Anaphylaxis Network Australia | Community
Anaphylaxis Network Australia
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25.01.2022 Gluten Free McDonalds Apple pies! Kmart sausage roll maker FREE From Gluten Free Puff pastry Boil some fresh apples, cinnamon and sugar to your taste
24.01.2022 My daughter is Matilda anaphylactic to dairy. Shes so brave, never complains and is an absolute star when it comes to managing her allergy!! Shed loves little Teddy Medic, what a cool toy for allergy kids! Thank you so much for my teddy medic! Matilda is very excited to bring him to kindy to show her teachers and friends
21.01.2022 Welcome! Please post any questions you have about your child, their asthma and the current COVID 19 pandemic
21.01.2022 Augie is loving his Teddy Medic Young Augie is anaphylactic to sesame, eggs, dairy, cashews and latex. Our charity helps children become comfortable around their auto injectors. Teddy Medic will be used to help educate family and friends about the importance of life saving auto injectors. Thanks Mylan Australia for supporting this initiative
20.01.2022 Everyone's internal monologue during coronavirus (Ben & Liam)
18.01.2022 Thank you so much. Ivy was very excited to get her special package in the mail today and cant wait to take it to show and tell when she is back at school! Ivy is a very brave. She had a reaction when she was only 17 months old with no known allergies. Her mother arrived home from work to find her red and pulling at her throat slightly (she was home with her daddy) she also had a few lumps on her. Thinking it was chickenpox they took her to a GP clinic as soon as possible.... The first doctor wanted a second opinion and they decided it was an allergy and prescribed her Prednisolone and suggested a review appointment. Mama left the doctor not feeling confident with what was said and unsure about what was prescribed so rang her sister who is an ICU nurse at the RCH. She came straight over and together they decided to take her to hospital (in hind sight they agree they should have called an ambulance). On arrival at the RCH, almost 2hrs post eating..... she immediately started vomiting and was taken into triage who took one look at her bright red body/heart rate was racing at 220. She was rushed to resus and immediately given adrenaline. This repeated with another 3 doses of adrenaline and then IV infused adrenaline over night in ICU. She was a tiny 8.5kg at the time. The Doctors told her family how incredibly lucky they were and that if they had of followed the instructions from the GP she may have died at home. I still think how lucky we were and how trusting my motherly instincts saved her. The RCH said she was very lucky it was a slow moving anaphylactic reaction. We identified the allergen to 1/4 of a cashew she nibbles off the top of a biscuit - it only took that tiny amount. She is diagnosed at risk of Anaphylaxis to both cashew and pistachio. Most people think that a reaction will be instant. And I can not tell you how many people think its just another allergy and dont understand how serious it can actually be if exposed. Thank you for all the hard work you do. Ivy is practising her training pen on all of us! #anaphylaixis #epipen #foodalleergy #peanutallergy #allergymum #allergymom #allergies #nutallergy
17.01.2022 OMGosh! We have just stepped into our own food allergy utopia. @glutenfree4u in Frankston were lovely in helping us choose meals for us. Dean was amazed he could eat anything in the shop as they were all gluten and nut free! They also have some dairy and egg free items. There are many stores so check them out.
17.01.2022 Care Giver Anxiety: As a community we probably home cook a lot more than most families to cater for our food allergies. Is anyone struggling to find safe food in the supermarket?
17.01.2022 Ummm hello... where have you been all my life? Do nut miss out.. check them out
17.01.2022 Trigger Warning Allergies are Real... Allergies can Kill! A tough read but important message for all to be aware of.
16.01.2022 Hey guys I've made this 100 times my daughter is ana to peanuts and had a reaction I took her hospital to get her checked they confirmed was an allergic reaction not sure to what though
15.01.2022 After reports from the allergic community about the availability of FreeFrom & alternative foods, we've joined forces with Allergy UK & BSACI to send a joint letter to major supermarkets asking for their help to intervene. Please read our open letter: http://ow.ly/sL4h50ySXzr
15.01.2022 Question: I had 3 shots of adrenaline over the course of 12hrs on Friday after a reaction to almond meal. Ive only ever had one shot at a time, and now I have a HUGE headache. Has anyone else experienced this??
15.01.2022 Member Question: Hello, Just a quick Q, our 6.5month old daughter now has 2 epi pens (peanuts). We have read that for children and adults, a second epi pen can be administered after 5min if no response to the first. Does this also apply for an infant? If no, what age does this apply to? Thanks.
14.01.2022 Thanks Jane for sharing this adorable and important Food Allergy message
14.01.2022 Does your child know how to use their life saving auto injector? If so, what age did they learn? If not, whats holding them back?
14.01.2022 New Ingredient Warning: Egg! Farmwood Chimen Nuggets from Aldi A member has alerted us to the fact this now contains egg. Their child has suffered an allergic reaction and being monitored in hospital. It’s very easy as parents to assume a trusted brand will not change ingredients. One would assume they would make their customers aware if a top allergen is now being used. But we cannot rely on this and it’s a good reminder to check each label, every single time.
14.01.2022 I just wanted to share a proud parent moment. Miss 11 (ana to peanuts and tree nuts) came home from school yesterday saying that a pre-service teacher had offer...ed the class chocolate, Miss 11 immediately checked the ingredients which stated they contained peanuts, when she told him she was allergic to peanuts he was unaware. Miss 11 went straight to the teacher made them aware and asked if the students could sanitise their hands after eating. I am so proud she had the confidence to check and then speak up and advocate for herself. Even though I may annoy her with how much I tell her to check ingredients, I am so relieved that she listened and was able to take action. I have already written to the teacher to discuss this issue and to look at ways to make sure this doesn't happen again. I have a question. Does anyone know if allergies are covered at Uni for pre-service teachers?
13.01.2022 Something to keep in mind
13.01.2022 Thank you for all those who entered our competition. Some of our winners have received their Teddy Medics. Thank you Mylan Australia for supporting our initiative and allowing us to do this important work. Thank you so much for what youre doing. Youre making a big impact on all the children youre helping. Hes taken it to bed with him tonight. He was over the moon to receive it.
13.01.2022 This is how you do it! Our favourite local restaurant created a special button for our meal favourite safe meal. Everyone in the restaurant knows how to prepare it and Rob the owner alway takes our order. Who is your local Allergy Hero?
11.01.2022 Member Post: Hi. I am interested in taking my daughter to the Southern California Food Allergy Institute for treatment of her peanut allergy. I have a lot of questions and would like to link up with someone who has travelled there from Australia for treatment. Just wondering if you guys could link me to someone or perhaps do a shout out on the page to find someone?
11.01.2022 Gluten, Egg and Nut free! From IGA, and I’ve heard on good authority that they are delicious
10.01.2022 Gabriella is 14 and has been anaphylactic to tree nuts from age 3. She also suffers from asthma and hayfever. She never complains and is very aware of the foods she can and cannot have and educates her peers, especially at school. She is a very mature 14 year old and very diligent when it comes to having her different medication every day. I never have to prompt or ask her if she has taken it. She was so happy when she received her Teddy Medic in the mail!
10.01.2022 We are planning events for 2021. Please let us know your postcode below. Please also ensure you turn on notifications for our posts so you dont miss out of our next Teddy Medic giveaway. Thanks
09.01.2022 SINGULAIR (montelukast) FDA: "We continue to receive reports of mental health side effects reported with montelukast [Singulair] use. Consistent with our prior... evaluations, a wide variety of mental health side effects have been reported, including completed suicides." NOTE: TALK TO YOUR DOCTOR before changing or discontinuing ANY medications. If you've found a substitute for Singulair, consider telling us what worked. Also, if Singulair works for your child (or you), that's great. We only want to share these side effects in case you are not aware. <3
08.01.2022 A teacher in France receives a suspended sentence for the anaphylactic reaction of a child in her care. Distressing content to read but important to share this story. This story reminds me of our experience at a Melbourne kinder. Its so important to follow the ASCIA plan.
08.01.2022 WARNING- Graphic Video circulating via Social Media (updated advice and support resources) Dear Parents/Guardians, The eSafety Commissioner is aware of distressing reports there is a video of a man taking his life circulating on social media Instagram, Twitter, Facebook and Tik Tok. eSafety has contacted social media companies about the reports and will continue working with them to monitor the situation.... There are also reports that trolls are using videos of puppies and kittens to lure kids into seeing the video. This would obviously be extremely distressing if seen by members of our community. I hope by sending this notice, you are able to respond in the best way you see fit regarding your childs social media use to ensure they are not exposed to such graphic content. Please refer to the advice below. Anyone who encounters this content is encouraged to report it to the social media platform theyve seen it on, or to eSafety at www.esafety.gov.au/report/illegal-harmful-content. This is particularly sensitive and the advice is to encourage you to avoid raising the issue with students who may not have heard or been exposed to this video. Drawing undue attention to the issue may cause unnecessary worry or distress and increase exposure. The advice is that you monitor your child if they are more vulnerable and at-risk, and check in with them about their interactions on and offline. If a life is in danger the advice is to call Triple Zero (000) straight away. The following services are also available to anyone who may be at risk or experiencing emotional distress, including worried family and friends. - Kids Helpline. 1800 55 1800. Phone support is there all day, every day. Online support is open from 8am-midnight every day (AEST). - Suicide Callback Service. 1300 659 467. Phone support all day, every day, and follow-up calls. - eHeadspace. 1800 650 890. Open 9am-1am daily (AEST) - Lifeline. 13 11 14. Phone support all day, every day. Online support 7pm-4am daily (AEST). - Beyondblue. 1300 22 4636. Phone support all day, every day. Online support 3pm-midnight every day.
07.01.2022 Is your child starting school next year with food allergies? Do you know someone who is? Be sure to join our private Zoom meeting to discuss all things school related. Who can join: Whilst topics will be focused on commencing school with food allergies, families at any year level are welcome to attend online on October 1st at 7pm. Format: This will be an informal meeting where you can submit questions. Our founder, Joanne, will be facilitating the meeting and will share her... personal experiences of navigating food allergies and anaphylaxis in the primary school setting. Topics such as ASCIA plans, Risk Minimisation Plans, Camps, Mealtimes, Bullying and others topics will be discussed. This will be an interactive session and you will be encouraged to participate as little or as much as you like. This is an educational and supportive event and any advice given should not replace medical advice.
07.01.2022 COVID-19 and ALLERGIES: * Do we still go to the ER, after EPI? * Do ALLERGIES make one higher risk for CORONAVIRUS? * How to tell if breathing difficulties/co...ngestion is due to allergies or COVID-19? These and much more answered by expert allergists Scott Scherer and Hemant Sharma in the last Allergic Living e-magazine COVID-19 issue! This issue is their gift to you at NO CHARGE. <3 Gina Clowes Grab your copy HERE: www.AllergicLiving.com/COVID
07.01.2022 Winning! If you need any extra Epi Pens Only $79.90 (lowest I’ve ever paid) and also an expiry of January 2022
06.01.2022 A member wanted to share this information for those with dairy allergies. Possibly a discussion to be had with teens and I do hope is raised in health classes in school
05.01.2022 Member Post: Just a FYI for any families that have children or loved ones with inhalant reactive anaphylaxis... DUSK have a fragrance oil for their diffusers called Mood Mist and all the fragrances contain Almond Oil. They have small signs up on the product display but not big enough to read unless you are fully concentrating. Just wanted to warn anyone in the community. Would hate for someone to go in there and have an anaphylactic reaction. This would if been the case with our family today of my two boys were with me!
05.01.2022 Just in time for RUOK Day, we are giving away ten Teddy Medics with EpiPen trainer! Please tag an Allergy Hero below and we will select ten lucky winners! Thanks to Mylan for the support in this initiative Be sure to follow us on Insta @TeddyMedic as well! Tomorrow is #RUOKDay! But every day is an opportunity to reach out those around us who are doing it tough and start a conversation that could change a life. Living with severe food allergies can be difficult and impact... day to day quality of life. We highly encourage our community to open up a supportive dialogue and show our fellow allergy family that they are not alone and support is available. Got a niggling feeling that someone you know or care about it isnt behaving as they normally would? Perhaps they seem out of sorts? More agitated or withdrawn? Or theyre just not themselves. Trust that gut instinct and act on it. By starting a conversation and commenting on the changes youve noticed, you could help that family member, friend or workmate open up. If they say they are not ok, you can follow our conversation steps to show them theyre supported and help them find strategies to better manage the load. If they are ok, that person will know youre someone who cares enough to ask. More at ruok.org.au
05.01.2022 Little Arthur taking his Teddy Medic for a spin. Arthur is 18 months old and is at risk of anaphylaxis to eggs, peanuts and dairy. Happy playing little one Our charity helps children become comfortable around their auto injectors. Teddy Medic will be used to help educate family and friends about the importance of life saving auto injectors. Thanks Mylan Australia for supporting this initiative
03.01.2022 Member question: My daughter is starting school next year. How many Epi pens do you have? We already have two, but given we probably will keep one at school Im thinking its time to buy a third? Thoughts?
02.01.2022 Recommendations from the Parliamentary Inquiry into Anaphylaxis. Lots of valuable information and insight - worth the read https://parlinfo.aph.gov.au//Walkingtheallergytightrop/pdf
01.01.2022 Member Question: Hi guys. Just wanted to ask a quick question. We received an updated medical plan from our sons school yesterday to sign off on. We noticed that in their plan it states that in case of anaphylactic emergency he is to be taken to the sick bay for the EpiPen to be administered. In the ASCIA action plan it states that the patient is to be layed flat or sitting and not to walk. When we approached the school about this they were adamant that it was their plan that he has to be tacked to the sick bay first. Just wondering wheee we stand on this issue and should we follow the ASCIA action plan ? Thanks
01.01.2022 We know the human body is complicated, and a much bigger space than the blood alone. And there are certain tissues, like those in the digestive system where, if someone has food allergy, the reaction starts, says Boyd. And we had reason to suspect there may be a whole separate aspect of the immune system thats localized to the tissues of the gut and the digestive system, and that those would be worth studying.
