The Melanoma Man | Community
The Melanoma Man
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25.01.2022 Adele who recently had lymph nodes removed from armpit and pelvis because of melanoma and on immunotherapy treatment had a pet scan last week and its showed a hot spot where her lymph nodes were removed just a few months ago. Lets send Adele some prayers and positive vibes that her biopsy performed this week will show that its not cancer. Hi Jay, Results are not as clear cut as I had hoped from pet scan. There is an area of high activity near my right axilla. We wont ...know for certain if its cancer until we investigate further. So ANOTHER biopsy this week. I was SO hopeful for a clear result but Im left feeling frustrated that we have to continue investigations. To say Im over this is an understatement. Im so desperate for a break. And all I want to do is see my family. It doesnt look like any of these will be happening soon. #pleasegivemeabreak #pleaseletitbeclear #nervousandanxious Adele See more
25.01.2022 Your prayers have worked! Ashleigh Simrajh just 23 years old who lives on the Gold Coast and has terminal melanoma, is GETTING MARRIED THIS SATURDAY!!! This week Ashleigh also received a personal letter from the Prime Minister of Australia Scott Morrison (ScoMo). Ashleigh we send all the best wishes to you that your big day this week is the best day ever. Here is some virtual flowers from all of us X Wanted to send a message to you, our melanoma community and say thank yo...u!! as we were inundated with messages of support for Ashleigh, so many of you wanted to donate everything from wedding dresses, hair and make up, beauty treatments, YOU ARE JUST AMAZING! I know Ashleigh, husband to be Jason, dad Tony and all the family want me to pass on their sincere thanks also JAYX If you would still like to donate to Ashleigh and Jasons big day here is the link - https://www.gofundme.com/f/d8wx3-ashleighs-cancer-journey
24.01.2022 This post will break your heart. Ashleigh Simrajh is just 23 years old lives on the Gold Coast and has advance melanoma with tumours throughout her body. Doctors have said Ashleigh has just weeks to live But this beautiful lady has one thing left to do and that is to marry the love of her life Jason. Please send all the prayers, strength, you have got and if you can, lets share this post and Ashleighs go fund me link, so her family can raise enough money to give As...hleigh the wedding that every girl dreams of. I wish there was more we could do, its terribly unfair. JAYXx https://www.gofundme.com/f/d8wx3-ashleighs-cancer-journey Ashleigh wants everyone especially young people to #getaskincheck but also to get a second or third opinion if you are still not sure or concerned about an odd looking spot or lump. TODAY
23.01.2022 Lets lift Emmas spirits right now as our beautiful friend only 30 years old is back in hospital sadly with meningitis of the spine and brain. Just a few months ago Emma had melanoma tumours removed from her brain, small bowel and had her right side fallopian tube and ovary removed. I refuse to let melanoma beat me!! Emma My melanoma journey started back in 2018. I had a large part of my ankle removed from a large melanoma growth.
23.01.2022 Did you know its Spring Giving Day today AND for the next 24 hours every dollar donated, will be matched by generous sponsors WITH ALL FUNDS RAISED GOING DIRECTLY TO MELANOMA RESEARCH so a cure can be found at the Australian Melanoma Research Foundation Donate now to have your donation DOUBLED!! https://www.charidy.com/AMRF This means that your donation will make TWICE the difference.... Lets do this! #AMRF #springgivingday2020
23.01.2022 If you read this post lets show our mate Adele who recently had lymph nodes removed from armpit and pelvis because of melanoma some love right now, as she is back in a Hong Kong hospital with high heart rate, vomiting, shivering and aching. When life gives you a million reasons to break down and cry, I show that I have a million reasons to smile..... Im back in hospital. Yesterday morning I woke vomiting, shivering, high heart rate and aching. After a few hours I was admitted to hospital with sepsis after a skin infection. I will likely be here for the next few day. I just cant catch a break. Adele
23.01.2022 You may remember our mate Laurie Thompson from the Illawarra who defeated stage 3 melanoma and then sadly was diagnosed stage 4 brain cancer. Very sadly treatment has now stopped If you read this, please let’s show Laurie that we care right now too. It’s just not fair
22.01.2022 Brilliant news again for Jason Wells pictured here having immunotherapy treatment today in Victoria. Jason had 4 melanoma tumours in the brain and 1 in the left armpit December 2018 but todays scan results are in! NOW 12 MONTHS CLEAR!!!! Its been tough for our mate, lets show Jason and family we care. Wouldnt be where I am without my beautiful wife Kara and the kids. Big thank you to my amazing family and friends that have supported me over the years. It means so much. Jason
22.01.2022 A special article about our mate Rick Worthington who is battling melanoma with tumours in the brain. Lets send continued prayers and strength to this legend. On our 2000km, 50 day melanoma walk from Adelaide-Sydney last year Rick Worthington walked 40kms on immunotherapy treatment, must have stopped at every service station we walked past as he was suffering from severe side effects but this didnt stop this champion. I will never forget. I said to Rick mate, jump in one of the support cars, he said, NO WAY! Cancer doesnt stop, what about the patients in hospital right now, and with that Rick then powered on , conquering! We love you mate! Bloody legend Rick!!! JAYX
22.01.2022 Tomorrow it will be 8 months since Megin Davies from Brisbane was diagnosed stage 2 melanoma after a beauty spot was removed from her face. With many emotionally tough days had, lets show our friend that she looks beautiful and we care right now. My cheek needs daily oils twice a day and I take collagen tablets to help the healing. It gets twitchy and stiff still. And the emotional side of it all is the worst tbh. When u see ppl try and look without looking. The dating side... of it all omg I get hella nervous meeting a guy for the first time. Then my mind reminds me that cancer is in me for life now and if I let him get close I could break his heart in the worst way possible if cancer takes me so I push them away. That's a roller-coaster and a half and a battle in my heart and head almost daily with myself. But All of this could of been avoided if I just stopped putting myself last. If I didn't ignore that beauty spot getting bigger. If I took 1 day out of my life just for myself for a change and got it checked years ago it could have been removed before it got to the stage it did. So as we all know already do ur skin checks. Have your me time. Put ur health before others, otherwise u could end up scared for life physically and emotionally. I really appreciate all of the support I’ve had from you all and please tell everyone to #getaskincheck Megin Davies
21.01.2022 3 years ago tonight the lovely Ruby Stead received a phone call that would change her life. Melanoma was in her lymph node. Since this time melanoma has sadly spread to her liver, bones, lungs and today Ruby is almost clear of melanoma. Lets show we care right now. This great lady supports so many going through the melanoma journey and is one of the most amazing, caring, humans you would ever meet. Today on my cancerversary, I give thanks, I am blessed beyond measure. ...I am well, Ive had a near complete metabolic response to my treatment, I am slowly getting back to a normal life and Im here to see my Son turn 10 tomorrow. Melanoma is deadly and at best, the worst kind of rollercoaster you can imagine. A special mention must go to my partner Steve, who has been holding me up since this day 3 years ago, I couldnt have done it without him, he has been as solid as a rock and I love him and my Sonny (my Boys) to infinity and beyond Ruby Follow Ruby on her Facebook page Rubys New Normal - Life with Stage IV Melanoma See more
20.01.2022 6 years ago today we lost this legend of a bloke and a real good mate Herman Herlaar to melanoma. I miss you a lot, we will never forget you brother. JAYX
20.01.2022 Brisbane today presenting to The Downer Company - Spotless on all things to prevent melanoma. Many hands went up at the end of the presentations promising to follow the 5 ways of protecting yourself during the hottest part of the day and tonight at the dinner table the conversation is going to be, let’s book in and #getaskincheck I am super keen to educate the world on all things how to prevent melanoma. If you would like The Melanoma Man to present to your business, work or school, either in person or via zoom. Shoot me an email [email protected] JAYXx
20.01.2022 Here is our little mate Nora who lives in the USA just 5 years old who very sadly still has melanoma tumours in the lungs and various other parts of her body, having her 112th immunotherapy treatment. Nora is feeling good, and is smiling under that mask Thank you everyone for all the love! We are hoping next scan will be even better then last. Noras mum #lovefornora #findacure #wearamask #pediatriccancer
19.01.2022 Eric Martin here with beautiful mum Penny is really sick and needs our prayers right now as he is having 5 days of radiation to the abdomen THAT HAS TO WORK!!!!or sadly his options are running out. Eric has huge melanoma tumours on each adrenal gland that are causing the kidneys to fail and a huge tumour on the liver that is causing the liver to fail. If you read this post please send prayers, strength, that it will work. Erics words below will just break your heart Im... really hesitant about making this post but I feel its probably time. We just found out I have some really big tumors in my abdomen and a few more in my brain. Treatment options are about to run out and we fear some organs may already be slowing down. This has been a long wild ride full of so much experience so much love so many challenges, ups and downs. I honestly admire and value everything I went through and thank god for the time Ive been given. God has given me so much strength faith and love and I pray that if the transition comes god please make it as painless and as Easy as possible please take care of my wife and kids that I love more than the world! Anyways sorry to lay this out in public like this I know its a lot but Ive shared everything else over the years why not this? Thank you everyone who has stuck with me through this and helped me build from it. Leaving something behind like the organisation Ive created called - Stage Free Melanoma makes me feel like no matter what its a victory! Im really down right now but Im not out. I still have huge faith In a miracle. God we really need a miracle!!! All my Facebook friends and fam please take a minute and pray for me and my family!!! Thank you Eric See more
19.01.2022 Our mate Rick Worthington is going through the toughest of times right now. Sadly Rick has two melanoma tumours on the brain, severe side effects from recent radiation and another tumour on the right hip where he had a hip reconstruction last year. This bloke is an absolute legend. Lets show Rick and partner Rach that we care right now. It wasnt that long ago that Rick had other tumours in his body, chest cavity- trachea area, lungs and behind the intestines which were treated with radiation and various drugs that responded well. We are all with you Rick and Rach. For life X JAYXx
19.01.2022 This Wednesday 23rd December, just 2 days before Christmas, Matthew will say goodbye to the love of his life, soul mate, beautiful wife Clare Grady-Lennon who sadly passed away to melanoma 5 days ago. If you read this, please let’s show Matthew, the children, all family and friends that we care. One of my favourite photos, and please thank everyone for all of their support. It has meant so much. Matthew
18.01.2022 If you read this post, lets show Carrie-Ann from Dubbo, NSW that we care right now as this beautiful human sadly has melanoma tumours in pelvis, shoulder blades, groin, abdomen, chest wall/breasts, arms and is about to start a new clinical trial that HAS TO WORK!!! Carrie-Ann is just 42 years old. In September 2017 I was diagnosed with stage 3 melanoma, after my GP removed a mole from above my right knee. On the 19th December that year I under went a right inguinal node di...ssection and given the all clear. At my 6 month check up in June 2018, I was diagnosed with stage 4 melanoma- much to my surprise. I was BRAF negative. August 2018 I began a trial (Nivo+placebo v. Nivo+anti lag 3) with poor results. June 2019 began Nivo + Ipi. Got through 3 doses before severe side effects and poor results. October 2019 I had some surgery - a bowel resection and the removal of another large groin mass. November 2019 began Platform trial (Ribociclib tablet + Spartalizumab infusion). After poor results and more activity in March 2020 I finished the platform trial and began Lenvima tablets in conjunction with Nivo infusion. Had scans on the 10th June, which, NOT surprisingly showed lots of activity once again. We decide to finish the regime and use the time to decide whether I will pursue chemo or a new trial. At this point I have tumours in my pelvis, shoulder blades, groin, abdomen, chest wall/breasts and arms. I have decided I am not ready to go down the chemo route yet, even though my options are lessening. The new trial will be a big commitment for this country NSW girl (Dubbo) to Sydney, away from my 16 year old autistic daughter, my partner of 2 years, and my bucket list puppy, but its something I have to do. I am well at the moment, apart from some increasing pain. I have amazing support from my Mum and Dad, who we live with (and my Mum has stopped work to care for me and run me back and forth to Sydney) and all my other family and friends. Heres hoping I have some luck with the new trial. Carrie-Ann Xx See more
18.01.2022 CLEAR SCAN results just in for our dear friend Jenny Thulborn who has had 8 melanoma tumours in the brain, tumours in lungs, many treatments, operations, radiation, AND HAS NOW BEEN CLEAR FOR 4 years!!!! HOW GOOD IS THAT!! This beautiful lady has been through so much, including losing her brother to melanoma in 2010. JAYXx
17.01.2022 This beautiful lady Emma Betts very sadly passed away to melanoma in 2017 and would of turned 29 today. Happy Birthday mate! Prayers, strength to Emmas husband Serge, parents Leon and Tamra and all family, friends, on this tough day. We miss you Emma JAYXxx
16.01.2022 With my mate Matt Love who had 3 melanoma tumours in the brain and has now been clear for almost 5 years. Right now Matt from Port Macquarie is in Sydney having scans done. If you read this post please wherever you are in the world, send prayers, strength, good vibes Matts way so all will be ok. Such an anxious time going for scans and waiting for results. Matt is always advocating for everyone to #getaskincheck and always get a second opinion if still worried. Michelle - Matts wife
16.01.2022 January 2017 just 3 months after being married Leah Debono sadly passed away to melanoma only 29 years old. Today it would of been Leahs 33rd birthday! Happy Heavenly birthday Leah. Lets send continued prayers and strength to Leahs husband Ben, mum Heather, dad Lex, sisters Nadine, Esther and all family and friends. JAYXx #getaskincheck
15.01.2022 Ruby Stead lives in Canberra and has had the toughest last few years because of melanoma. Immunotherapy treatments, operations, severe side effects, tumours in liver and lungs. But latest scan results show the 2 tumours in bones remain stable, some scar tissue and everything else all clear! Continued prayers and strength our dear friend Ruby Follow this beautiful lady on #Facebook - Rubys New Normal - Life with Stage IV Melanoma JAYXx
15.01.2022 Let’s show we care right now as our little mate Nora, 5 years old, has just had immunotherapy infusion treatment number 117 to defeat the melanoma tumours that are sadly still in numerous parts of the body including lungs. On our way home from the hospital. The days are long, but so grateful for where we are. Really appreciate all of the support you continue to give us. Nora’s mum #lovefornora #findacure
15.01.2022 Today we said see ya later to Rick Worthington An emotional service for an an absolute legend of a man who sadly passed away to melanoma on 5th September 2020. Last year we walked 2000kms in 50 days Adelaide to Sydney and this video is a highlight from the day Rick walked 42kms while on treatment. Rick was not well because of the immunotherapy side effects but this didnt stop the champion, he conquered ! Such a humble, tough, man who will be missed. R.I.P brother until we meet again. MASSIVE THANKS TO Stronghold Productions To Ricks partner Rachel de Gunst and family. You have our support for life. X
15.01.2022 If you read this post PLEASE send all the strength, prayers, vibes, whatever you got to Clare Grady Lennon who lives in the UK and has just been told that she may have just months left to live, because of advance melanoma cancer Clare sadly has over 30 tumours in the brain and throughout the body. Been a really bad few days. My cancer nurse told me that Im looking at months left to live. Its broke me in pieces. Ive not been able to cope with this and ended up in ho...spital with panic attacks. They told me I had swelling around 1 of the tumours in my brain which was giving me the head aches and ended up turning into a mini seizure, Im trying to look at the positives but Im finding it really hard at the moment, they have put me on steroids to reduce the swelling which Im not looking forward to the side affects again, as I know full well what there like. Please pray for me and my family for a miracle treatment or something. Clare See more
13.01.2022 Our dear friend Carrie Ann from Dubbo who sadly has melanoma tumours in pelvis, shoulder blades, groin, abdomen, chest wall/breasts and arms has started her new immunotherapy trial in Sydney and has had a few tough days because of side effects. This treatment WILL work Carrie Ann!! AND WE ARE SENDING CONTINUED PRAYERS AND STRENGTH, RIGHT NOW TO YOU!!! JAYXxx
12.01.2022 Darren and Kaela live in the UK have 5 children and very sadly Darren has 9 melanoma tumours on his brain, and various other tumours in lungs and near the heart. Last scan showed 2 new tumours and 1 had grown significantly. If you read this, let’s show that WE CARE AND SEND ALL PRAYERS AND STRENGTH right now. Wondering if you could ask for prayers and well wishes for my husband. He had a mole removed in 2014 from the top of his head. Then started having headaches in May 2020, and was diagnosed with stage 4 melanoma within hours of going to urgent care. The targeted therapy treatment is working well on the tumours in his body but not so well on the ones in his brain unfortunately. He had his first seizure on the 27th November and has had 1 mini one since then. Would really appreciate the support. Kaela Xx
11.01.2022 Scan news just in! Grant Lawrence from Nambucca Heads who had melanoma tumours in lungs, spine, and liver has just informed us that his scan results say - NO EVIDENCE OF melanoma!!! Grant has now been clear for 4 and a half years!!! Soo happy for you mate!! JAYXx
11.01.2022 Our dear friend Clare from the UK who sadly had advanced melanoma with hundreds of visible tumours all over her body, including over 30 tumours in the brain has sent this photo through and tells me that she is feeling really good on her chemotherapy treatment and is hoping this is a good sign and that next scans will be great news. Clare WE ARE WITH YOU!!! xxxxx JAYXxxx
09.01.2022 A brilliant human sadly passed away to melanoma today. THE LEGEND Rick Worthington. Such a top bloke and a mate. Its terribly unfair Condolences to partner Rach, all family, friends and Ricks team Worthington racing at this very sad time. JAYX
09.01.2022 Here is our little mate Nora just 5 years old on her way to have immunotherapy treatment for stage 4 melanoma cancer. Nora very sadly still has melanoma tumours in the lungs and various other parts of the body. If you read this post, please send continued prayers and strength that the treatment will work . JAYX #lovefornora #findacure
08.01.2022 Our dear friend from Hong Kong Adele has left hospital and is now back home with her family! Such great news Adele was admitted because of high heart rate, vomiting, skin infection and shivering but now everything is back to normal. An MRI scan of the brain was performed also and was CLEAR of melanoma! We are so happy for you mate Adele recently had lymph nodes removed from armpit and pelvis because of melanoma. JAYXx
06.01.2022 Our mate Eric Martin has now been moved to Hospice, there is nothing more that can be done. This bloke is a bloody legend, he has raised awareness, funds for melanoma research and supported many others going through this terrible disease. Lets pray and send all the strength in the world to Eric, his wife, sons and his beautiful mum Penny. Its not fair JAYXx
06.01.2022 Ashleigh Simrajh just 23 years old and who very sadly now has been told she may have just days to live because of advance melanoma cancer had her dream come true and got MARRIED YESTERDAY!! Ashleigh got through the ceremony so well but burnt all her energy and slept most of the reception. We wheeled her and the groom Jason in on a bed as she was so tired. Also we would like to thank everyone for not only their donations but the messages of support and love as well Tony Simrajh - Ashleighs Dad.
06.01.2022 Heartbreaking news our dear mate Laurie Truck-ken Thompson has sadly passed away to brain cancer. Such a real top bloke who was also diagnosed stage 3 melanoma 5 years ago. All condolences to partner Rhianna, 1 year old son Hugo, mum and dad, sisters and all family and friends. It’s not fair We will miss you brother Laurie. JAYX
03.01.2022 Tash was diagnosed advance melanoma in 2015 after the birth of baby Marley with tumours in liver, stomach, small intestine, hip bone, many operations, treatments, diagnosis was very poor. But!! Yep scan results are in. Our beautiful friend is now 4 years CLEAR OF melanoma!! Congrats Tash, husband Grant and daughter Marley!! Hi Jay, Ive just received my PET scan results and can officially celebrate 4 years No evidence disease with CLEAR SCANS!! Diagnosed 5 years ago I s...tarted on targeted therapy drugs Dabrafenib & Trametinib, followed by two years of immunotherapy drug Keytruda. Im so pleased to say I have been off treatment now for almost three years as my last IV was October 31st 2017. Its a victory for me today and I quietly celebrate with all my Melanoma friends in mind. Sending hope and love to all!!! Tash Follow Tash on her Facebook page MarleyGrace Magnesium See more
02.01.2022 A really special day today for our mate Clare, a young wife, mum of 3 young kids under 10, and who sadly has advanced melanoma with hundreds of visible tumours all over her body, including over 30 tumours in the brain. Its her birthday! The HAPPIEST BIRTHDAY TO YOU CLARE!!!!!! Here are some flowers from us JAYXxxx
02.01.2022 Clare who sadly has over 30 melanoma tumours in the brain and through-out the body and was sadly told she may have months to live wants to thank everyone for the support since being told the devastating news. I couldnt stop crying so my husband, the kids and I got in the car and drove 10 hours to visit family in Cornwall, UK I was breaking, so we just left! Ive cried a lot (hidden from kids!) this past week but they have seen a few tears too Ive taken some big breaths and back to pull myself back together. Yesterday I found out a friend of mine has died from a heart attack. The shock! It just proves that we really dont have a bloody clue. How can he be gone before me? Im ill, he wasnt! This is a crazy old thing we call life so please enjoy every day you can. This is a blessing xxx Clare xxxx
02.01.2022 Grant Lawrence has been clear of stage 4 melanoma for over 4 years after having tumours in lungs, spine, liver and today had scans in Sydney and gets results tomorrow. Grant this community is with you mate!! All strength and prayers that your scans come back clear. JAYXx
02.01.2022 PATHOLOGY IS ALL CLEAR from my recent wide excision and various other moles that were cut out. Skin checks every 3 months from now on. Thank you so much for all of your support over the last month. Our community, YOU! Are awesome!!! Lastly, start a conversation this weekend with someone and tell them to #GETASKINCHECK JAYX
01.01.2022 This legend Rick Worthington got great scan results today, his 3 melanoma tumours in the brain have stopped growing!!!! Rick has spent past few weeks in Rehabilitation learning many things including how to walk again after melanoma tumours were removed from the brain just 1 month ago. Sadly the tumours returned including one in his brain stem and he has been having radiation treatment. If you read this post please lets come together like our community does and show Rick and partner Rach that we care too!! Really good news. The tumours have stopped growing for now. Theyre going to keep a very close eye on them so another scan in 4 weeks. So happy as they dont appear to be radiation resistant so theres every chance the small one in the brain stem will go with the radiation. We are very happy right now Rach and Rick
01.01.2022 #Getaskincheck
01.01.2022 Heartbreaking our dear mate Eric Martin has very sadly passed away to melanoma. Eric did so much for the melanoma community across the world. Condolences to Erics wife, sons, mum Penny and all family and friends. We are here for you. Its terribly unfair . JAYXx
