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25.01.2022 Do it your way!! Get your Legs Out for Lymphoma this March by signing up to the virtual challenge. Walk 5km, run 20km, push yourself to complete a challenge such as burpees or sit-ups each day. The options are up to you! Entry is free and you can take part as an individual, family or create a team. Join us and help raise funds for Lymphoma patients support services ... Register here: https://www.mycause.com.au/events/legsout4lymphoma
25.01.2022 Our November Lymphoma News is out now! This month we cover: - CAR T-cell in Australia - a free education session with Dr Michael Dickinson coming up; plus an explanation of what is CAR t-cell therapy? - New PBS medicines listings - A message from our Chair, Serg Duchini ... Read it here: https://bit.ly/LYAnewsNov20
24.01.2022 #GivingTuesdayAUS - day 3. We believe in the power of community and that together we can make a difference. There are many ways to give and spread hope in the lead up to Christmas. - Sign up to be a donor match - check if you are eligible and order your free swab kit from Ur the Cure - Donate blood - blood cancer patients rely on transfusions - find your nearest Australian Red Cross Lifeblood centre and donate - Share a lymphoma fact - help spread awareness, encourage frien...ds to get checked if something isn't right: https://youtu.be/oHSj8xhz0Vc - Be kind, make someone smile, help a friend out, cook a meal for a loved one; every act of generosity counts. #christmasgiving2020 #lymphomasupport See more
24.01.2022 Happy Valentine's Day May your day be special and you take some time to look after yourself. You can help share the love by signing up to get your Legs Out for Lymphoma with us this March. Have some fun, show your support for a loved one living with lymphoma, and let's make a difference together.... #ShareTheLove #legsout4lymphoma #lymphomasupport #lovebomblymphoma
23.01.2022 There are many different types of treatment for lymphoma such as watch and wait, chemotherapy, radiotherapy, stem cell transplants, targeted therapies immunotherapy and CAR T. Different treatments can be used alone or in combination. Each patient responds differently to treatment, as does each lymphoma subtype. We have a range of fact sheets to help to inform you and your family and answer some questions you might have around your Lymphoma Management: CAR T-cell therapy ... Understanding Watch and Wait Oral Therapies in Lymphoma Maintenance Therapy in Lymphoma Transplants in Lymphoma Understanding Clinical Trials (CT) Relapsed or Refractory Lymphoma Download PDFs here: http://www.lymphoma.org.au/page/1218/fact-sheets
23.01.2022 Ambassador Rebecca Cole and her dad Gary Cole are getting their #legsout4lymphoma in style this March! Rebecca witnessed first hand the effects of the disease when her dad Gary was diagnosed. Throughout the course of Dad’s journey with Lymphoma there were times when it was quite confronting. For the most part Dad was very lucky and didn’t suffer much from his chemotherapy or radiotherapy but when the strongest person I know looks so weak and fragile it can be upsetting. Wi...th Dad’s high spirits and positive out-look he made it very easy for our family to stay upbeat. With this said, if I ever needed some reassurance throughout it all, the Lymphoma Australia website was there to provide information and resources. After the shock of the diagnosis, having someone there who can help educate you about the disease and how to help makes all the difference. It’s comforting to know you’re not alone, and it gives us all confidence in knowing there are options when it comes to fighting this cancer. Thanks Rebecca and Gary for continuing to raise awareness and showing your support of those touched by lymphoma cancer. You can join Bec, Gary and our crew to get your Legs Out for Lymphoma this March sign up now!! Walk, run, cycle, shoot hoops or run laps - do it your way to show support for lymphoma cancer patients Register for free at: bit.ly/LegsOut2021
20.01.2022 Today is Giving Tuesday! #GivingTuesdayAUS is an opportunity to give back to the organisations making a difference in people's lives. One tip for today is to say THANK YOU - to the health workers, specialists, doctors, researchers, nurses and support workers who are there for us - offering knowledge, advice, empathy and support, and working toward a cure. These are a special group of people who are working to make a difference in the lives of those affected by lymphoma. Le...t’s celebrate them today. You can also make a donation to support our patient services at: https://donate.mycause.com.au/cause/241095 #lymphomasupport #GivingTuesday
20.01.2022 You are invited to our next education session with Dr Michael Dickinson from Peter MacCallum Cancer Centre & Royal Melbourne Hospital, Melbourne Date- Saturday 21 November Time- 11am (Sydney/Melbourne daylight saving time) Where- online with Zoom ... Join us to learn more about what is CAR T-cell and have your questions answered about: How CAR T-cell therapy works Side effects of CAR T-cell therapy What subtypes are currently being treated with CAR T-cell therapy? CAR T-cell therapy funding in Australia Clinical trials available around the world and in Australia Register here- https://us02web.zoom.us//register/WN_M7a8Cft5R1CJQY9ESFqqSQ
18.01.2022 "As an athlete I thought I had a pretty reasonable respect for fatigue and managing your body through exhaustion. This has taken that appreciation to a whole new level." Frank Hegerty is a former Australian rower, National Champion and a dual Olympian and Olympic Silver medalist. He is also living with lymphoma. Frank shares his patient story with us in the lead up to Legs Out for Lymphoma this March, of which he is an ambassador. ... He hopes that by talking of his experience, it will encourage others to get checked "Please remain vigilant with your health. Take steps to look into niggles and ailments and form a relationship with your GP. We are not always bulletproof." We are very happy to add a positive update - as of last week Frank is in remission! The next step is to undergo a course of radiation. You can read Frank's story here: https://www.lymphoma.org.au/patient-story/frank-hegerty/ Join us to get your legs out this March: bit.ly/LegsOut2021
16.01.2022 There are just two weeks left until we start getting our Legs Out for Lymphoma! There is still time to register - sign up NOW at bit.ly/LegsOut2021 Walk - Run - Cycle - Burpee - Do it your way!! This March, get your #legsout4lymphoma and help raise awareness for Australia's number one blood cancer.
16.01.2022 We are grateful and thankful for all the work of nurses, doctors, researchers, and health professionals working to improve the lives of lymphoma patients #LoveBombLymphoma #WLD2020 #LymphomaAwarenessMonth
16.01.2022 The 11th hour of the 11th day of the 11th month marks the moment the guns fell silent on the Western Front after the bloodshed of World War I. Over the past century, this moment has been adopted across the globe as a time to remember those who served and sacrificed in all wars and conflicts. This Remembrance Day, we pause to Remember to Remember In Flanders fields the poppies blow... Between the crosses, row on row, That mark our place; and in the sky The larks, still bravely singing, fly Scarce heard amid the guns below. We are the Dead. Short days ago We lived, felt dawn, saw sunset glow, Loved and were loved, and now we lie, In Flanders fields. Take up our quarrel with the foe: To you from failing hands we throw The torch; be yours to hold it high. If ye break faith with us who die We shall not sleep, though poppies grow In Flanders fields. - Major John McCrae
15.01.2022 First commercial CAR-T therapy to be manufactured in Australia Australian blood cancer patients including those with eligible subtypes of lymphoma and CLL will benefit with a breakthrough CAR-T therapy now to be made in Australia for the first time, within the Peter MacCallum Cancer Centre. The Therapeutic Goods Administration (TGA) has granted approval for Cell Therapies Pty Ltd to commence commercial manufacturing of Kymriah, a chimeric antigen receptor T-cell (CAR-T) one-...time treatment, in its manufacturing facility, which is located within the Peter MacCallum Cancer Centre in Melbourne, Australia. The approval makes Cell Therapies the first and only approved commercial manufacturing site for CAR-T in Australia for both clinical trial and non-clinical trial patients. Cell Therapies has been engaged in CAR-T development and clinical trial manufacturing for clinical investigators and other clients for over 10 years. Kymriah was the first CAR-T therapy to be approved by the TGA and publicly funded in Australia, for the treatment of eligible adult patients with relapsed or refractory DLBCL (diffuse large B cell lymphoma) and eligible paediatric and young adult patients up to 25 years of age with relapsed or refractory ALL (acute lymphoblastic leukaemia) [1]. The Kymriah manufacturing process is highly complex and requires a number of carefully performed steps. The patient’s cells are first extracted then reprogrammed in the manufacturing facility and returned as a personalised, one-time treatment for infusion back into the patient. Until now this advanced manufacturing process was conducted either in the Novartis Morris Plains facility in New Jersey, USA, or another approved overseas facility. Final approvals have now been received allowing Cell Therapies Pty Ltd, which operates a state-of-the-art facility within Peter Mac, to manufacture this treatment in Victoria. "This is great news for Australian Lymphoma patients who may benefit from this potentially lifesaving treatment, said Lymphoma Australia Board Chairman Serg Duchini" NovartisPeter MacCallum Cancer CentreKatie Allen MPGreg Hunt MP Learn more about CAR T cell therapy here https://www.lymphoma.org.au//chimeric-antigen-receptor-ca/
14.01.2022 Good luck team!! The Em Effect is about to commence their 4x4x48 Challenge to raise awareness of lymphoma and in honour of Emily. This video captures some of their feelings as they prepare to start You can follow them and get updates over on their page: The Em Effect Thank you - and good luck!!!
12.01.2022 This weekend three adventurous fundraisers will be abseiling 40 storeys (160m!) off the iconic QV1 building in Perth WA’s highest single pitch building. QV1 Descent They will be testing their nerves, whilst facing fears and raising money for a charity close to their heart - Lymphoma Australia. We wish you all the very best!! We believe in you and you are superheroes to the patients who we can support because of you! ... Mikki - Smile for Sam: https://www.mycause.com.au/page/236454/smile-for-sam Superhero Adam: https://www.mycause.com.au/page/231737/adam-smith Happy 70th Derek: https://www.mycause.com.au/page/235246/derek-roach
11.01.2022 It is all happening in Australia for World Lymphoma Awareness Day #WLAD2020 It was a day of love, laughter, and tears at Metricon Stadium on the Gold Coast. Lymphoma patient Tahnee Svensk and her amazing sister Kiri Lainela kicked off our global campaign by cartwheeling for a world record and they did it. Emotions were high but there was a world of support to make what seemed an impossible feat a reality. Thank you to all the volunteers, dancers, and army of supporters fo...r being there for Tahnee and supporting the lymphoma cause across Australia and the world. A very big thank you to Metricon Stadium for opening your gates to make this a very special day. Tahnee’s Army
10.01.2022 We couldn’t agree more Southside Flyers - thank you Rebecca Cole for helping to put lymphoma in the limelight this September Awareness Month
10.01.2022 Join the Em Effect at 11am for their last leg of the 4x4x48 Challenge!
10.01.2022 What better way to end September and Lymphoma Awareness Month than with this very special compilation made by warrior Kelly and some of the fantastic patients and families Lymphoma Australia supports THANK YOU to everyone who took part To all those who went #lime4lymphoma at home, school, work, running, cycling, cartwheeling, burpees and more - we send our sincere gratitude Thank you for sharing Lymphoma facts, sending out #LoveBombLymphoma messages and putting lymphoma... in the limelight. Credits: Idea concept and creation- Kelly Lance Choreography- @Tahnee and The Tree House Stars- Lymphoma patients & families & friends
09.01.2022 The Em Effect 4x4x48 Challenge is happening this weekend. We wish Brenton, Luke, Justin & Joel all the very best for this grueling challenge! We greatly appreciate your support in putting lymphoma in the limelight this September - Lymphoma Awareness Month THANK YOU!!... #lime4lymphoma #LymphomaAwarenessMonth #inmemory #theemeffect https://youtu.be/VX8UYg45DBs
08.01.2022 Tomorrow is Giving Tuesday - a global day of generosity encouraging people to do good. This week, we will share ways you can help make a difference and support Australian's affected by lymphoma. It doesn’t matter where you live, or how much you give - whether it be time, words, or money. Little actions can make a big impact. #ChristmasGiving2020 #lymphomasupport #GivingTuesdayAUS
08.01.2022 What a day!! Congratulations Tahnee & Kiri and all involved!! Proud to support you on your journey and we can’t wait to support other patients and families because of your fighting spirit! You got this! #lime4lymphoma #WLAD2020 #lovebomblymphoma
08.01.2022 In tribute and in honour of all those in our memories. Your advocacy and support will not be forgotten. We remember you this #WorldLymphomaAwarenessDay #lovebomblymphoma The Em Effect Melissa Baker ... Be Here Now: The Andy Whitfield Story See more
08.01.2022 Thanks for the wonderful support message Tommy! Best of luck to you and Paul for the Ironman 70.3 Running from Cancer
08.01.2022 Got a new cancer symptom, a lump or any change in your body that hasn’t gone away? Don’t hold off see your doctor if you notice a change which isn’t normal for you. Thanks to Cancer Australia for this reminder https://twitter.com/canceraustr/status/1308254773251055616
07.01.2022 YOU are amazing!! We have been flooded with images, messages, stories and love the past 24hrs! Thanks so much for getting involved in the #lovebomblymphoma campaign. Keep sending them!!!! And tag a friend, tag a loved one, spread the positive vibes! #WLAD2020 ... #lovebomblymphoma #lymphomaawareness See more
07.01.2022 Thanks for helping to spread awareness Roma Britnell MP - and wishing you all the best for your own healthy future
06.01.2022 This Christmas, join with us to share the joy of giving. Please give a Christmas gift by 25 December to help children and adults faced with a Lymphoma diagnosis. Donate at: https://www.mycause.com.au/page/241095/christmas-giving-2020
05.01.2022 #FastFactFriday Lymphoma cancer has more than 80+ different subtypes. Lymphomas are generally categorised either into Hodgkin Lymphoma or Non-Hodgkin Lymphoma. Lymphomas are either: Low grade (also referred to as indolent or chronic), because the abnormal cells are slow-growing; or High grade (also known as aggressive or acute) or fast-growing.... Given the variety and complexity of the different lymphoma subtypes, it is important for people diagnosed with lymphoma to know and understand their specific subtype. A large part of the support service we provide is helping patients and their families to better understand their disease (including its diagnosis, prognosis and their individual treatment plan), and access tailored information and support that is right for them. Knowing your subtype means you can access the right treatment at the right time for the right subtype. To continue to provide these vital links for patients we need your help. Get involved with our event this March - Legs Out for Lymphoma. You can sign up for no cost and walk, run, cycle or burpee to support lymphoma patient services. Join us!! Bit.ly/LegsOut2021
04.01.2022 LIVE NOW with Dr Michael Dickinson, discussing CAR T-cell therapy in Australia You can still join us - https://us02web.zoom.us//register/WN_M7a8Cft5R1CJQY9ESFqqSQ
04.01.2022 This World Lymphoma Awareness Day, we give a world of thanks to the caregivers around the globe! From transport to appointments to at-home care, caregivers are... a pillar of support for cancer patients. Visit WorldLymphomaAwarenessDay.com and show your gratitude for the caregivers in your life!
04.01.2022 Australian lymphoma patients will now have access to a new frontline therapy for CLL. Lymphoma Australia welcomes The Hon Greg Hunt MP’s announcement for another new PBS listing for CLL patients. From 1 December, access to Venclexta (venetoclax) will be extended in combination with obinutuzumab as a first-line treatment. This PBS listing will allow CLL patients who cannot be treated with standard chemotherapy-based treatments to have affordable access to this first-line co...mbination treatment. This targeted therapy will be especially beneficial for patients that are unfit or cannot tolerate chemotherapy due to side effects and other comorbidities. This new listing for the locally discovered treatment is a positive development for cancer patients. For more details, visit our website: https://www.lymphoma.org.au//new-frontline-therapy-for-cll/
03.01.2022 Looking forward to joining the 2020 CANFORUM event today.
03.01.2022 Our Christmas Giving Appeal opens today, with the aim of making sure that no one feels alone on their lymphoma journey. It has been an incredibly trying year for all of us, and we could only continue our services due to the incredible support from our community - so thank YOU. Your Christmas gift will - help take the fear out of a lymphoma diagnosis by providing free resources and fact sheets... - support Lymphoma Care Nurses and the Lymphoma Nurse Support Line to support patients and families by answering questions and providing links so no one feels alone - raise awareness of Australia's number one blood cancer and help to make more people aware of signs and symptoms. Your donation makes a real difference. bit.ly/ChristmasGiving2020 #ChristmasGiving2020 #lymphomasupport #GivingTuesdayAUS
03.01.2022 Reminder to join us this coming Saturday morning, 21st November, to hear from Dr Michael Dickinson
02.01.2022 This Sunday 20 September we invite you to join Lymphoma Australia and The Em Effect in a virtual challenge! Brenton, Luke, Justin and Joel are completing a 4x4x48 Challenge: 4 Miles, Every 4 Hours for 48 Hours for Lymphoma... This challenge will be as much a mental challenge as it will a physical one, not unlike the challenge faced by Emily and the over 6,400 Australian’s diagnosed with lymphoma each year. The team has so far raised over $11,000!! The money will help to continue to fund Lymphoma Care Support Nurses in Australia, help patients understand their treatment path and provide critical support to Lymphoma patients and their families. Take part this Sunday for the last lap- approx. 6.4km that you can walk, run, skip, cycle or swim!! Wear something LIME & take a selfie or photo and share the pic! Raising awareness for lymphoma this September for Lymphoma Awareness Month The Em Effect was established in honour of the late Emily Jane Smith, who very sadly passed away from Non-Hodgkin's Lymphoma in 2019 at the age of 30. We are proud to work alongside Brenton and the team to make a difference and honour Emily. #4x4x48challenge #lime4lymphoma #lovebomblymphoma #LymphomaAwarenessMonth
02.01.2022 THANK YOU Australia for going LIME during September!! In doing so, you are making a positive difference to the lives of people living with lymphoma, their families, friends and carers, through increased awareness and support. We are thrilled to announce that during September an incredible $100,000+ was raised by our generous supporters and community!!! ... As with all organisations this year, we had to change our service delivery. But one thing didn’t change our commitment to be there for all Australians affected by lymphoma. Because of YOU and your support, your fundraising will help to extend our specialist Lymphoma Care Nurse service and Nurse Support Phone Line; ensure resources and education is available to patients and families; and ensure the continuation of these services at no cost to patients. Please enjoy this short video from the World Lymphoma Awareness Day cartwheel world record... https://youtu.be/RzjvTnZ3_hk Today's newsletter wrap up: http://createsend.com/t/d-4EACB397E0699EE52540EF23F30FEDED
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