The Epilepsy Centre in Adelaide, South Australia | Disability service

The Epilepsy Centre

Locality: Adelaide, South Australia

Phone: +61 1300 850 081

Address: 274 Grange Rd 5025 Adelaide, SA, Australia

Website: http://www.epilepsycentre.org.au

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• Disability service

24.01.2022 Today we share Sophia's story. If you want to share your journey with epilepsy, we would love hear from you and help raise the awareness. Please send your picture and story to: [email protected]

24.01.2022 A big thank you to Kidman Park Rotary Club for donating another $1000 Emfit Seizure Monitor to 17 year old Nelson to keep him safe at night. Nelson and his family were so grateful for the life saving device as well as the education and support from our Social Worker Ann and Nurse Marika.

24.01.2022 Hello my name is Brock and I'm 7 years old I've just recently been diagnosed with epilepsy. It has been a pretty tough month since this all started I had my first seizure at school then all the school holidays I was in and out of hospital which I didn't find fun while they tried to figure out why I was having seizures. Its been tough trying to get myself around the fact I'm having seizures which means I have to stop things I love to do till we get control of them. My mum Ky and dad Kyle are also so grateful for having The Epilepsy Centre give them some peace of mind for when I sleep by them gifting them a Seizure monitor mat for the bed. Thank you so much we will be forever grateful to all the wonderful people working at the Centre especially Robyn and Kidman Park Rotary Club who Sponsor The Epilepsy Centre.

21.01.2022 SOUTH AUSTRALIA we need your HELP! For the Epilepsy Centre to achieve its goal for Government funding we require 15,000 South Australian signatures. Are you and your friends able to help us to achieve this?

20.01.2022 A huge thank you goes out to Kidman Park Rotary Club for your support and all your wonderful work your have provided for The Epilepsy Centre South Australia. #KidmanParkRotaryClub https://youtu.be/CTPO10Sb1Fg

20.01.2022 A MASSIVE THANK YOU and SHOUT OUT to Kym Meers, Izla's Purple Crusade and Kym's wonderful family and friends for the continued incredible support of The Epilepsy Centre and for the services our four Nurses and Social Worker provide to new and existing families living with epilepsy. YOU TRULY MAKE A DIFFERENCE TO SO MANY!!

20.01.2022 The Epilepsy Centre continues to commit to supporting families utilising funds donated towards Emfit Seizure Monitors for children at risk. This Monitor was donated by Kym Meers and Izla's Purple Crusade to this beautiful little boy Chase to keep him safe at night. "Hi my name is Chase and I am 15 months old. I had a very tricky birth and survived against all odds! I had my first seizure at 11 months old which lasted for 90 minutes, which gave my Mum Cindy quite the fright.... I have since been diagnosed with epilepsy and have started the journey on medication. I love to read books and dance to music. Mum and I are so grateful to the Epilepsy Centre for our Emfit Monitor. Now Mum and I can get a good night's rest. Thank you Epilepsy Centre!" Thanks again so much Cindy x

19.01.2022 Do you know someone living with Dravet Syndrome? June is Dravet Syndrome Awareness Month culminating in the International Dravet Syndrome Awareness Day on 23 Ju...ne. Dravet Syndrome is a rare childhood epilepsy that usually starts in the first year of life with frequent febrile convulsions that are often prolonged. The Dravet Syndrome Foundation are promoting the theme #CureDravet this year, to highlight the need for research and a cure for this catastrophic form of epilepsy. For more information about Dravet Syndrome please visit www.epilepsyqueensland.com.au/dravet-syndrome

15.01.2022 The Epilepsy Centre Board and Staff are greatly saddened by the loss of Anthony Mulenga Zimba. As a member of the International Bureau for Epilepsy, Anthony has contributed so much to the epilepsy cause. Our deepest condolences to his Wife Dr. Meaumui Mumbela and four children Alex, Anthony James and Cindy.

14.01.2022 We are so very thankful and forever grateful to CMI Toyota and the CMV Group Foundation for donating and sponsoring The Epilepsy Centre with a sparkling new TOYOTA RAV 4. Thank you to each and everyone of you for your care for the services our Team of professionals provide to those living with or impacted by epilepsy. Trigger, our Epilepsy Mascot took time today for a model shoot to show off the new vehicle.

14.01.2022 Did you know 80% of children with Angelman Syndrome experience seizures? It's #InternationalAngelman Day, a day dedicated to raise awareness and honour loved on...es with this rare neurogenetic disorder that affects approximately one in 15,000 people about 500,000 individuals worldwide. To learn more: www.angelman.org/iad-2021 #iad2021

13.01.2022 Is your Epilepsy Management Plan up to date? Phone 1300 850 081 or email [email protected] to make an appointment with one of our Nurses and/or Social Worker. We are here for you.

13.01.2022 Sad details have emerged in the press over the death of Ekaterina 'Katia' Alexandrovskaya, a talented 20 year old Australian Olympic Figure Skater who, it is speculated, took her own life. The Russian-Australian star had been told to give up sport - in which she had been training since she was just four - after being diagnosed with epilepsy. (Daily Mail) Researchers have speculated that the risk of suicide is up to 10 times higher for people living with a diagnosis of epile...psy. This is just one of the many many reasons why support services and a growth in epilepsy awareness and the destigmatization of this common condition is nothing short of essential. If you are struggling and need a hand, this link may be useful: https://www.lifeline.org.au To find out how we can support you and the range of services we offer please visit: https://epilepsycentre.org.au/social-work-support/ https://epilepsycentre.org.au/education-training/ See more

12.01.2022 Thank you to Paul Timoney for your continued support of The Epilepsy Centre. Your efforts towards raising awareness about the lack of support from the South Australian Government for the essential services that our four Registered Nurses and Social Worker provide to so many families is truly appreciated. All of our Epilepsy Family support Paul in his quest to make a difference and to reach his target. Good luck Paul!

12.01.2022 Hamish's epilepsy story In this story from SBS_Australia, Hamish's mother Tracey shares her perspective as a parent of a child who lives with difficult-to-c...ontrol seizures. Despite the challenges, Tracey retains hope: "My hope is that one day research can find a cure, or effective drugs, for these types of seizures. The more we talk about it the more we’ll be able to remove the shame and stigma that seizure sufferers often face. The more it’s discussed also means more awareness and more funding for research. In the meantime, as a mother, I will continue to do all I can to help my son and others like him." Tracey received support from our friends and affiliate organisation in Victoria, Epilepsy Foundation of Australia If you relate to this story send your message of hope to Tracey and Hamish below

11.01.2022 Want to 'Live the Dream' with $40,000 cash in your pocket? The Epilepsy Centre, 'Living the Dream Lottery' is now OPEN! Get your tickets here https://epilepsycentre.org.au/epilepsy-lottery/

10.01.2022 There are so many ways you can #MakeMarchPurplewhich will you choose? This March, epilepsy organisations across the country are coming together to shine a light on epilepsy in Australia. From community fundraising to awareness-building, we'll be providing dozens of ways to get involved. We've just launched two profile frames, too search for "Make March Purple" to get yours!... Together, we can make a real difference to the lives of people with epilepsy. Find out more at makemarchpurple.org.au.

09.01.2022 Get ready to Make March Purple for Epilepsy! In 2021, we're making Purple Day bigger and better than ever before, teaming up with our interstate colleagues for a nationwide awareness campaign. All throughout March, we'll be offering inspirational stories, fundraising ideas and helpful information to make this Purple Day the best one yet. All of this will culminate in an around-the-country LIVESTREAM EVENT on Facebook, Twitter, YouTube and our website on March 26, giving you a...n opportunity to join in the fun no matter where you are. So crack out the purple nail polish and get your hashtags ready -- let's #MakeMarchPurple!

08.01.2022 Another beautiful family came in last week and received another Emfit Seizure Monitor. This was possible from the hard work and dedication to raising funds from Kym Meers and Izla's Purple Crusade. Thank you Kym for making such a huge difference to another beautiful family. Pictured from left to right is Mum Jess, our Social Worker Ann and gorgeous little William. Here's his story. "Hello my name is William and I'm 4 years old. I had my first generalised Tonic Clonic seizure ...when I was attending Childcare the Educators did really well looking after me and keeping me safe while my Mum Jess and Dad Jason and the Ambulance were on their way. I had to stay in the hospital and this gave everyone who loves me a big fright and a whole lot of questions. After many seizures and a lot of tests I have been recently diagnosed with Epilepsy and we are now trialing medications. My parents were anxious and needed support so they contacted The Epilepsy Centre, they were so informative and understanding. Mum and Dad had many conversations and also their training on how to help me when I have my seizures. And today I was blessed by such wonderful people at the Epilepsy Centre, who so kindly gifted me the Emfit Seizure Monitor, to keep me safe and give my family the peace of mind and reassurance to sleep at night. A heartfelt thank you to the amazing people at the Epilepsy Centre". See more

08.01.2022 Happy Valentines Day may there be a little bit of love and magic in your day #epilepsyawareness #epilepsywarrior #stvalentine

04.01.2022 It’s National Carers Week! 11- 17 October 2020 Carers are people who provide unpaid care and support to family members and friends who have a disability, mental... health condition, chronic condition, terminal illness, an alcohol or other drug issue or who are frail aged anyone at any time can become a carer. National Carers Week is an opportunity to raise community awareness among all Australians about the diversity of carers and their caring roles.

04.01.2022 MEDICINAL CANNABIS NEWS In an Australian first, private health insurer HIF Australia will pay rebates for medicinal cannabis for treatment in a range of ill...nesses. This is significant as there is currently no subsidy for cannabis products under the Pharmaceutical Benefits Scheme to support improved affordability, access and research into medicinal cannabis as a treatment option for Australian patients. Find the full story below at the link below, which also has a short clip which explains the legalities of medicinal cannabis in Australia. You can also find more information relating to epilepsy here: https://bit.ly/MCEpilepsy

03.01.2022 Show your support for #MakeMarchPurple in style with this Facebook photo frame! Simply click 'Try It' below to apply it to your profile picture.

01.01.2022 TODAY is #SUDEPActionDay2020 and we are encouraging you to be proactive about SUDEP risks. There are many ways you can help reduce risk associated with SUDEP: ... Discuss epilepsy/SUDEP risks with your Health Professional -take information to support you is helpful Request a regular review with your Health Professional to discuss your epilepsy, risks and any changes Create a care plan with your Health Professionals to show the best ways to help you live well Take control of checking your epilepsy in-between medical appointments. Tools like seizure diaries, medication reminders and risk monitoring apps can help you stay aware and in control See more