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25.01.2022 So tomorrow is a big day for jacko. We are getting fitted for a second skin. This is for his right arm/hand, it will go on like a sleeve wrapping around his should and going down attaching to his arm and hand. This will allow for his muscle tone to build the right way and will reenforce his hand to stay the right way. Will update with photo tomorrow.
25.01.2022 Well here it is. A big thanks to Tim & Carmela Littlejohn and Georgiana Poulter & Lindsay Rickard for help and to Mike Crawley for auction items and Brittaney Nystrom and David Read for setting up go fund page and Facebook sites as well as everyone that donated to the cause ... We are thankful and humbled for the help and love we received from everyone. ... And a special thank you comes from Jackson, he loves it so much. He loves riding up high and looking at everything around. Once again a massive thank you. Xxxooo
21.01.2022 Jacko update. Jacko had gone home today. The meeting went well with Jacko specialist, alot of our answers where answered and we all felt at ease with the decision to have him at home.... We have a plan moving forward with his specialist and his shunt questions were all answered to the best the doctors could say. He hasn't had a working shunt for 7 years. At this current time Jackson is balancing out his cerabral fluid himself so he doesn't need a shunt, however that is not to say that in 3, or 6 months or even 6 years this may change. Jacko brain has started to heal it self and his ventricals have not grown since 2012. They don't know what is the cause of the eposiods but can clearly rule out infection and fits. The shunt will stay in his brain, as there is no danger or any chance of infection same as tubing that is in his belly. To remove them would open the risk, very high, of infection. Jackson will have a follow up nuro appt in 3 months and 6 months time. Unless things change, and he fall very ill very fast, we don't need to do anything expect let him do Jacko. He was back to normal today. And smiling for the first time in a long time. We are happy with the outcome. We would like to thank everyone for their well wishes over the past 17days of jackos hospitalisation. And a big thank you to aunty Georgiana Poulter for your support today at the meeting.
20.01.2022 Jacko can now fit in his HILOW CHAIR. So excited to get in it.
20.01.2022 TO ALL MEMBERS OF THE GRIDIRON/AMERICAN FOOTBALL COMMUNITY! Help a young member of our larger family! Very soon we'll have an awesome one of a kind item up here for people to bid on all the proceeds of which will go towards helping Jackson's family get the wheelchair accessible vehicle they desperately need for him. The German league start their playoffs and we'll have something really special from the Dresden Monarchs (featuring a bunch of Aussies on and off the field) for you to bid on! Keep watching this page!
16.01.2022 Jackson is walking more and more. We are so proud. Rosco Conti Jackilyn Conti
15.01.2022 Jacko update. Jackson had a bad night last night, he couldn't sleep. I've been up this afternoon to help with bathing and tea and getting ready for sleep. Jacko had some laughs to him, which h is a nice change. He is still spiking temps, his eyes are still doing strange things and he is still having moments of tiredness and episodes. Still no answers, hopefully tomorrow will give some clarity but the doctors still have no idea what is happening.
14.01.2022 Jacko is a lucky boy to have reached double figures. And we are wanting to share all his success and equip updates with those that have supported Jacko not only that but to show the world, that even with limitations and different levels of disabilities, if you work hard you can do anything. Jacko was born in 2005, he has many disabilities, his main disability is server Cerabral Paulsey. Jacko has been through so many ups and downs. Many operations to help his body grow an mo...ve how it should. Jackson is a lucky boy who over come his biggest hurdle of turning double figure. Jacko is achieving goals that many specialists said he never would ever be able to an he is proving to all his specialist that he can do things they said he never could. Jacko has 5 siblings, and has recently moved into a shared residential living house, that provided him with as much independence and 24/7 support carers. With out this, Jacko would never of been able to achieve so much in the last 12 months. I am Jackie, step mother to Jacko and Rosco is his dad. I have raised this little man from 18 months old. And the biggest and hardest desision that we have ever had to do for Jacko was to place him in a residential house. He had learnt so much, he has grown into his own person, he has shown ud that he can do what he sets his mind to. He has been able to learn to feed, shower, dress, crawl, stand and walk (with assistance by aides and support staff) an sign language . He has also found his voice using a dynobox and also can now say 3 word sentenced. Jacko has done and learnt so much, that we could not be happier an prouder of such an amazing kid who has spread his wings and starting to take on the world, with help from so many people and supporters an family he is a champ. We him so much and want what is best for him. He has guided us to learn to have faith an trust in others to help care for his health an wellbeing.
13.01.2022 From all the ups and downs and scary moments we have had with our boy. We thought we would like to share to jackos page, a very big moment in Jacksons life that we where told would never happen, its early days but he is doing it assisted.
12.01.2022 Please keep sharing page around and stay tuned as we will have more items up for auction soon.
11.01.2022 Today is Jackson's 14th birthday. Another year gone, and another milestone made. He also received his new electronic wheelchair as a special birthday present plus many more.
11.01.2022 Vom gesamten Team der Dresden Monarchs unterschrieben, sowie Outback-Spielern Ike Summerfield, Damien Donaldson, Ben Hartley und Outback-Headcoach John Leijten ist dieser Helm ein einzigartiges Sammlerstück welches jeder Footballfan gerne besitzen würde. DAS BIETEN STARTET JETZT AB 50! Signed by the entire Dresden Monarchs of the German Football League including Australian Outback members Ike Summefield, Damien Donaldson, Ben Hartley and Outback Head Coach John Leijten this is a one-of-a-kind piece of memorabilia that any football fan would love to own. BIDDING STARTS NOW AT 50! Yes, that's Euros! AUCTION ENDS AT MIDNIGHT DRESDEN TIME THE SATURDAY AFTER THE GFL FINAL.
11.01.2022 We have had a bit of a scare this week, with jacko having a fall at school. We were rushed to the hospital for scans. And placed on a 48 hr watch and observe for any breaks or leaks to jacksons shunt. Jackson has bruised his collar bone in the fall and had a reaction to grass, witch made his face, head and neck swell. ... So after been released from the hospital, i had a meeting with the head masters an his teachers. So this is what happened with jackson. Jacko has been in a soccor team for the last 7 months at school, he is very good at soccor. They play on a court similar to a basketball court, at the end of the court is a drain that collects the water. All the kids know including jackson that the cone must stay on the drain while they play soccor. Jackson had a moment where he thought he would be checky and remove the cone from the drain and try and wheel him self over it. Laughing as he was doing it. The front wheel of his chair got cought in the drain and thats how jack and the chair fell over. Landing on his left side an hitting his face an head and shunt. Jacko was laughing as this was been explained to me. How the incident happend. The teacher was distracted for less than 30 seconds, so jacko took his changes on being a little devil Lol. Jacko has also been into some trouble at school.. taking bags of racks and roling on them. Chaching kids in his chair. Throwing stuff off of tables .... and he thinks this is all so funny as i was been explained about his poor behavior. He was just laughing the whole time. So jacko isnt happy as he will now loose out on soccor and has lost certain activities at school and home for his behaviour. He is doing great back to him normal self. And hopefully he has learnt something for what he actions caused.. Checky shit he is. Jackie.
11.01.2022 Jacko is trialing a new power chair. He did awesome today out for a walk and even guided himself back home and into to his bedroom, managing to get all his angles right. Even reversing to fix him self up. He was very tired after school and practice in his chair, so no smiles after our walk.... We now are also getting a new manual chair as he has really out grown his chair he currently has had for the last 7 years. Goals before February 2017. Power chair Manual chair Talking computer And Spider Walker Stay tuned as there will be much more updates as we progress.
10.01.2022 Jackson has been unwell from last Wednesday. He went down hill very fast. He spent from Wednesday last week to Monday this week in hospital, being discharged after much concern from Ross and I that he still wasn't well. During this stage they found that his shunt had started to disconnect back in 2017, but could not be certain at what stage his shunt had completely disconnected this showed on the scan on Thursday last week. At this time Jackson was showing all signs of shunt ...failer. Jackson than had a non responsive eposoide on Wednesday this week at school. He was rushed back up to the hospital and will remain there until some answers are found. Jackson has moments where he is him self and than there a periods where he becomes incoherent and his colour changes. He is still have spikes and rapid changes in his temperature and his blood pressure. His skin is often changing from hot to cold as well. Today he under went a ECG on his brain. He is under the Nuro team and the Peads team. They have no idea what is happening and going on, so Jackson still has many more test to come. We will update you all once we have some answers.
09.01.2022 Jacko is trailing a communication device. He is so cheeky. He will use it when people are not watching.
09.01.2022 Just want to update all Jacko followers. Jackson is starting to slow down abit. 1. He is getting older and his body is tired. His muscle tone is tight, and he is fighting his tone.... 2.There are concerns over his Hydrocephalus and build up of fluid on his brain due to the growth of his head. For precautions reasons Jackson has been taken to hospital. At this stage we are just waiting for a bed and for testing to begin. Due to covid19 alot of his services have been put on hold. And this has not help with his rehabilitation. On a positive note with all his struggles, he is still the same Jackson. He is happy, smiling, communicating and laughing. We will keep you updated as soon as we know all the information
09.01.2022 Jackson's was evacuated today from his house due to the fires. He was taken to safety and is okay. They have returned and he is happy as to be home again.
08.01.2022 Jacko's new standing Frame.
08.01.2022 Jackson's house mate, made this sign just for Jack. And Jackson loved it.
08.01.2022 Happy 13th wake up day, my big boy. You have grown and showed so much independence in the last 10months. Then daddy or I could even imagine. I know now the decision that I made was the right decision and the best decision for you and your health and your wellbeing, mental state and you freedom and independence. ... You house is looking amazing and keep up the fantastic work at school and keep those carers on their toes. Mummy will get you new electric wheelchair to you soon. We all love you to the moon and back. And miss you everyday. #myboy #handsome #grade8 #Australia day wakeup day
07.01.2022 Jackos new wheels. Love the colour and the wheel protectors. All choosen by jacko himself. Flash as. And he now has a few new words. Rosco Conti thank you shell and tanelle.
02.01.2022 Jackson got queenland of the year. Rosco Conti Jackilyn Conti
02.01.2022 Let's build the muscle tone. With Jackos new second skin.. Hand skin to come in February.
