Understanding Pelvic Mesh | Non-profit organisation

Understanding Pelvic Mesh

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25.01.2022 You may be familiar with what happens when something goes wrong with a product you consume - Recalls. Publicity. Public acknowledgment of problems. Yet we seem to accept product failures in our health system that we wouldn't consider in cars or food, says consumer advocate, Danny Vadasz. Perhaps, we should let the car industry run the health system! ... Thank you Newcastle Herald. https://www.theherald.com.au//auto-industry-should-run-o/

24.01.2022 BE HEARD. BE PART OF THE CHANGE. The National Mesh Forum on April 5th will be one big step towards making a change. So whether you're able to attend or not, sharing your experience on mesh injury or complications will make a difference. We still need more submissions to make an impact and are encouraging more videos and audios (especially if you want to remain anonymous). ... We will only feature your testimonials at the forum. Thank you if you've already sent us your stories via writing and videos. Submit your testimonial here - https://healthissuescentre.org.au//MAKE_YOUR_VOICE_COUNT.p

24.01.2022 We hope you can join us at this free screening of the film, The Bleeding Edge at Kino Cinemas on April 4th. Watch how profits have driven incentives that put patients at risk in this $400 billion medical device industry. Please register at: https://www.eventbrite.com.au/e/film-screening-of-the-must-

23.01.2022 Your story and participation could influence REAL change on April 5th. Unfinished Business - National Mesh Implant Forum isn't a sit-down talk fest. You'll be sharing feedback with major stakeholders, regulatory authorities and other consumers to be a critical influence to prevent future mesh implant injuries. It's also an opportunity for you to be a proponent for better treatment options to people who've been affected in the country. ... A small object may have already done big damages, but your presence will help to make a big difference. Tickets and registration details - https://www.eventbrite.com.au/e/unfinished-business-nationa

23.01.2022 Already part of a support group for people with chronic health conditions? The group could be eligible for a Victorian Department of Health and Human Services grant to help extend the practical benefits to members. Grants are up to $5,000 per annum for two years and applications are now open.... Applications close: COB Friday 7 June 2019. For a copy of the Health Condition Support Grant Guidelines (including eligibility and application form) visit: Health Condition Support Grants 2019-21 For more information, contact @Health Issues Centre at [email protected] or phone: 03 8676 9050.

22.01.2022 A big step forward today. The FDA has banned sales of pelvic mesh for prolapse ruling that companies selling pelvic mesh for prolapse "had not demonstrated a reasonable assurance of safety and effectiveness for the devices."

21.01.2022 Thank you to everyone who has registered for the National Mesh Forum this Friday! If you're attending remotely (live streaming), we'd like for you to nominate which of the three concurrent workshops you would like to attend by today (one participant per workshop) Email to [email protected]... Workshop 1. Regulation and Policy - looks at the quality and safety failure that allowed the mesh crisis to flourish undetected for almost two decades and asks How do we make sure this never happens again? Workshop 2. Collaborative Community Response - Pelvic and hernia mesh injured consumers and carers will come together to collaborate on identifying shared community priorities to the mesh crisis. Workshop 3. The Care you need - Be involved to create and identify criteria for a scorecard to track performance of state health departments in delivering quality care to mesh affected women.

20.01.2022 Why come to the screening of The Bleeding Edge on April 4th? A few reasons - Multiple award winning journalist, Joanne McCarthy of the Newcastle Herald will be there for the evening. This is an opportunity to meet the 2017 inaugural Walkley public interest award winner for her articles about the pelvic mesh scandal. The film is a must see documentary on how the $400 billion medical device industry has impacted the lives of people. It could save your life and the lives of th...e people you know. Please register at https://www.eventbrite.com.au/e/film-screening-of-the-must-

14.01.2022 As you are all aware, the National Mesh Implant Forum will be held in Melbourne on Friday April 5, 2019. Whether you are attending or not, we would like to hear from you to inform one of the workshop sessions being held on the day - the Community Response workshop. This workshop aims to foster collaboration and create a collaborative community response to the mesh crisis, and the needs of mesh impacted consumers. Pelvic and hernia mesh injured consumers and carers will come t...ogether at this workshop to consider affiliation between various mesh bodies and define relationships between states and federal jurisdictions. In order to gather wide feedback from as many members of consumer groups across Australia, and from those that may not be there on the day, we have put together this survey for you to have a say about what's most important to you. DEADLINE IS 1st APRIL COB PLEASE https://www.surveymonkey.com/r/ConsumerPriorities For any questions, contact [email protected]

11.01.2022 How safe? Not safe. Patients who've been implanted with medical devices fall into a regulatory black hole. There's a large disparity between the number of reports that regulatory bodies receive and the number of patients affected. This IS a factor that delays action being taken to prevent further harm to patients. ... Article by Joanne McCarthy in the Newcastle Herald https://www.theherald.com.au//how-safe-are-medical-device/

10.01.2022 Registrations are closing soon for the National Mesh Implant Forum on April 5th. It will be the day to speak to health regulators and be involved in a panel that will influence a real change. We now have over 130 registrants and growing. It’s not too late to be part of this critical forum for mesh implants, either by attending on the day or through live-streaming if you're unable to be there physically. ... Don't suffer in silence anymore. Register here - https://www.eventbrite.com.au/e/unfinished-business-nationa

07.01.2022 Your story could make a difference. We're welcoming submissions from those who've been injured from mesh implants to be featured in the National Forum on Mesh on April 5th. Whether you can attend or not, you can make your voice be heard. Visit - https://www.healthissuescentre.org.au//MAKE_YOUR_VOICE_COU

04.01.2022 Already part of a support group for people with chronic health conditions and want to apply for a Health Condition Support Grant but not sure how? Tune in to our online info session LIVE on Facebook to ask us all your burning questions! When: 20th May from 11am-1pm... How: 1. Go to the Health Issues Centre Facebook page 2. Look for the live video at the top of our feed 3. Click the video to enter viewing mode 4. Type any questions or comments on the video the same way you would normally comment on a post and we’ll respond to them live throughout the session. ------------------- The group could be eligible for a Department of Health and Human Services grant to help extend the practical benefits to members. Grants are up to $5,000 per annum for two years and applications are now open. Applications close: COB Friday 7 June 2019. For a copy of the Health Condition Support Grant Guidelines (including eligibility and application form) visit: Health Condition Support Grants 2019-21 For more information, contact Health Issues Centre at [email protected] or phone: 03 8676 9050.