Fibromyalgia Support, South Australia. | Charitable organisation
Fibromyalgia Support, South Australia.
Reviews
to load big map
22.01.2022 Sorry about the advertisements, hope you are all well with the changes in weather. In the office we have been madly working on funding grants towards extending the clinic network and Fibromyalgia training for primary care providers. Keep safe
21.01.2022 Keep safe and cool - keep ringing each other - we need each other - we are still advertsing for someone who enjoys people and customer service to be on our virtual help desk, however if you need a call please message and let us know
13.01.2022 This has come out at such an important time the new Natalie Boulton/Wellcome Trust video on pacing and activity management. https://www.dialogues-mecfs.co.uk/...films/pacing/ It's a free-to-watch movie, with a gentle sound track and a pause button that give viewers plenty of time to read the slides. It contains interviews with the people who really know what it's all about two patients at either end of the level of severity. There's also expert commentary from MEA medical adviser Dr Charles Shepherd, public health specialist Dr Luis Nacul, Professors Mark VanNess and Todd Davenport from the Workwell Foundation in the United States and Dr Christopher Snell, who used to chair the US Federal Government's Advisory Committee on the illness. The video gives real food for thought in language we can all understand. It's aimed at anybody who wants to go down the pacing and activity management route or who needs a pacing refresher. And there's a neat little section on what cardiopulmonary exercise testing demonstrates and how people can make use of activity monitoring devices if they find this approach helpful. Dr Shepherd recommends viewing of the 16-minute video and says: "It's arrived at such an important time - coinciding with the launch of the draft NICE guideline and the preparation of the Long COVID guideline "I hope the latter group take note - because this information will also be of great help to people with Long COVID." Our verdict: watch it, and probably more than once, so you can fix the knowledge in your brain. https://www.dialogues-mecfs.co.uk/films/pacing/ #pacing #activitymanagement #cardiopulmonarytesting #anaerobicthreshold #NICEguideline #mecfs #cfsme #MyalgicE #pwme #MyalgicEncephalomyelitis
10.01.2022 FULLY BOOKED FROM THE COMFORT OF YOUR HOME - REMINDER: 2 more places in tommorrows last Fibromyalgia Zoom Catchup for 2020 - register your interest via [email protected]
09.01.2022 WANTED; Do know a graduate who has just finished their studies and wants to build their CV? A 'Creative Writer' / Journalist to help us update our Clinic Project Descriptions /Grant Writing - short term in next 4 weeks
06.01.2022 Hoping you are okay and keeping safe in isolation and with the heat
06.01.2022 Happy photo for the beginning of a busy week - for me talking to myself is survival , particularly when my brain fog is bad or I get overwhelmed in shopping centres and my brain is about to freeze Have a great week
03.01.2022 Thank you Amanda Emery for helping our local charity Bridges & Pathways raise funds to work with South Australian health providers to improve daily care and research
03.01.2022 Hair pain and hair loss how do you explain that, and what can you do about it. http://chronicfatigue.about.com//Hair-Loss-And-Other-Hair- https://www.powerofpositivity.com/magnesium-chloride-benef/
01.01.2022 QUESTION I would like to ask if there are members doing haemodyalisis, do they have issues with the needling. I have issues dealing with the needling mainly due to the initial pain, I do use a product called numit which does help a little but would be keen to find out if there is any other methods of coping with it.
