Cystic Fibrosis SA in Adelaide, South Australia | Community organisation

Cystic Fibrosis SA

Locality: Adelaide, South Australia

Phone: +61 8 8221 5595

Address: 143-145 Sturt St #143 5000 Adelaide, SA, Australia

Website: http://www.cfsa.org.au

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• Medical and health
• Non-profit organisation
• Charitable organisation
• Community organisation

25.01.2022 CF Cost of Living Project wraps up on Friday. If you have not had a chance to complete the survey for the Cost of living project, please take 10 minutes this evening to do so. The Deloitte Impact Day is this Friday, this is the last project I will be involved in at CFSA so please complete the survey if your can, your responses really will make a difference. ... Here is the link: https://bit.ly/38RtpaV Thanks so much, Julia.

22.01.2022 The Women's and Children's have updated their visitor numbers, please read the post below for all the details.

22.01.2022 Global Study Reports Updated COVID-19 Outcomes in People with CF The Cystic Fibrosis Registry Global Harmonization Group, including Cystic Fibrosis Australia, published in the Journal of Cystic Fibrosis updated data on the impact of COVID-19 on people with cystic fibrosis. The data are part of an international consortium to better understand the CF experience and outcomes with the novel coronavirus. The manuscript reports on 181 people with cystic fibrosis from 19 countries ...diagnosed with COVID-19. Click here to read the full story https://bit.ly/36si8e3 Source: CFA

21.01.2022 Nothing feels better than giving a gift that really makes an impact. When you choose SOCK it 2 CF socks for a friend or loved one this Christmas, you’ll get to share the joy of making a real, lasting difference to the lives of people living with cystic fibrosis. Your kindness will bring joy this Christmas and hope that one day soon a cure for CF will be discovered.... Every person living with cystic fibrosis deserves to live a life unaffected. As well as bringing a smile this Christmas, your wonderful gift can provide program delivery, equipment and support services vital to the wellbeing of people living with cystic fibrosis. SHOP NOW https://www.sockit2cf.com.au/ #MerrySockmas #newcampaign #noordinarysock #gift #sockit2cf #goodcause #togetherwecan #cysticfibrosis #charity #socks #giveback #makeadifference #buysocks #Christmas #wecansockit2cf #powertocreatechange #redsocks

15.01.2022 Thank you so much to the people who have responded to the CF Cost of living survey, we'd love to hear from more people and there is still al little time to respond. Go to the survey here : https://bit.ly/38RtpaV and help us understand the real financial cost of living with CF.

15.01.2022 There's still time to donate before the end of the year. Your support will provide access to advanced medication, essential breathing equipment, education, and support services. Please will you make a tax-deductible donation this Christmas time to help families live unaffected by cystic fibrosis?... We can't do this without you. Click here to donate today https://bit.ly/CFSAXmas20

15.01.2022 As the world grapples with changes brought about by COVID-19, Tegan Russell is relieved that the world finally understands infection control. As mum to five-year-old twins both diagnosed with cystic fibrosis aged just five weeks old, Tegan knows that just catching a common cold could be disastrous for the girls. Now, Tegan no longer has to explain why she and her family always carry hand sanitiser and face masks, because everyone else is doing the same too. But while COVID...-19 has brought a level of understanding from those around the family, it's made living with cystic fibrosis harder in other areas. Isla was admitted to hospital during lockdown with a mass on her lung and infected mucus, COVID-19 meant that physical support from friends and extended family was limited. To find out how your support can help the Russell family and thousands just like them live lives unaffected by cystic fibrosis, click below to read their story and donate today. https://www.cfsa.org.au/xmas-appeal-20/

14.01.2022 The March 2021 PBAC Agenda is now available and Trikafta (12+) is listed. https://www.pbs.gov.au//pba/agenda/march-2021-pbac-meeting Your comments and supp...ort are needed whether you are a patient, carer, member of the public, health professional or member of a consumer interest group. The Consumer Comments Submission form can be found here and the portal closes on 27 January 2021, earlier than first published. https://www1.health.gov.au//Co/PBAC_online_submission_form Go to CFA’s website for submission materials and key messages. https://www.cysticfibrosis.org.au/ad/trikafta-advocacy-plan See more

14.01.2022 Trikafta will be considered by the PBAC in March; let’s hope Australia says Yes To Trikafta

11.01.2022 When you give a gift that has an impact it makes you feel like magic When you choose socks for a friend or loved one this Christmas, you’ll get to share the joy of making a real, lasting difference to the lives of people living with cystic fibrosis. Your kindness will not only bring joy, but also hope that one day CF will stand for cure found. ... Every person living with cystic fibrosis deserves to live a life unaffected. As well as bringing a smile this Christmas, your wonderful gift can provide program delivery, equipment and support services vital to the wellbeing of people living with cystic fibrosis. SOCK it 2 CF by going to www.sockit2cf.com.au #MerrySockmas #newcampaign #noordinarysock #gift #sockit2cf #goodcause #togetherwecan #cysticfibrosis #cysticfibrosissa #charity #socks #giveback #makeadifference #buysocks #Christmas #wecansockit2cf #sockit2cf #powertocreatechange #redsocks

10.01.2022 SA LUNG TRANSPLANT UNIT COVID 19 RESPONSE: 18th November 2020 A new COVID 19 cluster has been detected in South Australia, therefore we are touching base with our lung transplant community to ensure you stay as safe and healthy as possible. Please follow all SA Health guidelines and instructions diligently.... Please check SA Health websites and updates for latest news, guidelines, restrictions and advice. https://www.covid-19.sa.gov.au/ SA Health COVID advice line (9-5pm): 1800 253 787 We are minimising face to face appointments. If you have an upcoming clinic appointment, your case will be reviewed and you will be contacted by phone during the week for a telehealth appointment. You will only attend a face to face appointment if absolutely necessary and if the risk of not attending is deemed greater than the risk of attending. If it is determined that you need to attend a face to face appointment, you will be notified.

06.01.2022 #comingsoon #raisingawarenessforcf #cysticfibrosis #redsockcf #cysticfibrosissa

03.01.2022 This week is the last chance to donate before Christmas Your gift this season will provide essential breathing equipment, access to advanced medication and support services for those living with cystic fibrosis. While hospital visitors are still restricted in South Australia due to COVID-19, the only way to help families stay together this Christmas is to avoid hospital completely. Please will you help families like the Russells avoid dangerous infection so they can stay ho...me together this Christmas? You can read more of their story and donate here https://bit.ly/CFSAXmas20

02.01.2022 Be a star this year! Thank you to all the stars out there who purchased their limited edition #SOCKit2CF socks in support of people living with cystic fibrosis this Christmas. It’s not too late to help us SOCK it 2 CF in 2020!! When you buy a pair of SOCK it 2 CF socks you make life a little brighter for thousands of families across Australia who rely on the generosity of their communities and beyond to help find a cure for this lifelong, degenerative condition.... Be a star this year and show your support, please visit www.sockit2cf.com.au