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Zebra Blends
Phone: +61 420 726 322
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25.01.2022 Symptom highlight. Brian fog. Brain frogs. Cog fog. Fibro fog - what ever you call it, it is a common symptom in many chronic health conditions. People living EDS, ME/CFS, fibromyalgia, chronic pain, MS etc all describe different levels of congnitive dysfunction. ... For me, my brain fog can be pretty full on. Due directly to my brainstem compression, but also contributing factors are chronic and widespread pain (Fibro) and EDS. This week alone, Ive muddled up multiple text messages to people in my phone who have the same name , forgotten a doctors appointment (that was in my diary) and Im sure theres more, that Ive forgotten I forgot. Tell me, how brain fog has affected you this week? What have you forgotten, muddled up etc?
25.01.2022 It's a wrap. School holidays done and dusted. Over and out. I am so, completely and utterly exhausted. I'm so ready for tomorrow. Despite rest not being the order of the day. Some time alone, to gather some thoughts, formulate some plans and set a few goals, with timelines to match. ... Over the next week and a half, I'll be really just studying, preparing for an exam, I need to complete with the Pharmacy Board to become an accredited Pharmacist Immuniser. On top of this I have so many advocacy aims and missions I'm keen to get a start on. As well as completing a short course in medical writing I've signed up to (never rains hey). I am so passionate about the community receiving vaccinations, especially these newest ones for COVID which will see life as we once knew it, coming back on line. I plan to write a few short blog style articles on the safety of, vaccination as well as busting some common myths And misconceptions. So please shout out with burning questions you may have surrounding vaccines and I'll try my best to answer it or point you in the direction of some quality evidenced based literature. One of the best ways to ease worries or anxieties around new things, is to educate yourself. . . #Covid #Pharmacistsofinstagram #PharmacistImmuniser #immunisation #pfizerbiontech #Pfizer #ProVax #Informed #EhlersDanlos #Bondi #EDS #Zebra #MCAS #MastCells #POTs #Dysautonomia #Zebra #ZebraBlends #Anxiety #WorryMonster #Educate #EvidencedBasedMedicine
24.01.2022 Shampoo with a purpose + argan oil. The no fuss hair care solution, that saves you time and energy and is good for the environment all the while delivering 50% of profits to #rarevoicesaustralia #zebrablends ... #shampoowithapurpose See more
23.01.2022 The Essentials bathsoak - chunky + 100% pure Zechstein Magnesium Chloride flakes, Dead Sea Salt, Pink Himalayan salt. Perfect for soaking tired and sore muscles. Get yours on the website and support small business supporting charity.... 50% of profits to #rarevoicesaustralia . . . . . #EhlersDanlos #ehlersdanlossyndrome #EDS #raredisease #advocate #advocacy #supportsmallbusinesssupportingcharity #magnesiumchlorideflakes #zechstein #deadseasalt #bathsoak #pinkhimalayansalt #bathsalts #bondi
23.01.2022 Internalised ableism? Why do we do it to ourselves? Im still embarassed to admit I need to modify sometimes. I just had a parent meeting at the boys preschool, but due to social distancing we had to do it, standing in the carpark. I forced myself to stand for 40minutes, all the while shifting uncomfortably from foot to foot in pain and in attempts to not have my blood pressure drop, which it does with standing still and can lead to me fainting - thanks dysautonomia. The fu...nny thing is though, I knew wed be standing in the carpark, I could have taken a camp chair or sat on the ground, or if I had my trike sat on the platform, but I forced myself to be like everyone else and to stand to my own detriment. Im still learning and will continue to learn. Accepting my limitations and accepting modifications and using aids to make things easier, my neck brace, ankle braces, pelvic belt, my trike etc is the hardest part of this journey for me. Im content with the slowness in life, infact I feel I thrive with that aspect but feeling comfortable considering myself disabled or as someone with impaired mobility is a hard one to swallow. I know no one would judge me for using aids, why am I judging myself?! I think this is an age old question for those of us with newer onset disability, limited physical capacity etc. #invisibleillness #chronichealth #chronicpain #ehlersdanlos #eds #brainstemcompression #atlantoaxialinstability #lumbarpain #advocate #zebrablends
22.01.2022 Argan oil is touted as being liquid gold. It is pretty bloody good. Try our single origin Morrocan Argan Oil. ... It pairs perfectly with #shampoowithapurpose solid shampoo and conditioner bars. Both available on the website. And as always, 50% of profits go directly to #rarevoicesaustralia supporting rare disease research and advocacy. The rare disease closest to our heart is #EhlersDanlosSyndrome but all heritable connective tissue disorders and the broader, rare disease community will benefit from much needed research and funding. . . #zebrablends
22.01.2022 Excited to share this article about a dear friend. Michelle the artist in the article, and I came to know each other only through our illnesses. We share a very very similar health history, that includes EDS. Go read this article or follow @michelle_hamer on insta.
22.01.2022 I've decided to try and do my immunisation training to be ready to assist with the Covid vaccine rollout should a role arise. I'm really enjoying so far, the switch of brain required to sink deep back into clinical study. I'm not sure I'll even find a suitable role, or gain a suitable role should I find a role to apply for (what a mouthful that sentence was). But I'm going to have a crack. ... It's going to be a big operation to get most of the country vaccinated, and I want to be a part of it. . . #covidhighrisk #Covidvax #pfizerbiontech #Vaccine #Chronillness #EhlersDanlos #pharmacistsofinstagram #medwriter #Pharmacist #Advocate #Advocacy
21.01.2022 #Repost: Thanks @aspenmedicalproducts for your help, raising awareness of #EhlersDanlos "People that suffer from Ehlers-Danlos Syndrome (EDS) experience chronic-pain like no other.... EDS it is a disease that weakens the connective tissues of the body, causing pain and discomfort. Many of these individuals wear braces to help manage their daily symptoms. Weve had the opportunity to connect with Janna Linke, a powerful voice and advocate for the #EDS Community. Jannas story shows immense courage and determination. Here at Aspen Medical Products we celebrate you and join your efforts in #EDSAwareness. We hope that anyone who is going through something similar to Janna, know that they arent alone and that theres hope. To hear more about Jannas story, check out her page @zebrablends. Follow the link in our bio to see her full-article published in Australian Pharmacist". For more information about Ehlers-Danlos Syndrome, follow @ehlers.danlos #ZebraStrong #ZebraWarrior #EhlersDanlosSyndrome #EDS #ChronicPain #ChronicPainWarriors #PainWarriors #PainAwarenessMonth #MyPainPlan #PainAwareness #PainManagement #PainCare #InvisibleIllness #PainWarriorsUnite #AspenMP #LifeChangingInnovation
21.01.2022 Meditation has become such am important and non-negotiable part of my day. The more I meditate the more I enjoy it, and the more benefit I take from it. I practice vedic meditation at least once a day for 20 minutes. I do try and weave little extra pieces of meditation into my day. ... The little extra pieces of meditation, I squeeze in might look like: 1. Mindfully watering the grass and plants, without distraction. 2. Or, Ill take a few minutes when I can catch them, to quieten my mind and practice a few rounds of praniyama breathing. Little extra pieces like this are important. What Im learning is, even the few minutes here and there count and add up to something meaningful. Do you meditate? What ways do you weave it into your day? #chronichealthjourney #vedicmeditation #vedic #pranayama #gardening #zebrablends #quietenyourmind #edsadvocate #ehlersdanlos #eds #ehlersdanlossyndrome #bondi
20.01.2022 Another awesome bundle about to go online and in limited quantities. Our brand new blend, 'The Essentials Plus' bath soak. 'The Essentials' but more. With added Lavender, Ylang-ylang + Frankincense essential oils, plus added Lavender Buds and dried Calendula flowers. ... Bundles nicely with a #WheatBagsLove eye pillow. Perfect for the meditator in your life. Or simply for yourself. Treat yo' self and grab a ZBs bundle. Selfcare, pain minimisation and meditation enhancing tools. Bundled together so you save. Keep an eye on our stories, there'll be a post when it drops later today. . . . . . #TheEssentialsPlus #BathSoak #MagnesiumGoodness #MagnesiumFlakes #DeadSeaSalt #pinkhimalayansalt #SaltyGoodness #ChronicPain #PainPartner #RareDisease #RVAPartner #EhlersDanlos #Advocate #Advocacy #Zebra #ZebraBlends #HandBlended #SmallBatches #ShopSmall #ChristmasGiftGuide #Selfcarr #Bondi #Tamarama #SoakingGood #Baths #Bathtime #BackPain #NeckPain #PainTools
20.01.2022 Been blending and researching. I want to super charge Arts Oil V2.0. Some quality ingredients going in to this all rounder - face serum, face oil cleanser, body oil, cuticle oil. It ticks a the boxes for a multipurpose oil, for the most delicate of skin. #artsoilv1 ... #artsoilv2 #zebrablends #faceoil #faceserum #bodyoil #oilcleanser #bondi See more
20.01.2022 When you have the playground all to yourself #zebrablends
19.01.2022 Im so glad, Daisy finally got the diagnosis she deserves. Having a diagnosis is extremely important for many reasons, but one of the big ones, is validation - knowing that there was always something underlying it ALL. I very much relate to Daisys journey, and cant imagine knowing about my diagnosis before having children, as like it states in the story there is a 50% chance of passing on EDS.
19.01.2022 I hope everyone of the ZBs crew has had a lovely Sunday doing what ever it is that fills you up. Weve had a very slow day here, lots of backyard shenanigans. Caught up with a beautiful friend yesterday and had a vino together whilst the kiddos played. ... Weekend done . . . . . . #slowdays #slowliving #zebrablends #bondi #fillyourcup #dowhatyoulove
19.01.2022 These guys pack a punch. Enviro-friendly, plastic free, a convenient two in one. You really dont need conditioner and great for hypermobile hands that struggle with squeezy bottles. ONE bar = SIX regular shampoo bottles. ... Help small business support charity. 50% of profits from all sales go directly to #rarevoicesaustralia . . . . . #EhlersDanlos #EhlersDanlosSyndrome #EDS #RareDisease #ZebraBlends #Zebra #ZebraStrong #IssuesWithMyTissues #Bondi #Advocacy #Advocate #EDSAwareness #EDSadvocate #rvapartner
17.01.2022 The guys wanted to ride separately to me this morning. I let them, despite every other time weve tried, its been a fail. I cave to them, on things like this as I dont want to be an unfun mum or worse let me disability affect them. After already stopping umpteenth times to make adjustments to their bike / scooter we were one block from preschool. Stopped at a busy intersection on Bondi Rd waiting for the flashing red man to flash green, giving the boys a pep talk on how w...e would cross the road. All seemed fine. The flashing man, flashed green. We set off, but Fraser got caught on the wrong side of me and swallowed up by the bit of crowd crossing with us. Other parents and kids on bikes, scooters etc. Fraser frooze. At this moment I stepped off my scooter, just standing alongside it with a hand on the handle bar to push it. But at the same time, one of the bags hanging on the handle bars got caught on the accelerator. The bike started doing circles around me at full speed. Somehow, I managed to hold onto the bike and after about four circles got my free hand to the brake. A man meanwhile got the kids to the other side of the road safely. I had my neck brace on thankfully, but still I am experiencing increased pain and neuro symptoms. I had to hold onto the bike as I knew if I let go, it could have hurt some one badly, I was worried of falling but just held on. The man who helped the kids couldnt believe Id managed not to let it go and stopped it. I always think, my way back when, emergency training as a flight attendant comes in handy in situations like these, I just dig deep and make the situation safe. My inner dialogue quickly turned to, i wish I was more physically capable, im letting the kids down being somewhat disabled, why cant I just walk them to school like everyone else. Arthur, said to me afterwards, mum that was so funny, clearly he wasnt negatively affected. I wish I wasnt so hard on myself, but when I think my disability is affecting the kids or impacting my parenting, I am. Im working on softening my opinion of my limitations. Having a chronic illness is hard and time, I think is the only antidote to this.
17.01.2022 Chronic pain month. September is chronic pain month. I know I talk about pain a lot, but its a big part of my illnesses.... I want to shine a light on the many ways chronic pain can impact patients lives:- 1. Chronic pain, strongly correlates with reduced quality of life (QOL). 2. Reduced QOL can include impairments to mood, impairments to activities of daily living and decreased involvement in social activities. 3. It can place pressure and strain on relationships. 4. It can place pressure on patients with regard to their capacity to work. 5. It can make it difficult for patients to maintain employment and financially contribute to their household. Now of course, this list is by no means exhaustive. Hit me up below, with the ways chronic pain impacts your QOL. : In the bath with loads and loads of #zebrablends #theessentials bathsoak, shoulders and neck strapped by my physio, trying to get some pain relief. Hit the website to get your soak on. #theessentials bath soak available in 400g and 800g sizes. 50% of profits from all sales go to #rarevoicesaustralia supporting rare disease research and advocacy. #bathsoak #chronicpain #chronicpainwarrior #raredisease #eds #ehlersdanlos #ehlersdanlossyndrome #backpain #magnesiumoil #magnesiumchlorideflakes #magnesiumbathsoak #bondi #septemberispainawarenessmonth
17.01.2022 Shine a light on chronic illness. Ive had a tough week. Amplified pain and neurological symptoms including brain fog. I think as a result of the little incident I had on my trike on Monday. I havent been back on it since. I know I should, but my confidence really took a tumble as well. ... Its been a week of doing the bare minimum, plus extra physio sessions. Today seems a little better (any amount of improvement Ill take as a win). Ive also just self administered my new migraine med (an injectable and replacement for Botox which was worsening my instability) and hoping to see some effect from it over the next week. Ive been reducing caffeine and have been totally caffeine free for three days, have to admit Ive noticed little change from this - I was hoping it might of had a dramatic effect. Its funny, even though I know there is no magic bullet to fix me, as Im so complex, I still get really hopeful when making little changes like reducing caffeine. I think its important to hold onto hope. School drop done = home to cook myself a nice breakfast (self care), meditate then off to physio, again - before charging into the weekend with my loves and a half drained battery. How is everyone else feeling this week? Ive spoken to a few people who are also feeling particularly drained. #zebrablends #chronicillness #ChronicPain #raredisease #rarevoicesaustralia #ehlersdanlos #EhlersDanlos #EDS #advocate #advocacy #bondi #spoonie #IssuesWithMyTissues #ZebraStrong
17.01.2022 The trio. All available on the #ZebraBlends website. #ArtsOilV1.0 a delicious blend of jojoba, sweet almond + coconut oil, ever so lightly scented with pure essential oils. #PureaZechstein Magnesium Chloride Oil - Sore and tired muscles. ... #PureMorrocanArganOil - Luscious locks and supple skin. #50percentofprofits from all sales goes directly to #rarevoicesaustralia supporting rare disease research and advocacy. Support small business supporting charity. #EhlersDanlosSyndrome #EhlersDanlos #EDS
16.01.2022 5 minutes. 300 seconds. The amount of time I cycled on my stationary recumbent bike today. The first real attempt at cardio I had done in at least a year. Might not seem like much and it certainly is hard to understand how I used to manage 5 spin classes in a week as a young adult and now a very slow and steady 5 minutes is my baseline. But that's life with a chronic and rare disease.... My walking capacity has been really hampered most of this year due to neuro symptoms and a wicked right sided weakness. For some reason of late, things have been improving. Despite having a few inklings of what's been helping, I still really don't know also. Without knowing exactly what's helping, I am able to still cheer myself on, as I am making such good gains to my strength, and the results are pretty bloody awesome. Of course, I'm still very limited by my mobility, and reach fatigue / exertion and experience pain flares (in addition to my base, always there pain) extremely quick, but all the little things I've been working so hard on for the last 18 months or so are really paying off. I do hope that these gains are going to mean I really can delay any surgical intervention for a while (I hope at least 10 years) and manage my condition through modifications / adaptions and pacing. . . . . . . #ButIDontLookSick #InvisibleIllness #EhlersDanlos #EDS #MCAS #Fibro #MECFS #Endo #Migraine #ChronicPain #Disability #Ability #AdaptiveLiving #Advocate #Advocacy #EDSAdvocate #PainPartner #APMAPartner #RVAPartner #Sydney #Bondi #ConsciousBusiness #WorkingHard #BeTheChange #AffectChange #SmashStigmas #SmashMedicBias #craniocervicalinstability #AtlantoaxialInstability #BrainstemCompression
16.01.2022 Dry body brushing: Whats the benefit? Having been practiced in Ayurveda for centuries, this classic ritual is a great way to provide gentle exfoliation to your body prior to taking a bath or shower. But does it have other benefits, that go beyond exfoliating. ... Some other reported benefits include: that the gentle exfoliation can encourage skin cell renewal. *It may* encourage circulation. It can become a self care ritual that encourages a few minutes of mindfulness, improving sense of well-being. So, if youd like to grab these few mindful minutes each day and incorporate dry brushing into your daily or weekly routine, jump to the website to grab, a perfectly sized palm dry brush. As always, a whopping 50% of profits from all sales go to #rarevoicesaustralia.
15.01.2022 Focus on: Co-morbid conditions in EDS. Basilar invagination is a very rare skeletal developmental defect charaticised by congenital upward translocation of the upper cervical spine and clivus into the foramen magnum. It can be asymptomatic or cause severe neurological dysfunction.... This is the condition that causes me my most severe symptoms. Source: Orphanet . . . . #basilarinvagination #EhlersDanlos #EDS #EDSadvocate #EDSAwareness #bondi #ZebraBlends
15.01.2022 Big + little. 800g + 400g size bathsoaks available. The 400g is the perfect travelling companion, when you know youre going to only need a bath or twos worth of salts. ... Ill be taking this on our upcoming jaunt to the Blue Mountains, very fortunate to be able to squeeze a little break into this year. Weve booked a fab looking Airbnb for some downtime. Holidays are looking different this year. What, if anything do you have planned or in the works? #localholidays #airbnb #zebrablends #raredisease #chronicillness #magnesiumchlorideflakes #theessentialsbathsoak
15.01.2022 A quick little reintroduction for those who are new to the ZBs tribe and not entirely sure of the back story. Im Janna, a 35 year old mother and wife and avid rare disease, primarily, Ehlers-Danlos Syndrome (EDS) advocate. Im striving to change the #healthscape for Australians living with, or caring for someone with rare disease.... You see, I was diagnosed with EDS at the ripe old age of 33. But yet, I displayed symptoms most of my life. It shouldnt take this long for people to receive a correct diagnosis. It should be smoother and more straightforward. So I started Zebra Blends, really just to combine two of my passions, making things (aka: arts oil, bath soaks, etc) and raising money for rare disease research and advocacy. A lot is happening behind the scenes with regard to further advocacy and I hope to have some positives to share in the not too distant future. Ive been busy reaching out to exisiting charities, networking and trying to devise ways in which the future for people with rare disease could look differently, could look better and be more hopeful. So, in a nutshell, thats what its all about. 50% of profits from all sales on the #ZebraBlends website go directly to #rarevoicesaustralia, a charity supporting rare disease research and advocacy in Australia.
14.01.2022 Its an all the heatpacks kinda day here. In quite a bit of pain after this mornings little adventure. Hit the website to grab one of these gorgeous, #wheatbagslove heat packs. Australian made, with Australian wheat and naturally screen printed fabric. ... 50% of profits to #rarevoicesaustralia as always. . . . . . #zebrablends #wheatbag #chronicpain #neckpain #backpain #naturalpainrelief
14.01.2022 True love! Argan Oil! This is my fall back skincare regime of late. Just 100% pure and natural Morrocan Argan Oil. Nothing more, nothing less.... Works perfectly, as a cleanser, make up primer and face / body / hair moisturiser. Less really can be more. 50% of profits as always go directly to charities supporting rare disease and chronic pain patients. . . . . . . #ArganSkin #ArganFilter #ArganLove #ArganOil #SimpleSkinCare #Simplifyyourskincare #RareDisease #ChronicIllness #invisibileillness #EhlersDanlos #EDS #EhlersDanlosSyndrome #ChronicPain #MCAS #Advocate #Advocacy #Endo #Migriane
14.01.2022 All the magnesium! How do you top up? . .... . #ZebraBlends #MagnesiumOil #ShopSmall #MagnesiumGoodness #magnesiumdeficiency #RareDisease #ChronicPain #EDS #EhlersDanlos #Bondi See more
13.01.2022 Zebra Blends Magnesium Oil. A pure magnesium solution from the depths of the ancient Zechstein Seabed. Available in 100mL, 250mL with refill options for local peeps. ... 50% of profits as always to #rarevoicesaustralia supporting rare disease research and advocacy. [Photo: a bottle of Zebra Blends magnesium oil on stripey cloth].
13.01.2022 Today, September 10 is #RUOK day. Its ok not to be ok. I read a great article recently, shared with me by @emily_l_ly published on @medium written by #TaraHaelle about surge capacity. It really struck a nerve with me. How do we refill our cups, when we reach #surgecapacity or overwhelm saturation, as I like to call it, in the case of an ongoing acute turned chronic disaster, such as the current pandemic. ... Where feelings of being in a funk, and non-funky feelings can coexist. Who else is completely and utterly over this year? I know I try to keep things positive as much as possible. But hey, real is good too, especially today. Does anyone else find lately, they can fluctuate from deep funk to grateful and content all within a moment? I feel this year is constantly fuelled by changing and evolving emotion, that is full of juxtaposition. That feelings so polar opposite to each other, not usually existing in the same moment, can. Juggling this year has been next level. With health issues, a lot of health issues and an evolving level of disability, I am tired. The unrelenting nature of the year that just keeps on giving is heavy. It feels huge to be living through something, like what we are. It is surreal and unimaginable all at the same time. One great thing from this year, is Im learning to be real. To let myself be vulnerable, Im enjoying writing, something about the process is cathartic. Im putting myself out there, making connections with people I didnt think I had the experience or knowledge to reach out to and finding resoundingly, that my ideas and or plans are well received. I want to affect change and I have realised that in order to do that, mostly I have to follow my heart and then the rest will follow. If youre not ok its ok, reach out to a friend or family member, colleague or counsellor. Find someone you feel safe to confide in. Below, in the comments, are some useful resources:
11.01.2022 The most delictable selection of goodies. Spring into spring. Jump to website to grab, any or all, of these beauties. #oftheearth wrap / scarf, beach towel, picnic rug etc. ... #zebrablends #zechstein magnesium chloride oil. #ecomax all natural and #envirofriendly dry body brush. #australianhempoil soap + #bamboosoaprack As always 50% of profits from all sales go directly to ZBs chosen charity, @rarevoicesaustralia - a charity supporting all Australians living with, or affected by rare disease. Rare disease affects approximately 8% of Australians. Whilst each separate disease is rare, there are over 7,000 different known rare diseases this makes the overall incidence of rare disease, not so rare. #raredisease #supportsmallbusinesssupportingcharity #bondi
11.01.2022 The puzzle continues. Trying to figure out exactly whats going on in my body is proving the biggest challenge Ive ever encountered. About 9 months ago, I had an epidural blood patch. A procedure to patch a hole in my dura (the membrane made of connective tissue that houses your brain and spinal cord). It was thought I had a spinal fluid leak and was suffering from low intracranial pressure, due to my symptoms. And in all honesty its likely I did, or still do even. But, my... neurosurgeon for a few months now has wanted to investigate the possibility that I in fact have underlying high intracranial pressure issues - which may actually be causing the leaks (the high pressure causes a leak to be sprung, sending you into low pressure, it can be a little bit of a vicious cycle). But whats causing the underlying possible high pressure? Possibly my structural issues around by brainstem at C1-C2. So next steps:- 1. I realised I should cut caffeine, as whilst caffeine is good for low intracranial pressure (why Ive always drunk so much coffee) its terrible for high intracranial pressure (its also likely that I flip / flop between high and low, making it all the extra confusing). 2. I need to book the MRI venogram that my neurosurgeon ordered months ago that Ive been putting off, due to covid, but also the fact it requires a contrast agent for the scan. I hate getting GAD or contrast generally. It has the potential to cause brain inflammation and this terrifies me, I hate the idea of possibly getting worse brain fog, even if its only temporary. So, reducing coffee is going good. Im down to one (trying not to go cold turkey to avoid withdrawal headaches, dont need any extra pain) and Im off to book my MRV. Who else have encountered the mind boggling puzzle that are intracranial pressure issues? And have you got any definitive answers? #womenshealthweek #csfleaks #mrivenogram #ehlersdanlos #eds #zebrablends #zebra #zebrastrong #chronichealth #invisiblehealth #raredisease #highintracranialpressure
10.01.2022 BONUS travel / reusable cutlery set with orders until the end of the month. Spring into Spring offer. #reusablecutlery #travelcutleryset #rarevoicesaustralia ... #zebrablends #ehlersdanlos See more
10.01.2022 'The Essentials' and 'The Essentials +'. Both on the website. Everything you need in a soak. PLUS - 50% of all profits go directly to charities that support chronic pain and rare disease patients. ... . . #Magnesium #Bathsalts #Bathsoak #SelfCare #Mindfulness #Meditation #Vedic #DeadSeaSalt #PinkSalt #Salt #WheatBags #EyePillow #EyeMask #SleepMask #RestandRevive #GoodForTheSoul #FillYourCup #OrthostaticIntolerance #EDS #EhlersDanlosSyndrome #EhlersDanlos #RareDisease #ChronicIllness #InvisibleIllness #Zebra #ZebraBlends #ZebraStrong #IssuesWithMyTissues #pharmacistsofinstagram See more
09.01.2022 This is really interesting.
08.01.2022 Chinos and hot chocolates.
06.01.2022 How awesome is this news alert this morning! Once step closer to normality being resumed! . .... . . #Covid19 #pfizerbiontech #Approved #ChronicIllness #RareDisease #highriskcovid19 See more
06.01.2022 Im sure weve all heard a variation of this notion. But there really is something powerful in it. Let go of anything you cant control. If you can control something and wish to change it, try. ... Something Ive gained from having a chronic illness, I truly believe is, Ive learnt a few life lessons earlier than I would have otherwise. Like this one. Knowing what I can control and what I cant. My psychologist talks of it as, our circle of influence, the stuff inside the circle we can alter and work on, influence etc. The stuff outside of our circle of influence we cant. Its good to be able to distinguish between the two. What lessons, has having a chronic illness taught you? #raredisease #chronicillness #rarediseaseadvocacy #advocate #EhlersDanlos #EDS #bondi
05.01.2022 Zebra Blends. Supporting rare disease research and advocacy. #ehlersdanlos ... #rarevoicesaustralia #rvapartner #raredisease #bondi See more
05.01.2022 A very easy way to support small business support chairty and help raise awareness. Grab yourself a Zebra Blends tote on the website and use it proudly everyday. Have it tucked away in your handbag, backpack or under your pram for easy use. 50% of profits from all sales go towards charitys supporting rare disease research and advocacy. ... The rare disease especially close to our heart here at Zebra Blends is #ehlersdanlos syndrome. #raredisease #rarevoicesaustralia #eds #ehlersdanlossyndrome
04.01.2022 Welcome to Zebra Blends. A space for advocacy and discussion around rare disease and chronic illness. An online store selling a luxurious blend of bath soaks and oils, solid shampoo bars, wheat bags, eye pillows, sleep masks and reusable travel cutlery sets (especially useful for hyper-mobile hands who just cant deal with plastic and bamboo single use items). An ever expanding range of products. ... 50% of profits donated to charities supporting rare disease. #supportsmallbusinesssupportcharity
03.01.2022 Hit the website to grab a delictable Australian hemp seed oil soap and eco-friendly and Fairtrade soap saver bag! 50% of profits to charities supporting rare disease research and advocacy.
03.01.2022 'The Essentials Plus'. Find it under soaks in the Zebra Blends online store. All the good stuff of 'The Essentials' bath soak, with added Essentials Oils of Lavender, Ylang-ylang and Frankincense plus dried lavender and Calendula Flowers. ... Packed up nicely in a reusable glass jar (no plastic here) with an easy peel label. 50% of profits to charities supporting rare disease and chronic pain. . . . #MagnesiumOil #MagnesiumGoodness #MagnesiumChlorideFlakes #MagFlakes #SoakingGood #Bathsoak #Bathsalts #bathtime #restandrelaxation #SelfCare #magnesiumdeficiency #deadseasalt #pinkhimalayansalt #essentialminerals #EssentialOils #Lavender #Ylangylang #Frankinsense #Zebra #ZebraBlends #EhlersDanlos #EDS #RareDisease #ChronicPain #Bondi #ShopLocal #SmallBatches #Handmade
03.01.2022 A huge crop of zucchini flowers popping up. It's a beautiful sight. The boys and I have lovingly raised these from seeds. ... So enjoying gardening and the fruits of our labour. Arthur loves eating whole cucumbers direct from the vine. . . . #Spoonieparenting #Spoonie #ChronicIllness #EhlersDanlos #EDS #Enjoyingaslowlife #RareDisease #ChronicPain #Gardening #Meditation #MindfulPractice #MECFS #Fibro #Migraine #Endo #ChronicPainPartner #RareDiseaseAdvocate #ZebraBlends #Zebra #ConnectiveTissueDisorder #IssuesWithMyTissues #Bondi #Tamarama
03.01.2022 Little besties. They look the same size here. They almost are. . . . .... . . #ZebraBlends #spoonieparenting #EhlersDanlos See more
03.01.2022 Too good not to share. My littlest , wanted his stuffed toy in a baby carrier. I improvised and used one of our #oftheearth wraps. These wraps are so gorgeous and versatile. Grab one now, online at www.zebrablends.cmom.au... 50% of profits from all sales go to charities supporting rare disease research and advocacy. #zebrablends #supportsmallbusinesssupportingcharity
02.01.2022 #eyepillow love. Meditation game strong. 50% of profits from all sales to Rare Voices Australia, supporting rare disease research and advocacy. #zebrablends
01.01.2022 Can anyone hazard a guess, the secret ingredient in Arts Oil V2.0 that gives it this deep, almost orange / rusty colour? . . . .... .#comingsoon #zebrablends #bondi See more
01.01.2022 Jump online and grab yourself a jar of The Essentials bathsoak. Great for soaking sore and tired muscles. 50% of profits to #rarevoicesaustralia supporting rare disease research and advocacy .... . . . . . . #zebrablends #magnesiumchlorideflakes #zechstein #purezechstein #deadseasalt #raredisease #EhlerDanlos #supportsmallbusinesssupportingcharity #pinkhimalayansalt See more
