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Type1Screen

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25.01.2022 Hypoglycaemia, or low blood sugar, is a common occurrence for people living with type 1 diabetes. It’s dangerous too. If blood sugars get too low, this can be life threatening. The signs of low blood sugar will vary depending on the person, but may include blurred vision, dizziness, anxiety, and sweating. To help raise blood sugar levels fast, taking a sugary drink (e.g. lemonade or fruit juice), sugary foods (e.g. jelly beans) or glucose tablets should help. It takes about 10 minutes for blood sugars to rise. If you experience the symptoms of hypoglycaemia, make sure to tell someone so that they can get help if necessary. What symptoms have you experienced and what helped you?

24.01.2022 Thinking of all the dads and important male role models today. Hope it's a really fun day with your family and special people in your life. But one question for you... why do you have to throw the baby up SO high? (We know... they love it).

24.01.2022 September 12th is World First Aid Day. More lives could be saved if those first on the scene were trained in the provision of first aid. Would you know what to do if you were first to arrive at the scene where a person was possibly in DKA (ketoacidosis) or experiencing hypoglycaemia? Here is a link to the latest first aid advice from St John’s: https://stjohn.org.au///english/Fact%20sheets_diabetes.pdf

24.01.2022 Exciting news for people with an early diagnosis of type 1 diabetes. If you have any family history of type 1 diabetes, consider getting screened to determine your risk. Early intervention is key. This trial will be available in Victoria and soon in South Australia. More detail about this trial available on their website: https://www.svi.edu.au/resources/bandit_trial/

23.01.2022 Research shows that islet autoantibodies (the earliest markers indicating stage one of type 1 diabetes) can be found in the first years of life. However, we know that some people do not develop clinical or stage 3 type 1 diabetes until many years later... sometimes decades! What triggers this autoimmune response? Research is currently underway to find out: www.endia.org.au... What age were you diagnosed? Comments below...

22.01.2022 It's World Diabetes Day (14th November). Thinking of all those living with diabetes today. Know that we are trying our best to find ways to prevent and treat type 1 diabetes. This year, the International Diabetes Federation is focusing on educating the nursing community. This online course is available through the International Diabetes Federation for FREE until 31st December 2020: https://www.idfdiabeteschool.org/Short-C/diabetes-educator/... The aim is to help nurses and other health professionals effectively support people with diabetes and promote healthy lifestyles and self-management to achieve optimal control of the condition.

22.01.2022 Finland has the highest rate of T1D in the world. A study from Finland published this month showed that a child with an extended family member diagnosed with type 1 diabetes (cousin, grandparent, aunt, uncle etc.) had a significant risk of developing of islet autoimmunity (the early markers of type 1 diabetes in the blood) and clinical type 1 diabetes (where insulin injections are required). A history of type 1 diabetes on the father's side of the extended family was more com...mon in children with multiple autoantibodies compared to those with only one autoantibody. More about this paper can be found here: https://pubmed.ncbi.nlm.nih.gov/32939969/ If you have any history of type 1 diabetes in your family, and interested to find out about your, or your child's risk for developing the condition, find out more online: www.type1screen.org or email [email protected].

21.01.2022 The need to put children first has been recognised as an important pillar for boosting the well-being of all Australian children. Putting children first means prioritising the safety and wellbeing of children. To grow up well children need to feel safe and loved, have a chance to play and explore, have a say in decisions that affect them, and access to important things like food, shelter and healthcare. For children to thrive we need to come together as a community and put c...hildren’s needs first during National Child Protection Week and every week. www.type1screen.org

21.01.2022 This study found that acute hyperglycaemia does not impair overall exercise performance to an extent clinically relevant for recreationally active individuals with type 1 diabetes.

21.01.2022 Stress affects everyone. With type 1 diabetes, the hormonal response to low blood sugar includes a rapid release of epinephrine, followed by a slower release of cortisol and growth hormone. These hormonal responses to a low blood sugar may last for 6-8 hours. During that time, blood sugar levels can be difficult to control. If you have any tips and tricks for tackling stress, please share them in the comments.

19.01.2022 State based diabetes groups merge with Diabetes Australia Members of Diabetes Queensland and Diabetes NSW & ACT voted to merge with Diabetes Australia at a meeting held in late April 2021. The change will mean a switch from a federated structure into a stronger national organisation, but will not affect local programs and services.... Type1Screen understands that some of other state based diabetes organisations are planning to vote in the coming months to join the national body. People living with diabetes will benefit from this through: cost effective services; a more influential advocacy voice; more fundraising; more research and a continued commitment to the provision of specialist services and support for people living with or at risk of diabetes. More news on the Diabetes Australia website: https://www.diabetesaustralia.com.au/news

19.01.2022 On average, how many hours of sleep do you feel you’ve lost over the last week because of diabetes? Can you share some tips with others around how you improve the quality and quantity of your sleep?

17.01.2022 Screening for the risk of developing type 1 diabetes requires a blood test. We understand that a blood test might be stressful for both you and your child. Communication and preparation are key. Here are some tips that may help: 1) Try to be calm to help your child feel more comfortable and more relaxed. 2) Get your child to drink plenty of fluid before the test to improve blood flow. 3) Call the pathology centre ahead of time and ask any questions you have.... 4) Be honest! Tell your child it may hurt a bit, but it won't last long, and stops right away when the test is over. 5) During the test, reading a book, singing a song, blowing bubbles, or watching a screen may distract. 6) Don't worry about what others think. Do what you think is best to give your child support and comfort. 7) No matter how well the actual blood test goes, give your child a lot of praise for "having a go". 8) Plan something fun to do together afterwards. www.type1screen.org

15.01.2022 26th January - reflect on and acknowledge the Australia of past and present.

14.01.2022 Cool post by the The Type1 Foundation today. Amazing how technology is moving on...

13.01.2022 What is type 1 diabetes? It's when your pancreas just won't do what you wish it would.

13.01.2022 Fantastic opportunity for young Victorians living with type 1 diabetes

12.01.2022 Type1Screen wants to send a big shout out and thanks to all the families and individuals that have made contact with us to have a screen for type 1 diabetes. Around 880 people have contacted us so far, and over 600 blood tests have been analysed. Type1Screen has identified 37 people with islet autoantibodies (the earliest markers of type 1 diabetes development). This has enabled us to monitor them closely through our network of diabetes centres and offer them early interven...tion and prevention studies available. If you're aged 2-45 and have type 1 diabetes in the family, consider getting your free test through Type1Screen. More information online www.type1screen.org or by emailing [email protected]

10.01.2022 Have you or your family member participated in Type1Screen? Would you like to be on our Facebook page? We'd love to share with the type 1 community. Send your photos by PM or email them to us via [email protected] or our comms team at [email protected]. www.type1screen.org

10.01.2022 How we approach health care is looking pretty different these days: more telehealth, fewer consultations with a doctor or health professional. A worrying trend is an increase in DKA (ketoacidosis a life threatening condition due to very high blood sugar levels), and delayed or traumatic diagnoses for people who have developed clinical type 1 diabetes. Those in Type1Screen can avoid this scenario by checking their autoantibody status and blood sugar levels with a blood test.... Know the signs and don’t delay. If someone is experiencing increasing: 1. Thirst 2. Tiredness 3. Toileting or incontinence 4. Weightloss (getting thinner) 5. Mood changes (irritable) please get them to a health professional as soon as possible. www.type1screen.org

09.01.2022 A beautiful and touching poem by a mother whose child was eventually diagnosed with type 1 diabetes at only 16 months of age. This Diabetes Awareness Month, know the five Ts: 1. Thirst, 2. Toileting more than usual, 3. Tetchy mood, ... 4. Tired, and / or 5. Thinner (not putting on or losing weight) Thanks to The Type1 Foundation for this awareness raising campaign. See more

08.01.2022 Really exciting findings from the T1GER Study showing a significant clinical effect from the use of a drug called Golimumab. We know this should be a safe drug based on years of use by both adults and children for other autoimmune conditions. Treatment in T1GER involved an injection of Golimumab every fortnight for a year. However, there was a real sense that, if allowed to continue treating beyond a year, the honeymoon period would probably have been extended a lot longer, ...possibly years! This trial sets the scene to see if Golimumab can, like Teplizumab did, delay type 1 diabetes in those with stage 2 disease (the stage before insulin is required). So for those with a family history of type 1 diabetes (aged 2-30 years), this may provide another reason to look into getting screened: www.type1screen.org. You can read the full article here: https://www.nejm.org/doi/full/10.1056/NEJMoa2006136 See more

08.01.2022 Sage advice from The Type1 Foundation. Know the signs. Seek prompt healthcare advice if there is any increase in thirst, toileting, tiredness or getting thinner (weight loss).

08.01.2022 Type1Screen is a free risk screening program for anyone aged 2-45 years with ANY family member diagnosed with type 1 diabetes. That could be a grandparent, child, parent, sibling, cousin, aunt, or uncle! For more information go to: www.type1screen.org But data shows us that not everyone diagnosed with type 1 diabetes has a family history of the condition. What's been your experience?

07.01.2022 Have you participated in Type1Screen? We'd love to hear from you. Make a short 30-60 second video about why you go involved and what was involved and PM it to us. We'll post it on our Facebook and upload it to our website. Help raise awareness about this important type 1 diabetes risk screening program and become (semi) famous in the making. For ideas or to simply send your selfie video through, PM us. Thanks so much! #whatisyourt1drisk #type1diabetes #t1dresearch #type1diabetesresearch

06.01.2022 Wishing all our Type1Screen families and friends a wonderful Christmas with those you love and a fabulous New Year. Hope to see some new faces and families in 2021! www.type1screen.org

06.01.2022 News from a randomised controlled trial run by our colleagues in Melbourne has shown that a hybrid closed-loop (HCL) insulin delivery system results in better glycaemic outcomes in people with type 1 diabetes compared to those who self-dose insulin and self-monitor their blood glucose. For the primary outcome of Time in Range, the HCL users (n=61) showed an improvement from 55% at baseline to 70% at 26 weeks, compared to no change in the control group (n=59). Importantly, users of the HCL system also showed improvement in some psychosocial outcomes, such as diabetes-related satisfaction and wellbeing. You can read the full paper here: https://care.diabetesjournals.org//ea/2020/10/13/dc20-1447

05.01.2022 Congratulations to The Type1 Foundation Team on celebrating the 6th birthday of the organisation. What awesome work you have done; achieving so much in a relatively short period of time. Kudos to Ange and all involved in growing this strong and supportive community. This care and advocacy really helps to make living with #type1diabetes just that little more tolerable and helps people feel they are not alone on the journey.

05.01.2022 A review of the Finnish Pediatric Diabetes Register was completed recently to assess the incidence of type 1 diabetes among young children (15 years or less) between 2003 and 2018. The study found that over a 16 year time period, the incidence of type 1 diabetes had decreased among young Finnish children. An increase in age at diagnosis was also observed. These findings imply that environmental factors that drive the immune system toward development of the condition are changing. You can access the full paper here: https://care.diabetesjournals.org//09/29/dc20-0604.full.pdf

04.01.2022 You may have seen a lot of media coverage about the Baricitinib or "BANDIT Trial" for type 1 diabetes over the last couple of days: https://www.9news.com.au//3a9d6203-4113-459e-bc5d-c0c7d1b9. Baricitinib is a medication currently approved in Australia for people who have rheumatoid arthritis (another autoimmune condition). There is evidence to indicate that this may help the pancreas to produce insulin for longer for those who have an early diagnosis of type 1 diabetes. For more details and information about how to get involved (in Victoria and South Australia only at the moment), go to https://www.svi.edu.au/resources/bandit_trial/

03.01.2022 A recent study conducted by T1D Exchange Patient-Centered Research and Eli Lilly asked people with T1D and their caregivers about their views on the daily burdens of life with T1D. Sleep deprivation due to night time hypoglycaemia and alarms from diabetes technology were found to be the greatest daily challenge when living with T1D. Would you agree?

02.01.2022 The 11th November marks Remembrance Day and all those men and women who fought and died defending their country in war. It's also a personally significant day for Australian supermodel "Bambi" as this date marks her Diaversary from the age of 11 years. She is now 29 and (up until COVID-19) has been traveling the world modelling and managing her type 1 diabetes. It's not always easy maintaining a routine and accessing the right foods and supplies. ... Here she is having her makeup fixed and her insulin dose. Diabetes has not held her back! www.type1screen.org

01.01.2022 We are interested to know, when you or your child were newly diagnosed with type 1 diabetes, where did you go for information and support? Were there any particular Facebook groups, support groups, diabetes organisations, or community groups that you found most helpful? We'd love to hear from you. PM us or comment below.

01.01.2022 This speaks to every one of us at some point in our lives. When times are tough, there's always a new possibility tomorrow.