Lupus WA | Non-profit organisation

Lupus WA

Phone: 0893882199

Add/Update information

Reviews

Tags

• Businesses
• Non-profit organisation
• Community
• Charitable organisation

25.01.2022 Steroids are often used to control spikes in lupus disease activity. But the best daily steroid dose for lupus can change because while they provide short-term relief from the symptoms of lupus, they also offer long-term risks such as organ damage. Tapering is a process that uses these medications to bring down lupus symptoms to a manageable level, and then reduces the dose down to a very low amount.... Strategic dosing is an important part of managing lupus, and a new study has shown that successful steroid tapering of prednisone has increased since 2000. See more

25.01.2022 Train that brain

24.01.2022 Breathe in, Breathe Out By focusing on your breathing, it can help reduce stress and tension, as well as providing relaxation. This can be particularly valuable if you have Lupus.... So next time you're feeling a little tense and overwhelmed...stop and take a moment and try this... Match how long you breathe in with how long you breathe out. Wait 4 seconds and repeat. Try that and tell us how it makes you feel... See more

23.01.2022 T Cells, the Immune System, and Lupus Research has identified that regulating T cells (an important components of the immune system) could reduce the symptoms of lupus. T cells are a special type of white blood cells - which work to protect the body by seeking out and destroying threats to the body.... However sometimes they will mistake healthy cells as threats and turn on them, and it's the regulatory cells in the immune system that keeps these rogue T cells from causing too much damage. But with autoimmune conditions such as lupus, these regulatory cells are faulty, allowing T cells to go rogue and attack the body, causing the symptoms of lupus. Studies have shown benefits of altering T cells through treatment with CAR (Chimeric Antigen Receptor) therapy. This therapy that involves genetically engineered T cells shows a lot of promise. See more

21.01.2022 Just a little reminder that our October Support Group Meeting will be held this Wednesday 7th October. Looking forward to seeing you all

19.01.2022 OCTOBER SUPPORT GROUP MEETING It's nearly time for our next monthly Support Group Meeting. These are a great forum for sharing both challenges and ‘tips’ learned from our collective lived experiences for living better with lupus.... We are back to meeting in person and would love to have you join us next Wednesday 7th October. New faces are always welcome See more

19.01.2022 Immunosuppressive drugs & Lupus Immunosuppressive drugs (as the name states) reduce the activity of the immune system. They help to control severe cases of lupus that don't respond to other medications.... The type of medication prescribed depends on other medications being taken, symptoms, and co-morbid conditions. A few medications used more commonly for lupus include: Cyclophosphamide Methotrexate Azathioprine Mycophenolate One issue associated with these medications, is that they also leave the body susceptible to infection...meaning that people who take these medications need to take additional precautions in their everyday life to stay healthy.

19.01.2022 A Friday Funny for our wonderful group! Have a fabulous weekend, the weather is looking gorgeous!

18.01.2022 Now it's starting to warm up - with the heat comes the sweating and hot flashes. Many lupus patients experience heat-intolerance and an increased risk of overheating Their body struggles to regulate temperature and that leaves them feeling unbearably hot.... Symptoms like hot flashes, night sweats and excessive sweating are common. Overheating may also be a result of Thyroid Disease or Menopause so it's important to talk to your medical support team so that they can help with treatment options. See more

18.01.2022 SEPTEMBER SUPPORT GROUP MEETING It's nearly time for our next monthly Support Group Meeting. These are a great forum for sharing both challenges and ‘tips’ learned from our collective lived experiences for living better with lupus.... We are back to meeting in person and would love to have you join us this Wednesday. New faces are always welcome

18.01.2022 When you share your story, not only are you inspiring others...but you're improving awareness for lupus. With awareness comes increased support for lupus research activities. You don't know who needs to hear your story or the impact that sharing yours will have

18.01.2022 Mindfulness & Stress Reduction Reducing stress helps to minimise (and in some cases prevent) lupus flares. One way to lower stress levels is through mindful exercises by cultivating an awareness of the current moment. ... 3 example of mindful exercises include: Meditation Breathing exercises Yoga The goal of these exercises is to bring focus to the present moment and away from the distractions in your life that may be causing you stress or anxiety. When you feel the stress rising in your body, take time to practice mindfulness and bring your awareness back your body. See more

17.01.2022 You can... And you will!

16.01.2022 The BE LUPUS WISE ON-LINE APP is now available We've created this app to help people better navigate their own lupus journeys. Research reflects that people who are diagnosed and treated early in the disease process; and those who are informed and active participants in their lupus treatment and management do better in the long term. ... If you are living with lupus, then the one-stop Be Lupus Wise App is a great tool to help you to better navigate the diagnosis, treatment and management of your own lupus journeys. This comprehensive App was developed by people living with lupus from our own Lupus WA community in consultation with medical experts. The App is designed to cover all aspects of lupus diagnosis and treatment and to help you to get more out of your consultations with your treating medical teams. To access the App or to download a hardcopy head to: https://lupus.infobite.com.au/

15.01.2022 Tell us Lupus WA Warriors - What is your Monday Mantra?

14.01.2022 A Lupus Warrior

13.01.2022 Surround yourself with people who lift you up. Who make those burdens you have feel lighter. Who fill your life with joy. ... Who support you every step of your lupus journey See more

11.01.2022 Choosing the right doctor to treat your lupus We know only too well how difficult it can be to find a really great general practitioner, immunologist, rheumatologist and other health care professionals who have empathy and who really understand the many faces of lupus. If you have a health care professional on your health care team who knows lupus and who you respect and trust, then we would love to hear about them so that we can add them to our evolving list of ...lupus specific health care professionals in WA. These contacts will be updated on the Be Lupus Wise App" Please send us a DM with their details. See more

09.01.2022 COVID-19 has highlighted that self-management in lupus is more important than ever. Reduced in person contact meant that engaging individuals to be active participants in their lupus care was crucial. Self-management in lupus is a combination of information, guidance and encouragement.... Using communication tools (such as smartphones) to track and monitor progress is critical - blood pressure and weight, symptoms and medications can all be tracked using smartphones. Becoming an active participant in their lupus journey is powerful for both patients and health care professionals. It can be empowering, increase adherence and, ultimately, improve patient quality of life. See more

09.01.2022 A very good morning to all our friends! The sun is shining on what should be a lovely week! Take care and keep rested!

09.01.2022 Happy Wednesday to you! We hope you are taking very good care of yourself and having a lovely week. Following on from our look at brain involvement, this is another good article on how inactivity and depression can sometimes be a part of our Lupus journey. Keep well and remember to reach out if you need to. https://lupuscorner.com/physical-inactivity-depression-lup/

08.01.2022 Therapeutic Journalling Journalling as a form of therapy can be a powerful exercise...especially when it comes to your lupus journey. Not only does it help to relieve stress and anxiety...... But writing down your thoughts and how you're feeling can help to better understand your own lupus journey. To pinpoint triggers and causes of flares. Tell us Lupus WA family, do you incorporate journalling into your routine to help with your lupus? Try journalling how you're feeling each day and let the thoughts flow out onto the page. See more

07.01.2022 Hydration and rest Two extremely important lifestyle factors especially when you have lupus. Stay hydrated Lupus Warriors

07.01.2022 Back Pain & Lupus Constant aches & lower back pain can often be associated with lupus nephritis which causes the body's immune system to attack the kidneys. Lupus nephritis causes inflammation of the small blood vessels that filter wastes in your kidney.... Tests to help determine lupus nephritis include a blood test, urine test or kidney biopsy. Medical treatment is extremely necessary for lupus nephritis and needs to be immediately addressed which is why it's important to bring up symptoms you are experiencing with your lupus treatment team. See more

05.01.2022 Preventing Infection & Lupus The immune system is supposed to protect the body from disease... But as an autoimmune disease, Lupus causes the immune systems to turn against the body, and this results in a lot of damage and pain.... Doctors may prescribe immunosuppressant medications that turn off the immune system entirely...meaning that your body is open to from the outside, instead of inside. So how can you avoid getting sick when you have a suppressed immune system? Balance of Diet, Rest, and Exercise Protective Gear in the form of face masks and gloves Basic Hygiene Practices Limiting social contact It's all about taking proactive steps to make sure you protect yourself. See more

03.01.2022 Good afternoon to our Lupus family. The last meeting was well attended, it was lovely to see you all. The next meeting is coming up soon, and if you have not joined us before, please know that you will be made to feel very welcome and supported. Sharing thoughts, information and care with other Lupus warriors is so helpful in our journey. We look forward to seeing you!

02.01.2022 A very Happy Easter to each and every one of you - we hope you have a safe and happy long weekend. Remember the next support group meeting will be coming up next week, we hope you will be able to join us.