Cardiomyopathy Australia in Doncaster East, Victoria | Community organisation

Cardiomyopathy Australia

Locality: Doncaster East, Victoria

Phone: +61 1300 552 622

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• Non-profit organisation
• Charitable organisation
• Community organisation

25.01.2022 As of May 5th, Cardiac MRIs that are privately done (outside of hospitals) for ARVC (Arrhythmogenic right ventricular cardiomyopathy) are eligible for a Medicare rebate if they have ARVC written on the referral

25.01.2022 https://mymarathon2018.everydayhero.com//team-cardiomyopat If you want to be part of our team and conquer a 42km marathon this October, click here and join. Registration is now open. ... You dont have to run. You can walk, cycle, row a boat. And that 42kms can be spread over many days OR the month of October Last year we raised a couple thousand dollars as a team , we would love to do that again.

25.01.2022 Health Care Experiences of First-time Mothers who have Cardiac Disease Have you been diagnosed with cardiac disease before, during or in the first year after your first pregnancy? If so, we would love to speak with about what that experience was like for you. We are conducting this research because there is very little information or research about women with cardiac disease in pregnancy and it is important to know about women’s experiences so that the needs of pregnant wome...n and new mothers are met. The study is being conducted by the University Technology Sydney (UTS). It is being conducted as part of a larger funded study by the NSW Heart Foundation and it involves a phone conversation with our researcher about your experiences. The information is de-identified so your name and details are kept confidential and privacy is assured. If you would like to participate in the study or would like further information, please contact us by email: [email protected] mobile: 0414 977 687 email: [email protected]

25.01.2022 Just a reminder that Registration is closing September 3rd 2018 for the Sydney Event at RPA. Its Genetic Heart Disease Patient Information Day 2018. Its a day full of information and a few of our members from the private group are attending. ... If you want to register, please do so here. We hope to see some of you there. Make sure if you attend, you find us and say hello. http://www.heartregistry.org.au//genetic-heart-disease-pa/

24.01.2022 Time for a survey! Our South Australian Support Group are looking to host a walking group under the guidance of an Exercise Physiologist - Dr Adrian Elliot. This group will be for those who are long term or newly diagnosed, and at all levels of fitness or lack of! The first of these walks is planned for Glenelg foreshore - please let us know if this is something you would be of interest in before we start planning our first date!

24.01.2022 To keep the positivity up for Cardiomyopathy Week! Heres another members story http://www.cmaa.org.au/types-of-cardiomy//michelles-story/

24.01.2022 50 YEARS ANNIVERSARY ON THIS DAY DECEMBER 3rd 1967 REMEMBERING THIS DAY 50 YEARS AGO WHEN PROFESSOR CHRISTIAAN BARNARD PERFORMED THE FIRST EVER HUMAN TO HUMAN HEART TRANSPLANT IN CAPE TOWN, SOUTH AFRICA. Approximately 133,000 successful transplants have since been performed.

23.01.2022 Some very timely advice about ways to help reduce salt in your diet.

23.01.2022 Westmead Hospital would like your help to improve patients experience of waiting for clinic appointments Waiting for clinic appointments is often a frustrating and unavoidable part of accessing health care. This time could be better used as an opportunity to increase knowledge, satisfaction with care, and motivate patients to make behaviour change that improves their health. We have been in touch with doctors at Westmead Hospital who would like to show lifestyle-focused educa...tional videos to patients while they are waiting for clinic appointments. They need help from members of the CMAA to better understand which videos are the most engaging and which ones may motivate patients to change their lifestyle. They would like CMAA members to review short videos, and provide feedback on them. How to become a video reviewer: Click on this link: https://redcap.sydney.edu.au/surveys/?s=XCC4C9X4P7 Enter your email address, and follow the step-by-step instructions. Your feedback is appreciated! If you have any queries please contact Daniel McIntyre at Westmead Hospital, on 0431 682 939 or [email protected]

22.01.2022 Please join us in a huge congratulations to our President Mr Alistair Kerr, who received a Medal of the Order of Australia (OAM) in the honour list this past Australia Day. It was wonderful to see him recieve recognition of his commitment to the CMAA in this his 18th year as our President. Thank you for your unwavering service Alistair.

20.01.2022 A look back at another members story! You can find more stories on our website, but we will post more throughout the week. https://www.facebook.com/cardiomyopathyaustralia/posts/1670493346329059?__tn__=K-R

20.01.2022 This was an excellent show on the SBS Insight programme discussing the benefits of exercise for people who have chronic conditions. Well worth viewing.

19.01.2022 Wishing everyone a very Happy New Year. May the year ahead be full of hope and good health for all our members, friends and families.

17.01.2022 Thank you Prof Chris for such a clear and helpful explanation of such complex and important research.

14.01.2022 An important step when learning about cardiomyopathy. Thanks Heart Foundation.

14.01.2022 Wishing our FB friends a wonderful, happy and safe long weekend!

14.01.2022 There are some delicious, quick and healthy salad ideas below for the summer nights ahead.

13.01.2022 REGISTRATION NOW OPEN for our Patient Information Day! Want to find out more about Genetic Heart Disease? Or perhaps just meet others with the same condition. T...hen join our team on Saturday 8th September! Friends and family welcome! This year were teaming up with our friends at Cardiomyopathy Australia so the day will include an Annual General Meeting for their members. More details on our website. Happy Friday! Laura :) http://www.heartregistry.org.au//genetic-heart-disease-pa/ See more

12.01.2022 Changes to the CMAA Brochure. The Heart Foundations Helpline phone number is 13 11 12

12.01.2022 Our new study out today in the Journal of the American College of Cardiology is a game changer in improving diagnosis of genetic heart diseases. Our team used s...tate-of-the-art genome sequencing to increase the diagnostic rate in hypertrophic cardiomyopathy by 20%! This will ultimate improve the care of our patients and family. Well done to my team, especially lead author Richard Bagnall! Well done, Prof Chris https://twitter.com/channeltenne/status/1019127114455347200 See more

11.01.2022 If you have a chronic condition, you may be eligible for a Medicare rebate for allied services. Speak to your GP about a Chronic Disease Management Plan tailored for your specific situation. There are links provided and a downloadable Patient Info Sheet on the webpage below.

08.01.2022 R U OK? If you need to chat , private message the page and someone will reply. You can also call ... Lifeline 13 11 14 Beyond Blue 1300 224 636 Or have a look around on this link https://www.healthdirect.gov.au/mental-health-helplines

08.01.2022 Please come along and join us in Adelaide! We will be meeting in front of the grandstand at 10.30 am. Anyone wishing to set up a group in their local area can email or call their state contact. Please see the website for contact details in each state.

08.01.2022 This was my tribute to my heart donor. Mandy received the lungs from the same donor. I had lived with cardiomyopathy for 11 years before I had a heart transplant. A life affirming experience.

08.01.2022 A little bit about potassium, prompted by a members post. A good discussion topic, as too much, or too little, can impact heart function.

07.01.2022 Cardiomyopathy Week begins tomorrow. To begin Cardiomyopathy Week, here is Belindas story from last year. Belindas update has been added to the comments thank you for the inspiring update ! http://www.cmaa.org.au/types-of-cardiomyo//belindas-story/ ** you can view other members stories on our website **

04.01.2022 Cardiomyopathy Week has begun and we will continue to share some of our members stories with you all! The final day for registration for this event in Sydney this coming weekend! Its a free event. We hope to see you there! Hope to see you there

04.01.2022 HAPPY WORLD HEART DAY This year the global message is to know your heart and make a promise to make the changes necessary for maintaining a healthy heart.

03.01.2022 For those who would like to attend, please follow the link below to view the itinerary and register.

02.01.2022 Biggest ever study into DCM disease that killed George Michael gets under way in London.

01.01.2022 This is an awesome outlook on life! Jamie has Hypertrophic Cardiomyopathy which is a genetic condition. Thank you for sharing your story Jamie. It is very inspiring.

01.01.2022 If you missed out seeing my books at the AGM perhaps you might want to order a book directly from me ( the author) without waiting for delivery from the USA. I ...carry some books of following titles & only pay local postage fees. Books are Six Months to Live, The Eleventh Hour (sequel of Six Months to Live) & the latest book Transplant- Lifes Second Chance.. All are at the pre Christmas special price of $15 each. Email me at [email protected], Limited numbers available from my stock. See more

01.01.2022 Wishing all our Facebook friends and families, a very Happy and Healthy Christmas. May your Christmas be full of wonder and light Happiness, love and everything bright.... Thank you to everyone for your support.