Telethon Kids Institute in Nedlands, Western Australia | Medical and health

Telethon Kids Institute

Locality: Nedlands, Western Australia

Phone: +61 8 6319 1000

Address: Northern Entrance, Perth Children’s Hospital, 15 Hospital Avenue 6009 Nedlands, WA, Australia

Website: https://www.telethonkids.org.au

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• Medical and health
• Non-profit organisation
• Medical research centre

24.01.2022 On this #RareDiseaseDay we'd like to say a massive thank you. Thank you to Charlotte and her family for sharing their story with us. And thank you to the generous donors who gave $1,164,000 at the 2020 Telethon Ball towards our Institute's research into rare and undiagnosed diseases. Your gift means incredible hope for children like Charlotte, and their families, our community and researchers who leave no stone unturned in the search for answers.... To support our continuing work into rare and undiagnosed diseases, head to our website and donate today.

24.01.2022 Great to kick off our #NAIDOCWeek celebrations today with traditional foods and a beautiful welcome to country from Noongar Elder Auntie Freda Ogilvie. Telethon Kids has a proud history of research and advocacy with Aboriginal families across WA. We commit to Aboriginal-led research that builds a strong, supportive environment and infrastructure to make a measurable difference to the health of Aboriginal children and families. #NAIDOC2020 #AlwaysWasAlwaysWillBe

24.01.2022 Great news! A national collaboration of infectious disease researchers, including our own Associate Professor Chris Blyth, Co-Director of the Wesfarmers Centre of Vaccines and Infectious Diseases, have been named as finalists for the country’s most prestigious science awards the Australian Museum Eureka Prizes. The collaboration, the Australian Paediatric Influenza Immunisation Research Group, has built upon a decade of scientific evidence to advocate for a nationwide childhood influenza immunisation policy for the first time in Australia’s history.

24.01.2022 From everyone at Telethon Kids, we wish you and your loved ones a safe, happy and healthy holiday season. We can't thank you enough for your support in this challenging year. Whether you've fundraised for child health, taken part in research, helped us celebrate 30 years, or simply been a part of this community, online or in-person - thank you. We look forward to sharing more child health research updates with you in 2021.

24.01.2022 Our Youth Mental Health team, in partnership with Minus18, is looking for LGBTQIA+ young people aged 18-25 to take part in an online self-compassion course. Find out more here: https://www.telethonkids.org.au/projects/MSC

23.01.2022 Congratulations to Professor Helen Milroy (Telethon Kids, The University of Western Australia, Perth Children's Hospital and Perth Children's Hospital Foundation) on being named joint winner of the prestigious 2020 Australian Mental Health Prize! Professor Milroy is a pioneering Aboriginal psychiatrist, researcher and mental health champion who is passionate about combining Aboriginal and western knowledge systems to improve outcomes. She shares the prize with leading psychiatrist and founder of the Black Dog Institute, Professor Gordon Parker.

23.01.2022 For the first time, the Telethon Kids Discovery Centre is offering workshops for kids during the Term 3 School Holidays! Designed for kids in years 3-6, the workshops cover a range of science and health topics, and include practical investigations delivered by one of our researchers and a visit to a working research lab. Workshops are $15 per child and are held at the Telethon Kids Institute, Perth Children’s Hospital. There are limited spaces available, so book today!

22.01.2022 Thanks to funding from The Pirate Ship Foundation, Telethon Kids brain cancer researchers have developed a new tool that could improve outcomes for children with radiation-induced glioma, an aggressive secondary cancer caused by radiation therapy. We have never been able to properly study this form of cancer in the lab before, and now we hope to be able to give more answers so no child or their family has to go through this again, said Dr Raelene Endersby, co-head of the Brain Tumour Research team.

22.01.2022 The Telethon Kids School Holiday Workshops are back on this January school holidays with a bigger and bolder program of fun and educational workshop for kids! Expect a range of fun, practical investigations delivered by our very own Telethon Kids researchers, covering topics in science and health. With most of the workshops quick to sell out last school holidays, make sure you secure your spot early to avoid disappointment! Visit the link below to view details of all our January workshops and how to book: https://discoverycentre.telethonkids.org.au//january-scho/

22.01.2022 For those with type 1 diabetes, the silly season presents some extra challenges when it comes to managing blood glucose levels. We asked nutrition researcher and dietitian from the Children's Diabetes Centre, Dr Amelia Harray, for her advice on how kids and teens can enjoy food and stay on track with managing their type 1 diabetes over Christmas.

22.01.2022 Do you know someone who has made a remarkable contribution to the lives of those living with FASD, their families and the community? If so, why not nominate them for the 2020 FASD Research Australia Community Award, hosted by our friends at FASD Hub Australia? Head to their website for the details: https://www.fasdhub.org.au/community-award/

21.01.2022 Are your kids turning to coffee or caffeinated energy drinks to help them study for their exams? Dr Gina Trapp says there's no safe level of caffeine for children and teens. Check out her top tips to help your kids stay energised in a healthy way.

21.01.2022 At just seven years old, Tenaya had to undergo life-saving emergency surgery to repair her damaged heart valve. The cause was rheumatic heart disease (RHD), a condition which disproportionately affects Aboriginal and Torres Strait Islander children. Now, through the power of collaboration between researchers, the Aboriginal Community Controlled Health Sector, clinicians and government, we’ve developed the RHD Endgame Strategy, a plan to eliminate rheumatic heart disease in Australia for good by 2031. Learn more at http://telethonkids.org.au/rhd-endgame

20.01.2022 Over at the ORIGINS booth, our intrepid young ORIGINS Explorers are going on a Milestone Adventure! - With Joondalup Health Campus Public & Private

19.01.2022 Have your kids been glued to their screens this summer? Leading cyber safety researcher Professor Donna Cross says what kids use their devices for is just as important as how long they spend on them. So when you're setting limits for screen time, consider what they'll actually be getting up to online.

18.01.2022 Rheumatic heart disease (RHD) is the leading cause of cardiovascular inequality for Aboriginal and Torres Strait Islander people. And yet, it’s completely preventable. Today, the END RHD CRE (based at Telethon Kids) has launched the RHD Endgame Strategy, which outlines how to better support those living with RHD and prevent the next generation of Aboriginal and Torres Strait Islander children from bearing the scars of this deadly disease. Because no child born in Australia today should die from RHD.

18.01.2022 Has your child been gaming during the holidays? If so, they may be using Discord to chat to their friends - or strangers. To find out more about Discord and how to help your child use it safely, download the Beacon app a trusted source of personalised cyber-safety information by Telethon Kids and Bankwest.

17.01.2022 Exercise is one of the main causes of low blood glucose for people living with type 1 diabetes. A new app from researchers at the Children's Diabetes Centre at Telethon Kids and Perth Children's Hospital aims to make it easier for those with the condition to exercise safely by advising on when and what to eat, when to have insulin and when to check blood sugar levels.

17.01.2022 Thanks to all the schools who took part in our fantastic term three 'Meet a Researcher' pilot program! Our awesome researchers visited 15 primary schools to share what they do to help kids lead happy and healthy lives. Students got to make slime to learn about the biofilm that causes ear infections, create their own ‘blood’ sample using household materials, learn about the importance of sleep, play the role of a fighter cell and more! If you’d like to bring science to life at your school, we’re extending our free program for term four. Visit our website to learn more: https://discoverycentre.telethonkids.org.au//book-a-schoo/

17.01.2022 Next week, many of our school leavers will be heading down south or across to Rottnest to celebrate the end of their school days. This can be an anxious time for parents who may be concerned about their child being hurt due to alcohol. It's never too late (or too early) to talk about alcohol, so our researchers from the Supporting Family Conversations project have shared some tips on how to talk to your teen before they head off to Leavers.

16.01.2022 We might not want to think about our children dealing with creepy people online. For many parents, it's the scariest thing about our child's digital life: we're not always going to be there with them, and we can't control other people's interactions. Instead, we need to arm our kids with information. For help with tackling tough conversations like this, download the Beacon app a trusted source of personalised cyber-safety information by Telethon Kids and Bankwest: https://beacon.telethonkids.org.au/

16.01.2022 Meet the Castillos the ORIGINS Project’s 4,000th family! A collaboration between Telethon Kids and Joondalup Health Campus Public & Private, the ORIGINS Project is in its third year and is well on the way to reaching its goal of recruiting 10,000 families over a decade. The Castillo family, featured on the front page of the Joondalup-Wanneroo Times/Weekender today with five-year-old Liam and ORIGINS bub Hope, say Contributing to the future health of kids and adults in our own small way is something we feel proud of.

16.01.2022 Is your child going into year 7 this year? The transition to high school could be a good opportunity to start a conversation about alcohol. Talking openly and setting boundaries now can help children navigate new experiences and challenges more safely, and provide them with security and certainty.

16.01.2022 Associate Prof Asha Bowen, infectious diseases clinician-scientist at Telethon Kids and Perth Children's Hospital, was named the nation’s Emerging Leader in Science at the Australian Museum Eureka Prizes last night! Asha’s dedication to ending skin disease has driven breakthrough knowledge and policy change that is transforming clinical care for Aboriginal children living in remote communities, said Professor Fiona Stanley. Congratulations Asha!

15.01.2022 Every year, close to 1,000 children and adolescents will be diagnosed with cancer in Australia. This Childhood Cancer Awareness Month, we asked some of our dedicated researchers from the Telethon Kids Cancer Centre about what drives them, and why they've dedicated their careers to finding hope for children affected by cancer.

15.01.2022 Our researchers want to understand how lung function in children with neuromuscular disorders is different. The Telethon Kids Children's Lung Health team is looking for healthy kids aged 5-16 to help us find out by taking some easy lung function tests and answering questionnaires. Help us find a better way to monitor breathing difficulties in kids with neuromuscular disorders - register your interest here.

15.01.2022 Research shows that 25-50% of school-aged children who were born very preterm have had at least one occurrence of wheeze, excessive cough and/or exercise limitation in the past 12 months. If you are the parent or carer of a child born very preterm, our Children's Lung Health team would love to hear about your experiences in this quick poll! Your answers will help us understand what we should focus on to make things better for the preterm community.

15.01.2022 Thanks to a generous Healthway grant, an Aboriginal-led program which uses equine-assisted learning to enhance the social and emotional wellbeing of young Aboriginal people in the Kimberley will continue for another three years.

15.01.2022 Our researchers have commenced an exciting new study with the aim to learn more about the earliest features of autism. Watch the video to learn more, and visit our website to find out how you can get involved!

14.01.2022 We are thrilled to announce that our Head of Skin Health, Associate Professor Asha Bowen, has been announced as a finalist for the Australian Museum Eureka Prizes 3M Emerging Leader in Science Award. Described by Professor Fiona Stanley AC, founding Director of Telethon Kids, as an exceptionally bright, world-class clinician-scientist, the highly respected mentor has been recognised for driving new research designed to reduce the heavy burden of skin infections for Aboriginal children living in remote areas.

14.01.2022 A huge thank you to Mrs Praveena Mittal, one of the teachers at Lathlain Primary School, for shaving her head to raise funds for Telethon Kids! Earlier this year, Praveena’s 2 year-old granddaughter became suddenly and critically unwell with a bacterial infection in her spine. After weeks of being in hospital, hooked up to bottles of antibiotics, and months of wearing a half body brace, she is now infection free and has made a full recovery. In Praveena’s words, ‘none of this would have been possible without amazing medical research that makes it easier to diagnose and treat patients’. Thank you Praveena and the Lathlain PS community!

14.01.2022 Our friends at FASD Hub Australia have some great resources about alcohol and pregnancy. Check out their FAQ to find out how to make safer choices for you and your family this festive season.

14.01.2022 Did you hear our own Professor Donna Cross on ABC Perth Focus last week? Catch up on the conversation about early intervention and how we can help make sure kids are ready to start school here.

13.01.2022 Charlotte is under the care of 18 specialist teams - but no one has any answers for what disease or condition she might have. No name, no prognosis, and no evidence-based therapies that could help her. Thousands of WA children like Charlotte are living with undiagnosed diseases, caused by tiny, unique variations in the DNA. At Telethon Kids, we're at the leading edge of genomics research, with the specialist teams and technology to detect these DNA variations and help solve some of these challenging medical mysteries. Learn more: https://www.telethonkids.org.au///october/whats-in-a-name/

11.01.2022 Put a stop to digital meltdowns when screen time is over with these great tips from ySafe Cyber Safety Expert Jordan Foster. For more tips to help your kids have a positive experience with technology, download the Beacon app a trusted source of personalised cyber-safety information by Telethon Kids and Bankwest: https://beacon.telethonkids.org.au/

10.01.2022 A new Telethon Kids study, supported by the Life Course Centre, has found there's more than formal assessments to consider when determining whether a child is ready to start school. Researcher Daniel Christensen said the study had shown that other factors such as a child’s family, home environment and local community were just as important and should be part of the mix when working out how ready a child was for school and whether they needed extra support.

10.01.2022 Two-year-old Lucy lost her fight against flu in 2019, and her story inspired vital influenza research here at Telethon Kids. Now, Lucy's family are participants in the FluBub study in her honour, with the hope that, one day, no family will lose a child to flu. Learn more about the study: https://infectiousdiseases.telethonkids.org.au/flubub

10.01.2022 Shine a light on the online world with Beacon. An educational cyber security app developed to help families across Australia.

09.01.2022 Happy International Day of Women and Girls in Science Day from our fabulous female researchers. It’s a day to celebrate the incredible women we work with and encourage the next generation of scientists. Here’s to #womeninscience

09.01.2022 CONNECT, our new community club, has reached 100 members! We started CONNECT so we could acknowledge, thank, and reward community members for their contributions to our research, and it’s been fantastic to see it grow so fast. If you’re taking part in activities at Telethon Kids (like participating in research, sitting on a reference group, volunteering, fundraising or donating), we’d love for you to join find out more here: https://www.telethonkids.org.au/connect... Read about Catherine, our first CONNECT member and why she joined.

08.01.2022 "My hope for Australia is that we become, from this pandemic, a more caring country." Check out this uplifting interview with our Patron, epidemiologist Professor Fiona Stanley, from ABC TV 7.30. Professor Stanley shares her experience of growing up during the polio epidemic and reflects on Australia's response to COVID-19.

07.01.2022 If you’re at the Telethon7 Perth Family Festival, don’t forget to stop by the Bright Tomorrows booth (opposite the showbags) to download the app and enter the draw to win family passes to the WA Maritine Museum, Scitech & AQWA.

06.01.2022 Most children get anxious from time to time, but if it’s not going away or stops them from enjoying activities, it could be time to seek help. Telethon Kids Institute’s Dr Monique Robinson has this advice for parents and carers.

05.01.2022 Our Discovery Centre + Schools pilot program is back for Terms 1 and 2 this year! Open to students in years 3-6, our hands-on and interactive school excursions cover topics in science and health, including learning about DNA, respiratory health and diabetes. This is your last chance to participate in the excursion at no cost! Find out more and download a flyer to share with your school here: https://bit.ly/37nVxRf

05.01.2022 We're back! Our page has been looking a little blank for the past few days, but we're happy to say that all our content has now been restored. For an alternative way to keep up to date, why not sign up to our mailing list? You'll receive a monthly update with all our latest research, involvement opportunities, events, and parenting advice; as well as the odd additional email if we have something extra exciting to share.

05.01.2022 Recently in the UK's Daily Mail, TV journalist and author Dr Michael Mosley spoke about Telethon Kids very own Miss Fix-it, Professor Desiree Silva. Prof Silva is Co-Director of The ORIGINS Project, a collaboration between Telethon Kids and Joondalup Health Campus Public & Private. Dr Mosley presents ORIGINS as an example of critical research that is helping us to understand the reasons behind the staggering rise in rates of childhood obesity, allergic diseases such as eczema, asthma and food allergies, as well as diabetes and heart disease.

04.01.2022 In this hard-hitting interview from Tall Poppy Campaign, two intrepid young reporters, Zac and Eliana, spoke to our Head of Skin Health and Perth Children's Hospital clinician Dr Asha Bowen about life as a scientist, her work to reduce the burden of skin sores, and... camels? Have a watch!

04.01.2022 We were pleased to welcome the Hon Kim Beazley AC, Governor of Western Australia, to Telethon Kids this morning for a tour. The Governor visited the Discovery Centre and met some of our leading mental health, cancer and COVID-19 researchers to hear about their work. (Government House Western Australia)

04.01.2022 With the beginning of a new school year comes the return of the daily lunchbox dilemma. Are sandwiches OK? What foods should I avoid? What if they come home with a full lunchbox? Here are some top tips for a healthy lunchbox that will give your child the energy they need for a day filled with learning and play.

03.01.2022 Look who stopped by! It’s our Chair Julie Bishop and Director Prof Jonathan Carapetis helping out with some experiments at the booth.

03.01.2022 In a new study led by Professor Jenny Downs, Telethon Kids researchers have found a clear link between community participation and better quality of life for children with disability. While these findings may seem to be common sense, what we’ve been able to do for the first time is to actually quantify the difference this kind of intervention can make to quality of life," said Professor Downs.

03.01.2022 It's a really tough year to be completing year 11 or 12 exams. If your child is avoiding studying for their final exams, it could be because they feel stressed, anxious or overwhelmed. Telethon Kids clinical psychologist Dr Keely Bebbington has some top tips for parents to help teens manage exam stress.

02.01.2022 By asking questions and seeking out the answers, our research will continue to change lives - so that more kids, can be kids.

01.01.2022 World-first research by the Malaria Atlas Project, based at Telethon Kids and Curtin University, has revealed major inequalities in access to healthcare around the world, finding 3.16 billion people who can only travel by foot are unable to reach a healthcare facility within an hour. A decade ago we couldn’t have done this because the data just didn’t exist, said lead researcher Associate Professor Daniel Weiss. This is a great example of big data enabling us to understand and visualise important health issues in ways we couldn’t demonstrate before."

01.01.2022 Does your child have a peanut allergy? Are they under 4 years of age? We are looking for young children with a peanut allergy to participate in a new study to evaluate a novel desensitization method (Viaskin Peanut patch). Follow the link to find out more and get involved.

01.01.2022 In 2013, we launched our first Aboriginal Commitment, which was a significant moment for Telethon Kids. Since then, we’ve been embedding Aboriginal research in all that we do. On Saturday in Kaarta Gar-up (Kings Park), overlooking the Derbarl Yerrigan (Swan River), we launched our new Commitment to Aboriginal Children and Families 2020-2023. We will prioritise our partnerships with Aboriginal families and communities across Western Australia and beyond to improve the health and development of their children. We will not ignore, nor accept, the continued disparity in outcomes for Aboriginal kids compared with other Australian children.