Breathe Vibrant | Marketing agency

Breathe Vibrant

Phone: +61 419 388 343

Add/Update information

Reviews

Tags

• Marketing agency

25.01.2022 September 7th is World Duchenne Awareness Day The significance of the date is the 7th day of the 9th month, because there are 79 Exons in the dystrophin gene. ... Just one mistake in the largest gene in the body during the embryonic stage and the result is catastrophic. This mistake causes Duchenne. Any family, any time, any religion, anywhere on the planet. Duchenne does not discriminate. Share our post, change your profile picture to our red ballon and help us raise awareness of 1:3500 boys and the rare 1:50 million girls who are diagnosed with Duchenne. Help in our fight for cure head to https://www.saveoursons.org.au/donations/research-campaign/ #sosduchennefoundation #wdad2019 #wdad19 #wdad #duchenne #fightingforacure #collaborationiskey #duchennenetworkaustralia #australianduchenneregistry @ Australia

23.01.2022 Enjoyed a family getaway for a couple of nights in Scamander on the weekend, fantastic weather and scenery, we had a fabulous time

16.01.2022 Boys being builders, helping Dad to build our new kitchen

11.01.2022 We haven’t posted for a little while. Just a little update. Boys are doing great. We’ve increased our Physio program at home especially now as Covid-19 is present in our country. A few changes in our lives but boys are both handling it all like pros. Back to school this week, learning new computer programs as we are home schooling. Our teachers are all very supportive and we appreciate everything they do! Trial and error for this week or maybe two lol. Also we have our bi annual checkups with the a Royal Children’s Hospital next week and another learning curve tackling TeleHealth so we are definitely learning something new everyday. Hope everyone is doing well and staying safe. Also Happy Mothers Day to all our beautiful mums out there, we hope you have a fabulous day and get spoilt rotten

11.01.2022 Jack and Max’s fantastic Doctor at the Royal Children’s Hospital in Melbourne. Congratulations Monique.

08.01.2022 Our recent visit to the Royal Children’s with their specialist’s Monique and Ian and neuromuscular nurse Daniella

07.01.2022 For that special occasion or for your loved ones. Jack and Max’s postcards are available from Penguin District School or send us a message and we can post them out to you

07.01.2022 Jack and Max getting into their Physio session. They both take part at school twice a week

06.01.2022 Watch Sunrise, Channel 7, tomorrow morning, at 7.55am with Nathan Templeton bringing you one the most inspiring stories you’ll see this year. #mdasuperhero #superheroweek

04.01.2022 A lil competitive between these 2

02.01.2022 The Save Our Sons Duchenne Foundation Nurses Program was developed to ensure Best Practice clinical care for all with Duchenne and Becker muscular dystrophy a...nd facilitate bringing clinical trials to Australia and coordinate Australian-based clinical trials for persons with Duchenne and Becker muscular dystrophy. The Nurses have solid knowledge of each patient’s history, and also offer significant support to families navigating the complicated and difficult journey of caring for a child with Duchenne or Becker muscular dystrophy. They also provide specialist knowledge and experience with Duchenne and Becker muscular dystrophy to the multidisciplinary teams within hospitals and assist families to join the Australian Neuromuscular Disease Registry (ANMDR) to ensure critical and up-to-date data is available regarding the Duchenne and Becker population in Australia. The Royal Children’s Hospital in Melbourne have over 570 neuromuscular (NM) patients, with the number of patients with dystrophinopathies (Duchenne and Becker) being just over 200 of this total. The Save Our Sons Duchenne Foundation Board are very pleased to announce that they have allocated funding of $253,430 over three years towards a neuromuscular research nurse (Year 1 $92,924.37; Year 2 $84,476.70; Year 3 $76,029.03). The Royal Children’s Hospital Melbourne neuromuscular clinic operates weekly. Patients are seen in a multidisciplinary format. The primary focus of this multidisciplinary clinic is best practice clinical care. A secondary focus is ensuring all children have access to new treatments for their condition as soon as these treatments become available in clinical trials or as proved therapies. Many clinic staff have both clinical and research roles, and many children are enrolled in clinical trials. During clinic visits clinicians always try to discuss available options for children who might be suitable for clinical trials and other research studies. Roles part-funded through the Save Our Sons Duchenne Foundation in this neuromuscular clinic, in addition to the neuromuscular research nurse, include the neuromuscular clinical trials staff specialist neurologist and the clinic genetic counsellor. The Royal Children’s Hospital in Melbourne are incredibly grateful for the support provided by the Save Our Sons Duchenne Foundation towards the roles of the neuromuscular research nurse, the neuromuscular clinical trials staff specialist, and the clinic genetic counsellor. To read the full statement, please click on the link below: https://www.saveoursons.org.au/save-our-sons-duchenne-foun/