HSP Research Foundation in Warrimoo, New South Wales | Non-profit organisation

HSP Research Foundation

Locality: Warrimoo, New South Wales

Address: po box 4064 2774 Warrimoo, NSW, Australia

Website: http://www.hspersunite.org.au/

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• Medical and health
• Non-profit organisation

25.01.2022 HSP Research Foundation - Autumn Edition, March 2021 - *|https://hspersunite.org.au/|*

07.01.2022 Rare Disease Day 2021 is coming up on 28 February. We have changed our Cover Photo to promote the day. Please feel free to share this post and with your friends and colleagues to let them know that HSP is a rare disease and for awareness of the designated day each year, the last day in February.

06.01.2022 Rare Disease Day in Brisbane - the Victoria Bridge lit up in the rare disease colours from the W Hotel.

02.01.2022 Members in Australia would be aware of the review underway for NDIS. Link to our latest update is attached. https://hspersunite.org.au/ndis-update-march-2021/ We are aware of a number of bodies that have made submissions and the Foundation has provided feedback as well. The following link is to the latest newsletter issued by People with Disability Association (PWDA).... https://mailchi.mp/pwd/pwda-news-y926d7lv67-3774208