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Crohn's & Colitis Australia in Camberwell, Victoria | Non-profit organisation



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Crohn's & Colitis Australia

Locality: Camberwell, Victoria

Phone: +61 1800 138 029



Address: 363 Camberwell Rd Level 1 Suite 4 3124 Camberwell, VIC, Australia

Website: http://www.crohnsandcolitis.com.au/

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25.01.2022 The 'Can’t Wait Card' is available and issued to all new CCA members formally diagnosed with Crohn’s disease or ulcerative colitis, to help them gain access to a toilet in times of urgency. The personalised card is the same size as a credit card for convenient storage, and displays the diagnosed person’s name and CCA member number, identifying that person as someone who requires urgent access to a toilet due to having IBD. To learn more and apply for a 'Can't Wait Card', visit: www.crohnsandcolitis.com.au/cant-wait-card/



25.01.2022 Jamie Hubbard (VIC) loves to keep active he’s a qualified personal trainer and keen drummer who was first diagnosed with Crohn’s disease at the age of 17. But Jamie’s real passion is helping others achieve their goals, whether they’re big or small! That’s why we’re thrilled to have him as a Live Fearless Ambassador again in 2020! www.livefearlesschallenge.com.au

24.01.2022 Meet the dynamic duo of Ashleigh and Sophie from NSW! They were both diagnosed with ulcerative colitis in 2019 at the age of 11, and soon discovered they had the same doctors and lived in the same area. Today, Ashleigh and Sophie support each through their experiences with IBD, and want to help others do the same. They even dyed their hair purple to raise awareness on World IBD Day! They’re really excited to be Live Fearless Ambassadors in 2020, and want everyone living with IBD to remember that they’re not alone. www.livefearlesschallenge.com.au/ambassadors

24.01.2022 Crohn's Disease and ulcerative colitis can be unpredictable conditions. When you show someone with IBD true kindness and understanding, it goes a really long way and it greatly appreciated. Read Flic Manning - Wellness Author & Speaker's personal story of her experience with IBD where a total stranger showed kindness... https://www.crohnsandcolitis.com.au/world-toilet-day-2020/ See more



23.01.2022 It’s great to have the amazing team at Liverpool Hospital with us this year as team ambassadors as they continue to spotlight Crohn’s disease and advocate for people living with IBD. Here's the ever-fearless team exploring the outdoors, increasing those kilometres together! #LiveFearlessChallenge www.livefearlesschallenge.com.au/ambassadors

22.01.2022 We love a beautiful #LooWithAView. Have you visited any of these loos? Let us know in the comments below, or, alternatively, share your favourite #LooWithAView with us ! CCA would like to thank @abbvieaustralia, proud sponsor of CCA’s World Toilet Day campaign.

22.01.2022 Crohn’s & Colitis Australia is undertaking a project with Swinburne University of Technology to improve the delivery of information and services about managing inflammatory bowel diseases. We are seeking people with IBD over 15 years of age, particularly males, and carers of people with IBD to complete an online questionnaire about understanding your health and healthcare. Carers can be a family member or friend who helps or supports any of your daily activities, assists with... medical appointments or health information relating to IBD. You will be asked questions about how you use health services, talk with doctors and other health workers and how you look after your health. The questionnaire will take about 20 minutes to complete online or by contacting CCA for a paper questionnaire. Your participation will provide evidence for the improvement of IBD information and services. The project has been approved by the Swinburne University of Technology Human Research and Ethics Committee (Ref:20202968). For more information and to take the survey: https://www.crohnsandcolitis.com.au/ibdqoc/ibdhlsurvey/



21.01.2022 We want to see how you’re living fearlessly this month. Don’t forget to tag us and use the hashtag #LiveFearelessChallenge! We can’t wait to see how everyone is staying active this September! Check out what our Live Fearless Community have been up to > www.livefearlesschallenge.com.au/community

21.01.2022 "One piece of advice that I give myself on my most challenging days to get me going again would be, 'I’m not the only one who may be having a bad day, everyone has their days. It's ok to feel down, but it’s important that you continue to get back up, it will get better'." CCA are very proud of Brittani Nicholl and her contribution over many years from a very young age, while at the same time managing her own illness. Earlier this month, Britt was awarded Adult Volunteer of th...e Year at the 2020 NSW Volunteer of the Year Awards: Northern Rivers Ceremony. Britt is the true epitome of living fearless www.livefearlesschallenge.com.au/ambassadors

20.01.2022 Get in quick! Your last chance to purchase your tickets in the Play For Purpose Raffle 8 in support of CCA. The draw closes tomorrow at 8:00pm! Tickets: https://playforpurpose.com.au/crohns-and-colitis-australia

20.01.2022 10 days to go before the current Play For Purpose draw closes! Help support people living with Crohn's and colitis in a small way by purchasing your $10 ticket for your chance to win. Tickets: https://playforpurpose.com.au/crohns-and-colitis-australia

20.01.2022 Every kilometre is taking you closer to your end goal of 150km. Every dollar is taking us closer to a long term solution for people living with Crohn's disease & ulcerative colitis. You can help by making a donation today. www.livefearlesschallenge.com.au/sponsor



19.01.2022 1 day to go! Make sure you've logged your final fitness activities and kilometres by the end of this Wednesday to ensure they'll be included in the total number of Live Fearless kilometres. We hope you're all super proud and feeling inspired by all of the activity you've committed to this month. ... www.livefearlesschallenge.com.au

18.01.2022 Do you have Crohn’s Disease or Ulcerative colitis? Are you considering having a baby or currently pregnant? Are you interested to test out a Decision Aid about IBD and Pregnancy? You may be eligible to participate in the PIDA study. The decision aid is web-based and expected time involved is 1 to 1.5 hours. If you are interested, please contact us at [email protected] or (02) 8738 6524

17.01.2022 The Live Fearless Challenge starts tomorrow! There is still time to register and get moving this September. Over the weekend our CEO, Leanne Raven chatted all things #LiveFearlessChallenge and IBD on 2GB 873 - Sydney Talk Radio Australia Overnight with Luke Grant. Listen from 2:29:32 mark: https://www.2gb.com//australia-overnight-with-luke-grant-/

16.01.2022 Flic Manning (VIC) is an author, speaker, and entrepreneur who has lived with Crohn’s disease for over two decades. She’s also a certified wellness coach, personal and group fitness instructor, dance teacher, meditation coach, holistic pain management facilitator, and the founder of the Corethentic wellness system! Flic has generously shared a Corethentic workout video with us, so make sure to grab a yoga mat or a large towel, turn up the volume and dance it out! www.live...fearlesschallenge.com.au/fundraising-toolkit Flic is a long-term ambassador for Crohn’s & Colitis Australia, and we’re thrilled to have her lend her voice to this year’s #LiveFearlessChallenge. www.livefearlesschallenge.com.au

15.01.2022 Only two days until the 2020 Live Fearless Challenge! Starting from next Tuesday, September 1st, individuals and teams across Australia will be hitting the pavement and getting active to raise vital funds for people living with IBD. There's still time to register and spread the word! ... www.livefearlesschallenge.com.au

15.01.2022 We are asking our supporters, friends of families and colleagues to band together to help raise funds to support the vital services provided by Crohns & Colitis Australia (CCA). By donating, you will help raise critical funds for research, advocacy and education programs essential to supporting the growing community of Australians living with Crohn's and colitis. Consider donating today, and help build a better future for thousands of affected Australians.... Thanks to @ibd.team.live.fearless for this ! www.livefearlesschallenge.com.au/sponsor

15.01.2022 The 2020 #LiveFearlessChallenge has officially begun! In the next 30 days, individuals and teams across Australia will be hitting the pavement and getting active to raise awareness and vital funds for people living with Crohn’s disease and ulcerative colitis. Don't forget to share your journey and tell the world you're ready to live fearless, with the hashtag #LiveFearlessChallenge!... There's still time to register and spread the word! www.livefearlesschallenge.com.au

14.01.2022 Bruce Rosengarten is a #LiveFearlessChallenge superstar! Exercise is really important for mental health - I have always loved exercise. Sometimes when you are ill with active IBD, exercise can be difficult, but practicing yoga, meditation or pilates can be just as important and helpful. We’re so grateful to have Bruce onboard as a CCA Ambassador for this year’s Live Fearless Challenge! ... www.livefearlesschallenge.com.au

14.01.2022 Don't forget we’ve added yoga and workouts to the mix of activities, making it even easier to get started and stay active this September! To get started, take minutes out of your day with Adriene to promote healthy flow of energy so that you can do your best, be authentic and find what feels good! www.youtube.com/watch

14.01.2022 Sir Steven Geoffrey Redgrave won gold medals in rowing at five consecutive Olympic Games from 1984 to 2000. He’s widely regarded as one of the greatest ever British sportsmen all the more impressive given that it wasn’t until 1992, halfway through his career, that he was officially diagnosed with ulcerative colitis! www.livefearlesschallenge.com.au

13.01.2022 We're thrilled to announce that our inspiring CCA ambassador, comedian and singer-songwriter, Luke Escombe has been nominated for his very first Aria award for his kids song, 'Toilet Paper Mountain'. The CCA team and community wish Luke the best of luck at the awards ceremony on the 25th of November, and are sure that this will be the first of many nominations. https://www.youtube.com/watch?v=3zXBSQgtrxE&feature=youtu.be

13.01.2022 Sometimes the hardest part of the workout is getting started. A good song gives you the energy and motivation to get out the door, push harder and can even encourage you to try something new! What songs are helping you reach your #LiveFearlessChallenge milestone? Tell us in the comments below! www.livefearlesschallenge.com.au

13.01.2022 Stretching her way to the finish line. Tamara and her dream team at Liverpool Hospital have continued to smash out their goal of 150km. Share your, or your teams journey & tell the world you're living fearlessly too, with the hashtag #LiveFearlessChallenge www.livefearlesschallenge.com.au

11.01.2022 Be a part of our community to stay in the loop. You’ll receive a subscription to our Inside Insight magazine, information and resources on living with IBD and regular e-newsletters. And that’s not all! Find out more about the benefits of joining as a CCA member. www.crohnsandcolitis.com.au/member/register

11.01.2022 Sometimes all we need is a gentle reminder. And we’re here, happy to remind you! it’s time to go outside and embrace the day!... #LiveFearlessChallenge www.livefearlesschallenge.com.au

09.01.2022 Cast your mind back to the 2003 Rugby World Cup Final Jonny Wilkinson’s drop-goal wins the match and the cup for England, in front of 100,000 heartbroken Aussies at the Sydney Olympic Stadium. (It still hurts). What you might not remember is that Lewis Mad Dog Moody had played for England in every single game of the tournament, and assisted with Wilkinson’s winning goal. Moody lives with ulcerative colitis, and to this day helps raise awareness for Crohn’s & Colitis UK! www.livefearlesschallenge.com.au

09.01.2022 Do you have IBD (Crohn’s disease, ulcerative colitis or indeterminate colitis)? Are you worried about the recent COVID-19 pandemic? We are seeking people who would like to test an online writing intervention aiming to reduce worry associated with the COVID-19 pandemic. If you have IBD (Crohn’s disease, ulcerative colitis or indeterminate colitis), are 18 years of age or older, worry about the COVID-19 pandemic, receive your healthcare in Australia, and have access to the inte...rnet, you are eligible to participate. However, please note the study is only addressed to people with mild to moderate levels of distress as this intervention is not suitable for people with severe distress. The findings from this study will provide data on the usefulness of a simple online intervention for people with IBD. To express interest or if you have any further questions about this research, please contact us via [email protected].

09.01.2022 A good smoothie is a runner's best friend. It can provide an energy kick for a pre-workout breakfast, or help to refuel once you get home! Here's a simple green smoothie filled with nutrients to set you up for the rest of your day. What's in your go to smoothie?... www.wholesomestef.com//my-all-time-favourite-post-workout-

09.01.2022 If you’re looking to give a gift of hope this gift-giving season, CCA’s would greatly appreciate donations of any size towards our annual Christmas Appeal. Our research, support and advocacy programs depend on your help and generosity, and past donations and fundraising appeals have given much hope to children and families living with IBD through education, research, support groups, advocacy programs, raising awareness on a national scale and ultimately working towards dev...eloping a cure for IBD. To make a donation and learn more about this year’s Christmas Appeal, please visit: www.crohnsandcolitis.com.au//genera/christmas-appeal-2020/ *Please note: All donations over $2 are tax deductible and a receipt will be sent to you for taxation purposes.

09.01.2022 Living fearlessly is the only way Justan Singh knows how, since being diagnosed with Crohn’s disease at 2 years old. 19 years down the track (at age 21) Justan had a permanent ostomy, and has since been raising awareness about ostomies and positive body image sharing his plethora of knowledge when it comes to exercising and wellness with other young people whilst proving a dedicated volunteer within the IBD community. I aim to go for 200km walking and 50km rowing to rais...e awareness and show how far I can push my Crohn's. We’re so grateful to have Justan onboard as an ambassador. Thanks for your enthusiasm and commitment Justan! www.livefearlesschallenge.com.au/ambassadors

08.01.2022 Tracey Murrin (QLD) is passionate about raising awareness and helping others with IBD. Since her Crohn’s diagnosis in 2005 and a permanent ileostomy, she has walked the Great Wall of China and competed in the Gold Coast Commonwealth Games Queen's Baton Relay, all for IBD fundraising! Her Live Fearless Challenge is especially personal in 2020 her team is named ‘Doing it 4 Declan’, in honour of a fearless young man she met at the first Crohn’s & Colitis Australia Youth C...amp in Queensland in 2015. We’re so grateful to have Tracey Murrin onboard as a CCA Ambassador for this year’s Live Fearless Challenge! www.livefearlesschallenge.com.au/ambassadors

08.01.2022 Today is R U OK Day. It’s a simple question, but it can be a tough one to ask. We understand how challenging it can be to manage not only the physical symptoms of Crohn’s or colitis, but also the stress and worry that you may feel sometimes. The Crohn's & Colitis Helpline and NurseLine provide individual help, general information and guidance. Don't hesitate to call if you need to have a chat to someone. We're hear to listen and offer help. ... 1800 138 029

07.01.2022 Melissa Lord (QLD) is another of our Live Fearless Ambassadors for 2020! First diagnosed when she was 18, Melissa had never heard of IBD before and her medical journey led to a great deal of self-discovery. She’s now about to turn 37, and is coming up on her tenth ‘stoma-versary’ a time to reflect on everything she’s been able to accomplish since her procedure. She says, I share my experiences in the hope that it will help others who are in the same position I was, all... those years ago. We’re in this together. The IBD community is full of strong, resilient people and I’m grateful to be a part of it. And we’re grateful to have you with us, Melissa! www.livefearlesschallenge.com.au

07.01.2022 Today CCA volunteer Brittani Nicholl was awarded Adult Volunteer of the Year at the 2020 NSW Volunteer of the Year Awards: Northern Rivers Ceremony. CCA are very proud of Brittani and her contribution over many years from a very young age, while at the same time managing her own illness. Brittani, you’re an inspiration to so many people in the community and a well-deserved winner of this award. Thank you for all you do to help others by sharing your personal story and exper...iences. Brittani will now go on to become a finalist in the NSW state finals. Britt, you are the epitome of living fearless! Well done! #NSWVolunteerAwards #LiveFearlessChallenge

06.01.2022 Spring is in the air and we’re all about embracing outdoor activities this September! Join us this month and as we live fearless together. Don’t forget to post a sweaty selfie and use #LiveFearlessChallenge on our quest to help build a better future for thousands of affected Australians. www.livefearlesschallenge.com.au

06.01.2022 Congratulations to the Orange Volunteer Team today on their nomination in the 2020 NSW Volunteer of the Year Awards, Central West Regional Ceremony. Cassandra Anslow, Wendy McKern and Helen Moon have all been long time volunteers at Crohn’s & Colitis Australia, holding regular fundraising high-tea events and hosting IBD awareness month activities in local shopping centres in Orange, NSW where they fundraise and inform the community about living with IBD. CCA are incredibly grateful to Orange Volunteer Team for their energy, effort and support over many years in their local community. Thank you!

05.01.2022 Every step is taking you closer to 150km and helping people living with Crohn’s disease and ulcerative colitis. Remember, your profile page includes your personal distance tally so you can track your distance towards your target. This is a great way to keep your friends updated on your workouts! For more information on how to log your KMs, click here ... www.livefearlesschallenge.com.au/how-to-log-kms See more

04.01.2022 We're already halfway through the 2020 #LiveFearlessChallenge! Together we've travelled over 49,000 kilometres and raised vital funds for people living with Crohn’s disease and ulcerative colitis. Keep it up our fearless trailblazers - every kilometre is taking you closer to your end goal of 150km. ... www.livefearlesschallenge.com.au

01.01.2022 We’re excited to announce applications are now open for the 2020 Crohn's & Colitis Australia IBD PhD Scholarship. This research scholarship will provide a successful applicant with $25,000 each year for up to three years to support their research study. The scholarship is an important part of achieving one of our strategic priorities which is to ‘Build IBD research capacity’. We are especially looking forward to receiving applications from candidates who are just starting the...ir research career in areas across all healthcare disciplines and sciences. Eligible candidates must: be an Australian citizen or hold permanent Australian resident status; have completed degree or higher degree studies and be eligible for PhD candidature; and outline a research proposal that specifically applies to patients with IBD. Applicants are required to complete the official application form (link below) which must be received by 5pm Friday 6 November 2020. https://www.crohnsandcolitis.com.au//cca-ibd-phd-scholars/

01.01.2022 As long as you're outside and spending time with Dad, he'll be sure to have a great Father's Day. Whether that means an outdoor activity with the whole family or a lap around the park, it's the perfect opportunity to get those steps up during September! www.livefearlesschallenge.com.au

01.01.2022 The Pharmaceutical Benefits Advisory Committee (PBAC) is seeking consumer feedback on submissions relating to some important IBD medications for the Pharmaceutical Benefits Scheme (PBS). This meeting there is applications for oral and injectable biologics. You may like to provide feedback if you have experience taking Adalimumab biosimilars Idacio or Hadlima, Infliximab injectable Remsima, Mesalazine tablet Asacol, Tofacitinib tablet Xeljanz, Vedolizumab injectable Entyv...io. If you would like to provide information on the impact of proposed changes you can email [email protected] and CCA will forward your comments grouped with those of others to PBAC. The closing date for comments to CCA is 4 October 2020. Submissions are summarised here: https://www.crohnsandcolitis.com.au//ad/current-campaigns/ More information on biosimilars can be found at: www.biosimilarhub.com.au

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