Scleroderma Australia in Fitzroy North | Community

Scleroderma Australia

Locality: Fitzroy North

Phone: +61 2 9990 5159

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25.01.2022 The Lung Foundation Australia are holding a great webinar on Nov 16 - #RegisterNow http://ow.ly/M6pO50C8CBK

23.01.2022 Scleroderma Victoria are running their last online session in this round on Saturday Sept 19. Barb Gemmell will be speaking on Scleroderma and Wound Care! Make sure you dont miss out! https://www.sclerodermaaustralia.com.au/online-support-gro/ #Scleroderma #WoundCare #SupportGroups #RegisterNow

22.01.2022 Did you know that our publications are available on our website? Scleroderma QLD are running an online event to talk about the new brochure on Understanding Scleroderma and the NDIS. Register now! #Scleroderma #NDIS http://ow.ly/ONI850B24bc

22.01.2022 Did you know that Scleroderma Victoria supports people with #Scleroderma in Tasmania? This Saturday we have Emma Bavage from Royal Hobart Hospital talking online! #RegisterNow #SupportGroups #Fatigue&Scleroderma https://www.sclerodermaaustralia.com.au/online-support-gro/

22.01.2022 Grab a cuppa and sit back and relax for this webinar from Arthritis & Osteoporosis WA on #Scleroderma. Dr Janet Roddy who is part of ASIG provides a great overview of the complexities of Scleroderma https://www.arthritiswa.org.au/video/scleroderma/

22.01.2022 Our President Amanda Lawrie-Jones is heading in to hospital for an operation and will be raising funds for Scleroderma. Operation President - Shave it for Scleroderma provided the opportunity for Amanda to donate 50% of the funds to Scleroderma Australia and 50% to Scleroderma Victoria. Amanda is also the President of Scleroderma Victoria, and her video explains the difference between how the States and Australia operate, emphasizing that your State Association is just as im...portant as our National one. Hope to have you on board for this great opportunity to raise much needed funds and awareness! #ShaveItForScleroderma #OperationPresident #SclerodermaAwareness #GiveNow https://www.mycause.com.au//operation-president-shave-it-f

21.01.2022 The physical world congress for Systemic Sclerosis (Scleroderma) was unable to be held with the Corona Virus running amok. So we now have access to the E-Congress. Pop on the link register, lots of topic calcinosis, PAH, Fatigue (one the most frustrating problems) etc. This is a free resource. Some sessions are available in different languages, mainly English. :)

21.01.2022 This weeks guest speaker is Sue Leake, BSocWk. Sue is a qualified Social Worker with numerous years of experience in a variety of settings and roles including direct service, community development, case supervision and program management. Sue will be discussing My Aged Care, the Australian Governments starting point on your aged care journey. This session will help you find and access the government-funded services you need. #Scleroderma #SupportGroups #MyAgedCare #RegisterNow https://www.eventbrite.com.au/e/116376787103 NB: Scleroderma Victoria also supports people in Tasmania, South Australia and Western Australia.

20.01.2022 You still have time to register for Scleroderma Victoria Inc s last online support group session with Barb Gemmell. She will talking about the all to common Scleroderma and Wound Care. #WoundCare #Scleroderma #SupportGroups https://www.sclerodermaaustralia.com.au/online-support-gro/

20.01.2022 Scleroderma is the most complex of the Rheumatolgical conditions. Systemic Scleroderma has long been defined as Diffuse or Limited, but with recent painstaking research the classfications have been broadened. Blood antibodies can now be considered indicators of various complications. Australian Scleroderma Interest Group [ASIG] has been active in this research for over 12 years. That blood we donate for research, this is the outcome. Hats off.

19.01.2022 There are many hard decisions with a chronic illness. But I think the question of continuing to keep working is very difficult. Lots of soul searching. Very insightful.

19.01.2022 Did you know Scleroderma Australias website has a Glossary of Medical Terms? You can view this on our footer to ensure you have all the right information! #Scleroderma #SupportUs #Glossary https://www.sclerodermaaustralia.com.au/glossary/

18.01.2022 Our new publication of Understanding Scleroderma and the NDIS will be up on our website soon! In the mean time, you can join Scleroderma Victorias Online Support Group Session on Saturday August 1 to learn more! https://www.eventbrite.com.au/e/113730047634

18.01.2022 The Scleroderma Victoria Online Support Group Session - Week 3 is on Saturday August 1st. The target audience for this group is people with scleroderma under the age of 65. An informative morning of 1.5 hours of getting to know other people with scleroderma, learning about the NDIS and a fun activity! There is still time to book a ticket. Free for Victorian members or $5 for non members. Details on the notice re Week 3. Dont forget Scleroderma Victorias Family & Friends discount offer. For a limited time only if you know someone who is a current member you will receive a 12 month membership for $15. Bargain.

17.01.2022 Diagnosis for scleroderma can be a long and invasive process. Looking closely at nail fold capillaries being part of this process. No invasive, a plus. Good article re the benefits. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4918046/

17.01.2022 Thank you to Amanda - our President for raising much needed funds and awareness for #Scleroderma! See her donation page for 'Operation President - Shave it for Scleroderma' http://ow.ly/F4Ya50C8C3M

16.01.2022 Scleroderma Australia are committed to supporting people with scleroderma right across our country. Keep an eye on upcoming Support Group meetings - including Scleroderma Victorias online sessions. #Scleroderma #SupportGroups https://www.sclerodermaaustralia.com.au/online-support-/udy Browning badge icon Author... OHM. OHM. The art of ZEN. The image being on a mountain top, eyes closed, lotus position, Ohming. The Buddhist meditation practice is over 1,500 years old, but modern science says it has very real mental and physical health benefits. So this Saturday morning 10.30 to 12md Scleroderma Victoria is conducting with Su Jardine form Soul Philosophy, Stress Management. Given the interesting times very pertinent. Free Victorian memberships/ $6.36 if not. Book now. OHM. Click on link to book ticket(s). https://www.eventbrite.com.au/e/113730103802 See more

16.01.2022 Scleroderma Victoria's 40th Annual General Meeting - Saturday Nov 21, 2020. #RegisterNow https://www.eventbrite.com.au/e/123431004457

15.01.2022 What maketh the mask? Lots of things material, home made., treated fibres, commercial mask and the ARCC our friends in the Hunter Valley. Just an alternative. Only one size, l waer child glasses frames wont protect me. https://www.autoimmune.org.au/product-tag/deluxe-face-mask/

15.01.2022 If you are a person with scleroderma and you experience related gastrointestinal symptoms such as bloating, cramping, nausea, vomiting, regurgitation, diarrhea, constipation etc., you may be interested in participating in this research study. Find our more on our website. #Scleroderma #Research https://www.sclerodermaaustralia.com.au/scleroderma-foodan/

14.01.2022 Our sessions are excellent well worth the time. This weeks guest speaker is Sue Leake, BSocWk. Sue is a qualified Social Worker with numerous years of experience in a variety of settings and roles including direct service, community development, case supervision and program management. Sue will be discussing My Aged Care, the Australian Governments starting point on your aged care journey. This session will help you find and access the government-funded services you need. See more

13.01.2022 The estimate of scleroderma cases in Australia is 6,000 with Victoria having approximately 2,000 people with scleroderma. Yet Scleroderma Victoria only has just over 300 members. They also support South Australia, Tasmania and Western Australia. Joining your State organisation helps boost representation in numbers assisting with increased awareness and important support for Grant applications. A tangible gift with love. Become a member today! #Scleroderma #SupportUs http://sclerodermavictoria.com.au/membership-application/

13.01.2022 September is Pulmonary Fibrosis Awareness Month! Stay tuned for our newest brochure on Lung Function Tests! #Scleroderma #PulmonaryFibrosis @LungFoundationAustralia https://lungfoundation.com.au/

12.01.2022 Scleroderma Victoria have a great online event coming up! Due to COVID and restrictions surrounding Indoor Events, we have decided that we are going to host a Virtual Shave. Purchase a Live Ticket to the Virtual Shave to raise awareness and funds for Scleroderma Victoria. Michael has been growing his beard from January 2019 and it is well overdue to come off. Get behind him and purchase a ticket to watch the beard come off! #GetBehindTheBeard #Scleroderma #CleanSkin #RegisterNow https://www.eventbrite.com.au/e/123964225335

11.01.2022 Scleroderma Queensland are running an online event for their members in Queensland and NT on Scleroderma and the NDIS. REGISTER NOW! #Scleroderma #NDIS https://www.eventbrite.com.au/e/117356138369

11.01.2022 The article seems to be analyzing gastroparesis as a primary condition. Our experience being as secondary to scleroderma. Similar to Sjogrens also secondary. What inconveniences does gastroparesis affect you??

11.01.2022 Scleroderma Victoria have their next Virtual Education Session coming up on Nov 14! Sam Gemmell will be speaking on #Scleroderma and Gut health. #BookNow #Scleroderma #SupportGroup #EducationSession https://www.eventbrite.com.au/e/125127988181

10.01.2022 The well-known Scleroderma specialist Dr Wendy Stevens will be at Scleroderma Victorias Online Support Group session tomorrow! #RegisterNow #Scleroderma #SupportGroups

09.01.2022 There are various messages re the wearing of masks in public, places where maintaining physical distancing is difficult ie supermarket, shopping malls public transport. But there is techniques of wearing effectively and taking off safely.

09.01.2022 Several questions regarding food, tolerance, whats the best for our circumstances have been fielded recently. This Webinar was videoed on the 24 April 2020 via Scleroderma Canada. Sit with a hot cuppa, special treat.

09.01.2022 Your State Association needs your support - reach out today and find out more so we can help us help you! #GetSupport #Scleroderma #SclerodermaQLD #SclerodermaVic #SclerodermaNSW https://www.sclerodermaaustralia.com.au/get-support/

07.01.2022 Rectogesic, a cream used for anal fissures, hemorrhoids, and can be used for Raynauds fingers and toes. But although this can be brought over the counter with Pharmacist input, BUT in our situations some of the medications we take for Pulmonary Artery Hypertension Are contraindicated. Check this out with you GP or Rhuematologist. https://www.medicines.org.uk/emc/product/3933/smpc

07.01.2022 We are pleased to have our ASIG (Australian Scleroderma Interest Group) medical professionals assisting us in updating our current Publications. #Scleroderma #Publications #GreatResources http://ow.ly/PhiA50Bj7KR

07.01.2022 Scleroderma Victoria had the pleasure of having Dr Lim at their Seminar in November 2019. Highly informative.

06.01.2022 Victorias lockdown continues, all for the greater good. To restrain this virus. Missing our support from our communities, Victoria Committee members Amanda and Lousie will present 5 further Saturday morning virtual get togethers. Great, informative fun. Free members 5.00 nonmembers.

06.01.2022 Well done to Scleroderma Victoria with todays online support group session in going through the new online brochure of Understanding Scleroderma & the NDIS. This resource is now available on our website. #NDIS #Scleroderma #SupportGroups https://www.sclerodermaaustralia.com.au/publications/

06.01.2022 Gastrointestinal involvement in scleroderma is not uncommon and along with Raynauds is often the among the first signs and symptoms of scleroderma. Dietary intolerances are reported by many, changing over time. From having none, I now have quite a few making life challenging. Commencing a FodMAP dietary plan with a dieticians guidance has helped immensely.

06.01.2022 Scleroderma Australia is run solely by volunteers! Help us out where you can - make contact with us today! #Scleroderma #SupportUs #WeNeedYourHelp https://www.sclerodermaaustralia.com.au/contact-us/

06.01.2022 You still have time to register for the Scleroderma Victoria online session tomorrow with Emma Bavage from Royal Hobart Hospital! #Fatigue #Scleroderma #SupportGoup #Tasmania #Hobart https://www.sclerodermaaustralia.com.au/online-support-gro/

05.01.2022 September is Pulmonary Fibrosis Awareness Month and here is Scleroderma Australias new Lung Function Testing and Scleroderma Brochure. Lung Foundation Australia https://www.sclerodermaaustralia.com.au/publications/ #Scleroderma #PFAwareness #LungFoundationAustralia

05.01.2022 With the launch of some of our new publications, Scleroderma Queensland are running an online event for their members on Scleroderma and the NDIS. REGISTER NOW! #Scleroderma #NDIS https://www.sclerodermaaustralia.com.au/news-events/

05.01.2022 https://www.psychologytoday.com//how-cope-brain-fog-when-y Brain Fog, wandering around Bewildered and Bamboozled.

05.01.2022 Scleroderma Victoria are continuing to run their Online Support Group Sessions - Sept 12 we have Emma Bavage from the Royal Hobart Hospital talking on Scleroderma and Fatigue. #Scleroderma #Tasmania #SupportGroups #Fatigue http://ow.ly/n8Mz50BiMDe

04.01.2022 Amanda Lawrie-Jones is the President of both @Scleroderma Australia and Scleroderma Victoria and to raise much needed funds she decided to do a fundraiser before her important surgery tomorrow! See her shave her locks off - Operation President - Shave it for Scleroderma #OperationPresident #Scleroderma #ShaveItForScleroderma https://youtu.be/dXNCiwqQAmY

03.01.2022 Scleroderma Victoria have their week 5 Online Support Group Session coming up! Saturday Aug 15 come along to see Dr Wendy Stevens present on Covid Safety and Scleroderma. #CovidSafety #Scleroderma #SupportGroups Register Now: https://www.sclerodermaaustralia.com.au/online-support-gro/

01.01.2022 Scleroderma Queensland's Sunshine Coast Support Group are hosting a casual Picnic In The Park with others who understand what you may be experiencing. Come along for an informative supportive friendly get together. Looking forward to seeing you there. http://ow.ly/pZcS50C8C8c

01.01.2022 Thank you to our President - Amanda Lawrie-Jones for raising much needed funds for #Scleroderma. Her 'Operation President - Shave it for Scleroderma' raised more than $7500. You can see her shave on Victoria's YouTube Channel. http://ow.ly/BMNu50CsXsz

01.01.2022 Scleroderma Victoria supports people in South Australia - come along to the Virtual Education Session on Nov 14 to meet your local SA representative! #Scleroderma #SupportGroup http://ow.ly/iDSS50C8Ct1