People with Multiple Sclerosis in Melbourne, Victoria, Australia | Non-profit organisation

People with Multiple Sclerosis

Locality: Melbourne, Victoria, Australia

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25.01.2022 Too many Victorian families are stuck in a bind: They'd save hundreds on their power bills with a newer, more efficient heating system but the cost to get it ...replaced is always out of reach. So they keep paying more and saving less. We're about to change that. We're helping 250,000 low-income households replace their old heater with an energy-efficient electric heater and cooling system saving them up to $900 a year. We're also improving the energy efficiency of over 35,000 social housing properties through heating, cooling and hot water upgrades plus replacing seals on windows and doors. And because no one should have to choose between keeping the lights on and putting food on the table, we're providing $250 payments for eligible concession card holders to help with immediate costs. It's all part of the biggest household energy efficiency package of any state, ever supporting thousands of jobs all up, saving families hundreds every year and helping to drive emissions down. This past winter has been a long, hard slog. More time at home has meant bigger bills. And this investment will help Victorians not just get through today but plan for tomorrow too.

24.01.2022 Overcoming MS (OMS) message from new CEO https://youtu.be/qUMFW3kap04

24.01.2022 https://www.msif.org//the-coronavirus-and-ms-what-you-nee/

24.01.2022 Microsoft - Give with Bing: Earn points for your Bing searches that are automatically donated to a nonprofit you choose. It's easy when you join Microsoft Rewards. You will receive emails about Microsoft Rewards, which include offers about Microsoft and partner products. Already a Rewards member? Sign in to start giving https://www.bing.com/ or create an account https://www.bing.com/give/join

21.01.2022 This is a message from John Blewonski CEO of MS Limited to members of the MS community

21.01.2022 Notice: You are cordially invited to participate in the Annual General Meeting (via Zoom) scheduled for 10:30am Monday 16th November. To join the meeting please register your interest by sending an email to Nigel Caswell at [email protected] and a Zoom Invitation link will be provided. To view the AGM documents before the meeting simply download them from http://pwmsv.net.au/p/index.php/2020-annual-general-meeting

20.01.2022 Iron is a key nutrient for normal central nervous system (CNS) development and function; thus, iron deficiency as well as iron excess may result in harmful effects in the CNS. Oligodendrocytes and astrocytes are crucial players in brain iron equilibrium. However, the mechanisms of iron uptake, storage, and efflux in oligodendrocytes and astrocytes during CNS development or under pathological situations such as demyelination are not completely understood. In the CNS, iron is d...irectly required for myelin production as a cofactor for enzymes involved in ATP, cholesterol and lipid synthesis, and oligodendrocytes are the cells with the highest iron levels in the brain which is linked to their elevated metabolic needs associated with the process of myelination. Unlike oligodendrocytes, astrocytes do not have a high metabolic requirement for iron. However, these cells are in close contact with blood vessel and have a strong iron transport capacity. In several pathological situations, changes in iron homoeostasis result in altered cellular iron distribution and accumulation and oxidative stress. In inflammatory demyelinating diseases such as multiple sclerosis, reactive astrocytes accumulate iron and upregulate iron efflux and influx molecules, which suggest that they are outfitted to take up and safely recycle iron. In this review, we will discuss the participation of oligodendrocytes and astrocytes in CNS iron homeostasis. Understanding the molecular mechanisms of iron uptake, storage, and efflux in oligodendrocytes and astrocytes is necessary for planning effective strategies for iron management during CNS development as well as for the treatment of demyelinating diseases. https://journals.sagepub.com//fu/10.1177/1759091420962681 See more

20.01.2022 Drinking coffee each day appears to help people with multiple sclerosis (MS) and milder disability and fatigue, with this patient group reporting in a questionnaire that caffeine allowed them to better concentrate on tasks and broaden their attention spans, a study reports. Its researchers suggest that for selected patients regular coffee consumption could be a way of easing MS-related fatigue. The study The Effect of Coffee and Caffeine Consumption on Patients with Multip...Continue reading

19.01.2022 Videos of the conference will be available at https://www.thestreamingguys.com.au/production/pwms-2020 from 10.30am on 16th November 2020. Check out the topics on our event calendar tab.

18.01.2022 Have your say! There is an important review happening at the moment about accessible housing. And they need to hear from you. via Every Australian Counts The survey closes 26th August.

18.01.2022 A prudent diet rich in fresh fruit, non-fried fish, whole grains, vegetables, and nuts may lower the likelihood of a relapse in people with a first demyelinating event, a major risk factor for multiple sclerosis (MS), a study in Australia suggests. While the researchers did not find a strong link between such a healthy diet and conversion from clinically isolated syndrome (CIS) to MS, their findings suggest this diet choice may help to prevent clinical progression. The stud...y, High Prudent diet factor score predicts lower relapse hazard in early multiple sclerosis, was published in the Multiple Sclerosis Journal. Read more by clicking on link below: https://multiplesclerosisnewstoday.com//healthy-diet-may-l

17.01.2022 https://msra.org.au//ozanimod-approved-for-relapsing-ms-i/

17.01.2022 https://overcomingms.org//message-george-hope-face-uncerta

17.01.2022 Understanding MS Online Course from UniTas and Menzies Institute for Medical Research: Do you sometimes wish there was a way for your friends, family or colleagues to understand what it can be like to live with multiple sclerosis? Maybe you want to empower yourself to learn more about the disease, or perhaps you’ve already completed the course and want to empower others to learn more too. The Understanding MS course is open to everyone and requires no prior knowledge. The fre...e online course runs for six weeks and takes around 2hrs per week. It was ranked the best course in 2019 - out of 2,400 online courses! It’s designed for people living with MS, their carers, support networks and healthcare providers, as well as anyone with an interest in learning about the disease. Understanding MS, created by the University of Tasmania’s Menzies Institute for Medical Research, is making an impact all over the world with participants from 116 countries. This course provides information on the biology of MS and MS symptoms, risk factors, disease management, and lived experience through videos presented by academics, nurses and allied health professionals, and others living with MS. One participant said, The neurologists, researchers and other health professionals presented fascinating content, and the stories from people living with MS were so honest and moving. The course is currently open for enrolments and you can start learning straight away! https://ms.mooc.utas.edu.au/

17.01.2022 https://multiplesclerosisnewstoday.com/news-pos/2020//29/

17.01.2022 https://multiplesclerosisnewstoday.com//aubagio-safely-us/

16.01.2022 https://engage.dss.gov.au//national-disability-strategy-p/ https://engage.dss.gov.au/nds-stage2-consultation/

16.01.2022 DSS wants to ensure that people with disability living in Victoria and NSW are aware of the supports available to them during the pandemic. Do you have a disability? Have things changed for you because of coronavirus (COVID-19)? Do you need support in a language other than English? Help is available. Call the Disability Information Helpline on 1800 643 787 and ask for an interpreter, or call Translating and Interpreting Services on 131 450 and ask for the Disability Information Helpline on 1800 643 787. Information about the Disability Information Helpline is also available in 63 languages. Visit www.dss.gov.au/disabilityhelp for more details.

16.01.2022 https://www.ms.org.au//14-october-2020-pwms-conference.aspx?

14.01.2022 UPDATE FROM MS NEUROLOGISTS 08/04/20 Advice for persons with multiple sclerosis and related disorders regarding the COVID-19 pandemic Dear Nigel, We hope you are keeping safe and well since our last communication. In our last COVID-19 update to you on 27/03/20 we shared a statement prepared by an independent group of Australian and New Zealand neurologists. MS Research Australia continues to work closely with these experts and would like to share an update to the advice for...Continue reading

14.01.2022 Coronavirus: New problems, new treatments in the evolving battle. https://thenewdaily.com.au//coronavirus-treatments-problem

13.01.2022 Join us this Saturday the 14th of November for our Annual PWMS Conference. Joining us will be Head of Research at MS Research Australia, Dr Julia Morahan and Debbie Roberts from Data For Inclusion (DFI).

13.01.2022 FOR SALE: Hoist for disabled patient. Arjo Maxi Sky 600, hospital grade equipment ceiling hoist on tracks, 3.6 M. This is a great Hoist with battery powered us...e hand control. It effectively transports the patient without manual lifting, offering vertical and horizontal movement. Complete with ceiling lift bar and slings. The hoist works perfectly, it was bought new for $3500, and offered here for only $1200. Pm me for contact details. Pick up is in North Fitzroy, Melbourne. See more

10.01.2022 https://www.smh.com.au//australian-researchers-lead-world-

10.01.2022 https://murdochuni.syd1.qualtrics.com///SV_1MS8EPh9V3fEn1X

10.01.2022 Imagine overcoming MS https://youtu.be/KuI3C2Z6_w0

08.01.2022 https://www.facebook.com/coronavirus_info/

08.01.2022 Win a $100 Gift Voucher - entry drawn every 3 months by swtching to digital newsletter subscription http://www.pwmsv.net.au/portal/index.php/newsletter

08.01.2022 Thank you Martin! Very nice to have "motorized platform that transforms a manual #wheelchair into an off-road vehicle that can traverse sand, snow, gravel and mud."

07.01.2022 The NDIS has introduced changes to pricing and plans to ensure supports can continue to be delivered to participants during the coronavirus pandemic. These include new support coordination items, a temporary increase to price limits and changes to the cancellation policy. Three new support coordination items have been introduced to the support catalogue under Core Supports, Assistance with Daily Life. The new item numbers allow funds to be used more flexibly for access to sup...port coordination from either core or capacity building budgets. The National Disability Insurance Agency (NDIA) has increased price limits by 10 per cent for some critical supports. Participant plans are being automatically extended to ensure continued access to funding. From March 25, 2020, participants will be required to give 10 business days’ notice (up from two days) for a cancellation if they want to avoid paying the full fee for a cancelled service. Refer to the NDIS Price Guide for more information. From March 30, participants will be charged 100 per cent of the agreed support price if they cancel a service at short notice (up from 90 per cent). The NDIS is providing a one-off advance payment for eligible registered providers to assist in the expected temporary increase in costs to deliver supports due to the COVID-19 virus. See more

07.01.2022 https://www.mswalk.org.au/event/victoria

06.01.2022 Reslience through creativity. Ana's Story: https://www.ms.org.au//16-september-2020-resilience-throug?

06.01.2022 Folks, see below a list of community resources and services available with links to their websites. Please reach out if you or someone close needs support:- Telecross this Red Cross initiative can provide a daily telephone call to check on people who live alone and are at risk of an accident or illness that may go unnoticed: https://www.redcross.org.au/ge/community-services/telecross Friends for Good a volunteer driven not-for-profit organisation that includes a Friendline...Continue reading

06.01.2022 https://multiplesclerosisnewstoday.com//new-immune-cells-/

05.01.2022 PPE funding for NDIS participants in NSW and Victoria Reprint from FREEDOM TO LIVE NEWS Kymberly Martin August 5, 2020 -------------------------------------------------------------------------- NDIS participants in Victoria and New South Wales will be able to claim the cost of personal protective equipment (PPE), including masks, in what will be a temporary funding arrangement.... With community transmission of coronavirus evident in both states and in line with current health advice, NDIS Minister Stuart Robert said the government was acting to ensure participants more at risk are supported to access PPE and continue to receive their disability supports. NDIS participants who have face-to-face assisted daily living supports can flexibly use their existing NDIS funds to cover the cost of the PPE they need to keep themselves safe, the minister said. We know that participants who receive face-to-face supports may be at higher risk of transmission, with daily support from their workers regularly involving close physical contact. Participants can use an existing support item (Low Cost Disability-Related Health Consumables) to claim on the cost of PPE for the times their worker is with them. In Victoria and NSW, the ability to claim for the cost of PPE will be extended to providers allowing workers to continue delivering essential disability supports to NDIS participants. Participants living in their own home who test positive for COVID-19 and are required to self-isolate or quarantine will also be able to claim for related cleaning costs. Existing measures that provide additional funding for providers of Supported Independent Living (SIL) where there is a confirmed case of COVID-19, as announced on April 27, will also be extended. SIL providers will now also be able to claim for higher intensity supports to cover situations where there is a potential COVID-19 positive case of a participant and they are required to self-isolate or quarantine. The announcement is in addition to existing NDIS participant-focused coronavirus response measures, including offering alternatives for face-to-face planning meetings to participants, plan extensions for up to 24 months following review and flexible use of funds to purchase low cost assistive technology. Further information on funding of PPE can be found at http://www.ndis.gov.au

03.01.2022 https://www.youtube.com/watch?v=1-eD-J8MLv8

03.01.2022 QUARTER OF A MILLION FUNDING LIFELINE OFFERED TO MS RESEARCHERS IMPACTED BY COVID-19 [from MS research Australia news August 2020] 19 August, 2020 Important multiple sclerosis (MS) research projects around Australia which risk non completion against the COVID-19 pandemic backdrop are set to receive a funding lifeline of $275,000 this month from MS Research Australia. The allocation of this financial support will enable research timelines to be extended by a further six m...Continue reading

02.01.2022 MS JobSeek (HREC ethics approval number 2019-206) The University of Adelaide is currently recruiting job-seekers with multiple sclerosis for a study. Participation will involve two surveys, an interview, and access to an online peer discussion group.... Participation is entirely voluntary. For more information, go to: https://www.surveymonkey.com/r/MS_JobSeek_screen

02.01.2022 If you are diagnosed with multiple sclerosis (MS) or probable MS (e.g. first demyelinating event or clinically isolated syndrome), aged 18 years or older, and l...iving in Australia, you are invited to take part in a survey about MS. For more information or to participate, please click the link or go to bit.ly/multiplesclerosissurvey The survey is about smoking, passive smoking and nicotine products. Even if you have never smoked, your responses will help to improve services for people with MS who do smoke. The survey will take between 10-20 minutes. Any questions? Contact the research officer [email protected] or 0421 679 154.

02.01.2022 https://twitter.com/MStranslate/status/1316643592694185984

02.01.2022 https://drive.google.com//1S64Xa-4n1pHgsp3Q1nvc3w_iE/view

01.01.2022 Video Game Therapy Shows Potential for Cognitive Gains in M.S. (Multiple Sclerosis News Today Newsletter, July 24, by Forest Ray) An interactive video game was more effective than a word game at improving processing speeds in multiple sclerosis (MS) patients with cognitive difficulties, and gains measured were longer lasting, a small clinical trial reports. These results were in the study A novel in-home digital treatment to improve processing speed in people with multiple...Continue reading

01.01.2022 Election Enrolment Website: https://enrolment.vec.vic.gov.au/