Australian NZ Foundation for CDD Research in Geelong West, Victoria, Australia | Community organisation

Australian NZ Foundation for CDD Research

Locality: Geelong West, Victoria, Australia

Phone: +61 404 633 681

Address: 2/84 Shannon Ave 3218 Geelong West, VIC, Australia

Website: http://www.afcr.org.au

Likes: 64

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• Charitable organisation
• Community organisation

24.01.2022 Our biggest challenge currently with cdkl5 Deficiency Disorder to help spread awareness for CDD, our Raff Raff and every other child and adult living with this disorder. As well as those who have passed on and their families. CDKL5 Strong!

22.01.2022 Our sweet CDKL5 brother Troy has gained his wings. Please keep his parents in your thought/ prayers. Our sweet CDKL5 brother Troy has gained his wings. Please keep his parents in your thought/ prayers.

21.01.2022 IN STORE NOW for sale or online. Order yours here https://www.healandsoulpodiatry.com.au//if-you-have-a-spec... Written by Carson Troy for his special little brother Tanner. Carson recently celebrated his Bar Mitzvah and we wanted to help spread this book to the other side of the world! My son, Raffael, as most of you know, was also born with this terrible condition and every day is a celebration of his resilience and strength. We have 70 copies to sell for the under cost amount of $20AUD with all funds going to CDKL5 research. This is not a money making venture but something we wanted to do to spread awareness and also to acknowledge and support the siblings of those kids born with rare conditions. They sometimes miss out on a lot and have to take a back seat when their brother or sister needs extra care, numerous specialist and therapy appointments and more times than we want to remember, emergency trips to hospital. Well done Carson and to the Froy family. You always do so much to raise funds and awareness so that one day, a cure may be found!

21.01.2022 Hey everyone, just trying to get the word out there that we also provide staff and services through the NDIS. We help advocate for your needs, we deal directly ...with the NDIS so you don’t have to. We are registered and experienced with more than the following: therapy, therapy assistants, cooking, cleaning, disability support work and care, transport, we have a company disability van too, home and vehicle modifications, equipment and consumables, and assistive technology. Within the clinic we also have compression socks of all lengths which have been great for those with sensory disturbances. Similar to jet proof and calmwear vests etc. we have lots of experience dealing with the NDIS and a good reputation and first hand knowledge of severe medical, behavioural and psychological disability. Autism, cerebral palsy, epilepsy and neuromuscular disorders and brain impairments to name a few. We also help with podiatry care but also providing sensory therapy, laser acupuncture, neuromuscular therapy, falls prevention and gait modification, footwear and compression wear. And most importantly, we do it in a calm, friendly and understanding environment. Home visits and resident visits also available. We really understand disability and would love to help you be more independent, healthy and as happy as you can be. Everyone deserves this and we truly believe that everyone deserves to receive the treatments and assistance they need to function as best as they can. With as little difficulty and stress as possible. Life is hard enough.. Check out our website at www.fairgoaccess.com or give us a call or email at [email protected]. See more

18.01.2022 Exciting update from Marino's pharma

17.01.2022 Read why we have changed NOTHING to combat the Corona Virus. Heal & Soul Podiatry have always implemented strict inferction control procedures to help prevent t...ransmission of infectious deseases. We have always gone above and beyond what is legislated to ensure best comfort and cleanliness to our staff and our clients. See more

10.01.2022 Long time no post. Enjoy

08.01.2022 Hi Everyone, I am pleased to say that we are now starting to move on getting this foundation functional and active in supporting research as well as the people and families living with CDD and other rare disease. If you want to be involved send me a message and i'll keep you in the loop. I will most likely create a group for those interested parties. We will gather a committee and members to be a presence here and globally to represent Australia and New Zealand. :-)

08.01.2022 A fellow CDD family's story. Our kids are such fighters xx

08.01.2022 An amazing update on the rapid advancement of new treatments and therapies specifically targeted to help and / or cure CDD. A cure is coming and it's coming fast! http://www.draccon.com/dracaena-report/cdkl5forum2019

04.01.2022 People magazine featuring CDKL5

02.01.2022 Lets spread the love and cheer as we go out into the world and make someones today better than they ever thought possible. Its a start.