Australian Pancreatic Cancer Genome Initiative (APGI) in Darlinghurst, New South Wales | Cause

Australian Pancreatic Cancer Genome Initiative (APGI)

Locality: Darlinghurst, New South Wales

Phone: +61 2 9355 5894

Address: 384 Victoria Street 2010 Darlinghurst, NSW, Australia

Website: http://www.pancreaticcancer.net.au

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25.01.2022 Today is World Pancreatic Cancer Day! Don't forget to post your purple pics and help raise awareness for pancreatic cancer. The APGI was honoured to attend the #PurpleOurWorld breakfast function - what a great way to kick off this very important day. #InItTogether www.pancreaticcancer.net.au/2016-world-pancreatic-cancer-d/

24.01.2022 Earlier this year we published a landmark research paper about finding unexpected important research information inside a persons inherited genetic material, and we followed what people did with it. Many of these individuals now are equipped to work towards preventing cancer developing in their families in the future. Its exciting to think with this knowledge we may be able to work towards slowing or stopping a cell that is genetically predisposed to cancer from actually progressing to cancer. Tell us. What would you do if you learned youd inherited a faulty gene which was only discovered incidentally by a research study? More on the Garvan Institutes website also. https://www.garvan.org.au//cancer-research-the-importance-

23.01.2022 Did you know that the APGI studies other tumour types realted to the Pancreas? The ampulla of vater is the enlargement of the ducts from the liver and pancreas at the point where they enter the small intestine. These tumours are often dangerous to patients and hard to diagnose. We recently discovered a new gene involved in this disease in collaboration with our colleagues at Baylor College of Medicine's Human Genome Sequence Center in the USA. If you have been affected by ampullary cancer you might like to read the publication link.

22.01.2022 A step closer to early detection in Pancreatic Cancer. A study by our friends at Johns Hopkins Medicine and the The Sol Goldman Pancreatic Cancer Research Center at Johns Hopkins show us that cancer can be detected in the blood of patients by searching for genetic faults and protein biomarkers. Next step is to investigate further how they can use these methods to test people who have not yet developed cancer. Read the Pancreatic Cancer Action Network highlight here: https://www.pancan.org//can-a-blood-test-lead-to-early-de/

21.01.2022 Australia is involved in raising awareness for pancreatic cancer through the World Pancreatic Cancer Coalition. Working together and demanding better for our patients. Follow the link to see how you can get involved in World Pancreatic Cancer Day this year.

21.01.2022 APGI medcial oncologist Dr Lorraine Chantrill is one special lady. She has made a promise to those she has treated with pancreas cancer who died without answers that we will not give up. And she is keeping that promise. In August this year, she is walking 83 kms on the Larapinta Gutsy Challenge with the GI Cancer Institute, to raise funds for a pancreatic cancer clinical trial that will help give us answers to guide treatment choices in the future. You can read her story bel...ow: https://gicancerlarapinta2017.gofundraise.com.au//Lorraine See more

20.01.2022 Clinician spotlight- Welcome to Facebook Professor Jas Samra! "I do whats right for patients, I look after them"- words that explain why Prof. Samra is a world leading Pancreatic surgeon, and the trusted clinician to hundreds of our research patients. A lovely insight to the dedication, passion and humbleness of a Pancreatic Cancer clinician.

20.01.2022 Congratulations to Jess on her new appointment as a member of the World Pancreatic Cancer Day Committee - an outstanding achievement. Congratulations also to Angela Dixon on her appointment to the World Pancreatic Cancer Coalition Steering Committee. We're so very proud of you both.

18.01.2022 3 Pancreatic Cancer clinician researchers named in 2018 Queens Birthday Honours List. APGI Chairman and Pathologist Prof Anthony Gill, Sydney Cancer Geneticist Dr Kathy Tucker and West Australian Surgeon Prof David Fletcher. Such dedicated clinicians and instrumental to the work of the APGI. Very proud day for us!

18.01.2022 Clinician spotlight- Welcome to Facebook Professor Jas Samra! "I do what's right for patients, I look after them"- words that explain why Prof. Samra is a world leading Pancreatic surgeon, and the trusted clinician to hundreds of our research patients. A lovely insight to the dedication, passion and humbleness of a Pancreatic Cancer clinician.

18.01.2022 Searching for clinical trial information in Pancreatic Cancer? Not sure where to go for the most accurate and reliable information? The process can be overwhelming so weve created a one-stop-shop list of the most reliable sources online to search for available trials in Pancreatic Cancer.

17.01.2022 We know physical activity is good for us, but what if being physically active reduced the chance of cancer coming back? Australian researchers are leading a push to have exercise prescribed alongside surgery and chemotherapy, as scientific evidence shows that exercise counteracts the negative effects of cancer treatment. Was exercise recommended to you or a loved one during cancer treatment? Tell us about your experience below. Thanks to Clinical Oncological Society of Australia, The Medical Journal of Australia and Australian Catholic University (ACU).

17.01.2022 Today on World Pancreatic Cancer Day we are highlighting how far we've come in our understanding of this disease. We showcase research progress that is increasing survival rates and enabling more precise treatments for individual patients. We have a much brighter future to look forward to.

17.01.2022 Inherited pancreatic cancer is rare, estimated to occur 1 in every 10 cases (i.e. 10%). It is also very complex, as it can be associated with other inherited cancer syndromes or based on family history alone, which can make defining risks difficult. The APGI has contributed to a recent review article, outlining the different types of inherited pancreatic cancer as well as other challenging areas including genetic testing and early detection. The APGI continues to research this very important group of pancreatic cancer patients via its familial registry (http://www.pancreaticcancer.net.au/afpacc) http://cancerforum.org.au//ma/inherited-pancreatic-cancer/

17.01.2022 Today is World Pancreatic Cancer Day! Dont forget to post your purple pics and help raise awareness for pancreatic cancer. The APGI was honoured to attend the #PurpleOurWorld breakfast function - what a great way to kick off this very important day. #InItTogether www.pancreaticcancer.net.au/2016-world-pancreatic-cancer-d/

17.01.2022 APGI once again brings together the expertise of scientists and clinicians around the country to map the genetic underpinnings of the "other" pancreatic cancer- Pancreatic Neuroendocrine Tumours. Published in Nature today.

16.01.2022 In ground breaking research we showed that Pancreatic Cancer can be separated into at least 4 subtypes- but what does this mean for patients? We now have a deeper understanding of pancreatic cancer genetics than ever before, putting us one step ahead of the cancer instead of behind. History tells us this is how we improve survival. A must read for all as a glimpse of why the future offers so much promise for pancreatic cancer. Beautifully written by APGI Science Communicator Brigid O'Gorman.

15.01.2022 Did you know we are running Australias first Pancreatic Cancer Research Screening Program? Through the program we are monitoring over 100 Australians deemed high risk of pancreatic cancer through strong family history. You can find out more about our screening program here: http://www.pancreaticcancer.net.au/researc/screening-trial/

15.01.2022 Carmel Pickup has been a participant in our familial pancreatic cancer research for nearly 6 years. Here she speaks so eloquently and honestly about her personal experiences with this disease. Thank you Carmel for your continued support and participation in the research!

15.01.2022 Doctors unveil new pancreatic cancer treatment guidelines to improve survival rates.

15.01.2022 Thank you to all who braved the weather and attended our 6th Annual Clinical and Scientific Symposium over the weekend. It was such a great turnout and was wonderful to connect with our dedicated APGI community, including participants, family members, researchers and clinical collaborators. The presentations were varied and so informative - stay tuned as these will soon be available on our website.

14.01.2022 Today on World Pancreatic Cancer Day we are highlighting how far weve come in our understanding of this disease. We showcase research progress that is increasing survival rates and enabling more precise treatments for individual patients. We have a much brighter future to look forward to.

13.01.2022 Pancreatic Cancer has made headlines at the worlds largest cancer meeting this week. Two trials were presented which showed a substantial boost in survival rates by refining chemotherapy treatment options.

09.01.2022 and a follow up press release in case you missed it this morning... http://www.garvan.org.au/genomics-yields-a-new-understandin

09.01.2022 This week is Neglected Cancers Week- highlighting those less common, but lethal cancers, like Pancreatic Cancer, where survival rates remain in single digits. We want to take this week to reflect on the groundbreaking medical research underway in our own backyard which will change the trajectory of this disease. Thanks to the Garvan Institute of Medical Research for marking this week and highlighting this important group of cancers.

09.01.2022 Did you know we are running Australia's first Pancreatic Cancer Research Screening Program? Through the program we are monitoring over 100 Australians deemed high risk of pancreatic cancer through strong family history. You can find out more about our screening program here: http://www.pancreaticcancer.net.au/researc/screening-trial/

08.01.2022 Our latest collaborative study with our colleagues in the US shows unique qualities of people who survived pancreatic cancer more than 5 years after surgery. These unique qualities could be key to more effective ways to use immunotherapy to treat pancreatic cancer. Another step forward in our understanding of the differences in patients, looking forward to more treatment options and ultimately better outcomes for pancreatic cancer. Bravo.

07.01.2022 Latest statistics by the AIHW reports Pancreatic Cancer 5-year survival rates at an all time high of just over 9%! We look back in history and detail why investment in research is critical to increased survival rates.

06.01.2022 The APGI is the proud recipient of the 2018 Premier's Award for Outstanding Cancer Research Wildfire Award- that recognizes a piece of research that has had global impact and is considered a landmark study in its field. The prize was awarded for our 2015 Publication "Whole genomes redefine the mutational landscape of pancreatic cancer". This was the work of hundreds of talented researchers and clinicians, particularly our colleagues from QIMR Berghofer Medical Research Institute, The University of Melbourne and the University of Glasgow. An incredible team of dedicated researchers. http://www.pancreaticcancer.net.au/apgi-wins-nsw-premiers-/

06.01.2022 Are you a patient, family member of a patient, have a family history or just interested in Pancreatic Cancer research? Come along to our Annual Research Meeting on Sat June 18th to hear all about the latest in our world-class Pancreatic Cancer Research. Highlights include updates on clinical trials and familial pancreatic cancer screening. Patient and community session kicks off at 10am- attendance is strictly limited and you must register via the link below. We hope to see you all there! http://www.pancreaticcancer.net.au//2014-apgi/registration

06.01.2022 Last week we published our latest research on Pancreatic Neuroendocrine Tumours, a rare but unpredictable form of Pancreatic Cancer. Dont know much about this type of tumour or where it comes from? Read below to find out more about the "dual"role of the pancreas.

06.01.2022 Did you miss our annual symposium in June? If so you can catch up on the presentations at the link below.

05.01.2022 If youre a researcher youve no doubt experienced the frustration of the red tape involved in sharing materials with collaborators. Some days it seems like we're drowning in paperwork. In this recent publication we explore how complicated contracts can delay the sharing of material and actually slow the research down all together. We also showcase ways it can be done efficiently, and to benefit all. A collaboration with our colleagues at the University of Tasmania Center for Law and Genetics. http://www.pancreaticcancer.net.au/cutting-through-the-red/

05.01.2022 Its your last chance to register for our Annual Symposium on June 18. Come along for an update on the ground breaking research you have supported over the years. A great chance to mingle with our researchers, other patients and families. Register at the below link.

05.01.2022 Pancreatic cancer symptoms may be so vague they are often overlooked as "normal". When we piece together the warning signs of pancreatic cancer as a group of symptoms, we can help diagnose it earlier. The Cancer Council NSW has put together real life stories of symptoms on this informative video.

04.01.2022 If you’re a researcher you’ve no doubt experienced the frustration of the red tape involved in sharing materials with collaborators. Some days it seems like we're drowning in paperwork. In this recent publication we explore how complicated contracts can delay the sharing of material and actually slow the research down all together. We also showcase ways it can be done efficiently, and to benefit all. A collaboration with our colleagues at the University of Tasmania Center for Law and Genetics. http://www.pancreaticcancer.net.au/cutting-through-the-red/

04.01.2022 Research has shown that where you have your pancreatic surgery performed matters. Hospitals that perform >6 pancreas surgeries per year in NSW are associated with lower surgical complications and better longer-term survival rates. Lets work towards ensuring that all patients are treated in higher-volume hospitals, by the most experienced and specialised teams of health professionals. http://www.cancerinstitute.org.au//optimising-surgical-care

04.01.2022 Missed the recent Pancreatic Cancer public seminar at the Garvan Institute of Medical Research? APGI Project Manager Amber Johns presents how we now have more knowledge than ever, and why this will change the way we diagnose and treat Pancreatic Cancer in the future. You can access the presentation by the link below.

03.01.2022 The APGI is the proud recipient of the 2018 Premiers Award for Outstanding Cancer Research Wildfire Award- that recognizes a piece of research that has had global impact and is considered a landmark study in its field. The prize was awarded for our 2015 Publication "Whole genomes redefine the mutational landscape of pancreatic cancer". This was the work of hundreds of talented researchers and clinicians, particularly our colleagues from QIMR Berghofer Medical Research Institute, The University of Melbourne and the University of Glasgow. An incredible team of dedicated researchers. http://www.pancreaticcancer.net.au/apgi-wins-nsw-premiers-/

03.01.2022 The APGI lead IMPaCT Clinical which finished last year showed the cancer community what it would take to deliver personalized medicine in Australia. We are now going one step further and looking at what has happened to all our trial patients in order to learn more about how we can best treat patients with metastatic disease. You can read the latest updates from the IMPaCT below.

01.01.2022 International news forum the The Huffington Post highlighting the recent exciting work by the APGI and why it holds so much promise for the future.