Nepean / Blue Mountains Prostate Cancer Support Group in Kingswood | Community organisation

Nepean / Blue Mountains Prostate Cancer Support Group

Locality: Kingswood

Phone: +61 1300 133 878

Address: PO BOX 763 2747 Kingswood, NSW, Australia

Website: https://www.prostatesupport.org.au

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25.01.2022 News Update Japan has just approved use of the targeted drug olaparib for men with advanced prostate cancers with genetic alterations in BRCA1 or BRCA2. The... move follows Europe's approval in November, based on results from the PROfound trial. In January we'll be advocating to Australia's Pharmaceutical Benefits Advisory Committee to subsidise the treatment for eligible Australian men. Stay posted for more information on how you can support our call. Read more here > https://bwnews.pr/2WXVF4w And here > https://bit.ly/2L4Tc5A Wherever you are today, we hope you have a Happy New Year's Eve.

25.01.2022 Join us next Friday at 3pm AEDT for a free webinar on prostate cancer in Australia. You'll learn more about the clinical and research landscape, survivorship in the Australian context, and our vision for the future. Register now https://www.cc-dr.org/prostate/

25.01.2022 Just a shout-out to the team at Tyrepower Orange for their support of our work, under our long-term partnership with Tyrepower. PCFA's Jim Lloyd dropped in to s...ee the team yesterday to say thank you in person. Store owner Dave (pictured centre) is a long-term prostate cancer survivor and massive advocate for our work. He's pictured here with store manager Tim, also a total legend. Our thanks to the crew for driving with us towards prostate cancer survival!

24.01.2022 Friends and Colleagues, A brief note to share with you a Message from the Prime Minister encouraging Australians to host a Big Aussie Barbie this November. In the video, the PM speaks about the loss of his father earlier this year, who had been diagnosed with prostate cancer, and delivers a powerful message of awareness that is worth sharing.... We will make the video available on our Facebook page in coming days, but please do feel free to share this link widely with your own networks. If you haven’t registered yet for Big Aussie Barbie, we could really use your support to help fund research and new programs. With gratitude, Jeff Message from the Prime Minister: Big Aussie Barbie Do it for those you love https://www.youtube.com/watch?v=q41OYsSs-Vg Simply go to bigaussiebarbie.com.au to register and email our team if you’d like an apron or bucket hat ahead of the day.

24.01.2022 I enjoy cooking and I love to BBQ so I thought id share some of my BBQ tips with you in the lead up to the Big Aussie Barbie (27-29 Nov). Id also love to hear y...our tips and tricks for a great BBQ, so comment below and tag me in your BBQ photos! Thanks also to the legends at The Butcher Shoppe - Cannon Hill! Prostate Cancer Foundation of Australia https://www.bigaussiebarbie.com.au/ #bigaussiebarbie See more

24.01.2022 This event is happening in three days

24.01.2022 NEWS ALERT With thanks to all of you, we've just been given another $50k from our sponsors Tyrepower and ATOM Community Engagement Fund! Massive shout-out t...o Craig and Lara Lowndes for helping us get this show on the road - Craig went on camera for the first time this morning to reveal his dad and brother have both had prostate cancer - placing him at five times the risk of developing this b*stard of a disease. To Craig, Lara, Simon Bateman and the team at Tyrepower, and the crew at ATOM - THANK YOU. To all of you - KEEP GOING - we're in The Long Run to save lives!!!! https://www.thelongrun.org.au/

23.01.2022 Many of you may not realise that PCFA has a small number of Honorary Life Members distinguished people who have gone above and beyond in their professional an...d personal lives to improve outcomes for men and families affected by prostate cancer. Last week our Chairman Steve Callister bestowed Life Membership on Associate Professor Andrew Kneebone one of Australia’s leading prostate cancer radiation oncologists, researchers, and teachers. Andrew is also a former PCFA National Board Member and Medical Advisory Committee Member. Notably, he has been an author on multiple National guidelines for definitive and post prostatectomy radiotherapy. Congratulations to Andrew on this prestigious recognition of his outstanding service and remarkable contribution to our work!

21.01.2022 Let’s give a big round of applause to Club Menangle for raising a whopping $10,400 through their recent ‘Racing for Prostate Cancer’ initiative! The donatio...n will provide vital training and resources to enable the work of PCFA’s Prostate Cancer Specialist Nurses. Without the support of community groups and individuals like you, we wouldn’t be able to do what we do THANK YOU!

21.01.2022 NURSE CHAMPION Here’s a nurse we have been meaning to thank for a while. Russell (aka Russ) started working with us a little while back as Manager Nursing P...rograms. Since then, he’s worked around the clock with Sally, our Director of Nursing Programs, to ensure our Prostate Cancer Specialist Nurses can be there to support you and your loved ones. In addition to managing our nursing program, each day he takes calls from men and their family members - providing expert advice, information, and care. He’s also in The Long Run, as a member of the PCFA Nurses team, and is currently #1 on the Team Leaderboard. Russ - THANK YOU for being THE BEST. We appreciate it! Check out his Long Run profile here https://www.thelongrun.org.au/fundraisers/russellbriggs

20.01.2022 Health care providers have noticed a substantial drop in the number of patients being seen for cancer diagnosis and treatment, with many Australians confused an...d afraid about what to do. We've joined with 35 leading organisations to remind Australians to put their health first. If you need to see your GP or a specialist in relation to your prostate health - don't wait until it's too late. #DontWaitMate #ProstateCancer #Healthcare #Awareness

18.01.2022 For our July Zoom meeting we had a presentation by Karen Newby. Karen (who is based in Perth) is a registered nurse with specialist continence management training and is employed by Tena, a proud partner of PCFA . TENA is the leading brand in adult male incontinence products and has recently become a Major Partner of PCFA. The partnership aims to bring incontinence out of the shadows, equipping men with the support they need and raising community awareness so we breakdown the stigma that drives many men to suffer in silence (Karen’s presentation has been placed on the group website www.prostatesupport.org.au/latestnews

17.01.2022 Vale Bob Fulton. Today we remember Bob Fulton, one of rugby league’s all-time great players, who died aged 74 of prostate cancer yesterday. Our condolences to h...is wife Anne and their children and grandchildren. May he Rest In Peace.

17.01.2022 Congratulations to Ross ‘The Rally’ Alexander for receiving an Order of Australia Medal on the Australian Honours List recently. His own diagnosis inspired R...oss to get involved in our mission, with the support of his wife Christine. As well as serving on our NSW State Board, Ross started the Prostate Cancer Rally, which raised over $120k for our work in 2019 and will return in September this year. To find out more about this year’s Rally, click here > https://charitycarevents.com.au/pcfarally/

17.01.2022 Australian men are waiting too long for new prostate cancer treatments. Clinical trials provide the best chance of beating the disease, but too many promising t...rials will not go ahead due to lack of funds. Your help today will give hope to the 1 in 6 Australian men who will get prostate cancer in their lifetime.

16.01.2022 Recently Leonay Golf Club ran their charity event in support of Prostate Cancer awareness. We were able to man our information stand and also run a raffle. A very successful day al round.

13.01.2022 Every 25 minutes one of our fathers, sons, and brothers hears the news they have prostate cancer. We make sure they don't walk the journey alone. Here's ...Ruby, our Prostate Cancer Specialist Nurse in Darwin, sending out a free info pack to a newly diagnosed bloke. If you or someone you love needs information or support - get in touch today.

13.01.2022 Great news for men and families in the Far West NSW Local Health District! Ruben has just joined our Prostate Cancer Specialist Nursing Service, based at Br...oken Hill. He’ll be working with local health care teams and our Support Network to deliver world-class care to a first-class community. Welcome to the team Ruben!! Call or email to connect with your local nurse! 1800 22 00 99 / [email protected]

12.01.2022 Each November the Penrith Gaels Club has collection buckets in the Club for members and visitors to donate to our Support Group. Last November was no exception but due to a number of reasons including COVID19 the proceeds were not collected until recently. The photo shows Wayne McFayden General Manager Penrith Gaels proudly holding an Appreciation Certificate and David Wilkinson President Nepean/Blue Mountains Prostate Cancer Support Group firmly holding the cheque presented ...by Wayne. Our sincere thanks to the Penrith Gaels -"The Irish Club for Everyone"

12.01.2022 Time to shift the focus away from motorsport and talk men's health again for a moment. Remember a while ago I encouraged all men over 40 to get yearly check ups... regarding Prostate Cancer? Well guess what?? I have been, and have now been confirmed to have it. I feel fine and have no signs, but it's there and I must do something about it! So don't put it off just because you don't feel any symptoms. I'm having my first treatment on Tuesday at the new Peter McCallum Cancer Clinic in North Melbourne. After that I'm not sure because there are several options. As our Touring Car Masters season continues at Bathurst in a few weeks time, I'm unsure of what effect it will have on that, but I'll be racing at the Mountain come hell or high water!! I've never been one to pass up an opportunity to drive at that amazing racetrack!! JB See more

11.01.2022 Here is an article published in this week's Blue Mountains Gazette promoting our Group and our involvement in "the LONG walk" a fund raiser organised by the PCFA. If you would like to join our team go to www.thelongrun.org.au//nepeanbluemountainsprostatecancersu

10.01.2022 Do you remember 1987? Bon Jovi had a hit with Livin' on a Prayer and double denim became a thing. In that year, prostate cancer survival was only 60% in Aust...ralia. With thanks to you, 33 years later, prostate cancer survival is 95%, and every day we get one step closer to beating it. Thank you for supporting us in The Long Run - keep going and keep giving - we can do this! Make a difference! https://www.thelongrun.org.au/

08.01.2022 While prostate cancer has one of the highest survival rates of the disease, the side-effects of treatment can take a heavy, life-long toll. Facing the Tiger, a ...new book written by Professor Suzanne Chambers AO, offers practical strategies and personal insights on how to cope with the emotional and psychological stress of living with prostate cancer. Find out more here > https://hm.org.au/2UZcXgB

07.01.2022 Subject: PCFA member benefits offer Facing The Tiger Hi all Although this is advertising it would seem to be appropriate for our members.... Members who attended our Group Christmas Party last year will recall that we had the pleasure of the company of Professor Suzanne Chambers. Professor Chambers has written an excellent book titled "Facing the Tiger: A Survivorship Guide for Men with Prostate Cancer and their Partners" the book gives essential support to you and your loved ones. It provides practical strategies to manage stress and anxiety, improve health and wellbeing, and navigate the challenges of a complex array of medical options. It shares personal stories from Australian men and their partners in plain-speaking style, revealing the wisdom of others who have already walked the path. Buy now as a PCFA member for 15% off, with all author royalties to the PCFA: https://onlinecommunity.pcfa.org.au//PCF/bg-p/BenefitsBlog Cheers Stephen May BSc (Hons) Psych. Publisher/Owner Australian Academic Press "

06.01.2022 We are very pleased to advise that the Emu Plains Lions Club has very generously decided to assist us by sponsoring our web site ('www.prostatesupport.org.au') Photo shows Lions Club Life Member, John Choma presenting Group President, David Wilkinson, with the cheque. Present also on the day were Jim and Cheryl Devine from the Lions Club. Thank You Emu Plains Lions!

04.01.2022 A massive shout-out to Bernie, our Prostate Cancer Specialist Nurse at Macquarie University Hospital in Sydney. He smashed 10kms with his girls this morning for... The Long Run Father’s Day Challenge and has set a goal to walk 150km for his campaign. I have to thank Matilda for the nutritional supplements and Soph for the hydration! he says. Love your work Bernie!!!! If you’d like to walk, run, or wheel for the one you love, register now! https://www.thelongrun.org.au

04.01.2022 In Case You Missed It Check out the interview with our CEO Professor Jeff Dunn AO in today's House of Wellness magazine story on men's health. "Community a...wareness is key to beating prostate cancer. Our research has found many men are unaware of their risk factors, such as age and family history," Jeff says. We've called for a review of the PSA Test Guidelines to help improve early detection of potentially lethal prostate cancers and increase community awareness of how the disease impacts men. Show your support by putting a on this story and please share Jeff's interview!

02.01.2022 The latest Group Newsletter has been added onto our web site. To access the Newsletter follow this link http://www.prostatesupport.org.au/newsletter/ (ctrl click)... or go to our web site www.prostatesupport.org.au and click on the ‘Newsletter. Link.