Téa Lake and The Rare Disease Association Inc | Businesses

Téa Lake and The Rare Disease Association Inc

Phone: +61 8 9471 1162

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23.01.2022 Get on board everyone.

22.01.2022 We’re excited to announce a new project, Special Dads, by our very own Special Dad. Please head to the group page to see what it’s all about, and feel free to tag any Special Dad’s that could benefit, or might be interested in, connecting with other Dad’s in similar circumstances.

22.01.2022 They gave their today for our tomorrow. Lest we forget.

21.01.2022 Today at the Galleria and next Saturday at Belmont only. Selling raffle entries to win a ticket to the Prince and Princesses ball. Come and say hello!

18.01.2022 Wondering which restaurant to support now they are open? How about Grill’d Mt Lawley? By eating at our local, you can help support the Téa Lake and the Rare Disease Association by placing your bottle cap in our container. Thanks for supporting us Grill’d Mt Lawley. Couldn’t have chosen a better restaurant for our first post-quarantine dine-in.

14.01.2022 With the current Covoid-19 pandemic in full affect, the board of Téa Lake and the Rare Disease Association (TLRD) have decided with heavy heart, to cancel the Prince and Princesses ball. With many of the people attending being parents, carers or in close contact with those that are immunocompromised, we aren’t willing to put our supporters, and ourselves at risk. We’d like to take this opportunity to thank all the people and businesses that have kindly donated their services ...and products at reduced costs, or free, so that our event could be successful. We will add their social media/web pages in the comments. The very same businesses that were willing to support us, are going to be struggling in this difficult time. Now, more than ever, please help us thank them by supporting them. We’d also like to thank another special lady, who doesn’t wish to be named, for organising advertising and sponsors, and turning the event completely around. It was set to be a magical night thanks to her. Finally our board members. None of our board members have held an event of this scale, and they all came together in the best way possible. While planning the ball our board members have had two special needs children hospitalised repeatedly, fought through a cancer diagnosis, three surgeries, a heart attack and many other family, work and life events to deal with. Nothing short of amazing to also be able to plan their first ball! The ball is a dream TLRD have had from the early days of the association, and we will hold the ball in the future, when it is safe for everyone to attend and enjoy. All ticket holders will be contacted individually to organise refunds of tickets. Please stay safe everyone, and ensure you wash your hands!

13.01.2022 Our first of a few interviews with the lovely Tony Serve of 6PR.

10.01.2022 The board of Téa Lake and the Rare Disease Association (TLRD) have been in deep discussion with Crown Perth, and have been able to secure a better package for our guests. To enable TLRD to pass on the savings to our supporters, we have had to postpone the event to Friday 8th May 2020. All other event details remain the same, but we are now able to offer tickets at $180 per person, or $1700 for a table of ten. TLRD will be in contact with all pre-purchased ticket holders. Please stay tuned for entertainment updates, more auction and raffle items, and special offers.

10.01.2022 February 29 is Rare Disease day, and the theme is Equity for people living with a rare disease. Approximately 1.2 million Australians are living with a rare disease. 70% of rare disease are diagnosed in childhood.... Rare diseases are often genetic, and are incurable or preventable. Many children with rare diseases live with numerous health complications, and spend a significant time in hospital. Support our WA kids with rare diseases by attending the event. We will be dressed in our formal gear promoting the ball. Come and say hello!

06.01.2022 We were very fortunate to be one of the charities that received a donation from HBF. Thank you HBF Run for a Reason! We all look forward to a huge 2021 event.

06.01.2022 Its that time of year again! When the association must reelect Committee of Management members, so now is a great time to join the committee. It is important for the association to have members from all walks of life, with varying personal and professional experiences. We are keen to have some fresh faces and fresh ideas, to ensure the association is continually growing and providing for our children, and families, living with rare and undiagnosed genetic conditions. The posi...tions available include: Chairperson Vice-chairperson Treasurer Secretary Committee members If you are interested, or would like more information, please email [email protected]

01.01.2022 Purchase your tickets to the Prince and Princesses Ball before 17th April and be eligible to win two Premium Seat tickets to Menopause the Musical, kindly donated by the Regal Theatre.