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Eczema Support Australia

Phone: +61 1300 329 362

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23.01.2022 We are in the NEWS NOW! "Fury as ‘life-changing’ eczema drug fails to make PBS... A life-changing drug was supposed to be approved for the Pharmaceutical Benefits Scheme months ago, but eczema sufferers are still forking out a whopping $1600 per month to purchase the medication." Eczema Support Australia continues to be at the forefront of calling for Dupixent to be listed on the PBS for Australians with severe eczema with our #SOS #SaveUsFromEczema campaign. Check out the news here; https://bit.ly/3mO0VCE more to follow tomorrow.

23.01.2022 FLASHBACK - Our history in print: We have matured from our infancy stages as 'Hands to Hold' when this article was published four years ago. Now, over 5 years old and still growing, Eczema Support Australia continues to build up support for our eczema community. Thank you to everyone involved from the beginnning and now.

22.01.2022 This is for our eczema community too. Yes; YOU are a carer if you are caring for someone with chronic eczema.

21.01.2022 Can you contribute to our benevolent vision? Board position: We are seeking the addition of a Non-Executive Director to support our eczema community. Although we are based on the Gold Coast, with the new normal of virtual meetings, we are open to applications from across Australia. Please feel free to share this with your network.

18.01.2022 An excellent article on eczema, allergies and what to avoid. "The problem is 'natural' skincare products, some of which are marketed for sensitive skin or even eczema, often contain food products such as goat's milk, cow's milk, almond, oat and coconut. And allergy specialists say these are best avoided, especially for kids with eczema." https://www.abc.net.au//avoid-skincare-with-food/100040570 #EczemaSupportAustralia

17.01.2022 Bringing eczema to the attention of leaders and decision makers. We are grateful to be part of this speaker line up for Monday's BioPharmaDispatch conference. https://nvite.com/dailydispatch/biopharma #eczemasupportaustralia

16.01.2022 TODAY: Eczema explained to our health sector leaders: Patient participation, partnership, understanding the system these are some of the big issues discussed at today’s BioPharmaDispatch conference. Eczema was explained. Access to breakthrough medications was discussed at length. The key stakeholders are now more aware. It is now up to us ALL to reach out to each other, speak up and get involved. We will work towards meaningful input and partnerships, so our eczema community does not get left behind. #SOS #SaveUsFromEczema #EczemaSupportAustralia

13.01.2022 Atopic Dermatitis Research Study: 27 weeks If you suffer from moderate to severe Eczema and have experienced an inadequate response to topical medications, you... may qualify to participate in our Atopic Dermatitis (AD) research study. Participants must be adults and AD must be present on 10% or more of the body surface area at the time of entry into the trial. Eligible participants will have access to regular visits with the experienced research team, involving up to 12 visits over a period of 27 weeks (including pre-screening and follow up). There is no cost to participate and patients will be reimbursed for study related expenses. For more information contact our Trials Manager, Sarah, at [email protected] or visit: https://www.skinhealthinstitute.org.au/page//now-recruiting. This study has been approved by the Bellberry Human Research Ethics Committee.

13.01.2022 We celebrate with Asthma Australia today as they now have more treatment options on the PBS from 1st April - including Dupixent (which was listed on the PBS 1st March for severe atopic eczema). Up to 80% of children with eczema will develop asthma later in childhood. Therefore, this announcement means alot to our eczema community too.

12.01.2022 "Around 250 people will participate on Monday's BioPharmaDispatch conference that will be opened by health minister Greg Hunt MP."...... "There will also be a specific focus on patients with speakers Rafaella Kathryn Crosby from Migraine Australia and Melanie Funk from Eczema Support Australia" #eczemasupportaustralia

12.01.2022 Minister Greg Hunt MP was today quoted as saying "Remain positive" ... "Next month and the following month and the following month there will always be additional new medicines". So we remain positive for lifechanging medications for chronic and severe eczema. Eczema Support Australia has also been in recent communication with the Health Department and we will update you as soon as we can. #SOS #SaveUsFromEczema

12.01.2022 GIVEAWAY! Thanks to more member donations, we have many more new Tubifast garments to give out to those in need. Garment size is for 2-5 years. We hope to have enough to give out a set (full vest and leggings) to each request - but first in, first served. Enter via the contents link and comment in the post so we can ensure we receive your request. Tubifast garments are specifically designed to make eczema management, using Wet Wrapping, easier. 'Contest' will close when we run out of giveaways.

11.01.2022 ## URGENT REQUEST TO FOR THE PBS listing of DUPIXENT## Eczema Support Australia has issued an Open Letter calling on all those responsible for medicines access to list Dupixent on the PBS as a matter of urgency. The Open Letter has been sent to the government advisory commitee that meets today, as well as the Federal Health Minister Greg Hunt MP and Department of Health officials. To read this letter you can go to; https://www.eczemasupport.org.au/our-open-letter-to-pba...c-d/ The committee's decision is not normally made public until towards mid December. We will keep you posted on developments. #SOS #SaveUsFromEczema #EczemaSupportAustralia See more

10.01.2022 BREAKING NEWS... Eczema Support Australia's call for the listing of Dupixent is on the news tonight. Thank you so much Scott for being our voice. #EczemaSupportAustralia #SOS #SaveUsFromEczema

09.01.2022 Melanie and Niamh sat down for a chat about what Eczema Support Australia are up to and how Niamh hopes to help out. #teenagerslivingwitheczema #eczema #eczemasupportaustralia

08.01.2022 If you missed the TV event last night, here it is on 9Now. When watching, please remember that this good news story was made possible by our eczema community, not just one person. It is thanks to many individuals that came together to share our stories and others that helped along the way. THANK YOU!

06.01.2022 I think the message is clear here. Let's get Dupixent listed on our PBS ASAP. So many of our friends overseas have access to this lifechanging medication. It is time for our long suffering eczema community to get some relief too. #SaveUsFromEczema

04.01.2022 Heads up!! Saturday evening we have OUR eczema story on A Current Affair.

03.01.2022 Our eczema community hopes this time is special: regardless of your shell.

02.01.2022 NEWS: Quirky Bowen video goes viral - Pharma in Focus article: Shadow Health Minister Chris Bowen has filmed a quirky video about Australia''s failure to subsidise Sanofi''s eczema drug Dupixent through the PBS, posting it on Facebook and receiving almost 10,000 views in just 24 hours. ....... Posted on the Eczema Support Australia Facebook page, the video received rave reviews.... "Chris Bowen''s video message beautifully articulated the frustration that many of our members are feeling right now," Eczema Support Australia managing director Melanie Funk said. "We also know that Minister Greg Hunt is acutely aware of our plight and we are confident that Dupixent will be listed in the very near future - and what that means is that there will be no more delays anywhere." For the full article: http://ow.ly/fs2N50Cvbn7 Further to this article, we would like to state that we are not insensitive to the fact that these decisions are complicated for our health care system to make. It takes co-operation from the pharmaceutical company as well as the Federal Government. We just hope that all involved sort this out ASAP so that Australians with severe eczema can experience appropriate qualify of life.