Archie's Embrace in Melbourne, Victoria, Australia | Non-profit organisation

Archie's Embrace

Locality: Melbourne, Victoria, Australia

Phone: +61 400 744 771

Address: 256 Upper Heidelberg Rd, East Ivanhoe, 3079 3079 Melbourne, VIC, Australia

Website: http://www.archiesembrace.com

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25.01.2022 Little Rome has ECHS1 deficiency and is in the UK. Mito Awareness week 13-19 September 2020

24.01.2022 A new member to the ECHS1 group, and the first from the Czech Republic. Read his story here

23.01.2022 Mito Awareness week 13-19 September

22.01.2022 On September first, sweet little baby Bonsell, celebrated his first birthday. This gorgeous little boy, has lived in hospital his whole life. An ECHS1 diagnosis is not the hopes and dreams we have for our children. However, they are so beautiful and special. Please help us, to help them gofundme.com/1xas53wl5c

17.01.2022 Little Archie is turning 5 next week, and is fundraising for a cure for ECHS1 for his birthday

15.01.2022 Gene therapy is a miracle!! Hoping for amazing results just like Conners!! This is a quick read and explains how gene therapy works. ECHS1 is progressive, fatal, and most child die from ECHS1 very young!! #cureechs1d #genetherapy

14.01.2022 Beautiful Ben, mito/ECHS1 warrior from America

13.01.2022 Today, little Archie turned 5!! And he wants nothing more on his birthday, than a cure for himself and his friends around the globe with ECHS1. Thanks so much to those that have donated so far!!

11.01.2022 This is the most detailed picture of the inner cellular life ever taken. There are more than 100 trillion cells in the human body. Source: Harvard University If the mitochondria (big purple one on the left) is not working properly all the other cells and multiple organs, functions are affected. Mitochondrial diseases have an incidence of 1:4000.

10.01.2022 So far all parents who receive the diagnosis of ECHS1 deficiency, are told there is no treatment and there is no cure! Together with UT Southwestern, we are changing this

08.01.2022 This week is Mito awareness week!! Next month would have been our second Gala fundraising event, however, due to Covid restrictions, our event was cancelled. Times are tough and most fundraising is non-existent. We understand if you can’t donate at this time, but would be grateful for a share gofundme.com/1xas53wl5c

02.01.2022 As we head into September and get closer Mito awareness week, cure-echs1.com is sharing the stories of the ECHS1 children