Arthritis ACT in Canberra, Australian Capital Territory | Community organisation

Arthritis ACT

Locality: Canberra, Australian Capital Territory

Phone: +61 1800 011 041

Address: Building 18, 170 Haydon Drive, Bruce 2617 Canberra, ACT, Australia

Website: http://www.arthritisact.org.au/

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• Business service
• Community organisation
• Non-governmental organisation (NGO)

25.01.2022 Thank you for your patience the phone lines are now fixed and you can call the office.

24.01.2022 The lovely storm that burst through this afternoon has unfortunately taken down our Phonelines. We appreciate your patience while we try to fix the problem. If you need to contact us urgently please do so via email at [email protected]... We apologise for the inconvenience.

23.01.2022 Yesterday we had our first monthly Nordic Bushwalk with a trek up Red Hill Reserve. A wonderful morning was had with a leisurely walk up to see the stunning view at the top. If you would like to join us next month on Thursday 23rd of July and have completed the Nordic training call the office to book in. The cost is $15 and it will be a Northside Bushwalk, location to come.

23.01.2022 After some quick and easy meals for those days when you just don't have the energy for cooking a healthy meal. Contact the office for bookings. This activity will be with our Occupational Therapy student Ellaine. **Please note the change in location, it is to be held at our office in Pearce.

23.01.2022 JIA SURVEY Arthritis ACT has put together a JIA Survey to collect information to help develop a case for State Based JIA Services. There is limited data available in Australia on: the impact of JIA on children and their families lack of services available... time it takes for diagnosis travel involved to get specialist care lack of community awareness impact on schooling for a child with JIA This data will support funding applications to get necessary JIA services throughout Australia by showing, the impact JIA has on the lives of these children and their families. To do this we need your help, please take the survey at https://www.surveymonkey.com/r/FBJTBDS See more

22.01.2022 Just a reminder that our Healthy Eating for Christmas talk is happening in 1 week. If you would like to join us via Zoom please RSVP to [email protected]

20.01.2022 An important story that went to air last Friday regarding the lack of services for kids with JIA.

19.01.2022 Are you interested??? Psoriatic Arthritis Support Group We have had a bit of interest in forming a support group for people living with Psoriatic Arthritis in the ACT region. If you would be interested in joining an ACT based support network please email us at [email protected] and let us know if you would be interested in meeting face to face, via zoom, or setting up an ACT region facebook group. ... Chronic Pain of any origin support group We have similarly had a bit of interest in forming a support group for people living with chronic pain conditions - not disease specific but rather as a group of people just all 'living the same sort of dream'. Again, register your interest at [email protected] and let us know if you would be interested in meeting face to face, via zoom or in another way.

19.01.2022 I have just walked into the office and the phones are back up and running. Please be patient while we catch up on messages. Thanks.

18.01.2022 Do you have allergies?

18.01.2022 This closes tomorrow so if you want to get your say in please follow the link for the survey.

15.01.2022 Do you want to know more about Medicinal Cannabis in Australia...how it works? current evidence of use? Musculoskeletal Australia is having an online talk with Dr Richard De Natale and Professor Iain McGregor. Follow the link below to register: https://www.msk.org.au/events/mc-webinar

13.01.2022 You may have heard about changes to the way the NDIS will be conducting assessments in the future. If you’d like to ask the Minister for Disability about the proposed changes to the NDIS, the following provides a framework to do so. https://everyaustraliancounts.com.au/questions-for-ministe/

09.01.2022 National Pain Week Activities - https://mailchi.mp/08437c99bb/national-pain-week-activities

06.01.2022 Men’s Chat Group cancelled today. Join us next Thursday at 10am via zoom. Contact our Bruce office on 6251 2055... Or [email protected] for more information Or use the following link to join https://us02web.zoom.us/j/84980814657

05.01.2022 Telehealth availability From 20 July 2020, Telehealth services (via video-conferencing and telephone) will only be available from a patient’s usual GP (patient must have been active in the last 12 months), UNLESS the patient is experiencing homelessness, is aged less than 12 months, or is in a COVID-19 hotspot. This reversal of patient eligibility aims to ensure Telehealth is not exploited, and the highest quality care is provided to the community.

05.01.2022 A collaboration with Arthritis Australia has resulted in MyRA. If you have Rheumatoid Arthritis have a wonder through this new website.

04.01.2022 I am pleased to let you know that today, the ACT Liberal Party have made a commitment to work with the John James Foundation and MS Australia to build a wellness hub in Deakin which will include specialist therapeutic hydrotherapy facilities. Patricia Clarke, long term advocate for a purpose built hydrotherapy pool in Canberra’s south, and I, were invited to the launch of this commitment. We are pleased to finally see some movement on this development, and I would encourage... all members to encourage the other parties to match this commitment. Hydrotherapy is not something we just ‘want’ it is a desperately required piece of infrastructure that is required for the southside, and once we have certainty on this, we will commence strongly advocating for a similar pool to be provided on the northside or an existing hydrotherapy pool to become accessible to Canberrans at a low cost to improve access to hydrotherapy across our city. Kind regards Rebecca Davey CEO

04.01.2022 NPS and multiple other organisations together with consumers have recently developed tools and information sheets/ booklets for consumers living with Rheumatoid Arthritis, Psoriatic Arthritis (PSA) and Ankylosing Spondylitis (AS). Living guidelines (documents which are constantly being updated) for RA have also been developed to guide rheumatologists and consumers on treatments for RA, use of biologic and methotrexate medications, titrating these down to disease activity and helping consumers develop a greater understanding of RA and medications. This is the first project of its kind in Australia. Living guidelines are also in the process of development for PSA and AS.

04.01.2022 Hello members, Unfortunately we are having issues with our phoneline. If you need to contact us please email us on [email protected] that way we will be able to respond. We don't have an ETA on on when it will be fixed but we will update you when we are back online. Thanks for your understanding. Arthritis ACT Team

03.01.2022 https://www.abc.net.au//chronic-pain-sufferer-dia/12649416

03.01.2022 With Aussies spending more time at home this year, our lifestyles are changing in a way that can have a lasting impact on our bone health. This week (17 23 August) is Healthy Bones Action Week, and we’re supporting the initiative by calling on all Australians to integrate 3 simple steps to build and maintain strong and healthy bones - eating calcium-rich foods, like dairy; doing regular weight-bearing exercise; and enjoying safe levels of sunshine for Vitamin D. Learn more about Healthy Bones Action Week and the importance of bone health at www.dairy.com.au/healthybones #HealthyBonesActionWeek @AustralianDairy

02.01.2022 It's Exercise Right Week so you know what that means?!? It is the perfect time to get your move on. It doesn't matter how big or small that movement is every little bit helps. We offer a number of ways to exercise during Covid restrictions with our Nordic Walking Classes, our daily live Zoom exercise class or our recorded exercises on You Tube which you can do at any time. If you want to know how to exercise the best way for you give the office a call and book in to see one of our Exercise Physiologists.

01.01.2022 MSK Australia Parent's Info Online Event: 8th July 7pm "Dr Navid Adib about the medical support available for children living with arthritis across the age spectrum" has been postponed due to unforeseen IT issues.