelines, awareness is step 1 to a cure and with everyone's help, TOGETHER WE WILL FIND A CURE

20.01.2022 Hey everyone we have a Bunnings BBQ at seven hills, goes from 8AM to 4 PM and we are raising funds for FoxG1 research. At least 8 volunteers are needed to pull this off, the Hayabusa Smiles fastest production bike in the world will be there for free photos, please do join in and help. We will need at least 4 people between 10 AM and 2PM, when it is the busiest. TOGETHER LETS CURE FOXG1

20.01.2022 Thank you Superhero Wendy for saving the day today TOGETHER WE WILL FIND A CURE

20.01.2022 All we would like is for this smiling boy Kush to also be able to ride a scooter like his siblings and see the wonderful Christmas decorations everywhere. TOGETHER WE CAN MAKE IT POSSIBLE, research has already started at UNSW Please SHARE this message on your Facebook pages, as AWARENESS is step 1 to a cure. If you can please add a gift this Christmas to help find a cure for this little boy, hundreds of FoxG1 kids every where and for all future generations. DONATE generously using below link, http://bit.ly/FoxG1XmasAppeal #LetsCureFoxG1 #FoxG1 #TogetherWeWillFindACure

20.01.2022 Start of the school holidays and Kushagra and siblings start of the school holidays with a bang with a BBQ at Bunnings Seven Hills anyone with a couple of hours to spare, head to Bunnings Seven Hills TOGETHER WE WILL FIND A CURE

18.01.2022 The holidays aren’t just for receiving. It's also giving back what we've got. #givingtuesday Learn more about how you can help at https://buff.ly/36xOQe1... TOGETHER WE WILL FIND CURE. See more

18.01.2022 Your generosity matters. Be part of the donation nation. Give with heart. Join the global giving movement. #Giveback #givingtuesday... Learn more about how you can help at https://buff.ly/36xOQe1 TOGETHER WE WILL FIND CURE.

17.01.2022 Tomorrow is the first Saturday of this special year, start it with a bang, or a slow crawl, (Keep moving) join the your fellow superHumans for a fantastic ParkRun details here http://meetu.ps/c/2J3Qj/tqJSG/a

17.01.2022 This is a superhero fighting for others!!!

16.01.2022 Friends, reminder last FoxG1 Bunnings fundraiser BBQ of 2018 is at Rouse hill Bunnings, Do drive by and grab a snag if you are on the road tomorrow. There is always something you can pick up from Bunnings and will also be helping out a great cause. If anyone can drop in for a couple of hours and give a hand on the BBQ or handle cash , all help is greatly welcome, especially so between 10 and 2 as that is the busiest time. TOGETHER WE WILL FIND A CURE for all children diagn...osed with FoxG1 https://www.facebook.com/589743175/posts/10156026295423176/

16.01.2022 An amazing Harley Davidson chopper and a fantastic burnout bike are supporting FoxG1 research BBQ tomorrow. Come down to have your photos with these legendary bikes and also help support FoxG1 TOGETHER LETs CURE FoxG1

16.01.2022 Starting 2018 with the story of The People's Truck. Derek McMahon the owner of McMahons Transport lends the realestate on the side of his truck for people, companies organisations, clubs families and individuals to share their name in the spotlight and raise funds for the I98FM Illawarra Convoy. The peoples truck has raised over $1Million to help kids families and those who need help. Pleased to meet another of Sydneys super humans in 2017...

16.01.2022 Did you hear of this Sydney superhero https://www.facebook.com/saraperrybellep//1900551940261142

14.01.2022 Friends of FoxG1, Harrys Liverpool, have their monthly meet where they have amazing cars bikes and many many trophies. Come down to see the amazing machines and also join them in helping support great causes. Thank you Harrys liverpool got helping share FoxG1 awareness. TOGETHER WE WILL FIND A CURE for all FoxG1 children..

14.01.2022 DDay -3 ($160 of $5,000 raised) One night isn't a lot, but it can make a whole lot of difference! Every night, thousands of Australians experience homelessness.... But it doesn't have to be that way. This Thursday night I'm taking part in the Vinnies CEO Sleepout to raise money for the St Vincent de Paul Society to support Australians in need. For one night, I'll be sleeping outside as part of an eye-opening experience to raise awareness and bring home the realities of homelessness. To help break the devastating cycle of homelessness, I need your support. Will you help me to help me reach my target? Donating 50 dollars can make a huge difference to people who need it most.

13.01.2022 Dear all, we are doing a Bunnings BBQ this Mothers Day Sunday https://www.facebook.com/events/157858915056030/ to raise funds and awareness of FoxG1. Please come to the BBQ, volunteer a couple of hours or donate using this link https://foxg1.org.au/donate-now/. Funds go towards FoxG1 research UNSW https://www.facebook.com/UNSWMedicine/posts/470770086592017 and CMRI https://www.facebook.com/jeansforgenes/posts/10155454955411451 TOGETHER WE WILL FIND A CURE https://www.facebook.com/events/157858915056030/

12.01.2022 Hope this message gets across to its recipient

10.01.2022 Be a fundraising ambassador and help us raise $200,000 for 2 kids scholarships in 2021. Learn more about how you can help at https://buff.ly/36xOQe1 TOGETHER WE WILL FIND CURE. #foxg1awareness #foxg1syndrome

10.01.2022 We need you for 2 hours tomorrow !!! After a long 14 k walk from city to Bondi last weekend, this Sunday tomorrow the FUNraisers and Kush are at the Seven Hills Bunnings from 8AM to 4 PM, trying to raise awareness and funds for essential medical research. Come down we for a couple of hours, try out your BBQ moves and become a true superhero by helping out Kush and the gang. As always even if you want donate a pack of bottles of water or soft drinks or sauces or breads or sau...sages , this will be very deeply appreciated, need about 6-8 volunteers (busiest time is between 10 and 2), and the supplies cost about $400, we end up raising about 900-1,000. If you want to be an armchair ninja warrior, have the option of donating directly to the city to surf page as well that is up for the next couple of weeks here https://city2surf2018.everydayhero.com//team-foxg1-for-cmr

10.01.2022 Because of Covid, FoxG1 donations have declined, our research must continue, become a fundraising ambassador and help raise $200,000 for two scholarships in 2021 Learn more about how you can help at https://buff.ly/36xOQe1 TOGETHER WE WILL FIND CURE. #foxg1 #fundraising #scholarships #2021

09.01.2022 ***Volunteers really needed*** Hey everyone, unfortunately we have had one of our star volunteers unable to make it tomorrow and so have a real desperate shout out for a BBQ champion to join us for at least 2-3 hours, especially between 10AM to 1PM. If you can make it, we will really really appreciate your presence, Again sharing that November is FoxG1 awareness month and TOGETHER WE WILL FIND A CURE

08.01.2022 Thank you Arti Ji for sharing Monikas FoxG1 message. Kush and his supporters will be walking 14 Kms with 60,000 people tomorrow. Let all of us as Humans everywhere come together and try to help him in his attempt to find a cure for all children diagnosed with FoxG1. More details in your message below. TOGETHER WE WILL FIND A CURE

08.01.2022 Hey friends , the FoxG1 BBQ is on again this Saturday raising essential funds, awareness and smiles for FoxG1 Research. Need shutterbugs, to click some awesome photos, Volunteer BBQ Champions to help on the barbie, and friends with your fabulous machines to join us this weekend, The FoxG1 Hayabusa #Smiles will be there for free photos, will you be there too, TOGETHER WE WILL FIND A CURE for all children diagnosed with FOXG1 so that they too can ride a motorcycle or drive a great car one day. https://www.facebook.com/events/806733212993669/?ti=cl

07.01.2022 Hey friends , back from a long weekend into a short week, once again the weather is great, and we are doing our final BBQ of the financial year. Australia financial year is 1 Jul to 30 Jun for our international friends. It is amazing, with the help of so many passionate friends from all over and such great passionate parents, the FoxG1 journey has been going great guns, the patient registry is up and running , in the US FOXG1 Research has moved mountains and so many people ar...ound the world are behind the cause now. The humble endeavour is still to get every FoxG1 kid to one day be able to ride a bike, run a city2Surf and fly a plane. There have been setbacks the Rotary CMRI scholarship did not work out, we lost a PhD candidate, we need about 80K a year for a good postdoc for that one. Good has also happened, Scott Morrison (ScoMo) now knows of Kush and FoxG1, the liberals are back in power the country is going ahead instead of going backwards. I am trying my best, Help me, I need all the help I can get for FoxG1. We need you to take this last call out for the financial year for volunteers, funds donations and people to share the message far and wide and donate the most you can, and volunteer on the day and bring your shiniest toy (car or bike) that you will be happy for Kush to sit in and TOGETHER LETs CURE FOXG1 because life is beautiful and everyone deserves to enjoy it.

07.01.2022 This Sunday Join Team FoxG1 for the easiest most scenic 4 Kilometers in the world (Harbor Bridge / Opera House) for a great value (Children under 5 are free) fun run to raise awareness and essential funds for FoxG1 awareness and research. Its a fantastic opportunity to meet the "Kushagra Ayaan Singha" the first FoxG1 child diagnosed in Sydney, and Fabien the Scientists leading FoxG1 research efforts at UNSW and Maria Hwa Young Oh, who is democratizing biotech research and bri...nging genetic diagnosis for the masses. We are also looking for Volunteers to take photos on the day, if you are a world class professional / amateur or just great at taking pictures, you would be our super best friend. TOGETHER LET US FIND A CURE for FoxG1 for all children around the world and to take the worry away from all future parents. https://www.facebook.com/events/912751198828837/

06.01.2022 I am from Jaffna in Sri Lankan. The fighting there was bad, I Jumped into a boat and set out for Australia, it was a long adorous journey, I still do not have my papers sorted. I have a wife and two little children back in Sri Lanka, whom I cannot help and am not sure if I will be able to see ever again. I sleep in the streets around Martin place. I do not speak English very well. However I am grateful to these selfless people who come out and give us fresh meals and blankets for those chilly wind winters. Life is not easy but it sure isn't all bad. I hope one day I will be able to live a NORMAL life with my wife and children, and will be able to help out someone like myself. (This story has been shared on behalf of this superhero who has so much hope from life even after enduring so much.)

06.01.2022 Will you be there TOMORROW, Let's cure FoxG1

06.01.2022 Finishing the DeeWhy to Manly Sun Run, it was good to be able to share FoxG1 awareness. TOGETHER WE WILL FIND A CURE

05.01.2022 Happy Dusherra from Kush, you are invited to a musical fundraising evening on the first Saturday in November, have a great day The invite is https://www.facebook.com/FoxG1Australia/posts/1597308683897745:0 And this is Kush https://www.facebook.com/FoxG1Australia/videos/1583517211943559/

04.01.2022 Amazing Flute concert on today supporting FoxG1, join us and TOGETHER WE WILL FIND A CURE for all children diagnosed with FoxG1 https://www.facebook.com/events/488975048283051/

04.01.2022 The premise of the Toy run is simple, unfortunately not everyone can be in the comfort of their homes this xmas. However no one should miss out on the xmas cheer.. so if a loved one is / was / has been ever in a hospital, Think of the people (young and old) who may not have anyone come to visit them, or whose families may be stuck in the tensions of managing the sickness and unease of being away from home this xmas season.... The gift of a smile and a minute of cheer is priceless, join the young at heart group of knights in shining horses and help spread the xmas cheerto places it may not otherwise get.. https://www.facebook.com/events/149482542349071/

04.01.2022 Kushagra Singha - 3 years old: Imagine if you were not able to walk or talk or sit by yourself. I am three years old and am the first child in Sydney diagnosed with FoxG1. I have a deletion on the FoxG1 gene on chromosome14 that affects the development of my brain, I cannot walk, talk, sit or eat by myself but thanks to all of you superheroes I am on the cover of a magazine already. I love to see people play and run and dream of doing the same myself. With recent advances in... technology and medicine, there is real hope for single gene deletions and I truly hope that a cure for FoxG1 will be found real soon so that I and other children like me can have a normal life. I am a superhero because I never give up and am inspiring people to find a cure for FoxG1 for all children affected by this cruel syndrome, I will love it if you are able to join me to raise awareness and hope for a cure for FoxG1. This is my journey: https://www.facebook.com/FoxG1Australia/videos/1583517211943559/

04.01.2022 Reminder all FoxG1 BBQ in on tomorrow once again raising essential funds for FoxG1 research. TOGETHER WE WILL FIND A CURE for all children diagnosed with FoxG1

03.01.2022 Hey everyone we are celebrating Kushagra 6th birthday at the Glenwood dog bark , pack a picnic mat, and head down for a relaxed day at the lake in Glenwood. The #FoxG1FunRaisers Kushs older siblings 7 year old Harshi, 9 year old Jayan and 11 year old Pranav will have Nerf play and maybe will fly kites if wind is ok and kick a soccer ball. Any adventurous face painting parents , keen to flaunt your skills welcome to help out. This is meant to be one relaxed day for everyon...e invited so if you have a great car or bike that you are happy for kids to jump around bring along else just come down and just chill out. Thanks all for all your support for another trip around the sun for Kush TOGETHER WE WILL FIND A CURE for all children diagnosed with FoxG1 #Kushs6thBirthday #CureFoxG1 #FoxG1Awareness #FoxG1FunRaisers #FoxG1NerfBattle