Chaysing Hope | Non-profit organisation

Chaysing Hope

Phone: +61 415 189 217

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23.01.2022 WOW 200 followers!! Thank you everyone for your support. Much love to you all!WOW 200 followers!! Thank you everyone for your support. Much love to you all!

23.01.2022 We’ve reached $20k!!! Thank you so so much to all our supporters. It’s so exciting to see everyones response to Chayse. We are so grateful

22.01.2022 April 12 is awareness for Chayses rare disease COLA41. also known as Gould syndrome. As we are unable to spread awareness in a public, I ask that you watch and share her condition and to also give you all an understanding of the challenges Chayse has/is/will face. Not much is known about this and the small amount of people this affects (worldwide approx 250-300). Chayse has a massive journey ahead of her still and the future is unknown. Please share and if possible, donate t...o her GoFundMe page. We cannot do what we planned to raise funds and awareness. This is Chayses day, help her celebrate her uniqueness, courage and strength. Stay safe and healthy all. Much love and gratitude.

21.01.2022 New seating trials

20.01.2022 My beautiful light of my heart turns 6 today. Her light, love and strength has no bounds. Her potential has no bounds. through all the surgeries, challenges and therapy, you show us the meaning of determination. the statement "I can and I will" is your essence and what you present to us everyday! How can we not follow your footsteps? You are the teacher and I will forever be your student and forever in awe of you. We love you so much and let's see what one more year will bring. Love, Dada, Mum and Jax.

17.01.2022 Sending out some positive vibes...don't worry, be happy My baby is happy and loved, what more is there? Stay grounded and be kind Spread the vibe, post a version of this song on this page, to spend some love back to Chayse

13.01.2022 Chayse is able to ride and exercise her legs, thanks to all of you that contributed to her GoFundMe page. This allows her to be included and to use her legs. This is a secondhand trike, custom and still $500! She loves it!!!

13.01.2022 https://www.gofundme.com/f/i-support-someone-rare

12.01.2022 Happy 6th Birthday to beautiful Chayse!! Growing up be a strong, confident and clever little miss everyday. Love you

06.01.2022 Throughout all the dramas around us, this child keeps us centered and grounded. Chayse keeps us focused on what is really important. We are blessed with a home, food, love, happiness and health. This time was a difficult transition for us and for many others. But we do what we can. Hope this makes you smile.

05.01.2022 $22K to help my baby girl. Thank you all, it means so much. I am grateful and blessed. https://www.gofundme.com/f/i-support-someone-rare?

02.01.2022 Happy birthday to my big brother Jax, my best friend and who loves me unconditionally. Thank you for being the best brother, ever. I love you too much, love Chayse

01.01.2022 PLEASE OPEN YOUR HEARTS AND HELP RAISE FUNDS FOR CHAYSE raising awareness for COLA41 gene mutation (Rare disease) this has been testing, stressful and sometimes a physical and mental struggle. Chayse has been through more hurdles then anyone I know. it has been hard as a family and we are asking you all to help raise funds to help Chayse with equipment, therapies and mobility, communication and inclusion, so she can have access to these items that are costly, ...expensive and often delayed, which leads to slower development, physical and mental strain on our family. Chayse was premature (1.2kgs) suffered stroke in the womb and has grey matter on the brain. Has had her fair share of hospital stays for her seizure disorder, microcephaly, cerebral palsy, 2 cataract removal surgeries. teeth extractions, calf lengthening in both calf to help her flatten her feet, ketogenic diet for a week. she is now being monitored for possible hip displacement due to not being able to walk. There is also increased chance of future kidney and liver issues and it is unknown how her 4 anti seizure medication will affect her in the future. Despite all the hurdles, I would not change her. she is determined to walk and talk and be like her amazing big brother Jax. she has changed our lives for the better and She projects pure love. thankyou for the love, support and generosity. we are grateful. See more